Well, I'm moving on to Stage IV

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Annie62
Annie62 Member Posts: 1,081
edited June 2014 in Stage III Breast Cancer

After getting what I thought was the all clear from a spinal biopsy in late July, my onc sent me for a PET scan. She didn't feel the results were clear enough. Unfortunately she was right. Ironically, I have mets where I haven't been having any pain issues and none where I did.  

I must say, I'm not really surprised. Since I had my recurrence in 2010, I thought this might be coming. I've been avoiding posting because I feel like I'm letting my Stage III sisters down.

Many - if you are reading this, I recently replied to a post of yours where you were concerned that shoulder neck pain was caused by mets. My answer still stands. My pain there was not caused by mets. I have none in those areas.

I haven't been a big poster, but I do keep up on folks. I wish you all the best.

Annie 

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  • geewhiz
    geewhiz Member Posts: 1,439
    edited September 2012

    Oh Annie, I am so sorry. You are not letting anyone down! You are an angel to share your experience with us. Please keep us all posted on your course of action! Hugs and healing white light to you!

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited September 2012

    Annie- I am so sad for you. I don't have any pains anywhere else in my body, but after reading your post I guess it really doesn't matter. Did you have a mastectomy when you were diagnosed in 2004? My initial cancer was found in 2004 also and then reccurrence this yr, although the doc said it has been there for a long time. Probably as far back in 2004. Cancer was found in every bit of tissue when I had my mastectomy. I am still in chemo now until November. Did you do chemo and if so what kind? I am doing CMF and my onco score was only a 6 so I could be doing it for nothing. I wish I could give you a hug. So sorry for your news. Mets are always on my mind.

    Hugs...... Diana

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  • SpunkyGirl
    SpunkyGirl Member Posts: 1,568
    edited September 2012

    Annie,

    I'm so sorry to hear your news.  It's so hard to come up with the right thing to say.  None of us ever wants to hear that. I hope that they get this under control for you quickly, and that you have the support you need to get through it.

    Hugs

    Bobbie

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  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited September 2012

    You are not letting anyone down.  We're all in the same room and understand what it is to get good news and bad news.  We're in this room because we care about one another - it's good that you posted.

    I can just imagine how rough the road has been for you since your recurrence.  I'm sending a cyber hug to you.  You've already been through a lot.  I hope you have a good support system around you to help you with the everyday stuff and people that you can just "talk it out" with.  You know you have us on the boards.

    Christy

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  • clariceak
    clariceak Member Posts: 752
    edited September 2012

    Annie - I'm so sorry.  We're here for you, regardless of the news you bring.  It sounds like your onc is on top of things.  Do you feel confident in her ability to treat stage IV patients?

    I hope she is able to quickly find a treatment to control the mets. Hugs and warm wishes to you.

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  • Annie62
    Annie62 Member Posts: 1,081
    edited September 2012

    Ladies,

    Thank you all for your kind words. I've been pretty calm the past week, but your posts brought tears to my eyes.

    Diana- I had a lumpectomy/axillary dissection in2004. They were expecting me to be Stage I but I had 11/19 lymph nodes and was IIIC. I did rads, dose dense AC and T (1 Taxol, switched to Taxotere), tamoxifen for 3 years, Aromasin for 2 years. When I had my recurrence in 2010, I had a bi-lateral mx and did Gemzar and Abraxane. I often look back and wonder if I should have gotten a mx after I was staged IIIC.

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  • clasical
    clasical Member Posts: 3
    edited September 2012

    4 is just a number.. do not let it get you down.

    I have seen this one, trying to check it out.. www.cancerclinic.me

    it has pictures of results with stage 4, scroll down a little.

    God bless. 

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  • kathleen1966
    kathleen1966 Member Posts: 793
    edited September 2012

    You have not let us down! This is not your fault!! I am very sorry you have received this news.  It is why we are here supporting each other!  I wish you the best as well!  I hope that treatment puts you into NED and that you get the support you need from family, friends and loved ones!

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  • lkc
    lkc Member Posts: 1,203
    edited September 2012

    Dearest Annie, I am so so sorry to read that you have to deal with this. You are a part of us and could never let us down. Please still come hear! and please don't look back at what if's. You did nothing wrong. This  thing is just a relentless  sneaky bastard. I  am glad though you have a proactive doc. I  am sure you'll be back to NED very soon.

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited September 2012

    Ah, Annie, I am so, so sorry to hear this.



    Cancer sure is sneaky and awful. I am just saddened when any of us have to face more treatment, you'd think going through it all once should be enough for one lifetime.



    I hope your onc has some tricks up her sleeve! Please come and let us know how you are doing!

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  • owlwatcher
    owlwatcher Member Posts: 130
    edited September 2012

    Annie there are no guarantees for any of us. I sounds corny but we are you. Any female on this earth has this risk. We walk with you emotionally.

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  • MandalaB
    MandalaB Member Posts: 111
    edited September 2012

    much love... <3

    and hugs.....lots of hugs.....

    xo

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  • diana50
    diana50 Member Posts: 2,134
    edited September 2012

    Annie

    sending you hugs....positive thoughts....

    I am sorry you are going through this.  hang in there  

    diana50

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  • Gitane
    Gitane Member Posts: 1,885
    edited September 2012

    Annie,

    I hope you can be very gentle to yourself and can get all the TLC you need.  We are all here, too, to support you, so please let us know how you are doing.  Sending warm hugs, G.  

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  • Bugs
    Bugs Member Posts: 1,719
    edited September 2012

    Annie, 

    I'm sorry you are getting this news.  Letting us down?  Stop it now!  Cancer is a sneaky beasty bastard and you are in no way letting us down.  We are here for you!

    Hugs!! 

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  • TectonicShift
    TectonicShift Member Posts: 752
    edited November 2018

    Aw, damn it to hell anyway!

    Annie and Diana, hugs to you both. With 11 cancerous nodes of my own, I'm pretty sure I'm not far behind you...

    Blessings and good karma 

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  • Annie62
    Annie62 Member Posts: 1,081
    edited September 2012

    Thanks everyone! Your posts mean a lot to me.

    Tectonic, I hope you stay forever in the Stage III forum!

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  • lexi4
    lexi4 Member Posts: 1,074
    edited September 2012

    Dear Annie,

    I am sad to read the cancer has been on the move.  Do not feel like you are letting us down. Us stage III girls know that we are a step away from IV. Thank goodness we have our group to help us through.

    Saying prayers for strength and comfort.

    Lexi

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  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited September 2012

    Annie



    You haven't let us down. We are here to support you. In my community, there is a breast cancer support service that offers support groups. Stage III is actually grouped with stage IV rather than with the earlier stages. I elected to attend the early stage group because I'm not stage IV yet. I recognize that the future is uncertain for all of us with stage III BC. I hope you will continue to post on stage III boards.



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  • antonia1
    antonia1 Member Posts: 135
    edited September 2012





    Anne,



    What can I say that others didn't say already. You will beat the "beast" back again and we will support you every step of your way.

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  • MaxineO
    MaxineO Member Posts: 555
    edited September 2012

    So sorry To hear this Annie. Stay strong. We are always here for you.

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited September 2012

    I am so sorry to hear this Annie, I hate BC so much.  My hugs and prayers go out to you, best wishes of future tx and please keep us posted.

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  • Pure
    Pure Member Posts: 1,796
    edited September 2012

    Oh Annie..I am so so sorry but I know you will be NED soon. You went 5 years and that is SO good. You will get there again! There are so many amazing TX's now. You got this girl!

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