In shock

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  • Lesleyanne67
    Lesleyanne67 Member Posts: 225
    edited September 2012

    I LOVED Ativan it was the only way I could turn off my brain, relax, and sleep.



    Ask if they can do a saline wheel. Many places won't but it makes you numb even better than EMLA. It is bacteriosratic saline they put in the spot first. Then they can "dig" around a little with no pain for you! I am an impossible stick very
    finicky veins. I had ALL nodes
    removed on the cancer side so for
    Lymphdema reasons I cannot have
    needle or blood pressure on that side
    so they have only one arm to work with.



    Not sure they have those Got
    Milk Ad campaigns in Canada but the whole nursing and lab team
    came in with their lab coats one time
    and flashed me and they all had
    "got veins" t-shirts on. It was funny.



    I had a port put in for my chemo so if you have to go the
    chemo route you might get a port
    which takes all the poke anxiety
    away. The port does not hurt and
    was a god send.



    I did a three year clinical trial
    after all my treatment and it was an
    IV infusion every three months....
    They took my port out at my mastectomy so I had to have IVs
    every time I missed my port.

    So pulling for you tomorrow.

    I just had a bone scan LAST fri. Goes super fast, the poke part.
    Then you just have to wait around for
    the stuff to get in the bones. Go get
    a bite to eat read a magazine...The
    poke is the hardest part if you dont
    like needles. Then you just lay there for 20-30 mins



    Remember I am happy to
    chat on the phone you can even call
    me collect. You can do this!!! Your
    horse and your kitty need you!



    Hugs

    Les
    class='post_sig'>Lesleyanne67 Dx 3/27/2009, IDC, 5cm, Stage IIIa, Grade 2, / nodes, ER+/PR+, HER2- BRCA2
    Dx 3/27/2009, IDC, 5cm, Stage IIIa, Grade 3, 1/29 nodes, ER+/PR+, HER2-Chemotherapy 04/20/2009 Adriamycin, Cytoxan, TaxolSurgery 08/20/2009 Mastectomy (Both)Radiation Therapy 09/14/2009 ExternalSurgery 12/09/2009 Prophylactic Ovary Removal (Both)Hormonal Therapy 01/10/2010 ArimidexHormonal Therapy 07/01/2010 FemaraSurgery 11/20/2010 Reconstruction: Tissue expander placement (Right)Surgery 09/24/2011 Reconstruction: Breast implants (permanent) (Both)Surgery 01/19/2012 Reconstruction: Breast implants (permanent) (Both)Surgery 07/20/2012 Reconstruction: Breast implants (permanent) (Both)Surgery 08/14/2012 Reconstruction: GAP flap (Both)

  • liefie
    liefie Member Posts: 2,440
    edited September 2012

    Dear Benny,

    I like what Bearcub said: If you can handle a horse, you can handle BC. Will be thinking of you tomorrow. The bone scan is nothing scary, you just lie there doing nothing at all. The injection before the time I did not even feel, seriously, and I also hate needles.

    Bearcub, my cat is the ninth Siamese that I've owned over the course of my life. They are just the smartest, most social and cutest ever. Mine is 4. I got her after my beautiful 11-year old Siamese princess got killed by my neighbour's dog in my own yard. I still miss her every day.

  • KRCornett
    KRCornett Member Posts: 16
    edited September 2012

    All of this is still greek to me.  But it's a 1.8MM tumor; I am ER+/PR+ and HER2- (I think that's right).  The MRI was clear for other tumors.  I have small breasts and because of the location of the tumor, a lumpectomy isn't possible.  Because of that, no radiation but chemo after.  When does the Tamoxifen start?

    I was diagnosed about 3 weeks ago and want to delay surgery until early October so I can "clear the decks" at work.  But now I feel a slight burning sensation in that breast (could totally be in my head because I'm thinking about it all the time) and wondering if this thing is on the march toward my lymph nodes.  All likely imaginary....

    The surgeon called it stage 2 grade 2 (this was before the MRI) -- said it was "garden variety".  Thanks for the input.

  • liefie
    liefie Member Posts: 2,440
    edited September 2012

    KRCornett,

    You will do better to post on the '2012 Sisters' thread. There are many knowledgeable ladies there who will answer your questions. For me Tamoxifen started after surgery, chemo and rads were done. So it was the last treatment to start and will continue for five years.

