I am not built for this.

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tanya01
tanya01 Member Posts: 74
The last few weeks have been more than a little rough for me. I have become pretty good at hiding it now. But today for some reason I feel like I need to write this. I feel like I am failing everyone around me including myself. I have never really been a weak minded person, nor have I been a person that gives up easy. I will always fight to help the ones I love... But I seem to fight harder for them then I do myself. I have never given up on anyone.. But I am quick to give up on myself... Why is that? Why do I feel like I can't win this fight? Never have I felt like I was not going to accomplish what I set out to do. This fight is ruining me and im letting it. How bad is that, I know this is destroying me and I just sit back and let it. I guess that is me giving up. My mind and body want to fight.... But my heart is just not in it anymore.

Yes, I know I so far have beaten cancer, and Yes I am grateful for that. But here is the hard part. I really have not beaten it until I am considered cured. That is 4 more years away. I have technically beaten it for just today and maybe tomorrow if I am lucky. It may never come back or it maybe inside me now and I just don't know it... Yes, I can hear all of you saying well you need to live for today, because that is all we have. Well easier said than done. I don't blame anyone for not understanding what I am feeling. I don't even understand it. I am so angry that I feel this way. I just don't how to stop it.

Part of me is jealous that I see everyone else moving on with their lives and I am stuck in the damn cancer rut. I know its my fault and I am the only one that can fix it.. the question is how. I know everyone has these great ideas.. but when you feel like there is nothing left how to you look forward to the future. I am sure you all can give me a lit of things that I have left and I know I could too. The point being I know i have things to live for and I should want to live for.. but what is the point if I no longer enjoy those things. The things that once made me smile and laugh no longer do that.. They make me cry and feel so lost.

Comments

  • BikerLee
    BikerLee Member Posts: 355
    edited September 2012

    oh man - sounds like you are really struggling right now.

    i have a few thoughts...

    one - are you in chemopause?  i ended up in permanent menopause because of the chemo, and i felt somewhat similarly to you...  i'm now on hormone replacement therapy, and i feel like i have found myself again.  i don't know if that is something you are dealing with or even if hormone replacement therapy might be an option for you, but it sure as hell made a huge difference for me.

    two - i think the vast majority of cancer patients go through this, but we don't really talk about it.  plus, so many around us put a lot of pressure on us to show a positive attitude.  suddenly, we are not allowed to simply have a cruddy day.  i find that i have a handful of friends who can just be my friends.  i get to complain and have crappy days with them...  as the cancer diagnosis goes further back into my past... i find that i am able to fly off the cancer radar, which i strongly prefer.  on the other hand, i will always have that... the cancer diagnosis.  it's now a part of who am i, whether i like it or not.  i don't, by the way, but you probably have already guessed that!

    three - like it or not, it takes quite some time for our bodies to recover from the rigors of treatment.  i am still not at 100%, and i'm an athlete that LOVES to race and ride hard with my buddies etc... i'm used to being FAST... and i'm almost fast... but sometimes, man, i just want to be FAST!!!!  

    four - people don't get it.  people... don't.... get... it...  not even close.  NONE of us is trained how to talk about serious illnesses like this... as a result, people say dumb stuff.  and sometimes, some well meaning person will set my brain back into cancer world... where it will stay for HOURS... it's not like they mean to.... but it happens.

    five - anxiety - i have really improved on this point.  i had such anxiety about recurrence... so, i did emotional freedom therapy (tapping).  i was soooo skeptical, but i figured i couldn't get any worse.  and, i got a whole lot better.  so, i actually recommend it, even though i'm still skeptical!!!

    and i could go on.

    i think my point is that you are not alone.

    you are not alone!!!!!

    and... by the way, i'm from minnesota as well!

  • BikerLee
    BikerLee Member Posts: 355
    edited September 2012

    ps - NONE of us is built for this... not a single one of us....

