Sept 2012 chemo

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  • Cherioo
    Cherioo Member Posts: 305
    edited September 2012

    Wendy I hope your treatment went well and younger doing ok tonight . Praying you have no side effects

  • laura_g
    laura_g Member Posts: 38
    edited September 2012

    Hey Wendy, you and I have the same cancer type, (idc) stage, grade, we're both triple neg and we're on the same chemo just a few days apart. That seems kind of amazing! I hope you and everyone else getting treated this week has minimal side effects and a quick recovery. My first day back to work was okay. Slowed down a lot at around 2:30 though. Looks like I'm going to be dealing with some neuropathy for the duration. Boo!



    I'm seeing my oncologist tomorrow for blood work, to follow-up chemo and talk more about the pet scan. My guess is that we'll schedule the mri the radiologist recommended. Fingers crossed the spots are nothing...



    My heart goes out to everyone who has to worry about bills on top of cancer. Fighting for your life should be your only concern. I like your creative fundraising solutions. I wish you lots of success!

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Neta sorry that you are getting close to losing your hair, it will be okay, the chemo is doing its job, and it will come back....easy for me to say as I have mine for 2 more weeks!...sorry...you will look beautiful in your scarves.



    Wendy I hope you are feeling well, minimum SE



    I feel so bad for you girls that have mounting bills from your dx, I couldn't imagine the bills on top of all the stress of the DX. Does some kind of insurance help out or do you have to mortgage your homes to pay for illness?



    Camille hope everything is going okay.

  • ckk
    ckk Member Posts: 270
    edited September 2012

    Hi Ladies! I was dx'd almost exactly a year ago, and went through tretament last winter. I wanted to stop by and let all of you know that next year at this time, you will all feel better, and be talking about many things other than breast cancer! I received amazing support from my fellow BCO sisters (we started a Facebook group, and have even gotten together in person). You will get to the other side of treatment and be strong again!

  • amylovesbubby
    amylovesbubby Member Posts: 53
    edited September 2012

    Hey sisters! Just want to stop by and say hey. Yesterday went well, some anxiety and headache during treatment. Flu like symptoms last night and today along with heartburn and stomachache. Glad someone is here helping with my son. Go for shot at 330 :( hope everyone is doing good today. Will check in one everyone a little later when feeling better!



    Blessings!

  • jojo2373
    jojo2373 Member Posts: 662
    edited September 2012

    Great to hear from you Amy and that all went well. CKK thanks for the encouragement, it means so much. Wendy hope your feeling well. I had hoped to work today but the cold i have knocked me down plus I have a low grade fever to watch. Could it get anymore fun? lol

  • amylovesbubby
    amylovesbubby Member Posts: 53
    edited September 2012

    What day are u on JoJo? You said 1&2 were your worst? I have help 2,3,4,.......think I'll be good for #5 by myself?

  • jojo2373
    jojo2373 Member Posts: 662
    edited September 2012

    I am on day 5, i had a headache day 1 and 2, then tired more day 3. If i didnt have this cold i think i would be fine today. I stopped all my meds after day 3. I am naturally a easily nauseous person so felt it went well from that perspective. hugs!

  • Cherioo
    Cherioo Member Posts: 305
    edited September 2012

    Jojo hope you feel better today . I am off to my chemo class before the big day tomorrow a little nervous but I guess that is to be expected . See you all later.



    Amy glad you are doing ok today and Amy look forward to having you start the same day as me we can compare

  • jojo2373
    jojo2373 Member Posts: 662
    edited September 2012

    Sisters - please google Kellie Pickler on GMA today. I just love the story of what she did today.

  • amylovesbubby
    amylovesbubby Member Posts: 53
    edited September 2012

    Cherioo......it is normal to be nervous......I cried before doc took me to chemo room, he reassured me that everything would be fine and he would not leave the building. Although it was busy because Monday was a holiday, the nurses were very attentive. Best of luck to you!!

  • amylovesbubby
    amylovesbubby Member Posts: 53
    edited September 2012

    Bearcub, thinking of you and hoping all goes well. Amy....good luck tomorrow!

  • Cindi74
    Cindi74 Member Posts: 363
    edited September 2012

    First Chemo Sept 12.  Another week to wait.  Port in.  Operation no problem but three tries to get a vein caused major panic.  Same today for Electricardigram.  Wasn't expecting that.  Thank God for port in future.  Apparently my veins roll and the tech acts like a porkypine.  Plan to use a lot more anxiety pills and pain pills in the future.

    Saw very sympathetic chemo nurse today.  Maybe I'm not the only one with needle phobia.  And I had a 9.5 lb baby with no anesthesia .  Go figure.

