March 2012 chemo

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  • lostinmo
    lostinmo Member Posts: 922
    edited August 2012

    too funny, I forgot I changed my avatar!   My truck and camper are ready to roll!

  • lanagraves
    lanagraves Member Posts: 596
    edited August 2012

    Hi everyone. I haven't posted here in a few days. It's been super busy at work, which is a good thing. It keeps my mind active. Congrats to everyone finishing up chemo (and/or RADS). I think about you ladies every day, even when I don't post, and would love to keep in touch. I am on Facebook, and have friended a couple of the ladies on here. Anyone else who would like to keep in touch that way, PM me and I'll send you my FB name or look you up on there, or however. Have a wonderful day!!!!

  • Alicethecat
    Alicethecat Member Posts: 535
    edited August 2012

    Hello ladies

    I love it when we get posts from Bev and others who have been reading this thread but not posting - it's good to know we have been offering each other help, comfort and support.

    Would be great to keep this thread open. We have all been through so much. Great to see us progressing through chemo and rads and on to pills if we have to. 

    Thank you again.

    Alice

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Please keep the thread open!  I love to hear how everyone is doing!  

  • KCB
    KCB Member Posts: 365
    edited August 2012

    I'm all for keeping it open, you ladies were my first BC.o family....

  • Januaryice
    Januaryice Member Posts: 120
    edited August 2012

    Hello fellow Marchers!!!! I also still check up on this thread. I have been in the rads thread as I'm now 13 for 33. So happy to see that others are also starting to get so close to finishing chemo and even rads. So funny that when I was in chemo I'd check this thread at least 3 or 4 times a day. All your support and help really made a difference. Thanks!!!! And I agree that we should keep tis thread going. Where will we all be a month, two months, or three. Should be interesting to see.

  • lostinmo
    lostinmo Member Posts: 922
    edited August 2012

    I'm good with keeping in touch here. I've noticed that other chemo groups do the same. Then we will know where to find each other. 

    Starting rads tomorrow and getting nervous. So I will try and stay busy today, and take a sleeping pill tonight. I have a calendar marking off the days to what is hopefully freedom!

    Hope everyone is having a good week. 

  • Januaryice
    Januaryice Member Posts: 120
    edited August 2012

    Lostinmo- trust me this is so much easier than chemo!! Nothing to be nervious about at all. I think the worst is finally behind us. Of course I still have 20 to go so I hope I know what I'm talking about.

  • lostinmo
    lostinmo Member Posts: 922
    edited August 2012

    Januaryice-I think most of my anxiety today is that I meet with the MO tomorrow also and am afraid he will have some bad news. I have nothing to base this on, just fear I guess. I finally see light at the end of the tunnel and scared someone will make the tunnel longer. If that makes sense. 

  • lanagraves
    lanagraves Member Posts: 596
    edited August 2012

    january: You're right. Rads are way easier than chemo, at least for me. I only have 9 left out of 33 (4 regular and 5 boosts). My skin is pink, but not irritated. No fatigue. No side effects at all that I can tell other than the pinkness.

    lost: RADs are a breeze. I completely understand your anxiety about meeting with the MO. You've gotten a couple of surprises along the way. I don't meet with my MO again until next month, after RADs are over, but he and my RO have discussed my ongoing rib issue and looked at the spot on the repeat x-rays together and decided I should have another PET scan. I'm very glad they are cautious and taking it seriously, but just the fact that they said it's "suspicious" sent me into a tailspin. Like you, I have been so excited about finishing RADs and putting all this behind me (except for Tamoxifen, of course), and just hearing the RO say that made me think "oh my God, maybe it's not almost over"). My RO has been reassuring that he "thinks" the spot is benign, and most of the time, I'm ok. But sometimes I'm not. But, you know what, I've decided that if we have survived everything they've thrown at us so far, we can handle whatever comes - whether good or bad.

    Thinking about you ladies. Hope you're having a great day.

  • kltb04
    kltb04 Member Posts: 1,051
    edited August 2012

    Hi all...This is one of the only ones I check anymore - I get too overwhelmed and sidetracked trying to keep up with several of them...and I am posting more on FB too.

    lost - so are y'all planning to leave after you are done with rads?  That is a heck of a rig!  My parents are on an RV trip right now - CO and NM...but they just go for a couple weeks at a time.  I do that too (nerves) every time I see my MO - I am just afraid she is going to find something else that I haven't noticed.

