Illinois ladies facing bc

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  • ritajean
    ritajean Member Posts: 4,223
    edited August 2012

    Lago, is your updated list for just those who would be available for lunches, etc?   I'm probably not going to make any of the Chicago area lunches but I'd like to remain on the original contact sheet for the thread and my info has not changed.  Thanks!

  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited August 2012

    Lago-read your review, well said.  It's amazing how many dysfunctional doc offices are out there-frightening. Your dinner sounds delish. 

  • KittyWinnie
    KittyWinnie Member Posts: 19
    edited August 2012

    Hi - Thanks for all the warm welcomes. 

    Lemondrop - praying for you and your dad.

    kjiberty - I just voted for you on FB - hope you win!  

  • tpot3
    tpot3 Member Posts: 4
    edited August 2012

    Lago,

     I will have to fix that.  It only went to my lymph nodes, no where else.  THANK GOD! :-)  Thanks for pointing that out.  Going into surgery they thought 2 or 3 nodes, but it turned out to be 4, which took me from a stage 2b to 3a. :-(  Yes, this is definitely all new.  I had my first treatment Friday and today was the first day I felt "normal."  The first 2 days weren't that bad, but then I was fighting the worst headache I had ever experienced.  It finally let up today and motrin has done the trick.  I keep reminding myself that it could be  A LOT worse! 

  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited August 2012

    TGIF!!  Thinking of all of you and hoping you have a positive day!

  • lago
    lago Member Posts: 17,186
    edited August 2012

    tpot3 2b-3a IMA not a huge difference. I was one node away from being a 3a. BS pretty much thought I would be. Be sure to drink plenty of water! That might also help with the headache. If you have any energy try to exercise even if it's a short walk. I know after my 4th TX I stopped (dead of winter and I was so stiff). I wish I hadn't. I think I got stiffer because I wasn't moving around enough.

    How many tx are you getting? Did you get any other SE?

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012
    What matters in life is not what you're busy doing or having, but what you're busy BEING. Whatever you ARE is what you will experience in your life. Your 'beingness' equals your life experience.
    ~ Soren Lauritzen ~
  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    So glad Rita stated things the way she did.  I too won't get to Chicago often....at all, but I do like to get the notices as it helps me watch out for ( so hopefully ) the pictures that usually accompany a gathering.  It is always but always a huge inspiration to me ( back here and somewhat alone in my part of the woods ) that so many people are living a wonderful life again.  That life goes on and that you can in fact, live so much of the time rather effortlessly.  I have found that after diagnosis and txs. many of the things that used to GET to me fairly good are pesky annoyances now. 

    Still it is nice to see smiling, flowing faces.....it reinforces my reality.

    Hope you all have a fantastic Friday. 

    Hugs, Jackie

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    OK here I go again, I know I have asked this 1,000 times and pretend I understand---but the difference in 1 positive node can change u'r STAGE, NOT GRADE---so if u hace 6 nodes out and 3 are positive that gives u a stage?  Why does this get more complicated to me than easier?

  • lago
    lago Member Posts: 17,186
    edited August 2012

    camillegal here are a couple of links from very reliable sources that should help you understand:

    This link is the most straight forward and easiest to understand: linky  
    This link has more detail than you probably don't want to deal with right now, or maybe ever: linky 

    *If you have distant mets from the start (another part of the body like liver, bones, lung etc.) then you stage IV regardless of how big your tumor, how high your grade and how many nodes.

  • RoulaG
    RoulaG Member Posts: 239
    edited August 2012

    Good afternoon ladies - I have decided to move forward with a BMX with immediate reconstruction. This will save me the SEs of rads and give me a little more peace of mind. I have thought about this a lot since my diagnosis. I look at my breasts now as enemies, just waiting to get me when I least expect it LOL.



    To tell you the truth I haven't "liked" my breasts since before I had children. After my son was born they became very big and started sagging, after my second child it got even worse. I am looking forward to moving on with my life, getting back in shape (I have gained 25 pounds on chemo), and being able to wear one workout bra (instead of two to hold the puppies in place)has always been a dream of mine.



    Anyways I have rambled on enough, thanks for listening (or in this case reading). I hope everyone has a wonderful weekend, much love to all of you!

  • Lynn27
    Lynn27 Member Posts: 110
    edited August 2012

    RoulaG Tough decision that we have all pondered.  You've chosen the option I went for for pretty much the same reason:  drive the risk down as much as possible and not have to deal with radiation therapy. 

