it's been quite a year
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proudtospin, SuzyBlue, mybee, crystal, Rabbit and Ginger- Thanks everyone for the well wishes and reassurances. I'm feeling better this morning and realizing this is just a bump in the road and probably the first of many little scares throughout my life. I'll wait now for the scheduling of the cat scan and let you know what happens.
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This morning, I was dressed for my walk and looked at myself in the mirror and liked the way my breasts looked! It was the first time I have thought that since the morning I left for my lumpectomy more than a year ago. I'm especially pleased because I had on my ever-so-strong zip up sports bra that keeps me steady when I'm out on my walk not my pretty new wired bras that I finally get to wear. In the spring, once I'd lost a little weight, I bought new walking clothes as my sister says exercise is reallly "all about the clothes". I find she's right, it's easier to get up and out-of-the-house on my walk when I wear my new clothes!
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I'm so happy for you feeling this way!! That's great.
I never thought about it being all about the clothes before, not seriously.............
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Golden- I'm impressed you're walking this time of year in AZ! You must get up waaaaay earlier than me.
I did finally drag my (rapidly expanding) a$$ onto the treadmill yesterday. Maybe if I can keep it up some new walking clothes are in my future!
Hope everyone had a good weekend!
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I usually am up by 5 and try to be out-the-door by 6. I can walk even when it's pretty hot now that my incisions are healed. I grew up in Nebraska and really hate being cold!
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I wonder why it is.......... that sometimes this hits like a new thing again. I laid on the floor tonight to rest my back (the kids were taking up all the seating as we gathered to watch a movie) and I stretched my arms up over my head. How different my body feels!! And the pec muscles are so tight from the implants. It was like I felt the implants, stretched muscles, numbness and pain 'points' anew. Maybe it was because I was filling in a neighbor tonight on my year. I don't know but sometimes it's like 'wow', I had cancer. This is serious business. Taking care of myself is serious business. I am just so mindful of my time now and the need to spend it with my kids. They say life is short. That thought is with me so often, daily now. It even feels different to hug them now.
I thought I would share; I know others have these thoughts. We certainly can't ever rewind the clock can we?
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I often feel like I am in a dream. I said this before ... I liken it to when I turned 50. I know it is true but I cannot believe it me that I am talking about. I am reminded every day ... Whether it is the shortness of breath from rads, the puffy ankles from tamoxiifen, the soreness under my arm or the numbness of my breast. I know I will be ok but it is going to take sometime to get me used to the "new" me.
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mybee333 and Joanne_53 you've described things so well! Thank you for your words. It's those little things that are different that once in awhile just hit me like a ton of bricks. I had a mment the other day where I happened to stretch those muscles and realized I hadn't been doing my arm exercises since my last surgery in May. I stopped for the surgery but never started again! September is here, guess I've taken enough of a break. Back to my little weights (I use one and two pounds ones, LOL). Guess I'll work my way back up to the two pound weights. Who ever thought that might be my goal? I miss my old breasts.
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I will be one year out as of October 11th. I had a rough chemo, then rads. I am just starting to get back to exercise as well. I had so many side effects and pain I really couldn't do much. I am trying to walk more, and I am doing hand weights and arms 3lb! every day. I was getting really discouraged, but then yesterday while cleaning out my closet I found the "chemo" pants I wore most the winter, and it made me realize i have come farther than i thought!. Hang strong everyone and have a great weekend
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In a way, it is like a dream, one that never ends. There is a slightly surreal experience to life now. There are so many reminders, as you said. I wake up stiff and hardly able to walk in the morning from my Aromasin. That slowly works its way out unless I sit for a while in the day. I got new bras, clothes. I watched a movie last night, as I said, and the young actress took off her shirt. I remember having breasts like that! And the man that seemed to love them decided not to play with these new ones (sorry for those of you for whom this is TMI but .........I like to be real here). Of course there is the visual reminder every time you see yourself in the mirror, before and after showering, etc. I am struggling with edema in my feet and ankles too. It comes and goes. I am really surprised at how much numbness and extended tingling there is - breast of course, but under the arm on my side, around to my back, underneath my breast. That was unexpected. Joanne - You know on the other thread I have talked about dating. I have a hard time picturing dating like this. Perhaps if I had more energy. I read the profiles of these guys and can picture possibly dating, but I think it is the old me I'm picturing doing all these things they want to do, not this new me.
