Alternative Treatment

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  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    & a very good morning to everyone.

    hi blue, is blue a he??

    re palliative care, that so often means opiates or they're fake equivalents:  methadone, etc, I (understandably feel all of thet ios very bad, whenever, hope I don't need to eat my words;

    I do try & help my immune system, diet etc etc, & that reminds me (joy) I've been haveing some bad days/nights, & I do think they're barometrically triggered specifically thunderstorms.  but I found someorganic small lettuces at the supermarket, wll wash & juiced them, seems to help

    so parkinsons is just the shakes until you go to a conventional docktor & get diagnosed.  I have no idea what that entails, I'm perfectly comfortable calling it the shakes, anyway conventional medicine has no good remedy for it, it's incurable I think, dopomine, for sure:  I did any of you know that the most dopomine is found in saguaro cactus?  & it is off limits, huge as they are you can't hack peices of them to help your shakes as they're endangered & protected. 

  • sweetbean
    sweetbean Member Posts: 1,931
    edited August 2012

    I don't understand the obsession with making women get mammograms.  They sure didn't pick up my tumor.  It was completely invisible on the mammo.  There has to be a better way to diagnose women.  

    My grandfather had the shakes, but not Parkinson's.  It's genetic, apparently.  The neurological system is very complicated.   

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    possibly, my father had the shakes at the end of his life, tough he was a nearly life-long alcohalic.  quite booze & sigarettes in his eighties.  lived to age 91

    I had a mamograph once, "found" a lump below my collar bone on the lft side, went to the collge nurse, 1957 or so, she gave me a mamograph, won't do that again, can't be good, aside from the radiation, all that squishing........& the lump?  I'd probably had it, & still do, since I'd been thrown from a orse at camp some years before, (thank you saphire)  extra cartalidge from the fall on hard trail 

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    Insofar as most everything in our country is corporate, mammos are. And that does help to explain, IMO, why, despite mounting evidence, radiologists like Melissa Weiss (and hence BCO.org) and other continue to trumpet them as essential. The role mammograms play in saving lives is minimal at BEST and and it can hurt lives at worst. Meaning, it's neither here nor there. In the hierarchy of imaging studies, mammos are the least reliable for diagnosis. Other, equally "corporate" technology, such as MRIs are far superior.

    Mammos should be declared obsolete soon. High risk women or those with a history of cancer should be given MRIS or ultrasounds. In a system of universal care, it wouldn't be prohibitively expensive. Mammos are probably overall a zero lifesaver, a fiscal drain - but a job-producing machine that many are loathe to let go of. And so it is with other aspects of cancer care and medicine for while the evidence base is or becomes iffy. Corporate Bog Herba isn't alone in providing jobs over dubious evidence and fairly tales.

    I believe the question of what is corporate and what isn't is moot. The only thing I am interested in is what the strength of the evidence is. For herbs it was never high, so they don't have to meet great expectations. Mammos have been a push-sale that, as more studies are done, appear to have been premature.

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    gary has said recently that ultra sound can injur a fetus as they are done to discover the sex of a prospective child.

  • kayfh
    kayfh Member Posts: 790
    edited August 2012

    Abigail: obstetrical ultrasounds are done for many reasons: to establish a date of birth when conception is unknown or menstrual cycles are irregular, to determine cause of bleeding (ie. placenta previa), to verify the well being of the baby (checking fetal anatomy usually 18-20 weeks), if the growth of the baby is discordant with dates (usually age corresponds with measurement in centimetres on a cloth tape after 20 weeks) then the ultrasound can either reasssure the woman and her health care practitioner or alert them to problems with the baby, when a woman goes post dates the the ultrasound can give information that will help the woman to decide if induction of labour would be a good idea (if the pockets of fluid around the baby are too small).  There are some who would use it to find out if it was a girl or boy, but this is not the only reason for ultrasound and IMHO not a good reason.

    Ultrasound is a diagnostic technology that has been available for obstetrical purposes since at least the late 1970s.  There have been many studies about its safety and efficacy.  The only things that have been established is a correlation between use of ultrasound and left handedness.  (Swedish Study)  and an observation that babies subjected to five or more ultrasounds were likely to be smaller than babies who did not have such exposure.  This finding begs the question-why so many ultrasounds?  Likely because there was concern about the baby's well being-small for dates or bleeding spring to mind.  