  • tanya01
    tanya01 Member Posts: 74
    edited September 2012

    Thank you so much for responding. I think being triple neg is driving me more crazy. I will be 31 in Jan and I feel like I have nothing left. I am aslo BRAC1 +. I dont have any kids and my boyfriend broke up with me. I am just hitting my year mark in Oct and I feel so lost. I dont have anyone to talk to. everyone thinks i should be better now that chemo is over. To be honest chemo was much easier than what I am going through now. I had a doubel mast. I did get my period back in April.  I have been seeing a counsler now for about 6 months. I feel like its not even helping.. I just want ot go in a room and scream and cry and punch things all the time. I am sao angry and so sad all of the time....

  • peggy_j
    peggy_j Member Posts: 1,700
    edited September 2012

    I'm sorry to hear you are going through this. I agree with BikerLee--unless someone has gone through cancer they really can't relate. Do you have other resources, like a peer support group or ?  I'm sorry to hear your counselor doesn't seem to be helping. Maybe another would be a better fit?

    FWIW, after I finished treatment I went through a whole second round of sadness, anger (etc) not to mention side effects from starting tamoxifen (including 6 weeks of really bad insomnia. No wonder I was in such a bad mood. No sleep for six weeks!). None of my family or friends could understand, and were telling me to be positive and put the experience behind me, etc. (my mom even suggested I "stop dwelling on it." ha!) The counselor helped me get through that tough time. I also briefly attended a support group. (some cancer support centers even have groups for young cancer patients). I continue to go to my Guided Imagery group (like meditation, for patients with different types of cancer) and that helps a ton. Even when I'm not necessarily having a bad day, it feels good to be surrounded by my tribe.

    p.s. there's nothing wrong with punching a pillow. Good way to get rid of some of that anger. My counselor also suggested keeping a journal to get some of those thoughts and feelings down on paper. Maybe something to try???

  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited September 2012

    Scream and punch and kick and scream some more.  You have every right to feel mad and sad.

    I have moments of feeling utterly ripped off.  I let them run their course, and then I move on.

    I found that writing my feelings and fears down helped.  So did coming on here.

    It will pass, and before you know it, a year will have past.

    I havnt been on here for a while but after by recurrence, I was a slobbering mess - on here every other minute.  But as the days, weeks and mnths past so too did the fear, anger and anxiety.

    I wish you ease and peace in abundance.  Sending you cyber hugs from New Zealand

  • BikerLee
    BikerLee Member Posts: 355
    edited September 2012

    i totally get what you're saying.

    kf - i feel ripped off as well!

    i mean, i was in good racing form and WHAM - here's some chemo for you....  oh, and say goodbye to your natural hormones...  

    i'm younger as well - not young... but young for breast cancer.  i've been going to a young breast cancer survivors group - it's good... we have a little kid, and i identify a lot more with women on the younger side than the older side because of that and also becuase i'm an athlete and heavy into my career....

    i'm sure the break up is not helping either. that's tough, to have a break up when you're already feeling kind of low...

    third thursdays - there is a young breast cancer survivors support group near the u of mn campus.  i can give you more deets, if you are interested.  i have really benefited by going. it was a relief to meet other people feeling somewhat as i did... and sometimes still do.

    right now, i seem to just feel stressed out.  partly because i've started putting stuff back on my plate again...  stuff that involves some ambition and planning...  and it's stressing me out because i haven't done much of that since the diagnosis of just over one year ago. another part of that is that i feel myself approaching fast as a biker... and it's just so tantalizingly close... and yet i wonder if i'll actually get back to fast.  i love riding hard with my buddies. i love racing hard. i love it so... and i'd like that back. another piece of it is people around me always asking questions - so, are you cancer free now?  well, i hope so, but i'd rather not talk about it...  i just want to fly off the cancer radar.  i want people to stop asking me questions all the time. i want people to just see me as lee.  on the other hand, i'll never be the same as i was before cancer.  that person essentially does not exist anymore.  and that has me bummed out.  i miss my innocence, if you will.

    and so... what am i to do?

    how am i to relearn stress management?  how am i to toss the anxiety about recurrence to the curb?  i have no control over whether i'll have a recurrence - oh sure - i'm doing good things with eating and exercise and so on...  but i'm not a fanatic about it.  

    i guess i could go on and on and on....

    but, actually, i think i'll return my attention to this big project i need to work on.

    i hope you have a peaceful afternoon.... 