  • bennymuffins
    bennymuffins Member Posts: 412
    edited September 2012

    Thank you again for the replies and support ♥

    I took a half an Ativan last night and I think I slept through the night. The pressure in my head wasn't as bad upon waking so maybe it's just stress-related and not cancer-related? It is still there tho', just not as bad. My other problem is that I cannot eat. Just feel nauseous all the time and I'm sitting here right now staring at my cold toast with one small bite out of it. And diarrhea. Oh dear, have gone three times already this morning. I actually feel weak because I know I'm not eating enough but how do you eat when you're nauseous? Hmmm, maybe I should get some Boost or Ensure. Yes, that's what I'll do.

    I am going into the clinic this morning to ask them where they're going to inject me and then I'll come home and put my EMLA patch on 1.5 hours before the shot. I know I can drive with a 1/4 tab of Ativan so might rely on that.

    Liefie and Bearcub, I have a GIANT orange super-fluffy cat named Ben. His pet name is bennymuffins! 'Mommy's little bennymuffins'

    Lesleyanne, have never heard of a saline wheel. I will ask about it, thanks!

    Cindi, I totally hear ya on the tears and hyperventilating! I'm certain that some day in the very very very distant future, sticking people with multiple pins, needles, knives, etc will be looked up the same way that we now look upon leeches and blood letting! Our future great great great grandchildren will feel bad for how much we suffered!

    Laura, thanks for info on the cold caps. Will check it out.

    Okay, after I get this day over with I get two days reprieve. Whew! I'm shaking already.

  • Lesleyanne67
    Lesleyanne67 Member Posts: 225
    edited September 2012
    This is taken off a nursing blog to give you the info ....

    In my early years as a nurse on the IV team, one of our responsibilities was to start all the pre-op IV’s using 18g catheters. Because of the large gauge size catheters we were inserting, we would use buffered Lidocaine 1% to numb the site prior to IV insertion. If the patient is allergic to Lidocaine, we would use bacteriostatic 0.9% Sodium Chloride (normal saline) instead. When we used bacteriostatic normal saline to numb the site prior to insertion, patients appeared to have the same pain less  level as those whom we have used Lidocaine on. I always wondered if it really worked as patients did not complain of pain during the insertion at all.



    Then, I was told that the skin stretching with the wheal created by the intradermal injection of bacteriostatic normal saline decreased the skin surface causing less pain upon insertion. Now, there are recent articles (see suggested articles below) stating benzyl alcohol, the preservative in bacteriostatic normal saline serves as the local anesthetic, numbing the site.



    At that time, it was not routine to use intradermal anesthetic prior to IV insertion, it was reserved for insertion of large gauge catheters. Today, in an effort to decrease pain and promote patient’s comfort during painful invasive procedures such as IV insertion, most hospitals and healthcare facilities routinely use intradermal anesthetics prior to IV insertion.



    Nurses vary in their opinions and beliefs on the use of intradermal injections prior to IV insertions.  Even with evidence, some nurses don’t routinely offer to their patients or use intradermal anesthestic.  Aside from intradermal injections, there are several methods available to achieve this purpose, including topical creams, dermal patches and iontophresis.

  • NSJ2
    NSJ2 Member Posts: 227
    edited September 2012

    Hey Benny

    Just letting you know I'm thinking of you today. Good luck with your test! 

    Also regarding the pressure in your head. Any chance you stopped drinking coffee after being diagnosed thinking it was bad for you? Because if you did stop cold turkey where you formely drank it regularly, its likely that could be causing your head pressure or head ache.

    Just a thought.

    NSJ2

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Welcome KRCorett! Sorry you are here, but you are at the right place! These Ladies have helped me more than anything so far through my process. They ate a wealth of knowledge and support, good luck!

  • Spirit_eyes
    Spirit_eyes Member Posts: 3
    edited September 2012

    I'm in kinda the same boat. I just did my first round of chemo. Honestly, everyone there was beyond great. Almost makes you want to go there. They fed me, offered warm blankets, cable tv, wifi, etc. felt like I was at a spa, and not getting chemo.

  • Infobabe
    Infobabe Member Posts: 1,083
    edited September 2012

    bennymuffins

    Muffins, by the time you read this, you should be home and though with the procedure.  I really, really hope it ws not as bad as you anticipated.  Your nausea was, without a doubt, caused by your anxiety.

    We look forward to hearing from you. 

  • NSJ2
    NSJ2 Member Posts: 227
    edited September 2012

    Benny?  Just checking in with you to see how you're doing since today's test. Looking forward to hearing from you.

    NSJ2

  • bennymuffins
    bennymuffins Member Posts: 412
    edited September 2012

    Okay, just got home. That EMLA cream is a God-send! Thank you thank you thank you to the person who invented that stuff.

