Reevaluating Life

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PamCA
PamCA Member Posts: 41
edited June 2014 in Life After Breast Cancer

Hi,

Do any of you find that after surviving cancer, you are reevaluating what you want in life - i.e. husbands, work, etc.?  I still have 10 rad trtms to go, but I am dealing with this and it makes me feel a little crazy.   (Before my oldest daughter, 21 had died of heart lung transplant is 2010.)  That caused me to look at what I want with rest of life (I am 58).  But after the bc, it is like it is causing me to reevaluate again.

If any of  you are going through this, I'd like to hear about it.  Thanks.

Pam 

Comments

  • my3sunz42
    my3sunz42 Member Posts: 148
    edited July 2012

    Pam - I understand exactly what your saying ... I find myself trying to figure out what my new normal means daily. These things I know for sure about it:

    - I probably will never comfortably wear a bra again

    - Every time I find a bump, lump, ache, etc, my heart will skip a beat

    - My new best friends include my plastic surgeon & oncologist 

    - Work is something I do to enjoy life -but I'll never let it rule my life 

    - I now know who my real friends are

    - I've got the best husband anyone could ask for

    - We are not alone ... this website is proof of that  

    What I don't know is if I'll ever get over this nightmare that began in April 2012 or if I'll ever have a day where the threat of cancer doesn't haunt me. Will I ever really really feel 'normal' again?  

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited July 2012

    After going through the knowledge that you have developed a potentially life-threatening condition; after having gone through surgery, chemotherapy, radiation, hormonal therapy and whatever else you had to do to reduce your risk, I don't see how you can't NOT re-evaluate your life.  This journey gives us a new perspective of what's important - and what's not - and many of us end up making changes to reflect our new reality.

    I have the most solid marriage going and an incredibly supportive husband, yet we still struggled.  Despite the fact that he didn't miss a test, appointment or treatment, and was there for me every-step-of-the-way, I still felt incredibly alone and isolated.  It placed an incredible amount of stress on us and there were times when I wondered if we'd come out of it intact or whether it would cause us to shatter.  My anger at what was happening to me also didn't help and I wondered if it would be better (and less stressful) for him if we did decide to call it quits.  Thankfully, we both decided that our marriage is too important to either of us to just let it go.  But for awhile I wondered if we'd make it.

    The thing is... I think re-evaluating what's important in your life is entirely normal when you're faced with a situation like ours.  We've just been rudely awakened to the fact that we're not going to live forever and that's a really uncomfortable feeling.  I think it's important to assess your life honestly; and sweep out the stuff that just doesn't matter and embrace wholeheartedly the stuff that does.  However, I would warn that, while re-evaluating what's important to you, that you not make any hasty decisions.  A cancer diagnosis and treatment can leave one feeling shell-shocked and it takes awhile to sort out- and work through those feelings.  Give yourself the gift of time.  Be kind to yourself.  You've just been to hell and back, and you need to get your feet under you before you make any irreversible decisions.

    As for feeling "normal" again?  I'll be blunt.  Life will never be quite the same again.  Prior to your diagnosis, you probably didn't think too much about how you'd exit this world.  Now, you do.  It's a very uncomfortable feeling and there are times when I know I'd do anything to recapture that sense of "blissful ignorance" that I had prior to my diagnosis.  But just because Life will never be quite the same again, doesn't mean that it can't be meaningful.  If anything, Life takes on a new poignancy and urgency.  Every day becomes an incredible gift.

    You are, now, more aware than most that Life is precious.  You still have all the pieces of your old, "normal" life in your hands.  The trick is... figuring out how to fit the pieces together in a new way; a way that will allow you to become yourself again... only better.  You're still you.  You've survived what has, probably, been the worst things that any woman will ever experience.  You've lost a child.  You've had breast cancer.  Although you are bruised and battered, and may feel utterly- and completely defeated, you're still here.  There is meaning in that.  Life can still be good; it will just be different. 

  • cfdr
    cfdr Member Posts: 549
    edited August 2012

    I am re-evaluating how I spend my time. Part of it is that realization that, at 54, I've been putting off a lot of things I enjoy doing because there is always something more important to do: earn money, clean the house, exercise, etc. My husband even suggested I should spend the rest of this year figuring out what I want to do for the rest of my life. He really wants me to pursue an entrepreneurial idea; I on the other hand would like to spend more time on artistic pursuits.

    Wonderful idea, but so not realistic. I do the household budget, and it quickly became clear that, as generous as his offer was, if we want to keep our home (and have it heated, with running water and electricity and all that good stuff), I need to be bringing in an income. In fact, I need to be bringing in at least as much as I did before I got sick, if not more. 