  • jenn333
    jenn333 Member Posts: 178
    edited September 2012

    Tanya, your post sounds like a perfect description of depression to me; a not uncommon reaction to a BC diagnosis once the dust has settled.  How long have you been feeling this way?  If it's been going on for a while, and counseling isn't helping, perhaps an anti-depressant may be of benefit to you?

  • dlb823
    dlb823 Member Posts: 9,430
    edited September 2012

    Tanya, I just wrote a long response to your post, but it poofed into thin air before I could save it!  So here goes a slightly quicker version...

    What I said was, I won't presume to understand exactly how you feel because I am a lot older than you, and I have different stats. But there are a few things I've learned from bc and life that I wanted to share with you.

    First, no matter how bad you feel today, I know how quickly something good can happen to give us a new perspective.  This quote by Mary Anne Radmacher that a friend sent me when I was first dx'd is something I read many times when I was having a dark day, and it always reminded me that tomorrow would be better:  Courage doesn't always roar.  Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."  

    Another thing I've learned is that the fear you're feeling now about the next four more years doesn't remain as strong as it is now. That's why we all celebrate our cancerversaries -- not to remind us of our dx, but because it lifts our spirits as each year goes by that we're cancer-free.  So just know that you're not going to continue feeling as worried and hopeless as you do now for 4 more years. It really does get easier.   

    And anger, as uncomfortable as it is, is a good thing.  You need to feel the anger at what's happened to work through it.  And if your counseling sessions aren't helping, perhaps you need to find a different counselor -- one who is very experienced at working with younger women with bc.  Along the same lines, I hope your medical team has given you abundant hope about your prognosis.   If you aren't getting positive messages from everyone caring for you, find people who give that to you. 

    And I guess the other thing I wanted to say is that breaking up with a boyfriend is always devastating, but especially so on top of the other stuff you're dealing.  But, you know, there's a lot of truth in that Garth Brooks song about thanking God for unanswered prayers, and maybe the breakup, as painful as I'm sure it is for you, will turn out to be an unanswered prayer for which you will be very grateful when you meet the right man.     (((Hugs))), and please let us know how you're doing today...  Deanna

  • msphil
    msphil Member Posts: 1,536
    edited September 2012

    Hello sweetie, I agree with Biker, I went thru early menopause which gives u side effect of depression, and all those things you are feeling,I took one day at atime and my Faith and Family, most of all my husband who stood beside me, I truly went thru the reoccurence your talkin about that was very hard for my husband was my Fiancee at the time for I was diagnosed while preparing for our wedding, so you see I had alot goin on, But I think stayin busy with wedding plans helped me to go On, so sweetie I will pray for you that you will get PEACE for that is what we are looking for during this TIME, God Bless.  msphil(idc, stage2, 3 nodes and L mast and chemo and rads and 5 yrs on Tamoxifen) I AM A 18 YR SURVIVOR(Praise the Lord)

  • FireKracker
    FireKracker Member Posts: 8,046
    edited September 2012

    Deanna--so well said.As always you do know and say the right things

    Everyone must remember that when you hear your name and cancer in the same sentence you life just changed.

    It will get betta...Time is the key.This is one ugly monster we are fighting with but We are bigger then that!!!

  • tanya01
    tanya01 Member Posts: 74
    edited September 2012
    Thank you everyone for the amazing support and great advise. My heart is hurting and I just don't now how to deal with all of this. I try everyday to find the good but then my brain brings be right back to the bad. Part of me thinks I am in denial that I even went through all of this and the other half thinks I am being weak minded and I just need to get over all of this and on with my life...

    I beg every night for answers to my question.. but they never come.. I feel like such a burden on everyone around me. Its so hard to talk to my friends and family about all of this.. because I feel like they don't want to hear about it anymore. It's a hard place to be in when you think you can talk to your friends and family and then feel shut out. The one people that did let me talk and vent was my ex.. and now he is gone too. I miss him so much every day. I would much rather do chemo then feel the heartache and loneness I feel everyday.

