Sept 2012 chemo
Comments
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Cindi awesome job on the sept. Chemo list!
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Melrose:
thank you for all that advise i still feel lost but soon ill be all there....what should i take to chemoland to eat during the first round...
Cherioo: im hoping that you are great:::
Jojo...ill stick to whit food...
Do the onco give you ain killers for the port??
Cant sleep but will try now....
good night my beautiful ladies......
About my shaved head its true you will feel powerful....
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patriciahurtado- You can take any kind of snack food you like and you may want to take a sandwich in case you really get hungry. The infusion center where I go has some snacks for patients (saltine crackers, graham crackers, cereal, juice, coffee, ice and water machine). Since it is connected with an office and hospital complex, there are plenty of places to get food to go. My husband would get us lunch so I didn't have to pack a lunch. I took some peanut butter, ritz crackers, cheese sticks, fruit cups and some mints.
When the port is placed, the area should be numbed. I'm sure you can ask for some type of sedative to help you stay calm during the procedure. The port area can be sore for a few days after the placement. You may want to ask the doctor where the port is being placed and ask for it to be placed so the port isn't placed exactly where your bra strap hits.
I know today is an anxious day for you. Try to keep breathing and stay calm. Let the doctor know how anxious you are and ask for some "nerve" meds. Just remember you aren't alone; you will have your family and infusion staff there with you. Also, all of us are thinking about you today and hope for the best. Sending you lots of (((HUGS))) and positive calming & healing prayers, thoughts and energy. YOU CAN DO THIS!!!! By this evening, shout it out "I AM DOING THIS!!!!"
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Patricia, I just used regular tylenol once home. The day of the surgery they gave me percocet prior to leaving which was great till it made me sick on the way home. For me, there wasn't so much pain but rather soreness.
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Amyloves, so sorry to hear of your SEs, please know we are thinking of you.
Damiana, I am now 10 days out and my scalp is sensitive too. Feels like I have had a tight ponytail for days
Donna, did u say u are in DC? -
September Team of the Exclusive Club No One Wants to Join
(If anyone wants to be left off, send me a private message. If I have accidently left you off, also let me know. Since we are sharing so much together, I thought it would be interesting to see where we are in this trip.)
AmylovesBubby
Bearcub Prince George, British Columbia
Firestorm531 Texas
Melrosemelrose (visitor from April) Houston, Texas
Cherioo Florida
Whenlifegivesyou lemons Minneapolis
Jojo2373 Maryland
Mycancerjourney Illinois
Sheerbab Dallas, Texas
Foreverchanged72612 Chelsea, Quebec
Amy4978 Howard City, MI
Cindi74 Apopka, Florida
Terri07-11
Joemommy Portland, Oregon
Cgesq New Jersey
SandeeAR Conway, AR
Timbek2
Laura_g
Runnergirl71 Fort Collins, Colorado
Lokimax2 Siler City, NC
Sparkysbrat East Tennessee Mountains
Momto5children
SugarlandlDC Houston
PatriciaHurtado Miami, FL
DonnaDo8
Mariposa123 Washington, DC
Damiana9 Burleson, Texas
Timbek2 Peoria, IL
Movinonmom
Aliasismo
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Wow this group Is really growing! I havent had to much time to catch up in the last few days but wanted to share a song with all of you that a friend posted to my wall. Made me cry but loved it! Youtube it martina McBride I'm gonna love you thrught it...
Hope all of you have a wonderful day and have minimal SE's Hugs!
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I see my Onco today to get information about what to expect! I'm hoping this will help calm my fears. Each day I get more anxious about starting the chemo. I feel like I'm on this countdown and have to live this week to the fullest! Trying to enjoy my kids and energy while it's here! The scariest part is not knowing how my body will react to everything. I never take meds so I am hoping the poison doesn't do me in! So proud of those who have gone before me! It's tough being a Mom and being sick! But we will all come out stronger than before! Much love to all this week! Praying for strength and health for all! HUGS!
Becki
Wife to one supportive husband, Mom to 3 great kids aged 13, 10.5 and 7
Believing in Jeremiah 29:11
11 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.