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Hi all,

    Well I did my first AC infusion about 6 hours ago. Everything went well, they gave me in pill form Zofram, Decadron before infusion and for 3 days Maxeran, Decadron, and Zofram just tonight.

    They scheduled my Mugga for tomorrow...great timing, do they give you an IV, or is it just a scan? Oh and the nurses said I have great veins and with only four AC I don't need a port.....


    So far everything is fine, went to Costco for my meds, no dispensing fee, total 51 dollars for all drugs for four chemo treatments, will get most of it back when I send it to the insurance company. I thought it would be a lot more expensive so that was a relief.


    I kinda feel like I am waiting for the big flu to hit. I am very lucky my kids are grown, I sure feel for you ladies who have young kids.


    Only 1 more week Cindy, it will go fast and if you had a 9lb 5 oz. baby with no meds you will do just fine!..

    Anyway, wishing a happy day for all of you...and for the Sept girls who haven't started yet it will come quick...I am so happy the backup troops are in me now killing any cancer cells that may have gotten away!!...I had a friend On another thread say the chemo is not being done TOO you but FOR you......that's a good thing...positive thoughts girls!!



    Amy, JoJo Camille and all you ladies who are on your chemo journey I hope everything goes smooth as possible...JoJo hope your cold shakes soon.

  • Cindi74
    Cindi74 Member Posts: 363
    edited September 2012

    Thank you for the encouragement Bearcub,  These two days haven't been great.  Maybe better is coming.

    Years ago my husband and I took the train from Jasper to Prince Rupert.  Georgous country.  I didn't realize Prince George is so large.  That's the problem with traveling by train.  Blink,  and you miss so much.

    Take care.  Glad we met although I wish it had been on a different board.

    Cindi

  • jojo2373
    jojo2373 Member Posts: 662
    edited September 2012

    Bearcub- good news! Hoping for continued no SE's. My MO put me on antibiotics so looking forward to breathing again!



    Question - I really felt my queasiness was very similar to morning sickness. Thoughts or smells of certain foods making go ughhhh. Did anyone think the same? My usual go to things to drink taste off.

  • Cherioo
    Cherioo Member Posts: 305
    edited September 2012

    Well I am as ready as I can be for tomorrow . Went to the Chemo class and I am glad I had my list of questions like am I getting a cream for my chest to numb my port and wanted to know everything I will be taking . My nurse told me that they will have a cocktail of meds for me then they will call in meds to my pharmacy that I need to take for the nauseous . Packed my lunch with carrots fruits crackers yogurt water . The nurse said to keep eating every two hrs .

  • Amy4978
    Amy4978 Member Posts: 473
    edited September 2012

    Oh My I am very overwhelmed tonight! I did my muga scan today that was easy breezy but I am def stressing on tomorrows 1st chemo treatment! I have been so positive this last few weeks but the whole chemo seems to seal the deal.... I wanna thank all of you in advance for the words of encouragement and ideas to easy my symptoms.

    I hope you kick this colds ass then kick cancers ass too!

    Off too bed tomorrow is gonna be an emotional one! I am glad to have my husband at my side. Much love to all of you!

    BTW a few people have posted Kelli Pickler to my FB group and that is awesome Love it!

    ckk... Thanks for the reminder a year is nothing they fly by we all got this one day at a time!

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Cindy I agree this is a heck of a way to meet people. I hope your days are better, I spent the few days before treatment doing all those things that I need done before the cold hits..darn I forgot the outside of the windows...maybe I can get DH to do it..lol not my fav thing. PG has about 80,000 people. That would have been a pretty train drive. We usually head off to Jasper with the 5th wheel a couple of times a year but this year we didn't get to. I would love to see Florida, wanted to see a shuttle launch..I think it's too late now..

    JoJo glad to see your on antibiotics, I had terrible morning sickness with my firstborn..god I hope I don't get that bad..it's tough waiting around for some SE, because I know it will happen, nurse actually said day 5, so who knows.



    Cheerio good luck tomorrow, don't be nervous, you sound well prepared.



    Laura and Wendy Amy, Amy , Camille...how are things going?....Neta is your hair still here? Hope I didn't leave anyone out...sorry if I did.



    Ckk thanks for the encouragement.

  • Cherioo
    Cherioo Member Posts: 305
    edited September 2012

    Good luck Amy tomorrow . I will be looking forward to hearing from you . Hope you have a good night sleep . Thank you all for the encouragement again. It feels so good to have all of you. It is so hard to speak to people about what we feel right now , but having this group is great .