Anyway, I don't really go about my day feeling sorry for myself, as it may sound, but rather, adapting. I also developed arthritis over this past year too. I am going to try to vacuum today; my right shoulder gets so painful with repetitive motions. Between that and the mastectomy/pec issues on that side, housecleaning is a challenge. I remember when I had so much energy; I remember a different person. Perhaps when my energy comes back from this most recent surgery it will be better, but there will always be so many reminders.
I try to focus on each day one at a time, and enjoy the good things in that day and be mindful. It takes some conscious doing to achieve and I forget to apply my positive thinking skills for, let's face it, most of the day. But I do try.
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mybee- Thank you for your thoughtful posts the past few days. I think you have verbalized all the subtle changes in our lives now. Things we took for granted that came so easy are now replaced with a conscious awareness. Every movement seems to be a reminder of the changes. I think so many think it is a visual thing that you get a glimpse of a few minutes in the mirror in the morning but it's an all day thing. I miss the easiness of walking around in my own skin. I hope, with time, I will get there again and this will all feel normal. It helps to know, though, I'm not the only one feeling these feelings so thanks for sharing all that you did.
I thought at this point I would be moving on but my doctor called about the cat scan I did next week. Said basically it could be degenerative issues with my sternum but couldn't rule out metastasis especially given my symptoms. She referred me to the oncologist for further evaluation. Just hearing the "O" word has thrown me down the rabbit hole again even though I don't know, yet, what is going on. I had been moving in a 2-steps-forward-one-step-back rhythm. Now I feel like picking up the phone and making an appointment, and stepping through the door of the cancer center the day of, has altered that ratio a bit.
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Kate - yes I think you hit it when you said 'conscious awareness'. And it is a constant awareness.
I have a dumb question and apologize ahead of time but would like to ask it: Could DCIS, given you've had a dbl. MX esp. metastisize like this? I thought that the 'IS' part meant it was contained, or no?
Not that anyone wouldn't be frightened. This will definitely set you back some in your emotional recovery but I am definitely also hoping that is the only way it sets things back for you. I am so sorry that this has to bring it all back for you. You will have some rough days ahead dear.
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mybee- Not a dumb question at all. I remember asking my BS about it at my last appointment. She said the risk is incredibly, incredibly tiny but could happen. I know with the pain, and the abnormal scan, that something is going on but I really don't think it is BC related. I think that was why it was such a shock to hear the word oncologist but I know they are just being cautious given that tiny risk. I think this hypervigilance is also part of our new reality, unfortunately.
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I also have times where I can't believe I have had cancer, that the very word relates to me somehow. For the last two weeks I have had pain in my non- cancerous breast and after mustering up the courage to go to the doctor find I have two lumps she is concerned about. I know the odds are that it's nothing but I'm scared and can't believe I'm even having to think along these lines again. When does it ever end.
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I am so sorry that you are having to go through this fear, waiting, and ........you know, the whole thing. It is awful that you have to deal with these feelings again. Even if it is all fine, as it most likely will be, it will be trying for you. Hang in there dear, and please keep us posted.
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SuzyBlue- I know how hard it is to even think about going through this whole process yet again. I'm really hoping that it does turn out to be nothing and you can move forward once more. No matter what happens I think we've all lost our innocence and our trust in our own bodies- at least I have. I guess we have to learn to live with that and not let it define us. Sending good thoughts your way that this is just going to be one of those scares we all probably have to experience and that you get some good news.
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I so much appreciate all of the articulate thoughtful posts. Life after cancer is surreal, and yes, it is a loss of innocence because before I never really dreamed breast cancer would get me. I am the first in a very long line of women.
