Sept 2012 chemo

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  • DonnaD08
    DonnaD08 Member Posts: 128
    edited September 2012

    @runnergirl7. Glad you made it through your first treatment. I honestly think the anticipation is worse than the reality. I felt kinda bad the first couple of days, but after that I felt good for the rest of the cycle. Just tired more than anything else.

  • Amy4978
    Amy4978 Member Posts: 473
    edited September 2012

    I agree with Donna on this.. the anticpiation is horrible but once you do it you will know the unknown and it is more tolerable.

    BTW Donna I bought mine off ebay(wig) it was about 50.00 they have all sorts of cute ones! I even bought a few cute cadet style caps to wear with it! If I get it and really like it I will def buy more...

    And you are welcome we need all the positivity we can handle right about now... I always say if God leads you to it, he will get you through it!

     Have a great day Ladies I am off to take my baby girl to dance class..

  • jojo2373
    jojo2373 Member Posts: 662
    edited September 2012

    Ugh Donna you do have the advantage! I couldnt find anything that didnt look like "Barbie" hair for that price!

  • DonnaD08
    DonnaD08 Member Posts: 128
    edited September 2012

    @jojo2373 I wish I could upload pictures of some of my ladies...lol

  • DonnaD08
    DonnaD08 Member Posts: 128
    edited September 2012

    @Kstillie I think that is an awesome idea. Now's the time to do something with your hair that you never had the nerve to do before. Everyone has told me that a positive attitude goes such a long way toward a good recovery. You sound like you have a great one. Good luck with your first treatment sweetie. Let us know how it goes.

  • DonnaD08
    DonnaD08 Member Posts: 128
    edited September 2012

    Well I had a good visit with my onco today. He told me my bloodwork looked good and I'm ready to go for AC treat #3 on Tuesday. He confirmed that I'm a little anemic so I have to take iron supplements, he also said that coupled with chemo would explain my fatigue. Basically he just encouraged me to rest when I can. Haven't lost or gained any weight so that's good. My blood pressure is the best it's been in years. It's normally likev130/85 so I've not evervhadvto take meds or anything, butbtodaybit was 121/74. I just hope the fatigue doesn't get any worse. Otherwise I might be comatose for the rest of my journey..lol.

    BTW I signed up for Look Good Feel Better for Sept.24th. Sounds like fun!

  • cgesq
    cgesq Member Posts: 319
    edited September 2012

    Hi All,

    Had my first regimen of TCH today, and I have to say I'm feeling great.  I just hope this continues!!  It did take quite a while...I was at the infusion center for over 8 hrs.  Between the pre-meds (steriods, anti-nausea, benadryl and stomach liner) and the fact that they infused the chemo drugs slowly to watch for any adverse reactions, it took the entire day.  Better slow and cautious.

    They were able to access the port without a problem.  I would highly recommend getting the numbing creme, and asking for the freeze spray.  Between the 2 of them, the initial stick wasnt so bad  (I have to admit I was dreading that, especially since the port area is still sore, having just been put in last Thurs.)

    I also agree with all those who say that the anticipation is worse than the actual treatment.   My nerves and anxiety were killing me.  I also recommend taking xanax, at least for the first treatment.  It really takes the edge off the anxiety.  When I told the infusion nurse that I had taken xanax, she said she wished all first timers would take it!!   It makes a very stressful situation way more manageble, after all, that is what xanax is for!!.

     Kstillie, I love your shaving your hair and coloring it idea.  I used to have shoulder length blonde hair, and for the past year, I have dyed about a one inch wide portion behind my left ear blue--just because I like it!!  After my cancer diagnosis, I cut my hair short, so it wouldn't annoy me when I was recovering from my bmx, which was done in late July.  My only regret was that I no longer had my blue stripe.  Since I am told I am going to lose my hair, I had 2 wigs made, and asked the wig person for extra hair so that i could dye it blue and add it to the wigs.  (I actually showed her my old hair, which my hair cut person had rubber banded and given to me)  She thought I was crazy, but gave me the extra hair.  I plan on coloring them blue, but not with permanent dye, so that I can change the color to pink in Oct. for breast cancer awareness month.  Since I won't be washing the wigs daily, the dye doesn't have to be permanent!!