  • wendy49
    wendy49 Member Posts: 45
    edited September 2012

    Bearcub glad everything went smooth for you!  Hugs to you!  Jojo glad you are on antibotics - what a time to get sick.  Poor thing.  Feel better.  Amy4978 and Cherioo: good luck tomorrow on your first treatment -- I will be thinking of you both tomorrow and we will all be waiting for both of you right here to support and cheer you on. ((hugs)).  ckk thanks for dropping in to give us the encouragement we need right now.  Amylovesbubby I hope you are feeling better today.  Laura we are definately the same stats and on the same treatment.  Hope you are feeling better and getting some relief from your fatigue.  

    I'm a bit tired.  I did wake up this morning with what the nurse refers to as "steroid flush."  I did get it again tonight, those damn steriods -- I hate them!  I take my last one Saturday morning.  Actually, the steriod flush gave me a fresh glow, on a postive note.  I had my shot today.  So, now I guess the waiting begins for the chemo fatigue and possible bone pain from the shot.  I'm a little nervous about this, but nothing I can do but go with the flow.  

    Wishing everyone a restful night with MINIMAL side effects.  Peace ~~ 

  • wendy49
    wendy49 Member Posts: 45
    edited September 2012

    Bearcub glad everything went smooth for you!  Hugs to you!  Jojo glad you are on antibotics - what a time to get sick.  Poor thing.  Feel better.  Amy4978 and Cherioo: good luck tomorrow on your first treatment -- I will be thinking of you both tomorrow and we will all be waiting for both of you right here to support and cheer you on. ((hugs)).  ckk thanks for dropping in to give us the encouragement we need right now.  Amylovesbubby I hope you are feeling better today.  Laura we are definately the same stats and on the same treatment.  Hope you are feeling better and getting some relief from your fatigue.  

    I'm a bit tired.  I did wake up this morning with what the nurse refers to as "steroid flush."  I did get it again tonight, those damn steriods -- I hate them!  I take my last one Saturday morning.  Actually, the steriod flush gave me a fresh glow, on a postive note.  I had my shot today.  So, now I guess the waiting begins for the chemo fatigue and possible bone pain from the shot.  I'm a little nervous about this, but nothing I can do but go with the flow.  

    Wishing everyone a restful night with MINIMAL side effects.  Peace ~~ 

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Amy4978 good luck tomorrow along with Cheerio, you will both do great!...fluids, fluids fluids!!

  • sherbab
    sherbab Member Posts: 106
    edited September 2012

    Amy4978, I had my first treatment today and I was an emotional mess last night.  I got up this morning and decided it was something that needed to be done and I just needed to get there and get started.  I found that once I got there I was not emotional at all.  The room was lively, lots of people who were in various stages.  We were welcomed immediately and talked with a lot of the people there!  It was totally different than my mind had set it out to be.  Good luck in morning!

    Cheerio - good luck in the morning as well! 

    Jojo - hope those antibiotics get you back to your A game quickly! 

    Bearcub - sounds very positive for you today!  I get a port on the 14th - had my first treatment w/out but they decided it would be best to get one.

    I came home tired from mine and I still am even after a nap.  I think it must just be everything leading up to today....I didn't get the 'feel good' day I was hoping for but other than being super tired I feel decent. 

     Best wishes toall on here - I know everyone is at a different stage and that is what makes this site so great - there is so much to share and I loved ckk's comments about talking about other things than BC someday...looking forward to that!    

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Sherbab, that was exactly the atmosphere our clinic was, joking laughing and everyone was so up beat. You sound like you have done okay today, I agree, the lead up is probably what tired you out more than the chemo. We had the same drugs. How many infusions do you need?



    I feel better knowing we have done something, it has to be done! I do my mugga tomorrow, sure hope I feel okay for it and for the Feel Good Look Good class on the 10th, I really want to go.



    Do not be afraid Sept. girls, let's get better!

  • firestorm531
    firestorm531 Member Posts: 176
    edited September 2012

    Amy - I had my first Chemo today too and it was way less dramatic then I thought it was going to me and believe me, I was a nervous wreck right up until we pulled up to the building!  I had an early appointment so most of the chairs were still open, I was told to pick out my spot for the day and desposited all my luggage LOL  The initial stick into my port hurt, but just a little; I used the numbing cream but the nurses said to be VERY generous with it LOL  Wear a shirt that buttons down at least part way, it'll make it easier for the nurses to access your port.  From there they pulled a little blood from the port and then I was started with a bag of IV fluids, then a bag of anti-nausea meds, then another bag of fluids, a 2nd type of anti-nausea meds, more fluids, then the adriamycin was brought it (orangish-red and you will pee that same color!), then more fluids, then the cytoxan and finally another bag of fluids.  I was there from 9:30 to 3pm.  I haven't had any nausea, no problems eating or drinking but I feel tired, right down to the bone and I can't seem to get enough fluids in.  Crazy, right?!?!!  I'm still drinking water and peeing clear but I have cotton mouth.  Tomorrow is my neulasta shot and more fluids...so my port is still 'accessed' but taped down to protect it.