    I think that Gary is wrong. 

  • gardengumby
    gardengumby Member Posts: 7,305
    edited August 2012

    I'm not against mammograms, as I was diagnosed due to a mammogram screening - however - I had been asking for YEARS if there wasn't something more effective - as my family history was full of cancer of various sorts - but primarily breast cancer.  They kept telling me that there wasn't anything else.  I didn't hear about breast MRI's until after I'd already been diagnosed. (still PO'd about that - but I didn't investigate, either, and I should have).

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited August 2012

    The problem is, some insurance companies won't pay for MRI's.  Mine did, but we had to get approval in advance and the bill was $6,000.00  Don't know yet what the insurance paid, but hope my share won't be too much. 

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    Dogsandjogs and gardengumby:that's the frustrating part. The way in which mammograms are given out and prioritized over more expensive but more accurate imaging tests, to me, is one of the worst examples of a problem that plagues medical science all over the world: the lag in time between when a discovery/best practice/ piece of evidence comes to light and when it is fully adopted. This is a huge problem preoccupying academic researchers today, and to its credit the NIH and academic centers are beginning to devote lots of attention to it.

    For example, in the 80s it was discovered that the administration of beta blockers within about a day or two (I forget the exact number) of a person with defects in the posterior part of the heart who has just suffered a heart attack can literally save the person's life. But, incredibly, even though this very simple clinical protocol could be adopted, it wasn't for many, many years.

    This is not an alt/conv medicine issue so perhaps it doesn't belong here, but the mammogram thing made me think of it. There are too many practices in bc treatment that, frankly, should be obsolete if you go by6 scientific evidence.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited August 2012

    1957???????????????????????  OMG!

  • Mardibra
    Mardibra Member Posts: 1,111
    edited August 2012

    1957....your lump is older than I am.

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    I very old lady.

    by the way the left breast also has a cyst, smaller than the right, but also irritating for many hyears, gotten at the same time right after the mexican estrogen birth controll pills in 1964.

    it's still soft & wobbly, hope (!) it stays so 

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited August 2012

    I don't think the squishy mammos existed in 1957.  And given by a school nurse, no less.  Curiouser and curiouser.

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    whitman college walla walla washington, wish I could remeber her name, I got meesles that year too & she quarenteed me in the infirmary for quite a time.  formidable but kind woman

  • gardengumby
    gardengumby Member Posts: 7,305
    edited August 2012

    :) a cyst??? That's about as benign as you can get!!  :)  I've got cysts all over the place - including my boobs (well, singular, now) - just like my uncle did - well, he didn't have 'em in his boobs, so far as I know....  But some people get cysts more than other people do.  A cyst almost never becomes cancerous. 

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    well this one did, apparently, cyst hardened & rose then got red spots, they grew, are growing, sometimes very painful sometimes very irritating.  the modern pills arn't as toxic I think.  this took years to manifest anyway.  in 1968 a planed parenhood dr said I should have them aspirated.  in 1987? the biker squished them gone, at some point not sure when they grew back

  • pupmom
    pupmom Member Posts: 5,068
    edited August 2012

    Blue, where's White Rabbit? We need to follow her into the rabbit hole. Oh, wait, we're already there!

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    the rest of the breast is fine though.  but the cyst takes up most of it.  they'd have to take the whole breast as there's no usable skin over the red parts

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    So I suppose I won't sound too terribly stupid if I clarify this:

    This is a discussion forum about "alternative treatment" for BREAST CANCER. That is, you:

    --have been diagnosed with breast cancer and

    --are interested in learning about different treatments for BREAST CANCER.

    While many times one talks about supplements, etc.... one takes for general health, the people who post here are EITHER

    --people diagnosed with breast cancer, or

    --a family member of very close friend who wants to learn more about alternative treatments for breast cancer.

    So it isn't a general health forum or a general alternative medicine forum. Just thought I'd clarify. If you are concerned about non-breast cancer related things such as shaking, substance abuse or AIDS you are better off consulting specialists or forums dealing with those issues.