    Most folks seem to opt for TEs or immediate implants and those folks can speak to the pros/cons there.  Some of us (me included) opted for free tissue reconstruction.  Micro-surgery plastic surgeons are harder to come by but there is a relative wealth of them at various hospitals in Chicago and nearby suburbs, including the western ones.  I can give you details of my free tissue and my impressions of how it compares with the implant route in a PM, if you wish.  Any decent plastics guy can speak knowledgably about the differences and his/her direct experiences of the differences, but I strongly recommend you get that comparison list from a plastic surgeon who does both kinds:  implant and free tissue.  Otherwise, you'll get distorted feedback.  Both methods will allow you to adjust the size and shape of your new breasts while a free tissue will also give you a "nip and tuck" at the place the tissue is taken from.

    One step closer to NED and done!

  • Lynn27
    Lynn27 Member Posts: 110
    edited August 2012

    BTW, no more hoping.  One week later than it was "supposed to" happen, the hair has been falling out like lemmings over a cliff.  To show how lazy I am, I was really hoping (dang! there's that hope again) it would fall out on schedule while I was in DC dropping off my youngest at college.  That way the hotel maid could have cleaned it all up (I would have left a decent tip).  Alas, it's me and my vacuum to have at it.

    I'm guessing the hyper-sensitivity to stroking my buzz-cut hair goes away once the majority of the falling out stops?

  • kjiberty
    kjiberty Member Posts: 1,385
    edited August 2012

    Lynn:  You are 1/3 done--yeah!  Hope your S/E's are minimal!  

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012
    Lago--again u came thru and I started reading and fell asleep for 2 hrs. hahaha not from the article fro some pain meds so I had to reread soe of it. But this node thing that always confused me even when I tried to listen to the Dr,  I don't know why--I know it doesn't mean the difference in a stage, but somehow I think that's how I was staged cuz of where they took them from (some of them) that had cancer behind the chest or something in an odd spot. Cuz I know the mets means it has to be somewhere else, he said it was but how could it be-I did have 2 separate operations. How can I still be confused after all this tie? LOL  Thanks Lago
  • virginiab
    virginiab Member Posts: 205
    edited August 2012

    Lynn--

    Yeah, the hypersensitive scalp does calm down, probably pretty soon. You may have read somewhere on these boards that you can use a lint roller (the kind with tape) to remove hairs that are about to fall out. I did that twice a day for about a week and it kept a lot of little hairs from falling down my back an driving me crazy. It also seemed to make my scalp more comfortable. I also wore a knit cap for sleeping.

    Sometime soon after the hair started falling out, I used a man's electric shaver to shorten the buzz cut and that made my scalp more comfortable, too. Every morning I wash my scalp with baby shampoo (using a washcloth or doing it in the shower). I only had a couple of rough nights with the prickly scalp; I might have had fewer if I had used the lint roller and/or shaver sooner.

     I liked your lemmings description. Our sense of humor helps us deal with all the wierdness,

    Hugs to you and your patchy scalp from me and mine.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    Lynn you are too funny --  about hoping the hotel maid got the job of cleaning up your hair.  I do think once all the hair gets out you will not feel your head/scalp/hair so much.  Before all of mine came out it felt like each little hair follicle was pulsating.....once I had my head shaved it went back to pretty much feeling normal if a little on the cool side since it was almost winter at the time. 

    Camille...I can't help you much on stages.  I didn't take the time to read Lago's links but should since I'm not completely clear on all of it. 

    Home for work and looking forward to my two days off.  Hope you all had a wonderful day.

    Hugs, Jackie

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    Oh hair falling out---Hmmmm The first handful I got out--my hair was cut and shaved imediately- My dgtr cam over and it was done--I didn't wait for piece by piece just took it all the way as fast as I could, Fine with me LOL

  • Graceembraced
    Graceembraced Member Posts: 97
    edited August 2012

    Sorry, I've been MIA, busy with visiting family and back to work three days a week.

    I just finished my fourth Taxol/Herceptin, 8 to go. Just noticed the base of my finger nails aren dark. What causes that and how can I prevent further damage?

    I already lost my hair...I like my nails and don't want to lose them too.

    And suggestions welcome.

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    zhi Grace----I used dark Nail polishe. zlol

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012
    "Being strong means rejoicing in who you are, complete with imperfections."

    Margaret Woodhouse

  • blackjack
    blackjack Member Posts: 1,010
    edited August 2012

    Happy Saturday to all....Well I survived my first week back to school. It has been a challenge this week with all the new changes we have. New teachers, new programs, new kids...aarrggg. But it will get done. Looking forward to Labor Day off:)

    Welcome to all the new ladies here who are in tx. You are starting a long journey with many twist and turns to it , but you will do fine. Just remember to be kind to yourself, rest and come here often for comfort. Just remember that there is life after bc txs. Hang in here...

