Triple Negative.. scared because of migrains...

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Yayme
Yayme Member Posts: 107
edited June 2014 in Mental Health: Because Cancer Doesn't Just Affect Your Breasts

Hi everyone...new to this board but take such encouragment for the many of your posts. I was recenlty diagnoses in June, with TNBC, stage 1, high grade, no nodes, BRCA1+. Had a BMX in July, current going through Chemo, A/C then Taxol. I have been gettng on again off again migrains over the last month. I had a Brain MRI in July, all clear, but I am scared because of course being triple negative was worried about brain METS already....I am almost scared to ask my DOC as he is not very warm and fuzzy and thinks I am very emotional over having TNBC and seems to I think poopoo me with my questions. I do have have an on/off relationship with migrains, but now more than ever, I am concerned. Anyone out there going through this fear....I am scared and hopeful at the same time...would love to hear some feedback....thanks ladies....Lisa

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  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited September 2012

    My oncologist said in 17 years, he'd never seen anybody relapse while undergoing adjuvent treatment.  So, I think you can probably relax.   The medications you are on may be exacerbating your migraines and the fact that you've had them before means it's nothing new.  You are also under stress and that can't be helping.  Speaking as a long-time migraine sufferer, I know what you are going through.

    Most women who get brain mets don't report migraine type headaches.   Their headaches are milder and they also have balance or other problems.  I think you are fine.

    But, what I think doesn't matter - it's what your doctor thinks that counts.  You need to bring these things up to him.  If you don't feel comfortable with him, go find somebody you do feel comfortable with.   

    I have mets and if I didn't feel comfortable telling my doctor about a backache several months in a row - and if he hadn't been willing to listen and test me - we wouldn't have found my liver mets.  Which had nothing to do with my back pain, it was just an accident.  So, you need to feel okay about telling your doctor stuff, and then trusting him to decide if it's important or not.

    Good luck, Lisa. 

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  • Yayme
    Yayme Member Posts: 107
    edited September 2012

    Thank you so much for your kind reply. I gess after all one reads about this disease, it is so hard to not panic...plus I am trying to dig myself out of a cancer depression. I again thank you.

    I did make an appointment to interview another Doctor as I am not truly confortable asking my current doctor anything. He feels that I am being to emotional about everything, although I may be with some things as I fee it is my right to be, that does not mean he should poo poo my concerns. I am stuck in the meantime until the meeting with the new Doctor to grin and bear it. I am now taking another person with me to my appointments because he seems to be less nasty answering my questions when there is some else in the room.

    Thanks agin for you kindness, I wish you continued well being.....Blessings....Lisa

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