    Amy4978, what treatment regimen are you on?  We seem to have similar types of markers.

    Anyway, good luck to all.  We can do this.  I wish everyone who is starting soon a good day.  It really wasn't bad at all  :)

    Cheryl 

  • Cherioo
    Cherioo Member Posts: 305
    edited September 2012

    Donna, I am so glad that your appointment went well . Today, I had a horrible bought with constipation but think finally I am over it . Man, that knocked me out totally . I could not even leave the house to get my blood work done now I am just relaxing and thanking god this is over

  • cgesq
    cgesq Member Posts: 319
    edited September 2012

    Forgot to mention...

    Did the nail icing regimen, to prevent the harsh nail side effects from taxotere, and posted it on the "anyone icing their nails" thread, so if anyone is interested, check it out. 

  • nickythebean
    nickythebean Member Posts: 50
    edited September 2012

    Hi all! I'm new to the boards and had my second chemo this past Monday. I am getting Herceptin and Taxol every week, and Tykerb every day, for 12 weeks.



    Anybody else out there that is HER2 positive and starting these 3 meds this month?

  • Cherioo
    Cherioo Member Posts: 305
    edited September 2012

    Welcome Nicky , glad that you found this site like all of us

  • Amy4978
    Amy4978 Member Posts: 473
    edited September 2012
    new Jersery.. My Mo said I am young and other wise healthy so she is gonna hit me hard with a dense dose of AC 4 cycles 2 weeks apart then 12 weekly of Taxol along with herceptin followed by 5 fun years of tamoxafin! I have had my first chemo Sept 6th next one on the 19th..
  • Amy4978
    Amy4978 Member Posts: 473
    edited September 2012

    I wanted to update you all not sure If I did or not between updates on Fb and here I get lost sometimes. But My MRI came back and I am actually classified as a stage 3 Frown

    So my tumor dimensions are 7.9cm by 6cm by 3cm that translates to 3 inches by 2 inches by 1 inch

    Doesnt really matter to much to me cause Im still gonna kick cancers ass!

  • sherbab
    sherbab Member Posts: 106
    edited September 2012

    I had my first chemo on the 5th and get my port on Friday.  I feel really good and have been going to the office and running errands but I definitely have fatigue and do take more naps than ever.  Last night a group of 7 friends rented a limo for me and we went wig shopping.  Totally a fun yet surreal experience....my DH will go back with me this weekend to make sure the main one I picked is really for me but it was a nice way to celebrate the transition.  Also, thanks for the idea on eBay for those who mentioned that.  I would have never even thought about it for some reason but that will be a great place to look for me as well. 

    For those who have had your 2nd chemo or more did you feel similar to the first one aftward?  It has been weird to almost feel normal again but understand from others that chemo is 'cumulative' and you really feel worse after more treatments.  I am currently on AC every other week for 4 weeks and then will get into the weekly Taxol. 

     Amy - you go girl!  Attitude is so much of this process and yours sounds awesome!

    Donna - I also signed up for Look Good Feel Better but mine isn't until October 9th - I am really looking forward to it because I have heard so many good things! 

    Welcome Nicky!  You have found a group of very knowledgeable women, I just love coming here, I hope you enjoy it as well!

  • nickythebean
    nickythebean Member Posts: 50
    edited September 2012

    Oh my goodness Amy. Those are almost my exact same dimensions. I keep saying I have a Twinkie of cancer in my boob. Lol if you can laugh at it.



    My MRI also showed 4+ nodes involved. I had one node that was fine-needle aspirated at the time of my biopsy which was malignant, and they aren't even gonna check any of the others. I have to have them all removed at the time of my mastectomy anyway.



