Alternative Treatment

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  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    I psted on that thresd athena are you still there? the post I responded to, an ititial post on the thread as I recall was then a few years old.

    I also have what I think are probably hardened nodes under my arms, some of them can be sloughed off & the castor bean packs, a homeopathy remedy, I do once a week for 45 minutes, seems to have vanished the ones, or most of them from under that arm as the oil drips down on that side.

    gonna turn in now, up at 6 & a long day today 

  • NattyOnFrostyLake
    NattyOnFrostyLake Member Posts: 377
    edited August 2012

    Abigail, many of us respect your choices and judgements. You are welcome here and we are eager to keep company with you regardless of what you do. You have lead a fascinating life. Thank you for sharing.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    ALTERNATIVE TREATMENT DEFINITION, to me......

    Alternative treatment information shared by people who either have been diagnosed with breast cancer or who are not diagnosed but going to do all they can for their health anyway and are seeking information. 

    DIAGNOSED..... how ironic for this thead......

    Most of us in alternatives have gone through mammograms, biopsies, and /or surgery to be diagnosed according to conventional medicine ---- even though we often choose alternatives for the most part.

    In my opinion.........

    we accept those who choose alternative ways to diagnose what is happening to their bodies... as far as breast cancer.  In my opinion, we cannot turn away those who will not use conventional medicine for their diagnosis.

    About Abigail - her description is quite accurate for IBC, always has been.  Her ongoing issues with breast health and lymph node overload or cancer is enough to say - IF IT WAS ME, and if I chose to not use conventional medicine to diagnose, then I would act as if it is cancer (I would just figure on the worst and go for the healing) and do all I can to support my immune system, use alternatives that give me an edge as far as cancer and anything that could bring me comfort.  And I would want a place to go for support and information.  Seems to me that is here on the alternative thread.

    More about Abigail, for those who have not read the entire thread.... she is 75, for decades now she has been more fully immersed in alternatives and herbs, she has led an unconventional life, share on bco her childhood and early years traumas by the medical profession, and she is also always sharing information that someone could use as far as alternatives and herbs and poultices.  She is an artist intent to paint until she dies..... she does not want to chance losing the abiliy to paint, we could all hope or such a passion.... and she could easily and even proudly be called eccentric.  She also communicates quicker than she can type, thus often it is diffiult to translate her typing, but she is well-educated and English is her first language. 

    I for one do wish that bco sisters and brothers would choose compassion or empathy or understanding, looking at the full picture.

    More than anything, I wish the ones who run through here to ridicule with one liners would refrain, it is so very immature and extremely rude.

    LOVEEssa

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2012

    I just don't understand why Abigail bothers some people so much. While I am in complete disagreement with her choices regarding dx for bc or any other disease, she has a firm belief in the path she has chosen to take. On this thread, she has never asked for advice about whether she should seek conventional tx or not. She has never sought to be convinced of anything other than what she has chosen to do. She has sought no sympathy nor set up any fraudulent charities or sought funds ( as others who falsely claim a disease have). She has only sought to share tips and thoughts with others who seek alt tx. Others who have come here to convince her to seek conventional tx have done so because they wanted to. She never asked for those opinions and has never been mean, sarcastic or unkind in response ( ok, I did see her get mildly irritated once, but she said so without any snarkiness). I have stage IV bc. I am going to die from this, eventually. Abigail's self diagnosis and tx take nothing away from me. BTW, she has gone for many days, possibly weeks without posting. As weird as one my find her situation, she is asking for nothing but to share with those who are like minded. What is to be gained by continuing to be concerned about her if you disagree with her choices or flat out think she is loony? Caryn

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    Essa: We are all interesting and eccentric and fascinating - to someone. I don't say that facetiously. Let me explain: We are all of great value but this space is not intended - it is not strengthened, nor does it prosper, nor help nor heal, on charm. Indee, its best quality comes from lack of discrimination. You can be anyone or anything, with no talent or charm offensive or dubious claim of illness. But we receive you here at BCO if you have BC as diagnosed by conventional medicine, or you have a close loved one with the disease. Reading oneself a bc - or wishing oneself one to get attention, is not the same thing. With IBC after all this time, untreated, a person would not be able to paint or post - the pain would be too much. 

    The letter and the spirit of a support organization is broached when there is not trust in the basic concepts of who this forum serves nd what it means to have BC. There are forums for people with any characteristic which may fit Abigail, who has claimed to have myriad illneses and seems to increase the intensity of her claims when attention drifts away from her. Of course, she will post here as she sees fit, but it violates a very special social contract.

