Doctor Confusion: What you Doctor says/What your Doctor means

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  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited September 2012

    Dakota212 - that was me for years. Give me the first appt of the day, or the last one in the afternoon.

    But now that I'm retired, I make sure to tell the appt clerks that I can come any time, and to leave those coveted spots for working people.

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  • Dakota212
    Dakota212 Member Posts: 1,153
    edited September 2012

    Blessings-



    I don't mind but with the bc taking so much time off is tough. It was nice to have the time for the kids but once sugery comes I will use it all !! I will have to start taking tone off without pay do thanks for saying that for ur appointments it truly helps 😄😄

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  • bedo
    bedo Member Posts: 1,866
    edited September 2012

    When the radiologist says while removing your lump to send to the lab..

    "Oh, I know this is cancer, this is just a garden variety cancer, all people with this kind get chemotherapy"

                                                   What she really means is.......

    "I'm a dumba$$ with no social skills, that's why I went into Radiology.  I have no idea what kind of cancer this is because the pathology hasn't come back, and I don't know what your treatment will be, but I want to play Real Doctor for a day, so please let me""

    When you ask why are you telling me this and she says

    "Because I want you to start beginning to cope with the reality of your disease"

                               what she really means is.....

    "I'm a dumba$$ with no social skills etc etc etc and am also too dense to realize that your next appt and biopsy results are 2 weeks away with your Real Surgeon and Real Oncologist so I give no thought to you pondering this misinformation alone while you wait.  Come on,now let me play Social Worker"

    When you get mad and she says...

     "You are really having an inappropriate reaction to all this"

                                  She really means....

    "I am really an inappropriate dumba$$ with no social skills etc etc. ..........and that's why I went into Radiology.

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited September 2012

    BeDO.....I'm seriously laughing right now.  HAHAHAHAHAAA!!!  I love it.

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  • Binney4
    Binney4 Member Posts: 8,609
    edited September 2012

    Ladies, seriously, could we get the moderators to move this thread to the "humor" board? Those of us here with LE have enough trouble getting good care for this "dirty little secret" of breast cancer, without dwelling on any extra bitterness, even if it's funny.

    What we need here is constant encouragement to keep on working at getting the LE care we need. Educated doctors. Careful and respectful nurses. Well-trained therapists. And a public that's aware enough of LE to give us a smile instead of those suspicious stares. This is especially difficult because we're all tired of being sick and incapacitated, and we feel like we don't have the energy to fight this battle. No, we should not have to do the educating, but realistically it's not going to happen unless we can stand together and make a difference.

    Please, let's work together to educate and support our healthcare providers, because without our patience and our insistence on good care from them they aren't going to learn what it is we're going through and how they can help us. We've all had one or another unfortunate experience with this rotten BC journey, but we've all also had some great ones. Let's build on those and leave the LE boards for fighting LE.

    Thanks, and group hug!
    Binney

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited September 2012

    What the dr said...Dr #1 said you have pre cancer or pre pre cancer dont worry...what he really meant here comes a jerk who will believe everything i say.....I had stage 2.jerkoff....

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  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited September 2012

    Thanks, Binney!

    Dawn

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  • carol57
    carol57 Member Posts: 3,567
    edited September 2012

    Well said, Binney.  What might have been intended to be light humor has become almost vicious. I posted here, too, so not above complaining about what was said, or not said regarding LE risk.  But I regret where this thread has gone.  A lot of BC patients are left on their own to figure out LE, and as we all know, that sends people to the Internet looking for help. Newbies pop into our LE threads every day, and if someone wondering about LE symptoms happened to pick this one to do some reading, well,  I'd hate to think of the impression they would get.  We're usually such a compassionate group here, but that's not the direction this thread has gone.  Frustration is understandable, and so is anger. What's that saying--don't get mad, get even?  Well, we 'get even' every day, by offering each other help and encouragement, and by doing what we can to get better LE information into the hands of our caregivers.   

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  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited September 2012

    I am so sorry - I didn't mean to offend anyone...I really feel bad now..

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  • Binney4
    Binney4 Member Posts: 8,609
    edited September 2012
    Gma, no offense! This thread just needed a new home, and now it has one! (Thanks, Mods!) All good!
    Big hug, Gma!
    Binney
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  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited September 2012

    I am finding my surgeon - who is a great man and surgeon is just ignorant about Lymphedema so he says things that takes him off the hook..

    Says: I'm glad you are seeing your PCP, if he needs me to check out your arm, have him call me.