    No mets detected at this point, but I have two small spots on my lung they are watching (too small to biopsy), and they just found something on my pituitary gland that needs to be investigated further.



    I wonder how old all of you are. I turned 40 this year and have 5 children, 2,4,6,8,10. :)

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Donna great news you can continue on with round 3. I was wondering if after each AC your symptoms were the same or did it get worse with each one. I have only had 1 and get #2 on the 26th if bloodwork is good. I have had almost no SE so kinda wondering what to expect.

    I went to the Look Good Feel Better last Monday. It was fun we had a good group. You get a pretty nice makeup kit.



    Amy I love your attitude...I agree, kiss my a&$ cancer!!



    Nicky I am Her2+ but they aren't starting me on Herceptin until November....Gggrr,O I want to get it over with.





  • Cherioo
    Cherioo Member Posts: 305
    edited September 2012

    Amy , great attitude, yes you are kicking cancers ass!!!!! That is exactly how I feel

  • aliasismo
    aliasismo Member Posts: 16
    edited September 2012

    I survived my first chemo treatment, what a relief! The most traumatic part of the day was the 4 attempts to find a vein by 2 nurses. I guess I should have gotten a port, but it wasn't suggested to me. Oh well, only 3 treatments left. I'll ask for Xanax or Valium next time to help with the needle phobia!

    I ordered a wig today; I'm glad to have that taken care of! A salon owner in town is a cancer survivor and she sells wigs to cancer patients at her cost, styles and cuts them for free, and also washes them when they need it. It's her way of giving back. I'm looking forward to getting it - it's a different color and length than the hair I'll be losing; I decided it would be fun to change things up while I have the chance!

    So far the anticipation was WAY worse than the reality. I feel great; just a little tired. Hopefully I'll get through this without having to deal with nausea.

    We'll all get through this!

    Mo

  • Amy4978
    Amy4978 Member Posts: 473
    edited September 2012
    Aliasismo...Congrats 1 down. Hope your next few days are easy breezy!
  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited September 2012

    my ladiessss

    had a long day and no chemo...we have to wait on the PET scan before it...so i color my avatar blond.....does anyone feel short and out breath with their port

    feel like im not fighting this yet ewwwwwwwwwwwwww 

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited September 2012

    Aliasismo- One round down, just 3 more to go.  You might try hydrating/increase your fluid intake the day before your next round.  That may help plump up your veins so they are a little easier to access.  I have a port, and really need to have one since my veins just hide and bury themselves in my arms when they hear anyone, especially nurses get near!!!!  Glad you had an easy time in the chair.  Hopefully, you will have minimal side effects!!!

    Patriciahurtado- When I first got my port, I swear I could feel parts of it that I didn't think I would feel.  Eventually that feeling has gone away.  If you are unsure about what your feeling, just call and ask if you are supposed to feel what you are feeling.  Never hurts to ask.

    Make sure you ask for a prescription for the EMLA cream (lidocaine cream) so you can use it after the port area has healed.  At your first chemo, you may not be able to use the cream since the EMLA cream can't be used on newly sutured areas.  Again, just ask for some numbing spray or have the area iced if you can't use the cream.  If you got a generic EMLA cream prescription, it does not usually come with special Tagaderm coverings.  You can buy some Tagaderm coverings at CVS.  They are a little expensive (8 in a box for $9).  As an alternative, you can place a 4 inch by 4 inch square of plastic wrap or Press N Seal plastic wrap over the circle of EMLA cream.  Just make sure you don't touch that EMLA cream as tempting as it is to use one of your fingers to spread it around on the port area.  You will end up with a numb finger !!!!

    Ladies- Wonderful to hear so many of you are getting yourselves prepped and ready to go for your trips through chemoland.  Yes, the American Cancer Society does offer the Look Good Feel Good program.  I had a one on one session during my first chemo.  I received a free makeup bag filled with great cosmetics plus a free wig.  I haven't worn my wig since it has been way too hot to wear it. 