    Got the kids back in school - Abby isn't crazy about one of her teachers (she is just kind of "harsh" I guess would be the best way to describe her) and she is having a lot of problems with her foot - she has "Sever's Disease" in her heel.  It's a common condition but there isn't much they can do about it and she has a lot of pain.  So I feel like she is kind of unhappy and its only the first week - ugh.

    I have been trying to get caught up around the house and grocery shopping - actually planning meals, cooking dinner.  Might as well do it while I can.  The countdown is on for surgery, but I am trying not to think about it - 5 1/2 weeks.

  • Januaryice
    Januaryice Member Posts: 120
    edited August 2012

    I think that we will ever really be completely free from the fear of something else hitting us. I had to go for my six month MRI and sat in the same waiting room as the one where I got the original bad news. Let me tell you I was doing lots of praying. Results were ok but a spot on my right breast that they keep watching. Lanagraves, I thought, ok, we can deal with anything after this last year. We are strong!!!

  • lostinmo
    lostinmo Member Posts: 922
    edited August 2012

    kltb-they guys are rolling out labor day weekend and I'll stay behind to finish rads then fly out and meet them. Providing the DRs don't screw that plan up tomorrow. I have been trying to teach DS how to cook some stuff so they don't starve in Sept. They have that covered now, but I am a little concerned about how my rv will look when I catch up with them. It will probably take a week to get it cleaned back up. uggg 

  • KCB
    KCB Member Posts: 365
    edited August 2012

    Lost: I am 4 days in to rads, and I'm amazed how nothing it is so far. I know that's not exactly what you're nervous about, but I know I was before I started...nervous that I might be some freak who would feel the exhaustion right away, or that my lung/heart may be affected...well that could still be the case, but now I'm into it, I don't really feel anxious, too much, about that stuff. Decision made, no looking back. Good luck with your MO. Breathe.

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Good evening ladies!  I'm 22 out of 32 on my rads.  They aren't bad, worst part is that it is everyday, but so far no side effects, fingers crossed that it continues!  My hair is starting to grow - SLOWLY - but still see a lot of scalp, so still sporting the wig to work.

    Hope everyone is doing well.  I am looking forward to labor day and a 3 day weekend!

  • kltb04
    kltb04 Member Posts: 1,051
    edited August 2012

    Everyone that is doing rads - I am picturing the homemade construction paper chains that we used to make to countdown to Christmas when I was a kid - every day, one rad down, one link torn off!

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    kltb04 - great idea!

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited August 2012

    Kltb04-love that. :-)

  • KCB
    KCB Member Posts: 365
    edited August 2012
  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited August 2012

    Kltb-great idea! I won't be starting rads for a while though.



    My surgery date is set for September 26th so the count down begins for me. Just on herceptin now so hoping my energy level picks up soon. Still so tired. We all really have come so far!

  • lanagraves
    lanagraves Member Posts: 596
    edited August 2012

    Yep. Idiot can just get rads behind me and hopefully the rib issue is a non-issue, then on to Tamoxifen and the "new normal", whatever that is. Only 9 more rads to go!

  • kltb04
    kltb04 Member Posts: 1,051
    edited August 2012

    Wahoo lana!

    I am beginning to really embrace the "I hope I don't have to have rads" thought.  Even after reading the studies about the " gray areas" - 1 to 3 positive nodes, I have discovered most of those studies don't take neoadjuvant chemo into consideration.  I suppose I just need to hold my horses til my consult on the 6th.

    I don't have another dr appt til the 5th.  My first herceptin only and I think to start Tamoxifen.  Haven't heard yay or nay from insurance company about the BRCA - they drew blood last MO visit on the 13th.

    So glad its the weekend - this has been a rough back to school week.  Both kids having issues at bedtime, and fighting constantly.  I have been about ready to have surgery just to have a break from dealing with them. ;)

    I am in pjs in the bed about to try and start a new book.  Got up, cooked breakfast and cleaned the kitchen so I am already ready for a break!

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    kltb - my first meeting with my MO he told me I would have chemo and rads, so I knew from the get go.  Not sure if that matters, but gave me an idea of when I would be done with treatments.  Radiation isn't bad, just a drag going everyday.  Hope you get all your answers on your next doctor's visit.

  • lostinmo
    lostinmo Member Posts: 922
    edited August 2012

    I knew you guys wouldn't lead me wrong. My first rad was a breeze. The therapist were really nice and turned on music for me to listen to. The whole thing was over in about 30 min just because they took more scans to make sure everything was lining up just right. I went by the Hope Lodge where I will be staying so I feel better about that. Best of all I don't go back to my MO until Jan. 

    kltb-hope  this next week goes better for the girls. The first week or two is always hardest.