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Timbec. Welcome to the CLUB NO ONE WANTS TO JOIN. Face it. We are all scared of the chemo. I have my first Wed., and I'm using every trick I know to try to get contol of my fears. From what I've learned on BC.org, somehow, we get through it. I've done the shopping for otc meds, going today for food (that I love but would like to give up) (mashed, boiled, etc. potatoes), mac and cheese, sweet white rolls, chocolate, hamburger), but also canned soups. I usually lose weight when sick because I don't eat. Have lost in the last six weeks, probably because of stress. I hate cooking and usually don't, but daughter will fix anything I can't. We usually eat our big meal at lunch out. Bought a wig and am going to a store in hospital before chemo to look for sleep cap and maybe another wig. I have packed a bag with meds, small comforter, extra socks, ipad, magazines. Will have iphone with music, audiobooks. Am clinging to husband who is being VERY good to me. Am grateful that I didn't have to do this with children, a job, and without medicare. This site is keeping me sane, as I am trying not to bother those who like or love me with details. I used to think I was brave. I have soloed in an airplane. I used to think I could tolerate pain. Had a 9 and a half pound baby with no anesthetic and didn't think it was that bad. But 7 sticks poking for veins in two days left me hyperventilating and crying. So glad I have the port. Somehow, somehow, we will get through this and live to celebrate some good times. Hugs, hugs, hugs.
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Good luck Timbek and Cindi with your treatments, sounds like you are both prepared
and moving forward!
Drink lots of fluids, and I am hoping you have minimal SE! Just remember this is being done For us not To us....may we all have many years with our families! -
JoJo that is exactly the feeling I heard the head feels like just before your hair comes out, that hurts so I am not looking forward to it. Did you shave your head already, as I am wondering if it doesn't feel as bad with a already shaved head?
I am off to Look Good Feel Better this afternoon, probably the last outing for about 10 days. (try to stay away from germs) Has anyone else gone to this? -
I havent shaved yet, still enjoying last days with hair. I will though with the first clump.
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I am finally going to join the club that no one wants to join. After waiting to receive my ONCU score, I am now scheduled at this point for my first of 4 rounds of chemo this Thursday the 13th of September. I have gone back and forth on the Chemo a hundred times at least, even today I am having a hard time committing....
I do work full time and am planning on continuing through treatment, Dr says that he is confident given my health that I will be able to. I am 48YO, 3 children, only my 16yo still at home.
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yes Claratin did indeed help me with the Neulasta effects and so did regular Tylenol. I am starting into my third round of TCH this week,; the half way point! Also found stretching and deep breathing (yoga exercises) were necessary twice a day. And rinsing the mouth with baking soda mixed with salt water did the job on fuzzy mouth. Best wishes, moving forward.
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Patricia looking forward hearing how good things went today . Been praying for you .remember we are here for you
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Jojo I was just thinking the same thing about my hair . The minute I see a clump I will have my husband take the shaver out and go for it hoping for at least two weeks more with the new short haircut I have
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Helloooooooooooooooooooooo my ladies......im here yes i made it and im getting ready for the battle...YES I DID IT!!!!!!!!!!!
Well i went to sleep at 1 am literallly made myself...i must of wokeup around 4am with hot sweats and saying "i dont want chemo" but i got over it..got myself ready and headed of to the clinic..got there at 6:30 got some paper work going waited for my "HOT DOC" .... he explain the procedure....which i liked and RN got my IV ready...Then they took me to the surgery room sedasive me and i was gonna.....i woke up whualaaaaa had the port on ..the nurse took me to the recovery room for 2 hours...with my hubby...soon as i reacted got ready and here i am home....i took Tyneol and i dont have any pain...but im sure it will be coming up....my surgery was at 10:00am so its 4:30pm no pain...should it becoming soon..??
Melrose i asked the Doc to not do aroud the straps but ....i have to wait till i put on my bra...
JoJo....i hope that i dont get sore.....but im sllepy right now..
Cherioo.....Thank you for all and everyone prayers....i really happy port is on....
Any suggestitons for port pain
so sleepy.
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Only pain I had with port, now in a week, was the three times they tried to put in the IV before the operation. Arm is still painful with that and the four times the next day for the echocardiogram.
