The dumbest things people have said to you/about you

Aniette, you are SO much like me!!! It would drive me NUTS that she would say/think that and I'd almost want to post a memo in the lunchroom or something to deny it. People tell me to 'pick my battles' but to me, they are ALL battles!! I do think the others are right though, and know that no one "gets a mastectomy" to get breast augementation!!

proudtospin, if you are stage 1, then you MUST have IDC which was surrounded by DCIS. As DCIS is NON-invasive and you are stage 1 which indicates invasive, then you must have had IDC. I know I just sort of said that twice, but this is important!! Pure DCIS is stage 0. DCIS with IDC or micro-invasion making it stage 1 is considered IDC. So quit saying you have DCIS as IDC trumps the DCIS all day long! 

Really stressed-out over this one - I will be writing on another thread, but had to post it on this one, too. I had a lumpectomy last Sept. The incision healed perfectly. I had no post-op problems. I went to my Onc PNP this week as I have had severe arm pain for 3 months and peau d'orange on underside of lumpectomy breast. I have also had swollen nodes in chest and underarm and a lot of breast pain (surgery side). 

My PNP is concerned - she ordered a tumor-marker test, sonogram and bone scan. I am currently waiting for tumor-marker test results. I had my sonogram today - the tech advised me that she saw nothing unusual in the peau d'organ area - then, as she continued scanning, she became very quiet and intense about scanning. She advised me that she wanted to have the Radiologist look at the scan results right away.

I laid on the exam table in the dimly-lit room. The tech left NPR on the computer for me - It just sounded like senseless noise as my head spun with the thought of starting treatment again....The tech finally entered and apologized for the wait. She said she also had to show the radiologist someone else's scan. Great - just leave me in suspense.

That was stressful enough - then she stated that "something is there" and that it "could be something to be concerned about, or maybe not" - Could? Maybe not? She said they would sent the results to my MO to view and that "maybe he would order a mammogram" - Do you think?  She sent me on my way and told me to have a nice day.....On my way out she told me it could be a seroma. I just Googled seroma and do not feel that is the case.

Anyway - I just left a message for my Onc PNP and asked her to call me tomorrow to discuss the sonogram. I advised her that I need more than "Could" or "Maybe not"!

Thanks for listening - scared and upset. 

Thanks, riley, 

She really is a nice person so I believe you are right - she was trying to help. I also agree that saying nothing would have been better. I was actually surprised that she said anything. Thanks for your response. My five-yr-old granddaughter just came over to spend the night, so I am feeling much better.

Thanks again! 

Barb, I have never said that I was stage 1.  I have always listed myself as Stage 0.  That is what my docs called it.  I think you misunderstood something.  And, no I am not a candidate for donor for transplant surgery for my brother, I asked all 3 of my docs at the time!  Actually, they were shocked that I would even ask.   DCIS is listed in a vague manner on some hospital sites but unfortunately, I have other health issues, including age~~that make me not a possible donor.  It is something that is very personal to me and very upsetting.

I have done all the recommended treatments from surgery, radiation and now the lovely AL.  Not fun but doing it!  If you think I over did it, well your opinion.  I too wonder at some folks here who argue with the docs and refuse treatments.  Got one of them as a long time friend who has small amount of DCIS and refused radiation.  I just hope it works out for her but to be honest, I offered my opinion at the time of her diagnosis, told her of my expereince and then backed off.

I wish you the best of luck with your cancer treatment.

OK Barbb, we are pals then!  So hard to follow all folks and confusing for sure.  I am sensitive regarding my brother and his cancer.  He did not find a stem cell donor for his hodgkins and is now in the midst of some sort of "cutting edge", my neice's words, "T cell" treatment.  He was in the hospital for 4 weeks (and no playing with the grandkids so that is torture to him~~), now home but no one knows yet if it worked.  I am glad that he went from treatment at small local hospital to U of P in Philly which is a top hospital, I figure the better the docs the better his odds.

When my brother first told me of his cancer and mentioned stem cell transplant as the ultimate treatment, it was long before my diagnosis and I was all gung ho to be tested.  But timing was off as by the time his cancer had progressed to docs suggesting it, I had already been diagnosed and was finishing up my rads.

Think positive thoughts for my brother, all I ask is that this treatment works.

Neil is his name, thanks, my family has been hit with the nasty c word far too often

Cam....love it!  Have you found a pic of Burnt Bunz!  Hahahaha!

shelly, just checked out the info and this is the part I think you are referring to:

When you have had DCIS, you are at higher risk for the cancer coming back or for developing a new breast cancer than a person who has never had breast cancer before. Most recurrences happen within the 5 to 10 years after initial diagnosis. The chances of a recurrence are under 30%. 

As you can see, it says "highter risk for cancer coming back.....than a person who has never had breast cancer". 

Pinkgirl--I think alot of husbands really don't know how to handle this whole bad trip, so they do the best they can, even when it's silly stupid. I;m sure he means well especially if he's always been a good guy.

well I do not think you said anything dumb, fact I would have likely done the same thing!

 is always good in  my judgement but...since this is the start of a long weekend, best to stay busy and try to keep your mind off of the tests.  Go....take a hike!

also,I had a mamo recently that had new junk on it and had to have a biopsy....I told myself the results whould not be in for 7 to 10 days.  When the results came in (B9) after only 5 days........much easier on the old head.

The worst thing in the USA medical research history was the limits put upon stem cell research. We have the greatest research capabilities of the world, the greatest application skills--yet it could be turned off by one person. Our President. Set us back by years, b/c he had a a belief.  Clucik'em. Stem cell research is the future. IT IS THE BEGIINING OF THE END TO DISEASES THAT CAN BE CONTROLLED. Science research should not be controlled or limited by the government----or one person---the second George will go down in history as being really stupid about this one question, not withstanding the war. But his stupidity about limiting scientific research just was stupid

MLB, sounds like he suffered a "head injury" during his motorcycle accident...

Thanks, Barbe - I felt so dumb telling BS's office assistant that I did not know what was going on with sonogram - I forgot to mention in my post that my med team knows that I am a very informed patient who researches my path reports, mammos, etc. I really feel out-of-the-loop of my own treatment at this point. Things are going to change, though - I just left a message at Oncs office - I will be picking up copies of my recent mammo, arm xray, sono and hopefully the tumor marker results I have been waiting for - for over a week! 

My BS and wonderful VT teaching hospital is two hours away, and the trip includes an expensive ferry ride over Lake Champlain- beautiful trip! I was trying to save time and money by going to my local hospital - big mistake. From now on I will put my health care before money and go to my BS.

Thanks, to all for your input and caring.