    It is like the person who neglects to drop the 25 cents to pay for a pamphlet at a church. When a very special and sacrosanct social contract is polluted, its people and the belief system suffer. 

    I come to BCO because I believe this is a forum about BC, for BC. The moment that belief starts to be challenged, BCO loses its sacrosanct nature, and women with breast cancer suffer.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2012

    Athena,

    I agree with your post, in principle, but this is the Internet. We have to accept that it is a wide open venue where people can, and will, post all manner of things that may violate the trust and intent of a forum. But, as far as bco goes, I think those people are in the minority. Since that is the downside to a public forum, we just have to deal with it.

    Caryn

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    Yes. But those people must in turn be prepared to be spoken out against. The analogy of the church and trust is very apt. I hereby speak out. I am particularly dismayed by said person's trivialization of another disease that a friend of mine suffers from. When chicanery does harm it is no longer just charming banter.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2012

    Well, for me, that's been the blessing of stage IV (and an extension of tendencies I've always had) , this sort of stuff doesn't bother me. If someone wants to say they are the Queen of England, have at it. I know no one believes them ( unless that really is you, Elizabeth, um I mean your majesty). Caryn

  • itsjustme10
    itsjustme10 Member Posts: 796
    edited August 2012

    From the entry portal... We are 117,895 members in      72 forums discussing      93,901 topics

    That means that there are 93,900 other topics you can read, and not be bothered with someone who upsets you.  Or you could click on her name, then click the button that says "block user", and not be bothered with reading Abigail's posts ever again.

    I understand that her reality is different from most other people's reality.  But, she's quite aged, she may be lonely, and if it makes her happy to post here, why not just live and let live.  Her theories are so off the beaten path, that it's unlikely that anyone would be influened by her posts, so what's the harm in humoring an elderly woman?    Live and let live, and as long as she's not trying to sell some kind of wacky faux treatment, who does it hurt? 

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2012

    Itsjustme10,

    Yes, that is exactly how I feel. There are probably very few, including me, who go along with her views but why be mean to an elderly woman?

    Caryn

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    No ones being mean and it has nothing to do with her views.

    It hurts the truly sick. Thank God many of those folks don't take this too seriously. When you pretend you have x or y illness you trivialize the experience ce of a true sufferer. Incredible that you don't get it. Its not personal.

  • itsjustme10
    itsjustme10 Member Posts: 796
    edited August 2012

    Speaking as a cancer survivor, as someone who voluntarily went through diagnosis, chemo, BMX and radiation, but drew the line at tamoxifen, so found this section of the forums I don't feel it trivializes what I went through at all.  JMO of course, but I believe I do "get it", without finding anything incredible about having gone through this and yet still have empathy for others.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    Itsjustme - I totally agree on what you convey regarding empathy. But lets say that someone says they had a really bad cold and therefore know exactly what you went through. I am reminded of those threads like "stupid things pepole say" et ... or you know those people who no matter what happens to you they are always worse off? There are threads about that. You crashed your car? They were in a five car collision that very day! Your child won an academic prizefighter? Theirs just published a book. Me too-ism. Attention getting. And chicanery. Hope this reads well. On a tablet.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2012

    Why is it do incredible that I don't get it? How could an elderly woman with ideas so very far off the beaten path do or say anything that trivializes my reality? I know who I am and the eventual course of my disease. Quite honestly, her views are so lacking in credibility that it is doubtful that many would pay much attention to them. Athena, you haven't been unkind or mean to her but others have. That and the badgering for her to get a diagnosis are what I object to. Caryn

  • itsjustme10
    itsjustme10 Member Posts: 796
    edited August 2012

    Oh, I understand, but I guess I'm kind of taking things from where they come - if a peer of my mother's said that to me about a bad cold making her understand what I went through, then I'd roll my eyes, but thank them.  If one of my friends said that?  Um, not so much... LOL ..and it wouldn't be pretty. 

    I see a lot of those threads, and sone of those things are pretty stupid.  All you can really do is shake your head at them.

    After everything I've been through this past year (and believe me, the cancer crap was the least of it), one thing I've taken from it is that you have to pick and choose your battles.  With that being said, I really don't want to argue over this, so hopefully we can just agree to disagree about it. :)

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    exbrnxgl I am not aware re: others behaviour towards her so I will give you that. You are wise to judge her as you do. I have a comorbidity that can read like a hidden disability if you will. It also lends itself to misinterpretation and trivialization. I was easily letting Abigail's arte.goon seking behavior go until......until she trivialized the very serious disease of a friend after having been called on it. It was cruel and uncalled for. Me tooism on steroids.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    Note: excuse my scrappy typing. Never good with tablets.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    Itsjustme, I am sorry that you have been through such an awful time as to make the cancer be the lesser of your problems. That has to provide one with a crash course on battles to choose.