    The nurses did tell me that my SEs will kick in days 2&3 and said to report all to my MO when I see her again on the 12th; unless something urgent comes up before then.  All in all, very smooth day, lots of friendly people and got my exercise in having to make so many runs to the little girls room!

    Good luck to all who start their chemo today *hugs*  Its back to bed for me :) 

  • whenlifegivesyoulemons
    whenlifegivesyoulemons Member Posts: 184
    edited September 2012

    In two days I start neoadjuvant chemo as an I-spy 2 trial participant. Chemo continues for 5 months, then mastectomy, maybe radiation, and hormone therapy. Feels like everything AND the kitchen sink. Terrifying. Don't know how you all seem so positive and encouraging. Right now I only seem to be able to pull off bitter and angry, and weepy. I would very much like to take up residence in a far away cave while I go through this. A cave with Internet access, of course.



    So i have six long months to contemplate and dread my impending breast amputation. All whilst bald. And all whilst the 24x7 cancer station plays in my head - first thought in the a.m., last thought before a night of restless sleep, during my commute, during meetings, and in the middle of conversations with friends and family: cancer. Super fun. Maybe the treatment plan isn't the best decision for me emotionally, but intellectually/physically it still seems the right way to go. That means emotional takes a back seat and now I just need to find a way to cope- make this time feel like something other than 6 months of walking the plank. Any thoughts or words of wisdom?



  • Cindi74
    Cindi74 Member Posts: 363
    edited September 2012

    Dear Whenlifegivesyoulemons.  I know. I know.  I  am there--except that I am lucky because I am old and retired.  It seems cancer has taken over my time and life.  It's tests and scans and Dr. appointments, and procedures, and now I'm, told nine months of my remaining life is theirs.  THEIRS. I start chemo next wed.  Had hoped for Thursday  or Monday.  I just want to get it over with.  I even have to go to another hospital site-not the one where my O doctor is or O nurse-but a managable distance or it would be another 10 days or more--and I so much want to get through 4 cycles of A/C so that I can enjoy Thanksgiving with some of the family.  I'll have your back--at least on line.  This BC.org has been my mind saver--answering questions--strong supportive people.  Not at all like scared stupid me that can't seem to concentrate to get work done. I need to focus--do more than pay bills.  Lots of personal projects that have been left half done.  Piles of papers to file or process.  Think I'll go back to bed and try for a couple more hours sleep. 

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Well my first SE may have kicked in, as it is 3 a.m. And I am wide awake. Must be the steroids. Still feel fine, have a mugga this morning at 11:00. Wish I didn't but a baseline is what we need.



    When life gives, I know how tough it is starting out your journey, I had a major meltdown 2 weeks post DX, cried and cried, buried myself and married my DH off in my mind. That was the last meltdown. For me somewhere along the line a light bulb went off, every time the 24/7 cancer tape would play in my head I started to say Change your Brain , and started to be positive and yes cancer is on the brain but in a bit more positive light. Remember they are not doing this To you but For you. As you go along you will find your coping method. We are here for you 24/7...I have to give a year and a half over to cancer treatments with surgery, chemo and Herceptin...oh ya and 5 more years on Tamoxifen, but I will be here!!



    Cindi you are right, you get to the point of let's get this done. I had to wait 8 weeks between surgery to chemo...felt like forever, but is am on my way.....hoping for some hair growth for Christmas!



    Smile girls we are working hard at getting better, we will find our way!

  • jojo2373
    jojo2373 Member Posts: 662
    edited September 2012

    Firestorm/Sherbab - breath a sign of relief!  You did it.  Amy and Cherioo best of luck, we are there with you in spirit.  Wendy - thanks for explaining that steroid "flush" - I wondered why I had this beautiful glow after chemo..lol.

    After starting my Z Pak I can report I FEEL MARVELOUS.  How can that be as a chemo patient? LOL  

    Whenlife -  we are all here for the 6 month haul.  I (at this point) do not know the extent or type of surgery I will have.  It will depend on my response to treatment. My mother was diagnosed at the same age as me and passed a year later after no response to chemo.  I am BRCA neg so it is just a strange twist of irony, but weighs on my mind daily.   I so remember the early days - everything revolved around the cancer word in my brain.  When I would wake, I would have a few seconds of normalcy, then the "oh I have cancer" would kick in.  I feel that initial time is almost like a mourning period.  We will never be the same people we were before cancer.  We have to grief some to move on.  The acceptance comes slowly and the fears do ease, but look at the positive.  You will never take a day for granted now and as Elizabeth Edwards said "Live Deliberately".  Make each second count, never miss an opportunity, and always embrace the people you love.

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