    Anyway, the scan part was a breeze..... just lie still and dream about horses (okay she didn't tell me to dream about horses, I threw that part in myself). After the initial scan she did two more pictures. I asked her if she was doing that because there were some 'trouble spots'. She said 'Nope, this is standard. You are getting the same as everyone else'. At one point the pictures started popping up on the computer screen and I said 'Ooooh, that looks bad'. She said 'But you really don't know what your're looking at'. I admitted I didn't. Cool After it was all said and done, she said the results would be ready by Monday and if I'm nervous I can call Monday morning to get the results. I asked her if it looked bad and she said she wished she could give me the results but she's not a radiologist. When I walked toward the door she said 'Have a good weekend, try not to worry'. As usual I started to tear up. She then grabbed my arm and said 'I really don't think you have anything to worry about' and smiled. I thanked her and she nodded and said good-bye.

    So, do I put any credence into that last conversation? Maybe she's just trying to alleviate my fears so that I'll relax over the weekend?

    Sorry this is so long.

  • Lesleyanne67
    Lesleyanne67 Member Posts: 225
    edited September 2012

    Benny



    That is great news. Legally techs cannot say anything because they are not radiologists just A's stated but let's face it they look at this stuff all day, they KNOW



    For example I could tell my tech knew what was up at my 2nd diagnostic mammo, ultrasound if indicates after I failed the first mammo and it literally was my first at 40 due to no family history BUT I scored the BRCA2 card anyway, go figure.... She could not say anything

    either but she knew j was freaking so what she DID say was you are going to ultrasound and just to let you know if they want to do a biopsy the radiologist on duty today is a great guy and I would let him biopsy my mom, sister, daughter, then she hugged me. ERGO she knew I was on my easy to Ultrasound and biopsy but I had a big tumor and lymph nodes.



    Granted you cannot hold her tk what she said she is not a DR but I think it is safe to say she would not have said that to you if you were lit up like a Christmas tree they don't want to give false hope



    THIS IS GOOD NEWS!!! See that spirit is leaking out you got that CT scan no prob Mon!!!!!



    Lesley

  • bennymuffins
    bennymuffins Member Posts: 412
    edited September 2012

    Good morning Lesley! Yes I want to believe in her last words so much. The thing is, the doctor who first did the ultrasound grabbed my hand and said "I'm sure everything will be good". How wrong he was! And it was at the same clinic! Maybe that's their mantra..... just tell them what they want to hear!

    The bone scan concerned me but the one I'm really worried about is the CAT scan on head/chest/abdomen. I am certain it has spread to my brain because of the pressure and pain I am having in my head. I did give up drinking coffee but it was quite awhile before the first mammogram so I don't think it would be caffeine withdrawal this far along.

    You'd think I would have had a better sleep last night but no. I'm exhausted and headachey this morning Frown Going out to the barn anyway (insert nicker here).

  • Lesleyanne67
    Lesleyanne67 Member Posts: 225
    edited September 2012

    I am still going with rhe fact that it will not be nearly A's bad A's you think and you can let me have it if and when j am wrong : ). I can take it!

  • liefie
    liefie Member Posts: 2,440
    edited September 2012

    Benny, your big fluffy orange cat sounds lovely. Give him a big hug from me! Hope that horse keeps you busy all weekend so that you can relax and not think and worry so much. Take another half an Ativan so you can sleep well. When you feel well rested you can handle things better. The scan was not so bad, and the rest will not be so bad either. It is the anticipation that is the worst, and that darn imagination! Whatever the outcome of the scans and tests, there is treatment available. These days they do amazing things, and breast cancer research has come a long way in the last ten years. You will be okay. One step at a time, breathe, enjoy your horse!

  • Lesleyanne67
    Lesleyanne67 Member Posts: 225
    edited September 2012

    Benny



    How did the CT go? You have not posted today so I wanted to check in with you

  • NSJ2
    NSJ2 Member Posts: 227
    edited September 2012

    Hi Benny

    Don't know if you've received your test results from last Friday yet. Also you had another test scheduled for today. Just checking in on you.

    NSJ2

  • liefie
    liefie Member Posts: 2,440
    edited September 2012

    Hi Benny,

    I'm also wondering how you are doing. Let us know when you can.

  • edithesther
    edithesther Member Posts: 183
    edited September 2012

    Benny, me too, in my thoughts. Hope all ok.

  • Infobabe
    Infobabe Member Posts: 1,083
    edited September 2012

    Muffins, you are starting to worry us.

