Double Mas. with Recon! Help!

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Is it as bad as im thinking or am I paranoid????

this is my 2nd time in 5 years and im 36.

Im crapping bricks here!

any insight please?????

Comments

  • christina0001
    christina0001 Member Posts: 1,491
    edited September 2012

    Wow that is rough! You are a trooper, girl! I'm 3 weeks out from a UMX with no recon (yet) so I can't even compare that to what you are going to have done. What kind of recon are you wanting to do? From all I know, that does make a big difference in how quickly you recover. From what I have read, in general, implants are the easiest, flaps take more time.

    You are wise to get immediate recon. I am hating my body right now, being flat on one side. Just get it over with if you have to do it.

  • Sassa
    Sassa Member Posts: 1,588
    edited September 2012

    SherryStrong,

    We are all different in how we feel about losing our breasts. I was 56 when diagnosed.

    I, personally, was happy to see them go as I always hated being over endowed with the attendant neck, shoulder and back problems. The mastectomies were not extremely painful.  As a matter of fact, they caused me less pain than when I recovered from my excisional biospy and had the weight of the breast pulling on the incision.

    Exercising to regain mobility and strength is crucial to the recovery process after mastectomies.

    I did not do immediated reconstruction.  I took my time in healing from the mastectomies (modified radical with SNB on the right (cancer side) and simple on the left).  Many of the complaints (pain, numbness, "iron bra" feeling) heard about immediate reconstruction are actually the results of the mastectomies and not the placement of the tissue expanders at the time of the mastectomy.

    I decided to do reconstruction two years after my left side mastectomy (2 1/2 years right side).  I decided to go the tissue expander/silicone implant route. I had no problems with the two surgeries (TE placments and exchange) and the whole process - TE surgery, fills, exchange - was relatively painfree.  The most painful was the TE placements as it invoved manipulation the pec muscles.  I had the pain of "pulled" musles for several days after the surgery.

    Fills gave me the feeling of tightness for less than 24 hours. No pain.  Exchange was a breeze.

    I feel my good experience with the reconstruction was because I was completely healed from the mastectomies and had regained strenght and flexibility in my upper body.

    I am 2 1/2 years out from my exchange and loved my "foobs" and feel that they are superior to the original equipment.  They don't cause me pain 28 out of 30 days a month, don't kill my shoulders and neck hauling them around, and I never have to wear a bra.

    I realize my experience and comments are from one end of the experience spectrum, but I know there are others like me that exist.  Many have moved on from these boards and don't post anymore.

  • SHERRYSTRONG76
    SHERRYSTRONG76 Member Posts: 51
    edited September 2012

    Thanks for the insight!

    I see I didnt post anything specific in my post, I was in a rush!

    Dx at 29 with IDC grade 1 stage 1b er+ pr+ . Node disection and lumpectomy with Chemo and Rads. At age 31 non malignant mass removed under armpit. At 35 4 masses in opposite breast with A typical cells. At 36 non mass Cancer origional Cancer Breast side grade 2 with double mas. and immediate recon.!

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited September 2012

    SherryStrong76 - a year ago I was dx'd with DCIS and IDC. I was offered a lumpectomy with rads, but thanks to my history, I decided on a BMX (bilateral mastectomy) with immediate reconstruction.

    In December I had my BMX with TEs (tissue expanders), and due to my stupidity in refusing to take the pain meds, I was way more uncomfortable than I needed to be. Once I had that under control, though, I was fine. I was filled to 620ccs in five visits. Then I made the decision to wait for exchange, so I could lose weight.

    Two weeks ago, I had my exchange to permanent saline implants. Overall, I am very happy. My Original Girls were 38DDD, heavy, dense, droopy, fibrocystic, and hung to my waist. I am thrilled that I have these cute new ones, AND that because of my decision to go the BMX route, have reduced my risk of recurrence to a very tiny percentage.

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