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Woohoo Patricia, your on your way!
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YAY PATRICIA!!! Glad you are now home after the port placement!!! The soreness will come but hopefully it won't last too long. I don't know if you can ice the port area or not. I did ice after my lumpectomy which really helped. I had a fleece travel pillow cover and put the ziploc bag of ice in there so the ice would not be directly on my skin. It numbed the area. Sending gentle HUGS to you!!!!
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Hi everyone:)
Glad to hear your port appointment went well Patricia. I scheduled mine for Thursday. Super nervous. I get squeamish around most any medical procedure. (Guess I will need to get over that). I went to Target today and bought lots of stuff on the chemo shopping list. Spent almost three hundred bucks! I would have much rather bought 300 dollars worth of toys for my kids. Oh well. Echocardiogram is on Wednesday and I will be ready to begin next week.
I started my first day on disability today. It is hard not working and living on half my pay. But it was so nice just hanging out with my son. (He is almost three) We went to target, had lunch, and snuggled watching Spiderman. I guess there are some positive things about this whole ordeal:)
Sending everyone positive thoughts. I am glad I found this group! It has already been so helpful.
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OMG, I just read on site, "Lack of Sleep Linked to Reoccurance of E+ cancers. I haven't slept more than 4 or 5 hours in years. I probably haven't set an alarm clock unless we had to get to the air port by 7 or 8 in years. Can't remember when, even when working using an alarm. Go to sleep at 10, wide awake at 2. Even if I exercise. Am flabergasted. Never used any sleep pills. I wake up ready to go almost all the time.
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Cindy.....no pain on my arm did have my echo done lat week...i just woke up with a cough...are you kidding me...
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Yeaahhhhhhhh thanks you...but now im sick im coughing and it hurts ....ewwww!!!
How are you feeling!!
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Melrose:::i am so happy im home its such a relief knowing that fight is on and we are all doing it......and i feel so powerful shaved and port ready and now on chemoland mode....i did asked the nurse and she said i can ice the area but a cloth as you stated....Melrose do know a thread where i need to get for chemoland ready ...i havent purchase any thing for it....Thank you for all that possive energies!!!!!
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Mariposa...hello how are you ...i have felt, anxious, mad, scared, hurt lonely comfuse just like all of our sister here but as we all know this really helps out alot and i feel that we are so strong that we have already beating this...Once you get the port ........hair ready you are already a winner dont be anxious...youll see....enjoy!!!!
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Patricia is yours on the right of left? I hate riding as a passenger and the seat belt laying over mine (on right). I keep pulling and adjusting the belt, thats probably my biggest gripe on the port.
Hugs to all tonight! -
Jojo my port is on my right and i havent drove yet and i hope that the straps dont bother it..jojo....what should i start buying for chemoland??
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Patriciahurtado, Go to Active Topics, and then to Chemo, Before, During, After. At the top is a post for Newbies. The first two or three are ways to prepare, things to get, etc. As it says, you probably won't use most of them although it is not bad to have baking soda, Advil, soft toothbrushes and much of the stuff on hand. Can't remember being constipated that prunes, fresh fruit and raisin brain with lots of fluids wouldn't cure, but I have been told that this is a new ballgame. Also, much of it I just wouldn't have thought about. My skin has always been oily, but aparently chemo will dry it out (No More shiny noses?) so I got some products for dry skin. I can pass much of it on if I con't use it. Don't look good in hats, and never liked scarfs although I have some, so I bought a wig at a store while visiting in Atlanta. Haven't gotten sleep caps or wig stand or eyebrow stencils or fake tatoos yet, although unless they are at the Eden store at my Cancer Center where I will go for first chemo Wed, will order them on line. I signed up for American Cancer Center Lookgood/Feel Better Class (lookgoodfeelbetter.org) which is only offered conveniently once a month near me. Will go on 24th. If you can't go to a class, there are two excellent video's showing workshop on the ASC website. I don't usually sit still for an hour and a half for such videos, but it was great. Lots of good tips for skin, wigs, scarfs, with demonstrations of real people. The Amerian Cancer Societ Website also has info, but I think this one is better for us.
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