    Just to let everyone know old /new girls that I am having the Annual Holiday Party on Saturday Nov. 3. So Mark your calenders. Place TBA. If you would like an invite please email /pm Lago your email address. The holiday party is a get together for all to celebrate new friendships and life. We have lots of fun and laughter and we also eat too. So mark your calenders if you would like to join us. Evites will be coming soon.

    Just wanted to stop by and say hi to all of you. I don't come on very often now as I am back in school and training for the Chicago Marathon. Life is crazy busy for me now, but I think of all you. Life is good when you get back to a new normal.

    Enjoy this wonderful warm weather. I am loving it.

    Have a great day..Remember to be happy...be healthy and enjoy your life.

    BJ

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    BJ I wish u the best in the school year and Lago where is this get together in November.

  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited August 2012

    Can't wait for the party!  I'm putting it on the calendar right now.

    On a less fun note-I have two friends who were recently hospitalized at Rush (1 for Lymphoma, 1 for hip replacement) and both had their identities stolen.  One found someone had filed for and received his tax refund.  Just a reminder to keep an eye on your what's going on with your personal/financial info.  We have to give out a lot of information when dealing with hospitals, but we have no control over who gets their hands on it.  One way to monitor what's going on is to check your credit reports.  You can get a free credit report once a year from each of the three credit agencies (Experian, Transunion and Equirfax).  Spread those 3 freebies out over the course of the year and you can do a pretty good job of monitoring activity.  Sorry for the lengthy post, but it may save someone from getting ripped off.

    Enjoy the weekend! 

  • blackjack
    blackjack Member Posts: 1,010
    edited August 2012

    The holiday get together restaurant is to be TBA. I am working with 2 right now to get the best pricing and a private room for us chatty girls:) Remember if you would like to come please send in your email address to Lago. I will be sending out evites by email in October. Any questions or suggestions are always welcome.

    Have a great weekend...

    Blackjack /BJ

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    OH TBA Now I know what it means. OK

  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited August 2012

    BJ-let me know how I can help!

  • tlangston07
    tlangston07 Member Posts: 354
    edited August 2012

    Grace..I finished my chemo on May 25 and my nails are still dark..I also wore dark polish to hide it and I used Sally Hansen hard as nails to try and make them stronger and to help prevent the risk of losing them.

    Hope everyone has a beautiful weekend. I'm at 15 on my 28 days of rads and am really just a little tired..No problems YET..

    Terry

  • kjiberty
    kjiberty Member Posts: 1,385
    edited August 2012

    Grace:  Finihsed chemo on 6/28.  Nails not dark, but I am still very nervous about it.  I have kept nail polish on the entire time.

    RoulaG:  I know the decision you made must have been very difficult.  Keeping you in my prayers.  Let us know the date of your surgery when scheduled.  

    I am doing fairly well on rads thus far. 23/33 done.  2 more weeks!!! 

  • dltnhm
    dltnhm Member Posts: 873
    edited August 2012

    Hi everyone!

    I have been reading this thread for quite a while but have never introduced myself. I think I might have responded to a couple of posts months ago but cannot recall if I only did so in a private message. I feel as if I know many of you from reading so many of your posts and hope that you will come to know me. I am in an active group that all started chemotherapy in February and often find myself not keeping up with that thread - so although I've posted on other threads, I haven't joined another thread (eg. summer rads).

    My name is Diana. My husband and I and our three sons live in Gurnee, IL. This is our 9th year here in IL following a move from CO. Our three sons are in college and living on campus ... so we are experiencing a bit of the empty nest right now. I say 'a bit' because our youngest sons are living on campus at Trinity International University which is just down the highway in Deerfield. My husband works there as the Planned Giving Director. Our oldest son is a senior at Colorado Christian University - but is in LA right now in a semester program with LA Film Studies. 

    I went for a routine mammogram in November last year and was called in for a repeat mammogram, which was followed by an ultrasound and then a core needle biopsy - all on the same day. That was the Monday before Thanksgiving and the day before Thanksgiving my husband and I went to hear the results of the pathology. Actually came out of the closet that morning saying to my husband "Just what do you wear to hear someone tell you that you have breast cancer?" I met with a breast surgeon the following week and had a breast MRI which revealed another area of tumor presentation. My signature below shows all the relevant details that followed in shorthand. I'm pretty wordy usually so I'll just to defer to that :-) 

    I am having radiation therapy now and have completed 15/28 treatments thus far with an end date of 9/13. Then I'm slated for Tamoxifen. I will also have some additional tweaking to my reconstructed breast some time this Fall after some time passes when rads conclude. My team of surgeons and oncologists are all at Advocate Lutheran General in Park Ridge. 

    Look forward to getting to know you!

    Diana

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