    We all come here as we are. I am especially sensitive to claims of illness because l happen to have a very misunderstood and maligned comorbodity.



    Again excuse crummy typing and iffy punctuation.

  • Soyaandpepper
    Soyaandpepper Member Posts: 368
    edited August 2012

    LOL! White Rabbit, that's really funny! This is actually much more confusing than the REAL Alice in Wonderland! Go figure!

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited August 2012

    I AM the Queen of England and Wonderland.  Just gotta give me them hearts.  Did anyone check out Abigail's birth certificate.  Was she really born in Hawaii.  I mean, cmon ladies.  A troll by any other name smells just as....... well you know!

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    back to the beginning:  "forum:  alternative medicine.  this forum is a safe, judgement-free place for alternative therapy users & for those wishing to discuss about alternative therapy only.  alternative medicine refers to treatments that are INSTEAD (their emphasis) of standard, evidence based treatment.  please refrain from providing individual medical advice."

    bacvk to the studio sunday for a few days & then I'll be here for about 17 days.  I won't answer posts or post every day, (I don't post friday nights or saturdays in respect for the God of this sector, & there are other days during the 17 days I won't post, but when I do I would hope that those who are bothered or stressed by my words block my posts or scroll through them. 

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited August 2012
  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    & I don't post when I'm at the studio.  that's up to 21 days a lunar month when I don't post.

    I'll also be monitering gary's noon broadecasts & reporting on them when he mentions something pertinent. when I'm here, of course, I can't listen to him at the studio. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Do I really see the very same people who are having fits over the possibility that voters might need to provide ID to prove that they are who they say they are before casting their ballot are now demanding that a member of a breast cancer support site "prove" that she really is who she says she is and that she really has cancer?  

    These same people just a day or so ago were spouting off about some idiot who used the term "legitimate rape", painting anyone who ever had anything to do with him with a broad brush, and now they are accusing someone who comes to these boards, in the alternative forum, with "trivializing the experience of a true sufferer"?  Perhaps a mirror might be helpful to them. 

    You don't have to agree with everything posted on any forum here, but we all need to be respectful of each other's choices in regards to treatment, and even diagnosis.  I don't see anyone posting anti-chemo rants on the chemo support threads.  What is it about alternatives that inspires people to attempt to impose their non-alternative choices on those who choose to go the alternative route?

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2012

    Just popping in here to echo the sentiments of many of the readers of this thread: If you do not agree with a certain post or poster, please exercise your right to use your IGNORE button or quite simply choose to not read their post. If you are not here to discuss Alternative Treatments in a civil, judgement-free manner, please move along to another forum.

    Thank you each for your cooperation.

    --The Mods

  • pupmom
    pupmom Member Posts: 5,068
    edited August 2012

    Glad your studio is so close to your computer that you can pop back and forth. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    I do not agree with people criticizing others' diagnosis and treatment decisions. 

    I do resent the way the moderators handled this, deleting my post, and then posting their own input right after it,  making it seem as though I was part of the piling on against someone who has every right to post about her struggles here, when my post was in fact doing the opposite. 

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    appreciate your input, moderators!!!!!!!!!!!!!!!!!

    & I may begin treating some with ignortion too.  I don't need the stress either & it takes away from more important stuff:  forinstance gary has been talking about fruit skins.  & I notice the remains when I juice are mostly skins.  he said peel the apples & blend the skins, juicing the remaining apple.  he says not to buy the expensive juicers, but I think they'll juice skind & seeds too.  I don't know much about them if they're easy to clean etc, but my dear friend who beat lung cancer with mainly alternative therapies, modified gerson, then when he began to hemmorhage, surgery, & is still 25 years later NED. uses a norwalk (?) juicer.

    as for pain, it's not the main bad sensation.  the scientists have a nasty word for what is, & I swore I'd dnever use it but it starts with an "f".  both pain & the terrible sensation I can freeze into quiet with ice. 

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2012

    Abigail,

    Enjoy your time with your art. I may disagree with the path you've chosen but you've earned my admiration in other ways. I love how you've never risen to take the bait.

    Caryn

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    I had bhuddisy equanimity training in the early 70ies, stood me in good stead!!  though wearing a bit thin lately

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