    I have talk to my doc about support groups and he doesn't want me to go to group sessions. He said I am not mentally ready for those kinds of groups. He doesn't think I am stable enough to hear about other people recurrences and mets, when that is one of my biggest issues right now.. I just need to find some hope again and I don't know how to do that. I need to know that I can beat this.. I keep telling myself I can.. but what if I am wrong.. I work my ass of to be healthy for what.. to just have to do this all over again.. I am not even sure I think its worth it anymore.. I cant live my life like this.. It never stops. It never shuts off. The thoughts just keep coming.

  • dlb823
    dlb823 Member Posts: 9,430
    edited September 2012

    Tanya, places with enough bc patients often have more than one support group -- early stage & metastatic -- for the very reason your doctor mentioned.  In fact, I think UCLA even has a 3rd separate group for newly-dx'd women. So don't let your doctor make you feel weak or lead you to believe you're "mentally not ready" or "stable enough" to deal with a support group.  Separate groups make a lot of sense because early stage women and women with mets have very different issues and concerns, so I see the lack of separate groups as a downfall on his part or the hospital's part.  Is there possibly a larger medical center within driving distance of you that offers separate groups?  

    I also didn't say earlier but want you to know that you are truly stronger than you think you are.  I know there are days when it all comes crashing down around us -- especially going through a relationship loss on top of the bc.  But you CAN do this... you ARE doing this, even though you don't feel like you are.   And I just truly believe it's going to get better.  It sounds like you're just at a very low point, which we all have at one time or another.  Please hang in there!  I'm also going to PM you my phone number if you ever feel the need to talk.     Deanna 

  • Dalia37
    Dalia37 Member Posts: 14
    edited September 2012

    Hi Tanya, I went thru something very similar to you last year, we were diagnosed a month apart it seems, being triple negative as well, my tumors were huge and I had 3 of them... my lymph nodes were loaded with cancer cells too, had 6 months of chemo, a single mastectomy, then another 2 months of chemo again followed by radiation...I finished treatment in December last year and I have been cancer free so far. Like you I feel so scared sometimes, another days I feel like crying. There is no day that I do not think about cancer. It is crazy. I feel like I have been robbed the happiness I had before, yes, I am jealous of others too, I see people complaining about stupid stuff and I get mad, yes, I get angry when friends talk about how fat, wrinkled or not perfect they are. I always remind them that they are healthy and should be so happy about it, they just don't get it.

    People I know usually tell me about how brave I was during the treatment, that I will be OK, little they know that I am terrified of dying, the fear of my children being without a mother mortifies me so much, it is sad. But in the other hand I have learned to appreciate little things, I feel that this was an eye opening experience because Iike most people took life for granted...now I can say that I have changed, I am closer to GOD and at least I am living life to the max.

    I am writing you to let u know that you are not alone and your feelings are very normal. If you want to talk about it u can message me. Take care for now.

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited September 2012

    Hi Tanya,

    Wow! I just had this same conversation with MYSELF today. I however, did not have to have chemo/radiation or hair loss. I had a double mastectomy w/o recon in June 2012. The day of your original post I went in for TE's. I went in with boobs, came out with small ones and over the last 2 weeks have seen my boobs transform into what I currently have as bowling balls sitting on my chest now. It's quiet comical to try to roll over at night 1. because you are now top heavy and 2. I still have my drain tubes in and they are killing me.

    I am so sorry you are feeling the way you do. It sucks to have cancer and no one seems to understand but the ones who are going through the same issues. I see people on tv or in public and all i want to do is rip their heads off, because they are wearing cute low cut shirts, while I'm stuck trying to cover up drain tubes. I actually thought i was doing ok until this past saturday when all i wanted was my mom to come and take care of me and let me cry. My husband and children are amazing but I can't cry in front of them right now because they are still reeling from my diagnosis in May. My mom refuses to cry because if she does then she feels like it's beating her.

    I say i'm cancer free but you are completely correct when you say you are not cancer free for another 4 years. My prayers and thoughts go out to you and your family. I hope you can find peace with your feelings. The women that are on these discussion boards are amazing and give out great advice.

    christy

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