a rant about my journey, femara, and my boss
Three and half months ago, after finding out I had a 6+ cm tumor on my left breast and enlarged lymph nodes too, I told my boss, who although she was empathtic, she also started putting the problems of the difficulties she will have while I go on leave, on me as well as her anxiety about needing a temporary replacement, and tried to involve me in finding solutions to all the problems. I was in a whirlwind of my own and could not participate in this kind of what to me was now petty issues that would have to get worked out w/o me. I had cancer. I left work on FML, took tamox for 6wks to shink the tumor, became very ill w/ a digestive issue, which I believe was side effect from tamox as well as effects from a debilitated immune system. Doctors didn't know for sure. After not keeping food down for days,and dropping weight dramatically fast, from being ill, right before the surgery I stopped the tamox and was put on some antibiotics to get well enough for surgery(s). I went and had an oorphorectomy and a l. mastectomy. I wanted to get on the femara as soon as possible because I had not had neo adjuvant chemo, only tamox, and did not want post surgery chemo. The doctor stated that he usually waits a month, but after hearing my tumor had a grade of 3, I was adament a week out that I could handle it as I knew, though no tumor markers had yet been drawn, there was still a lot of cancer in my bloodstream, and believed I needed something urgently. So, still not fully having recovered from my illness before surgery or the surgeries themselves, I started on the femara under close supervision of doc 1 week post op. Heavens me. I have never been on such a hellish ride. for the next two months I was completely beside myself, wretching, not eating, bedridden for much of the time, dropping more weight getting weaker and weaker, doctors took me off femara for 10 days while I got a handle on my illness, docs did tests after test, prescribed another round of 2 kinds of potent antibiotics at once to cure what they had decided was a gallbladder infection. Didn't think I would make it back to see any sign of health, ever, and truly though I was going down. Through all of it, I had unbelievable depression felt by every cell in my body greiving the hormones that were leaving it forever. I was aging at light speed. Finally, after all the antibiotics, I started feeling like I might not die right away afterall, and was able to put my focus and my energy on a regimented schedule of probiotics to rebalance my intestinal flora, and get back to a healthy diet. I had a ph. call from my onc, who told me that my tumor markers were 99, 3x higher than normal. Since that was the first time they were drawn, he couldn't say if they were going up or down but because they were high, he wanted to do ultrasounds and PETscan because this is indicative of metastatic disease. So, though I had so many nucleas, isotopes and radiation from all the scans in the last 3 months, I knew I had to do this one too. It was good news for me the results were all NED. I knew that the tumor markers were still way too high though and could not find peace knowing this. My boss was asking me when I was going to return. i did not think I had the strength to meet the demands of my job as a supervisor for a grp of therapist running a mental health program. I felt physically, emotionally and mentally depleted, I just could not go back. My FML time was up and i realized my position would need to be filled, they would need to lay me off, and I would have to collect unemployment or TDI. So, I told them I couldn't come back by they date they expected me, and so they extended the date to allow me more time to return. It was just a few days prior to my expected return, that I thought I might be able to muster the strength to at least fake it. So I went back in. I was very disoriented and had to spend the 1st week relearning how to do my job, while grappling w/ all the side effects w/ the femara. At the end of the 1st week, I thought, "okay, it's painful, but I can do this," I got call from doc that said my tumor markers had decreased by half. Woohoo! My first feeling of relief in months. My second week back which was this week, I could already feel things piling on and the old me acting like all the things are my responsibility and a priority over my own health. I tried to put up some boundaries because, not only did I know I couldn't do it all, I didn't want to go back to an attitude and a way of living that accompanied my cancer in the first place. So, while trying to assert my boundaries, my supervisor said, "well it might be good for you to challenge your self." I am still reeling from this comment. Please tell me if it is just me. What I said in response was, "oh, I'm being challenged plenty.", which I think she took as a defensive remark, but what I really wanted to say is, "Are you flippin serious lady? You are talking to a cancer patient whose statistics say she's supposed to die in 5 years. I have been challeged in ways unimaginable by you every day for the last 3 months and it will go on for me for the rest of my life, so don't sit there and tell me condescendingly that it would be good fof me to challenge myself!" But of course I didn't say that. Can someone help me stop being angry? I have so much femara built up n my system, I am cranky as can be from no sleep, and achiness. I'm about to intentionally forget to take my pill for a day, just so I can get some sleep. thanks for listening.