    Wishing easy times in the BGC for those starting chemo this week and minimal side effects to all!!!!Cool  

  • Foreverchanged72612
    Foreverchanged72612 Member Posts: 223
    edited September 2012

    Nicky: I am HER2+ as well. I had my first treatment this past Monday. I am having weekly treatments of Taxol and Herceptin for 12 weeks but not that third drug you mentioned. Then I'll have FEC and Herceptin.  And only after that will I have surgery. Scared that the tumour is still in me but looking forward to watching the thing shrink!!! We seem to have similar diagnosis - I am stage 3, too. I turned 38 this year...my kids are 7, 4 and 16 months.

     Day 3 after my first treatment and still feeling good.

  • jojo2373
    jojo2373 Member Posts: 662
    edited September 2012

    Such great hope and spirit here - I LOVE IT!  Welcome to all that have found us.

    The hair loss has begun - not in clumps just a ton a stray hairs EVERYWHERE. 

     I am going for #2 AC tomorrow so will update all on how #2 goes for me. 

    Looking into the Look Good Feel Better - there is one I can got to on Sept 24.  Just waiting to see if I can get in. 

    Amy - you go girl!  You don't have any node involvement though?   

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited September 2012
    MOVINONMOM: i felt the same way about dealing with letting coworkers and family know about what we have...it was very painful for me and specially to let my parents know about it...mom just arrived yesterday from colorado and she cried so hard....i just held her and told her that its going to be alrigh..yet i still have my father to see his out in Peru and knows about it but not seem me since my diagnost..and he cries every time we speak.....So it was hardest part for me too....i stayed strong for everyone...im glad that u have great support from your job which helps out alot....i hope that chemoland was smooth for you and remember WE ARE DOING IT!!!! Cool
  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited September 2012

    Melrose is right add prone or also prone juice your constipation also metamucil is great but always remember run it through your onco...and lots of water.......

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited September 2012

    Melrose:    is right add prone or also prone juice your constipation also metamucil is great but always remember run it through your onco...and lots of water.......

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited September 2012

    Runnergirl: im glad that everything is going smooth im trying to get caught up with everyone here ...i lived in Colorado Sprigngs but i love the sun im here in Miami...my mom just arrived from colorado yesterday....i hope that you continue to feel better!!!

  • whenlifegivesyoulemons
    whenlifegivesyoulemons Member Posts: 184
    edited September 2012

    Anyone found a silver lining in all of this? Here's one: if I'm gonna wear a wig for 6+ months what better time to start chemo than Sept? wigs in 90 degree heat would make this horrific experience that much harder.

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited September 2012

    Amy4978...i love the smoothie  that you have posted ..i will try it  i usually Juice every more with the ingridients but i add 1/2 beats to it and ginger ..so ill stop the ginger...how you tryied wheatgrass i heard that boost your immune system but it cannot be mix with anything so i feel like a cow drinking it....lol.... Teens are hard to figure them out and even though the mom is not in the picture and im sure he must be scare to think that he might lose his other mom (I have 2 stepkids too dont live with me but and have questions).....my daughter thought that i was already dying with this diagnost but they need to research and we also have to make we resure them and show them we can fight this and we will win......as many of us ladies here have done....

    i just wanted to share with you ladies that Kale  also known as borecole , is one of the healthiest vegetable on the palnet. Eating a diet rich in the powerful antioxidant vitaming K can reduce the overall risk of developing or dying from cancer....ladies please do your research...or maybe has anyone else have tried....

      

  • 301724
    301724 Member Posts: 478
    edited September 2012

    Hi all,

    Joining your group! With Oncotype DX in a 'gray' zone, have opted to move forward with four cycles of Taxol/Cyclophosphamide every 3 weeks. Starting next week. No port needed. Considering using cold caps. Anyone else try/use these?

    What should I be thinking about??????

    Hugs to all!

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