CALLING ALL STAGE I SISTERS

If you don't remember anything else Dakota, remember the pillow! Trust us on this one. :-)

In addition to the ACS most hospitals and/or health systems have breast cancer navigation programs.  Sometimes it's just one nurse, but it's often a team of people.  If navigation services weren't offered through your breast surgeon's office you might inquire.  There might be a wealth of help out there that's available to you.  The navigation team is a great place to turn when you have any sort of question or problem. 

Hi !!  I'm new to this site (and all of this really).  Just had double mast. almost 2 weeks ago.  Had TE put in.  Now my nipple (on side with cancer) is scabbing/bleeding and looking nasty.  You think I'm gonna lost it? 

Kim

I love to hear these stories of beautiful tattoos, but I must ask - are any of you not concerned about lymphedema  ?

  ( btw, I believe I have breast LE)

Kim556644 - I'm glad you were able to have nipple-sparing surgery.  It's not unusual for the nipple to look pretty scary as it's healing.  Definitely keep an eye on it, but don't panic yet!

You might find it helpful to check in on the Nipple-Sparing with Immediate Reconstruction thread.  The title is a little misleading, but there is a mix of both women who are going the TE route (reconstruction started immediately after MX by having the TEs put in) as well as some who have had direct-to-implant surgery.  Lots of nipple talk over there  .

Best wishes!

No, cottontail I was referring to ppl who get the tatts near the breast area.

I dont know that you would hear more about it if it were an issue.  Nobody told me I could get breast LE  3 weeks after a simple LE with no radiation!  Its not about infection

NEEDLES  pose a high risk for LE  Thats all I am stating. Nipple tatts may be worth the risk, but knowing what I know now , I would never chance  a pretty rose or butterfly on/ near my breast.  LE is a pain and  can lead to celliulits which can risk your life.

Purple, I understand what you're saying, I was just posting what my PT told me. She went on and on about avoiding infection in the affected arm. She was very specific.



I will say that I have some concern, as I have a ganglion cyst on my left wrist (the bad side). If it ever becomes painful, having it removed would pose a LE risk. But I suppose I will worry about that if/when it happens.

Interesting.  Yesterday had an annual eye exam and let the Dr know I'd had BC since the prior exam last year.  She asked which kind.  When told her BC, she was emphatic that it was good to have them checked.  Between regular and dilation exam, all was well.

Never would have thought about the eyes, other than glasses.  Which thankfully, the Rx hasn't changed.  First time in years for that!

RE:  EYE exam...I believe it is due to the tamoxifen.  can cause cataracts.

I never heard eyes were a place for BC mets and I have to wonder if thta is accurate ...yep, even if said by a DR.  Could be wrong...google away!

It IS a place of concern for those on tamoxifen though, as a SE , not as mets.

Justegan -



Good luck today!!

Dakota,



Thanks so much! I'll let you know how it goes when I get back to my apt

Well that just suks!!!!!!

just 1 more s/e from bc....and all the crap we put in our body...

Why dont these damn drs.know????and if they do(which i believe they dont) why the hell dont they tell us?????

All they say is the good outweighs the bad....bullshit!!!!

I agree granny my eyes seem to just keep going down.  Gotta love it

NOT!!!

Love all of you ladies though and hope you all have a great week.. my work week starts again tonight after one day off I've got 5 on.  Usually I have 2 off but we are working with one less person right now.  Hopefully they'll get someone soon.  In the mean time extra money is o.k by me.