Posterior triangle lymph node + recurrent Mondor's Disease

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nita1027
nita1027 Member Posts: 26
edited June 2014 in Not Diagnosed With a Recurrence or Metastases but Concerned

It's me again, Margaret...

I'm in need of some encouragement while I wait for an onc appointment to get a hard nonmovable posterior triangle lymph node checked out.  Just one node "acting up" that's been there getting a little larger since mid July.  Wondering who among us has had this and what their outcome was?

First bout of Mondor's disease began in April, new "flare" or recurrence at the beginning of August.  

Would love to hear your thoughts about both of these...

Thanks ya'll,

Nita

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  • bevin
    bevin Member Posts: 1,902
    edited September 2012

    Hi, I just saw your post and I can't offer any help, but wanted to bump this back up in case someone can comment and provide any insight. I never heard of mondors disease. 

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  • Aruba
    Aruba Member Posts: 543
    edited September 2012

     Thought I would jump in...Had lumpctomy on 7/20, uneventful with SNB..1 node clear.  About 2 weeks later I felt strange pain/pressure on side of lumpectomy breast but no where near incision at 12:00 or near SNB incision.  I could feel what felt like a rope going down side of breast..in two spots..like two ropes. When I raised my arms to look in mirror noticed a dent like look running down outside of breast.  Started doing research and found this was Mondor's disease (like cording but in breast).  Went to BS following week and he confirmed.  He also confirmed that warmth and advil could help but pain should resolve within several weeks (it did mostly) but the ropes can still be felt.   Not happy to hear this can reoccurr but this is the disease that seems to keep on giving.  Not much help here but don't see much on Mondors..what was your experience?

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  • nita1027
    nita1027 Member Posts: 26
    edited September 2012

    Aruba,

    My initial presentation of Mondor's was back in April.  I developed a cord along the right side of my chest approximately half way down my rib cage.  It didn't ascend to my breast until 2-3 weeks later.  Before it regressed I had two cords along my rib cage and intermittent pain down into my central pelvis.  By the end of June, maybe into the first week of July, I couldn't feel the cord anymore.  However, by late July, first week of August, it was back.  Now the cord has regressed again, but I can still occasionally feel twinges down in my pelvis in the same area as before.  I called my surgeon to see if it warranted an early mammo--I am 3 years out from lumpectomy on that side.  He said, no, and didn't seem concerned about it.  

    I have to confess I am a worrier and a googler...I know that it is rare that it can indicate progression of the disease. But, this is round two of clotting issues for me--I had pulmonary emboli back in 2010 (d/t Tamoxifen?  Maybe.  We don't know for sure--source of clots was never found).  This week I have a regular follow-up visit with my onc. and also am having a lymph node checked out.  The node has been there since July at least (that's when I noticed it) and is not showing any signs of going away.  I'll let you know what the doctor says after my visit on Thursday. 

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  • nita1027
    nita1027 Member Posts: 26
    edited September 2012

    I went to the oncologist this morning...he says the lymph node is too small to biopsy, but he also doesn't think that it's anything to worry about...said, "I think you've found a normal lymph node on a tender muscle."  The 3rd year resident who was with him said that lymph nodes don't present singly, that typically they show up in groups...that I would have them under my arms, in the supraclavicular region, etc.  Thought you all would like to know that you shouldn't worry about lymph nodes unless they show up in groups (she said snidely...).  The doctor did offer follow-up in four months or six months.  I told him regular 6 month visit was fine with me unless something changes.

    SN:  I really HATE all of the anxiety that rears its ugly head every time I find some new strangeness...I don't think I'm pathological yet, but I'm a lot closer than I used to be! 

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