    Meant: I really have no clue about LE and maybe your PCP can help you... 

    I do get frustrated because my docs can't just say, "I have no clue, lets find someone that can help"... I'm sure the right doc is out there, just not in Roseburg... I have got feelers out for someone that knows LE but probably 1.5 - 3.5 hour drive to find them Undecided 

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  • Kay_G
    Kay_G Member Posts: 3,345
    edited September 2012

    GMA, don't feel alone with that concern.  I go to the one of the best hospitals in Phila.  Theya re the ones that set up the PAL program (physical activity for lymphedema), but my doctors are very uninformed about LE.  My BS told me before my surgery that she didn't have any patients who developed LE.  I know that is untrue because I met several of her patients in LE therapy.  I do think she really believed it though.  She also told me I wouldn't get LE because I am not obese.  She was wrong about that too.  I know she meant well, and was trying to keep me from being concerned, but they really should give better information out to patients so they can take precautions and be informed as to what to do if problems develop.  That being said, I do believe they have recently changed the policies and the LE therapy gets information out to all the new patients in the breast cancer center.  So change is coming.  I assume that it will take a while to get from the university settings to the community hospitals, but hopefully it will get everywhere sooner rather than later.

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited September 2012

    Gma....you better not feel bad!! I've been laughing my butt off!! And now I've got a purpose....I'll be watching what the docs say on a whole new level! And, instead of being frustrated, I get to find humor. I'm really glad they put this thread on the humor threads....its where it belongs! Now everyone can find it.



    When someone says: this doesn't belong here...

    They mean: girl, this shtuff is funny! Place it where we can all find a place to laugh!



    Big hugs sweetie.

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  • gale1525
    gale1525 Member Posts: 232
    edited September 2012

    When told  I had cancer, the doctor said well it is ILC, at least if you were going to have cancer at least it's a good one.

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited September 2012

    The dr.said those exact words to my DD#1 with throid cancer...what he was really thinkin was...This sucker is gonna have problems for the rest of her life.....and she does...thanks doc.FU too.

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  • sagina
    sagina Member Posts: 1,219
    edited September 2012

    GMA I found you!!!!!!!!!! Adding to my favs. 

     by the way, I came for the cancer and I'm staying for the laughs!!!!!!!!!! 

    miss you guys, sorry I haven't checked in more often.  A quick fav of  mine is when they look at me and say, "the gown is one size fits all" and I always answer "who, small?" Nothing like having to walk from the dressing room to the radiation room clutching the paper gown to keep the one and half from spilling out!

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  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited September 2012

    Hi Gina!!!

    I am also on "GRRRRRRR.....I hate LE" topic... I found out in June I have mild truncal LE that has now progressed to my upper arms - my good side is now involved in some way and not sure why... it just is - going to talk to PCP today about it..  

    As far as the gown - when I go to the surgeons office they give you this poncho???? with open sides - it is so short when I stand up my boobs fall out the bottom and you can see everything from the side... totally useless,  for me anyway. LOL

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited September 2012

    Nurse says "here's your gown"

    Translation: For entertainment purposes only. Must be 18 or over. Being medicated is recommended.

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited September 2012

    Nurse says "here's your gown"

    Translation: For entertainment purposes only. Must be 18 or over. Being medicated is recommended.

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  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited September 2012

    Fuzzy Lemon - THANK YOU! for making me smile !

    You mean for ladies like this??? I do feel like this sometimes.....

    women gown 

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  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited September 2012

    A new on - ER doc last night didn't even touch me but peeked at the hole that was leaking in my scar and said, "Let it leak" and discharged me... I think he looked at my allergies to antibiotics again and my LE bracklet - then thought, I don't want to touch this one. she will be good until tomorrow when she can see her doc.. 

    I do know though that the release of all that fluid can only be good, so I understand that stopping it up would not be a good thing. 

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  • Cindyl
    Cindyl Member Posts: 1,194
    edited September 2012

    Hate to think what that "peek" costs... I am so afraid to go to the ER as our insurance doesn't cover the first $600 at the ER and it doesn't apply to your deductable or OPM. 

     I woke up with hideous heartburn last night and though for a moment that I was having a heart attack.  Thank heavens a Zantac cleared it up.

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  • sagina
    sagina Member Posts: 1,219
    edited September 2012

    Cindy do you have a "minor" emergency clinic in your area? We have a few that are open 24 hours.  I just read in the paper though that stand alone emergency rooms are popping up.  People think they are emergency clinics then get billed for an ER visit.

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