    Problem is, that my body and mind don't seem to be cooperating with getting back to work. I am fatigued and unfocused and have trouble motivating myself to sit at my desk and work. I used to be very self-disciplined, which is critical when you work for yourself. Now, I'm embarrassed at how much of the day I spend playing online solitaire games. 

    It's like cancer and cancer treatment were a flash flood that tumbled me around and deposited me on a new shore. I survived the ordeal, but I'm exhausted, and I'm not sure where I am anymore.

  • PamCA
    PamCA Member Posts: 41
    edited August 2012

    SelenaWolf - thank you so much for your reply.  You have said things here that I needed to be aware of, gave me insight and helped me to realize I don't have to rush with reevaluating life.  Thanks so much.

  • PamCA
    PamCA Member Posts: 41
    edited August 2012

    cfdr - I understand that feeling about feeling like you are on a new shore.  That is the way I feel.  It feels like I am trying to feel my way along toward what I want to do with the rest of my life, but dealing with the detestable fatigue that is with me most of the time, I feel like my body is not the body I used to have, I can't seem to depend on it to be strong and resilient the way my previous body was.  Then the people around me even in my family seem to be proceeding along with their life and I am feeling unsure and anxious even when  I am pursuing something I want to do.  This is most uncomfortable.  Thanks for letting me know I am not alone.

  • PamCA
    PamCA Member Posts: 41
    edited August 2012

    Does anyone know if there is a good book written for this stage after cancer and trying to put your life back together again?  Thanks.

  • cfdr
    cfdr Member Posts: 549
    edited August 2012

    A friend of mine recommended the book "Dancing in Limbo". It's also on a recommended books list from my cancer clinic. Have not read it yet but think I may need to.

  • PamCA
    PamCA Member Posts: 41
    edited August 2012

    For  what it is worth after you told me about the Dancing in Limbo book, I ordered it.  I've only had it a few days, but it is much better than the other after breast cancer book that I bought.  It helps you understand what is going on with you inside.  I haven't got to the "what can you do about it" part, but I would encourage anyone feeling strange after cancer to read it. 

  • cfdr
    cfdr Member Posts: 549
    edited August 2012

    I got it on loan from our local cancer support center. About 2/3 of the way through it now. So far I have not related to it 100%, for instance I never really went through a "Why me?" process. But I've related a lot to the part about grieving...what was interesting to me is that as I read it my mind kept going not to my cancer experience, but to my mother's decline and death, which immediately preceded my diagnosis. It has made me realize that because the cancer came on so soon afterwards, I have never fully been able to mourn my mother. I have not even scattered her ashes...we planned a weekend to do so, but I was scheduled for surgery that week. Planned again in the fall, and I was scheduled to start chemo the week we planned to make the trip. So her ashes are still on a shelf in my closet. My husband wanted to make the trip this fall, but I strongly feel that I need to stay put and get back into a routine...a trip sounds more like a burden than a vacation to me right now.

  • dlb823
    dlb823 Member Posts: 9,430
    edited August 2012

    Pam, a book that helped me a lot is BACK TO LIFE, Getting Past Your Past with Resilience, Strength, and Optimism, by Alicia Salzer, M.D.  It's not aimed at bc survivors, per se, but for anyone who has suffered a PTSD experience.  Here's a link to more info: http://www.aliciasalzer.com/back-to-life-book.html

    Although I'm not sure how many of us can truly relate to the double whammy you've suffered, I think Selena beautifully expressed a lot of what we go through.   Finding our new, stronger selves is definitely a process.  And don't be surprised if you experience some angry outbursts along the way.  Surpressed anger is very common after what we've been through, and it can bubble up and spill out at odd times!

    I'm so sorry about your daughter.   (((Hugs)))  Deanna 

  • PamCA
    PamCA Member Posts: 41
    edited September 2012

    Deanna,

    Thank you for the hugs and your support about my daughter.  I did get grief counseling for a long time and still do, so that has helped a lot.  I am glad you talked about the suppresssed anger.  Sometimes I find myself suddenly speeding up in the car and feeling angry while I am doing it.  But then life is complicated so am not sure if it is about the cancer or other things like marital problems.  But I am aware that I am still angry about ever having to have cancer.  I find that I am less willing to put up with things  that I used to  put up with.  It is like life is too short and I don't want to waste it.  Somehow reevaluating life twice - after daughter's death and after cancer is a lot to deal with for me.  Given I don't like change much by nature, looking at what is important to me and what I want to change is scary.  Sometimes I feel really anxious about being a different person than I used to be and how I will sort it all out.. 

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