I did not have reconstruction and I have aches, numbness, all of the things you described, and Mybee, i appreciate your honesty about your man's reactions. We seem to have fallen into a "what's under the shirt is not touched" mode.
Kate, please keep us updated, I send you good energy. I think it is highly unlikely what you are experiencing is related to the breast cancer...but like you said, we have lost that trust in our bodies.
On that point my doctor feels I look at this wrong, if anything, we should have a greater trust in our spirits and body, because cancer came, we dealt with it and we are moving forward. I just don't feel this inside of me. yet. 2 months until I am a year out.
I think the medical hyperviligence is both assuring and terrorizing to live with.
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I have to add tho' I had a brief fling with my ex-hus.this past February, (divorced 5 + yrs. ago) and he seemed to think it wasn't bad at all. He chuckled and said "I think you are more than a breast Molly". It was very sweet. We took a shower together and it was fun. We dated for a month then remembered why we got divorced really quickly
I think the medical hyperviligence is both assuring and terrorizing to live with. Great point.
It's interesting you mention this reframing because someone mentioned on another thread that her doctor pointed out to her that it was really important to focus on the 85% chance of non-recurrence and not the 15% potential recurrence rate. He said those were pretty good odds and to keep that in mind. She felt better too
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Ladies...I have been reading with interest all of these latest posts. To those playing the "waiting game" on tests, etc. I wish you peace as you wait and assurance that all is well when you get the results. I certainly thought the waiting was among the worst of the whole BC experience.
Crystal and Mybee...I loved the point of view that each of your doctors put out there. I am not at the point where I trust my body or my spirit just yet, because I still feel like my body betrayed me. But your doctor's point is good food for thought, Crystal. And the percentages certainly are in our favor, Mybee. I wish I could get myself to accept that and let it give me comfort...maybe someday I will get there. Hopefully, we all will.
My other observation is this...I feel like I am numb emotionally a lot of the time...particularly when I am dealing with something that is kind of a big deal. On this past Saturday night, our family was driving home from church and we were hit by a drunk driver. Thankfully, noone was hurt at all and it really wasn't a bad crash because neither car was going too fast, but it was a crash nonetheless. Both cars were towed, the other driver was taken away in handcuffs after failing several field sobriety tests, and my 5 kids were standing on the sidewalk while the police were doing their jobs. I was certainly grateful that it wasn't worse. Pre-BC, I would have probably fallen apart but now I think I am just numb. It goes along with the whole "I can't believe this happened" mindset. Thanks for listening/reading. I think I just needed to share it.
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Rabbit, We all learn each time someone shares intimate life-details. I am sorry about your accident, and I understand how this just didn't seem to "reach you".
Me too. My precious dog is failing, she is 16, my husband cries, and a year ago it would have terrorized me to even think of losing her, but now I feel numb. Sad but numb.
I wonder when i cried me a river when I was diagnosed, if i cried out even future tears? Cancer changed me and I don't even know the full story.
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Crystal i think you are absolutely right cancer changes us. And we really dont get much choice in that. We only seem to feel the effects when something else happens.
Rabbit so sorry about your accident. Great that no one was hurt but traumatic just the same. -
Rabbit - I am sorry to hear of your crash too. I fell asleep at the wheel a couple of years ago (extremely stressful time of my life) and I was a wreck myself. The time from my clean mammo. to my diagnosis - 9 mos. - was so horribly stressful that I wonder if it didn't hasten the development and growth of my tumor. I was grade 3 and it was an aggressive cancer.
I don't know about the numbness. I wondered if it is/was my AI. Or maybe just emotional trauma. I am starting to come out of it some, bit by bit; I hope to more day by day. I read "French Women Don't Get Fat" and the book is so full of lusciousness and enjoying life's simple pleasures that I think it began to break up that numbness. I've started cooking some of the receipes and enjoying things and feel new feelings. I also reduced my meds. a bit so maybe that helped. I was feeling tremendous love for my 14 y.o. son tonight and marvelled in fact, at the depth of feeling. Where have I been?
