LCIS & my story....

shabby6485
shabby6485 Member Posts: 679
edited June 2014 in LCIS (Lobular Carcinoma In Situ)

Hi Ladies,

I was diagnosed with LCIS last spring after years of questionable mammos.  Ended up having 11 biopsies in 5 years, than diagnosed with LCIS.  My mother is a survivor of BC.  She had BC in her 30's.  I am also very dense with atypical hyperplasia. 

After endless biopsies and stress, I decided to move forward with pbmx.  I had my surgery on aug 14.

I know how confusing LCIS can be.  Everyone has their own opinion (even doctors) about how to proceed. I am very happy with the decision I made even though I am still in some pain. My pathology came back today with no signs of carcinoma. No regrets.

If anyone would like more info, please let me know.  This is a very personal decision and I am here if anyone who like to hear my experience. God Bless...

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Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Shabby---no invasive bc, that is the most wonderful news !!!!. Praying for your healing and recovery.

    anne 

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  • SimplyAudrey
    SimplyAudrey Member Posts: 242
    edited August 2012

    8 days out and NO invasive on path!  WHOOT!  I'm looking at you as an inspiration.  And I can attest to the "own opinion" of physicians....I had 14 of them "discussing" me....7 who I personally spoke with or saw in consult........

    What it comes down to is US as individuals.  Our bodies.  Our worries.  Our life and quality of it!

    Heal well m'lady!  And THANK YOU for posting!

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  • shabby6485
    shabby6485 Member Posts: 679
    edited August 2012

    Thank you, Awb & Simplyaudrey!

    Simply~ Are you scheduled for surgery?  If so, you can inbox me if you want details or information.  I am 8 days out, my drains were taken out today and I feel pretty good.  The worrying was worse than the the surgery itself. Best of luck to you! 

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  • loriio
    loriio Member Posts: 247
    edited August 2012

    That's great news Shabby.  I'm glad you're doing well and got your pain under control.  I had my 3rd fills this week.  The TEs don't bother me much anymore other than the fact I'm starting to look a little bit like a porn star.  My husband really likes it, though;)  I'm glad you're on the road to recovery.  I wish you continued healing.

    Good luck to you SimplyAudrey.  Best of luck on your upcoming surgery. 

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  • beacon800
    beacon800 Member Posts: 922
    edited August 2012

    Thrilled for you Shabby!  That is the best news.  Before I did my BMX, my surgeon asked me how I would feel if the path came back with no cancer.  I told him I would pop some champagne!  So here's to you girl!  Now you have only to rest and recover.  Take it extra easy -  you are a lucky one.

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  • shabby6485
    shabby6485 Member Posts: 679
    edited August 2012

    Thank you, Beacon.

    I am so happy with the pathology.  I have already had several people look at me odd about being "happy" about that. I even had someone ask me if I regret the surgery...

    The weird thing is (and I don't know how to read a pathology report) that all the previous diagnosis that i had like ADL, ADH and LCIS were not noted.  I am wondering if they were removed totally with the lumpectomies.  I thought for sure they would find other areas of LCIS though.  My husband said it looks like they just check segments of tissue.  Don't get me wrong, I am thrilled but how ironic that this is the ONLY pathology report that came back totally normal. 

    No regrets here.I know how lucky I am.  I am finally able to put this life long anxiety behind me. So nice to hear from you and hope all is well!

    Michelle 

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  • JanetM
    JanetM Member Posts: 336
    edited August 2012

    So glad to hear that all went well.  LCIS is so confusing and we are the only ones who can make the right decision for us.

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  • auntiems3
    auntiems3 Member Posts: 67
    edited August 2012

    Shabby, so glad to hear the great news. With regards to the "odd looks", people who do not face the stress and the fear every six months waiting for a test result or having to go through ELEVEN biopsies, have no idea what we go through.



    I pray every day that next year when I have my PBMX that I get an "all clear". That will be the best news ever and then I know I never have to face another "what if" again. DH is right behind me.

    He' s already lost one wife to BC and doesn't ever want to face it again.



    Your husband was probably right about how they do the path on the tissue. I would imagine testing every slice of breast tissue would take weeks to prepare and examine. That is one of my questions when I see the ps on sept 11.



    Good for you girl, I am so happy for you!

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