Comments
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I think I would be angry too! From what you've written it seems like your boss doesn't have an issue of using up every little bit of anything that you have, for the benefit of that business or practice. It doesn't sound like your health is a consideration.
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Thank you momof3boys. I guess that is what is so frustrating, because what they say is "take care of your health first," and initally they were all very understanding, but then now , that's not how they behave at all. I feel convinced that the reason they are glad to have me back, is because they think i will take on all the work. I might have to remind my sup that she is telling me to put my health first, so in order to do that, this is the pace I will need to work, or this is what I am willing to or can take on. I really am not concerned if they decide to let me go at this point. I could deal with the financial issues. For years I was such a perfectionist and a workaholic there, trying to hold down my position well, to make sure, someone else didn't get. With the economic climate over the last several years, it brought out that kind of paranoia in the workplace. I'm so not of that mindset anymore. Thanks for helping me process this.
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Hi lightandwind,
This certainly is a frustrating situation! You may find some interesting advice on the main Breastcancer.org site's section on Breast Cancer and Your Job. In addition, we recently posted a blog about a Recommended Resource: Cancer and Careers that could be of great use to you!
Hope this helps!
--The Mods
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Thank you. I just had to get that out and get some feedback. This will help . Thanks so much!
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Yes, you have a right to be mad. Your boss is assuming she understand what you went through and thinks that she knows what you should be capable of -- but she doesn't. She should be asking you how you feel and what you think that you're ready to try. There is no point in taking on too much because that is the setup for failure. The bottom line is that unless she has faced death the way that we have, then she can't really understand even if she wants too.
I too was a overacheiver and a perfectionist. However that turned out positive for me because they gave me leaway and trusted my judgement when I told them I wasn't sure how much I could take back on for job responsibilities.
From the point of being dx'ed and all through treatment it was like not only the rug was pulled out but the took the carpet padding, too. My confidence was crushed. I didn't know what tomorrow would bring and I didn't have the control that I was used to. It slowly came back but it has never gotten to the level that I had prior to my dx.
I was lucky. My manager tried to understand but knew that he couldn't unless he went through it himself. And he was the one that would slow me down when he saw I was trying to take on too much. He knew that was my nature and he knew that I had to slow down for my health. I tried hard to get back into work -- I loved the job. First I did full time and ended up going back on short term disability. After 4 months I started again working 3 days a week. The months went by and I had 4 colds in 6 months. As opposed to the old days when it was a cold every two years. I just couldn't do it. So I ended up on long term disability. I've to work to get over the guilt of being less of a worker than I was before. But we have to play the hand we get dealt. You just can't take what we have gone through and sweep it under the rug.
I don't know that this is going to help you not be angry but I just want to say that I understand.
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lightandwind, do you work for a private company or government or government funded?
I can identify with your struggle to balance the demands of work and health.
I don't think Femara is your problem.
If it's a small, private company I don't know what you can do but otherwise you should be supported to keep your job.
Do you have a union? -
lightandwind, I also recommend you get psychological counselling.
No, it is not just you. I understand what you are saying. -
lightandwind, that comment from your boss would have made me furious too. People who haven't had this type of experience can't understand the priority shift you undergo when facing a life-threatening condition, nor what it means to really have a physical and mental limitation on how much you can do in a day. If you have an HR person at your job I'd recommend getting them involved. Your boss' expectations are not reasonable for you right now.
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Anacortes girl. thank you. Tears came to my eyes while reading your reply to my post. It just feels good to know that I'm not alone and that someone understands. I really appreciate all that you said.
Racy, it is a non-profit funded by the state. Thanks for the advice. I really don't feel comfortable w/ counseling right now. I live on a small island in Hawaii, and also work in mental health, and do not want to talk w/ someone that knows a lot of the the same people as I do, and who wouldn't really understand anyway. I'd rather just come here for support.
Ann, thanks for the feedback and reality check. You are right. I am going to have to remember this and keep my own perfectionistic tendencies in their place, live from this new perspective, and not let others' comments throw me back into the old way.
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