    There's a lot of suffering here. We need all the energy we can get to comfort sisters in need or loved ones of departed sisters.

    We don't need our time wasted with anyone complaining about every medical problem you can think of but who has not been diagnosed with BC.  We are humans with limited emotional resources. Many women here are incredibly kind, generous and giving. Their efforts and time should be respected, as they expend something in giving care. Don't abuse that if you don't have the illness this is support for. Call it caregiver's exhaustion, but there just isn't room, sorry. Be mindful that these caring individuals are neglecting something else to think about you. Attention getting is selfish in this crowd.

    We have lost sisters on BCO this month ---it's a massacre. I can't count the number. Please be sensitive to the fact that people who really do have cancer really do deal with real illness. Hypochnodria/"me-too-ism" is certainly a condition for which one can and should get treatment - and for which some compassion is in order. But we don't have the resources to extend ourselves that broadly on a cancer forum.

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    off to the studio again sunday for a few days.  I answered questions about the other problems.  the only alternative medicine forum was /is locked & there is currently no other like that, though there diagnosed, biopsied, etc members also posted there.  currently any diagnostics are harnful, & harm to a sick person, or one who no doubt is sick, is I think counterproductive.

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    & there are a lot of good alternative tre4atment ideas on the locked forum, some of which I researched

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    then you may find it more useful to join a forum of people who do not get diagnosed. This isn't one if those forums, though.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2012

    Here is an article about the history of mammography. Though not widespread, it did exist in the 1950's.

    http://www.discoveriesinmedicine.com/Hu-Mor/Mammography.html#b



    I vehemently disagree with self diagnosis and tx of diseases based on feelings, intuition or a radio broadcast. This is also not a forum for AID's ,Parkinson's or pre-natal ultrasound, but many members do post about non- bc health issues, albeit with a medical diagnosis. That being said, by her own description, Abigail is an old woman. Why can't she be left alone? What's the point in badgering an old woman who is not going to harm anyone? It is not necessary and unkind. Why can't we let it go?

    Caryn

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    there no longer is a forum for people who have not been diagnosed

  • pupmom
    pupmom Member Posts: 5,068
    edited August 2012

    Abigail, with all due respect, you do not know if you have cancer or any other condition. As Athena stated this is a board for breast cancer victims and/or their loved ones. Which category do you fall in? Also, whenever anyone throws inconvenient facts at you, you say you're going to the "studio" for a few days, even though you seem to never stop posting here. I suppose someone can post non-stop on the puter and do studio stuff also, but maybe not so well. 

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    there's no computer, phone or tv at the studio, I'm there for several days, 8 or more each lunar month. sunday's through thursdays usually.  I'm a fine arts oil painter & couldn't work after aspiration, biopsy mastectomy or whatever, I'm right handed. I didn't post last week from sunday morning to this morning, If you were keeping track, & no reason why you should be, but no reason to accuse me of duplicity if you weren't

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    & if my posts bother anyone it's perfectly easy to scroll through & not read them

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    Abigail. people are dying. Going off to a studio to paint is something they and their loved ones could only dream of. I only ask that you be sensitive to the very serious illness breastcancer.org and its discussion forums are intended to address.

    If you are not diagnosed but worried, there is a forum here for you. There is also general information about breast cancer on the rest of the site.

    I have come here daily, as have many sisters, to find that some wonderful women are no longer with us. It's hard to keep count. It is that much harder to withstand someone claiming to have just about every malady and suffering known to man.

    And, no, undiagnosed Parkinson's is not just "the shakes." If only. You can find out more about Parkinson's - and AIDS, elsewhere on the net.

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    IBC is apparently very aggressive, & I expect I'll not live as long as I'd like, I've read almost everything on that forum. & there are some that meet my symptoms, & are around my age:  75 & counting.  I've had the red spots now for I guess 17 months now & they've grown pehaps quadrupleds.  the mega green tea help a lot I think. & now the juiced lettuce.  who else told you about the opioids in lettuce?

    I think you were the dperson I tried to contact at first for a forum that seemed suitable. 

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    I have never been contacted by you, no.

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