Hormonal Therapy after second recurrence

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linde22
linde22 Member Posts: 12

Hello

I was diagnosed for the second time , same type of cancer as the first( ER+/PR+) and right next to the original site.  The tumor was less then a cm. .  I had a lumpectomy the first time and a  MX the second.  I also had Chemo the second time.  I did not take  tamoxifen the first time.   For those that did have a recurrence and did take a hormonal therapy,  would you go the same route ( take hormonal therapy) the second time around? Thanks 

Comments

  • Mmahle46
    Mmahle46 Member Posts: 52
    edited April 2012

    Hi linde22,

    I took A rimidex for a few months.  I had a lot of bone pain issues and my Dr switched me to Femara and its not as bad.  I take Effexor for the hot flashes and it keeps those in check.  These are really important drugs for ER+/PR+ cancers. 

    Hang in there!

  • hrf
    hrf Member Posts: 3,225
    edited April 2012

    My first bc was TN. The second was ER+ so I am taking Arimidex. It's been just over 2 1/2 years - am managing the se's ok but there are se's.

  • Angelfalls
    Angelfalls Member Posts: 849
    edited April 2012

    I did Tamox after initial dx, Arimidex after 1st recurrence and am now on chemo after further spread. I may go back to another AI once the chemo knocks things back, but I haven't got there yet...



    Good luck with your treatment this time round. Hugs, Angelfalls

  • linde22
    linde22 Member Posts: 12
    edited April 2012

    Angelfalls - I am sorry that you have to go through this again.  You sound like a strong person and will make it through this bout also.    I sent you a PM.  LInde 

  • ButterflyLady
    ButterflyLady Member Posts: 136
    edited June 2012

    I was on arimidex the first time for a little over 5 years.  I was just diax. for a 2nd time in December. I start radiation in 2 weeks and my doctor has taken me off of the arimidex and wants me to start tamoxifen.  Just not sure if I want to take hormonal treatment again or not.  Not sure if it will work on me  since the arimidex stopped working.

  • arbojenn
    arbojenn Member Posts: 100
    edited July 2012

    ButterflyLady, I am wondering how you are doing.  It sounds to me like Arimidex has more SEs than letrozole.  I am having a biopsy  to see if a nodule in my unaffected side (though I had that side removed when I had chest wall reexcision with my first R) is benign, a recurrence or a newbie. If the verdict is another er positive, I am thinking of asking the doc to switch me to arimidex to try that before anything else is attempted.  I had tamox with my first and have been on letrazole for the last few years.  A little nervous as it sounds like the SEs of Arimidex are worse.

    Sorry I digressed and interjected myself into this post.  I am holding you in my thoughts and truly care how YOU are doing.

  • bbreaux
    bbreaux Member Posts: 2
    edited September 2012

    ButterflyLady,
    I was diagnosed for the second time in September of last year , same type of
    cancer as the first( ER+)and in the same place, as a matter of fact the scar
    from the first cancer was hiding the second cancer. The First time I did chemo, Rad,
    five years of Tamox, and six months of Femara. I stopped the Femera due to
    severe bone pain. and five (10 year in total )years later I am diagnosed again. Frown   What I
    wanted to say to you is I would not do the hormone therapy, the side effects
    alone will kill you before the cancer does. One of the side effects of Tamox is
    uterine cancer, of which I got two years after I finished taking it. My oncologist
     wanted to put me on Arinmidex and I said a big NO. However I am taking Indole-3- carbinol which is a natural form of
    Tamox, with NO side effects. Look it up on the internet and see for yourself. I
    wish you the best, and hope you do well. You might try alternative therapy for
    long term prevention.

    Brandi


      
      
      
      
     
     
     

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