  • liefie
    liefie Member Posts: 2,440
    edited September 2012

    Benny last posted on September 8, three days ago. I am praying that she is okay.

  • HLB
    HLB Member Posts: 1,760
    edited September 2012

    She was "last seen" today. I haven't posted but I have been reading this today and I'm a little worried. Benny whatever it is we are here to help you through.

  • angelface
    angelface Member Posts: 21
    edited September 2012

    I don't know how true this is or not because I haven't researched it myself yet but they say the lymph nodes are the filtering system that helps to block the spread of cancer to other organs.  I guess that was told to me to ease my mind in case they find cancer in some of my lymph nodes.

    Good luck with everything.  Lots of prayers!!!

  • bennymuffins
    bennymuffins Member Posts: 412
    edited September 2012

    Hi Lesley, NSJ, EdithEsther, Leifie, Infobabe, HLB and Angelface,

    Thanks for thinking of me. ♥ I got myself fired up to go to the CAT scan yesterday, had my EMLA patch on, then the radiologist looked back on my file and read that I had had a bad reaction to a contrast dye back in April when they found a shadow on a chest X-ray. Nothing ever came of that, but because of the reaction to the dye, the radiologist chose NOT to inject me, so the CAT scan was just a CAT scan. I was happy to avoid the needle but also concerned that the scan would not be as good without the dye. I still have weird sensations in my head, headaches, and some chest pain, so am still of the mindset that I'm doomed. I think I'm also a bit depressed as I find it hard to motivate myself in the morning to do ANYthing, even go see the horses. And the surgery is coming up on the 17th. Every time I think about it I literally start to shake. I have bought a few button-front shirts and bras, and I even bought myself a horse teddy bear Laughing The nurses will laugh at me but so what. I wrote out a schedule for myself to avoid getting in a slump in the mornings (you know, an itemized list: Feed Benny, Put coffee on, Make bed, Wash face, etc) and I taped it to the computer. It helps a bit (sort of).

  • liefie
    liefie Member Posts: 2,440
    edited September 2012

    Benny,

    So glad to hear from you at last! You have made a bunch of friends here who will be there for you, no matter what. Thanks so much for telling us what happened so far. Yes, the surgery sucks, but you are asleep for it. When you wake up, you will be given pain medication, and you can always ask for more if it is not effective enough. I like that 'morning' list that you made; maybe I should make one for myself too. It is a good idea. Maybe it will also be a good idea if you can get some medication for depression. The fact that you don't feel like doing anything is a telltale sign. So many women going through bc need this, especially to get over the initial stage. If you feel better emotionally, you will be better equipped to face and handle whatever treatments may be coming. Thinking of you.

  • Lesleyanne67
    Lesleyanne67 Member Posts: 225
    edited September 2012

    Benny



    Good to hear from you what was the word on the bone scan? Hopefully aches and pains and creaks are just part of us all aging.
    : -O. Fingers and toes crossed for you



    Les

  • camillegal
    camillegal Member Posts: 16,882
    edited September 2012

    Hi Benny, I've been reading all of this not knowing when to come in, but everyone is so knowledgeable there was nothing I could add but (((HUGS)))So many of us have een thru thr inger and we're still hanging around and trying to find that ringer to stop all of this. But I think we lost it. All of u'r questions will be answered and u'll know what has to be done and u'll just do it So many women here are so inspiring and follow whatever they told u--they are wonderous and everyone is more than willing. So u will finish wha is needed and ask opinions here too, they give u plenty of advie. Good luck

  • FilterLady
    FilterLady Member Posts: 407
    edited September 2012

    Benny,

    Just wanted you to know that I'm thinking of you and wanted to give you a gentle ((((((((((((((hug)))))))))))))).

    I'm looking forward to you posting good news,

    LaDonna

  • edithesther
    edithesther Member Posts: 183
    edited September 2012

    Benny, thank goodnes you posted !!

     We are all here , in the same boat and paddleing like mad.

     The aches and pains are normal I believe, on Saturday I had a ride on an old fashioned swing carousel at a fun fair. Don't know what made me do it, As ride came to an end I had to be helped off I had a really strange sensation in my head then procedded to throw up and couldn't walk. I managed to convince myself the cancer was now in my head. I cried like never before and reduced my darling husband to a sobbing wreck too. We all do it. Until BC I would have just blamed it on a hot sunny day and a bit of vertigo.

    Regards and gentle (((((()))))) ( ps. keep away from fair grounds )

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