    I need to make my paper chain! 

  • kltb04
    kltb04 Member Posts: 1,051
    edited August 2012

    RE: school...I hope so - Sarah is doing well, she has classes with a lot of friends.  It is so funny, she was complaining the first day that in her science class she got seated in a group with several boys and no girls - but since then I am hearing a LOT about one boy in particular.  It's always "P says this, today P did the funniest thing in science" - oy!

    Abby is also having problems with her foot/heel - don't know if I mentioned this here but I risked life and limb right after my last chemo (ok, not life and limb, just germs) and took her to the ped office.  He did an xray and said there is no fracture but she has "sever's disease" in her heel - a painful inflammation issue.  She will eventually outgrow it but there is really nothing to be done about it except not to do a lot of high impact on it.

    Spending today making a grocery list/meal planning for the next few days - I can't seem to plan for more than 3-4 days at a time.   Oh well, not like I have much else to do.

  • Bev_22
    Bev_22 Member Posts: 33
    edited August 2012

    Yea had my last chemo friday!  I go for ultrasound Thursday to see if the chemo blasted this thing or if there is still a small lump left.  If there is still something showing up on ultrasound i will take a chemo pill for a month or two before surgery.  I still have surgery and rads to go.

    Baldeagle:  I understand the feeling of letting go of chemo and moving on being unsetteling.  I feel like I am giving up a lifeline. 

    Kltb:  I have one son and three daughters that are all grown.  One of my daughters had a teacher that we thought to be harsh.  She did not pet and pamper but she was always going the extra mile on projects and keeping the kids interested in class.  I hope your daughters experience will be the same.  I was constantly telling my daughter that everyone was different but that was not a bad thing and that she had to "Allow for the differences".

    It is a relief to hear everyone is making it so well on rads. 

  • lanagraves
    lanagraves Member Posts: 596
    edited August 2012

    Hope everyone is doing well. I finish up my RADS to entire region Wednesday, then only 5 boosts to go. Have to wait almost a month afterward to see MO and set up PET scan for rib issue. I'm considering calling to move it up. I also can't start Tamox until I see the MO again. But, for the immediate future, we're heading out of town this weekend to Nashville for a couple of days. Gonna take the kids to the last weekend of Summer Fun with Shrek and Friends at the Gaylord Opryland. RO told me this morning I can't swim - I'm trying to decide if I'm going to obey orders or not.

  • kltb04
    kltb04 Member Posts: 1,051
    edited August 2012

    Lana - yay that you are nearly done!  Your weekend plans sound like great fun.  I have a cousin in Nashville but haven't been in ages.  Maybe you can get your scan moved up - I know you aren't going to rest easy til that is done.

    Bev - greats news on the last chemo!  I wish I would've had an u/s to see if mine was gone too - since it wasn't going to impact my BMX decision, my BS didn't do one. 

    Ugh, the school situation doesn't seem to be getting better - it isn't so much that she is strict - A had an awesome second grade teacher who was very no nonsense but also kind and empathetic...this one is a yeller.  And Abby doesn't do well in that kind of environment.  My niece has the same teacher and my SIL says she is telling her the same thing (they have them flipflopped - A has her in the mornings, and my niece has her in the afternoon).  At the same time, it is nothing that is serious enough to really go to the school with a complaint about. Until she yells at my kid, then we are gonna rumble. ;)

    I don't know if it is because of school, or her heel, or just everything that is going on but she (Abby) isn't wanting to go to sleep at night - she gets up constantly, cries that she can't sleep, I have given up most nights and just let her sleep with me.  It is getting stressful :(

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    ktlb - I don't have children, so not sure how it works, but can you get her teacher changed?  Sounds like a stressful situation for you and your baby.  We know how bad stress is for the body!  ((HUGS)) to both of you, hope things settle down/work out!

  • kltb04
    kltb04 Member Posts: 1,051
    edited August 2012

    It's one of those situations where you don't know if that might make it worse - small school, teachers tend to move about (for ex, Sarah's first grade teacher was later her one of her fifth grade teachers)...so I guess I will just stay very aware and involved with what's going on in the class...the sleeping thing I think is more "I want to sleep with Mama" than anything else that is going on.   There is also a coteacher in the class who I know and like so that makes it better. I just hate that she isn't having the best year so far.

    I have been a busy bee today- grocery store - again! - and some other errands, did some laundry, walked on the treadmill, cooked dinner, cleaned up.  I am two weeks PFC and am feeling pretty "normal".

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