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A friend of mine here on BCO talked about the numbness after treatment. She described it as feeling like she was standing in a phone booth watching the muffled world go by. Funny thing was her words really resonated with me so I reached out to her and that is how we became friends. I think each time we are able to share and open up about our feelings we are peeling some of that numbness away.
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numbness is a good description....things that would upset me or get me emotional don't anymore.I don't feel the joy you know what I mean? I am grateful for my treatments and I know I am not healed yet from the trauma my body has gone throught these last 11 months, but there are days I fell like ...when will I feel "normal" again.
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There is a lack of full dimension, that 'joy' piece that you're talking about. For you, to what do you attribute the lack of this full depth of feeling?
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Thank you all for your kindness in these posts. It truly amazes me that people I have never met can make me feel so much better about things (even things that have nothing to do with BC). I guess that is the gift we can give eachother. I appreciate all of your support.
Sometimes I wonder it will be helpful to be numb and stay calm about things because I used to over-react to things all the time. It's incredible how dealing with a cancer diagnosis and sitting your family down to tell them the news changes your perspective on what is a big deal. Now I'm a lot calmer and measured about everything. Maybe that is a good thing.
Crystal...I am sorry about your dog. And I think you may be on to something about crying out future tears.
Jittersmom...I think we will all be normal again in time, just a different normal (if that makes any sense at all!)
Hope you all have a good day. Thank you again from the bottom of my heart.
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I think the numbness is a double-edged sword. On one hand the things that used to throw me into a tizzy suddenly lack importance. You truly do develop a "life is too short to worry about such things" attitude. On the other hand those around you are still having their hissy fits about the most menial things and I've lost patience for that. Actually I've lost patience for drama in general.
I'm not sure why the loss of capactiy for joy, though. Maybe we're afraid to feel that joy for fear it will be taken away from us? I haven't been able to figure that one out. I do miss it, though.
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You ladies are great! I have been reading your posts and finally I'm feeling that I'm not alone with all of these feelings. I seriously have been thinking something is wrong with me but now perhaps it's just part of the process. Sometimes I feel like I'm stuck. It was one year since I found the little BC sucker this August. It will be one year in Oct since my UMX. I am at the end of my reconstruction, only have healing and then a nipple tattoo. Still I can't help myself from thinking "that's it?". I feel like the last year has been a blur of decisions and surgeries.
I went to a support group for people that are finished with treatment and trying to move forward. It was a small group and I was the only one that hadn't had to endure chemo. I felt like they were more concerned with that part of my story than anything. I felt sort of weird about it. Almost to the point of questioning my own decisions. I have to remind myself that I've learned a lot from this site and one thing for sure is this disease is very different for everyone. That said, in the end we are all dealing with our "new normal". Yes, I am starting to hate that term but really how else to explain it.
I'm trying to move on and not dwell on things. I too have very little tollerance for drama. I'm trying to be happy again...but it's hard.
It does help to hear your thoughts.
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Jwilco - thanks for sharing... I feel for you in that support group and why you would almost start questioning about chemo. I have a friend right now who made the decision to have chemo, and is now questioninng that decision. It is challenging - every part of it! Emotions are emotions and it makes no sense sometimes.
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jwilco - I also feel for you in that support group. I tried a small support group and decided to go to these threads instead. There were only 9 active members in my group - we all live in the same small town. All but two members and me were past their five-year mark. (The other two members had done all they could and were in their final months of life - one has since passed away). I felt so out of place - even though the group was very nice - It became more of an obligation to go to the group - something I started dreading. I meet my grandchildrens' school bus every day now, so I have a valid excuse not to attend.
I am definitely participating in this thread and many others today - very concerned and anxious as I am having a bone scan tomorrow. I have been having a lot of pain in my left arm for months - xrays showed nothing, so on to bone scan. Hopefully there will be no hot or cold spots - If not, I will be scheduled for an MRI. If it is determined that I do not have bone mets, my med onc will refere me to an ortho person. Regretfully, as many of you know, it is frightening to think that I may go from stage IIA to IV after a scan.....
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