cant gave me any more chemo

Options
caroline71
caroline71 Member Posts: 27
edited June 2014 in Triple-Negative Breast Cancer
cant gave me any more chemo
· Share on FacebookShare on Twitter

Comments

  • caroline71
    caroline71 Member Posts: 27
    edited August 2012
    pain in my hands and feet is unreal I was plagued by constant pain in my hands and feet when standing or resting. Burning sensations, electric shocks and feelings of sharp objects sticking into me.

    Everynight I'd spend hours trying to get to sleep. I have severe neuropathy, then out of the blue, , my eye lashes fell out and the pain in my hands and feet escalated drastically. Aimee noticed my eyelashes last week on treatment

    I was prescribed Lyrica. This removes the pain but does not repair the damage done by the chemo. I was very concerned about the side effects, especially the dizziness, as I am pretty unstable for a few minutes when I stand up. I was terrified of having a bad fall and ending up worse off. I am on lyrica for years any way but not helping this pain


    my liver is fine but they had to rule it out got home from hospital at 6pm long day again my chemo is stopped my body cant take the toxins anymore back 3 weeks hoping then I can have surgery has been very tough onn me since I started my oncologist said she needs time to talk things over with my surgeon I got some answers today I am high risk for the reacurance and it comes back in the lungs she finally told me today spoke to all my family and they cant handle it


    so I really am having a tough time have been so sick now I just have to wait cancer of the breast my cancer is called triple negative is the name of it if you want to look it up

    I know and it wont get better till they decide what to do now I had a lot of bad days and on the bed a lot as my mobilty went so I can barely walk but I have a wheel chair and a walking frame to help me they gave me 3 TC 1 ac AND 1 TAXOL

    · Share on FacebookShare on Twitter
  • bak94
    bak94 Member Posts: 1,846
    edited August 2012

    So sorry to hear you are going through those horrible side effects. Did they want to give you more chemo? Sounds like you have had quite a bit. Did you already have surgery? I still have neuropathy and I finished chemo in October 2011. It got pretty bad, I was on abraxane. I have gotten better, but not 100%. I hope you find some relief.

    · Share on FacebookShare on Twitter
  • Lou10
    Lou10 Member Posts: 332
    edited August 2012

    Hang in there! Chemo sucks ... after my first dose of taxotere, I couldn't believe the nerve pain, etc., etc. My subsequent doses were reduced because of the degree of neurotoxicity I experienced. If you need to have more of the same chemo, maybe find out if that's an option for you.

    Like bak94, my neuropathy hasn't gone away (I finished chemo a year ago), although it has never been as bad as it was after that first blast. Recently it seems to have improved after going off taxmoxifen. And it can go away more quickly so try not to expect the worst. Sounds like you've got a ways to go, if your surgery is still to come. One step at a time ... I sure hope you feel better.

    · Share on FacebookShare on Twitter
  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited August 2012
    Hello caroline71


    I have been reading a lot of your posts on different threads and am so sorry to hear that you are having such a bad time. I can understand that you are feeling very panicky and I am sure lots of women feel the same when going through this treatment. There are so many women on the bc.org forum who can show you that you can get through this treatment and that it will come to an end. Like you, I was diagnosed with triple negative breast cancer, invasive ductal carcinoma, grade 3 and one node involvement. My tumour was 6+ cms. Like you, I had chemotherapy before surgery to try to shrink the tumour. I had three months of epirubicin (Ellence) with cyclophosphamide and then three months of docetaxel (Taxotere). I then had surgery, a mastectomy, and then radiotherapy.

    I am still alive and well after more than seven years, despite the fact that for triple negative breast cancer there is at present no treatment after the standard treatment.

    Triple negative breast cancer (TNBC) often gets a bad write up, just because there is no treatment after the standard one as there is for hormonal breast cancer.

    There is a risk of recurrence, a new primary or spread (metastases), with all breast cancer, regardless of their receptor status. You must not be frightened by TNBC.

    You seem a bit confused about your treatment. Do you still have more chemotherapy to go through and what will you have? You need to have this clear in your mind.

    As for the side effects that you are experiencing, they are very common, but they will pass. There is medication for pain. It is Neupogen and there is medication for sickness and nausea. You will feel very tired and you will need to rest. As for the neuropathy, my understanding is that there is no cure but it does improve and you can live with it.

    It is up to you, but the two main threads devoted to TNBC are Calling all TNS and Calling all triple negative breast cancer patients in the UK (but this is not confined to the UK). I would suggest you go over to these where you will get a lot of support. I noticed that you have posted on threads, but not replied when people have responded to your questions.

    We are all here to help you, to comfort you and to allay your fears.

    With very warm thoughts.

    Thinking of you
    Sylvia

    · Share on FacebookShare on Twitter
  • caroline71
    caroline71 Member Posts: 27
    edited August 2012

    Thank ypu all no I did not have surgery yet but good news is my surgeon rang me today and wants to see me on Thursday  so I dont know the outcome till then but I do want both breast off and I am hoping she will do that for me as I know I cant have reconstruction I dont mind  thanks for your replys enjoyed reading them  thanks again Caroline xx 

    thinking of ye all xx 

    · Share on FacebookShare on Twitter
  • linali
    linali Member Posts: 194
    edited August 2012

    Hi Caroline,I have been away and not able to post. I also will be meeting the breast surgeon in Limerick on thursday. MY appt is 3 3o. Are you the morning or afternoon

    · Share on FacebookShare on Twitter

Categories