Illinois ladies facing bc

18158168188208211148

Comments

  • lago
    lago Member Posts: 17,186
    edited August 2012

    Valerie I haven't heard that about the index finger but mine is not taller than my ring finger. They have linked height to breast cancer.

    "They found that the risk of experiencing breast cancer increased by 7% with each 5cm increase in height for post-menopausal women, with a marginally increased risk among pre-menopausal women."

    http://news.bbc.co.uk/2/hi/health/941890.stm 

    "Many studies have shown taller women have an increased risk of breast cancer. A pooled analysis that combined data from seven prospective studies found women over 5'3" have a slightly higher risk of breast cancer than women under 5'3".

    One reason for this increase in breast cancer risk may be because of the growth spurt tall women can have in their youth. Growth spurts may occur due to higher levels of hormones (such as IGF-1) or other growth factors. During a growth spurt, rapid cell growth and hormone changes occur that may impact breast cancer risk later in life."

    http://ww5.komen.org/BreastCancer/BeingTall.html

    ------------------------------------------------------------

    So that might explain Robo and Char (and even me at 5'6") but not Laura. Seriously they don't know what causes it. Not all tall women are doomed.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    Aha.....no wonder.  I ring in at 5"8'.  My mom wanted a basket ball player---uh, not in those days but I did get chosen first always on our relay team.  So the height was good for something.

    Hugs, Jackie

  • valerie0118
    valerie0118 Member Posts: 126
    edited August 2012

    Well I'm 5'7" so guess have yet another factor!  I thought the ring finger theory was interesting and worth noting.  Nothing we can do about how long our ring fingers are or how tall we are.  Personally, I'm going to blame the Lake Michigan water and call it done, lol.

    Well looks like I'm going to Kentucky at least for 6 months.  I'm going to give it a try.  I already have spoken to a property management group about renting my house out and contacted several people down there that have rental properties for me.  My hubby and I decided that a bird in the hand was worth two in a bush....or something like that. I want a paycheck and health insurance!  My lunch with the potential employer in Crystal Lake went well but she will not be ready to add staff until maybe February.   She is going to move forward and we will stay in touch.  When she is ready to expand......she will let me know and see if I want to come on board.

    My exchange surgury is in 2 days!  I'm getting a bit nervous.  I know this is easier than the first surgery but still hate to go under anesthesia.  It sure will be nice to get rid of this grapefruit sized bump on my right side though.

  • lago
    lago Member Posts: 17,186
    edited August 2012

    Valerie this is way different than the first surgery. You won't be under for as long a time either. I was out patient for this. You're going to do great. Good news about the job too. Nice to have a plan B just in case you decide Kentucky isn't right for the 2 of you.

    You should have been on these boards when that study was posted about height. We all were deciding where we should start hacking off our extra height.

  • KittyWinnie
    KittyWinnie Member Posts: 19
    edited August 2012

    Hi everyone - I just wanted to introduce myself.  I've read through some of the posts, what a great bunch of Illini ladies!  I live in the northern suburbs, Park Ridge. Grew up on the north side of Chicago. Was diagnosed in January - had 4 cm lump removed, triple negative. Had chemo from March - June, 4 AC, followed by 4 Taxol.  Currently about 1/2 through radiation at Northwestern.  So far, my skin is holding up OK. I'm having some achiness under my arm and my breast feels a bit sore and heavy. I also have some fatigue but not as bad as during chemo.   I had 15 lymph nodes removed and have been seeing a LE therapist for some hand swelling.  

    Hope everyone is having a nice evening. Weird weather today, thunder and rain with full sun shining.

     I look forward to learning from you and also sharing any of my experiences that may help someone else. 

    Thanks!  

  • doxie
    doxie Member Posts: 1,455
    edited August 2012

    Well I don't fit either the height or finger theory.  Under 5'3" and my ring finger is a bit longer than my index.  Which for me blows the estrogen during pregnancy theory since my mom is fairly certain she was given DES during her pregnancy.  And my grandmother who didn't survive bc was really short.  

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    Welcome Kitty. So glad you found us.  This is a delightful group of ladies....very caring.  I hope you will come and see us often. 

    Just a note here...my ring finger is shorter.....hmmm, since that is the case you'd think the big C would have been cancelled out huh !!!!  Sigh !!!!  Oh well, I'll just make the best of my tall body with weird short fingers. 

    Val...congrats on Kentucky and the new job. You might fall in love with Kentucky. 

    Hope you all have a grand night.

    Hugs, Jackie

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    I'm sorry to say WELCOME KITTY for the obvious reason I still will.But this is a good place to be, a wealth of info and a lot of caring.

    Valerie it sounds like u've got things under control with u'r job--and like u said eventually u might return. Now u'r going to the hospital Wednesday? This sounds under control too--Of course I have no idea what's being done but I hope it's a speedy recovery thing.

    My index finger is way longer on the right hand and the same size on my left hand,,,,thanks for making me look for another imperfection.

    I am going to try to go to sleep now---hahaha we'll see if I can and how long I'll be able to. so sweet dreams everyone--and I'll probably check back later and do some kind of rant.

  • lago
    lago Member Posts: 17,186
    edited August 2012

    KittyWinnie glad you found us. Sounds like you're doing OK. I don't live too far from Northwestern (Lincoln Park). Maybe we can do lunch before your treatment is completed.

    ------------------------------------------------------
    REPOST REMINDER I

    I will be completing the contact list by the end of this week so get your info to me:

    If you did not receive it please send me a PM with at least your real name and email (mobile phone would be nice too) and any other contact info. I know there are many newbies that are not on the list. If you wanted to be invited to lunch and special get togethers we plan on weekends or evenings this is the list to join.

    info others may have included:

    Name (screen name)
    address
    home phone mobile phone
    email
    Birthday

    diagnosis date
    diagnosis treatment plan

    ------------------------------------------------------
    REPOST REMINDER II 

    The American Cancer Society event in Chicago: Strides Against Breast Cancer is only 2 months away. If you plan on joining our team (Illinois Ladies) do it soon. It can take some time to raise money. It's only a $25 registration fee. We have 13 on the team so far and I know a few more are planing on joining. Any questions PM me.

  • valerie0118
    valerie0118 Member Posts: 126
    edited August 2012

    Welcome Kitty!  So sorry you had to find us through BC!

    Thanks Lago for your advice on surgery.  I'm out patient too but at a different hospital and I wasn't too impressed with the hospital when I went to give blood for the pre-op testing.  This time the surgery is at Central Dupage because that is where the PS prefers to work out of.  I love the PS so I don't want to make waves but I also loved the way that Edward hospital worked.....never a bump along the way.  When I went to give blood at CDH, I went to the desk that the nurse had specified while doing my pre-surgery questions on the phone and they didn't have me in the system.  They sent me upstairs to the Dupage Medical Group which is the group the PS belongs too and the orders weren't there either.  They had to call the doctor's office and have orders sent over.  Then last night CDH calls and asks why I didn't get my blood work done on Friday.  I told her I came and they couldn't find me so they sent me upstairs to DMG and she said the orders had been in place on Friday at 8am.  I certainly hope there aren't any miscommunications during my surgery!

    Thanks for the congrats on the job front.  I have to admit I'm not 100% enthralled with the idea but a job is a job.  I can't turn a good offer down.  I'm going to keep looking.  I learned about loyalty to companies the hard way.  I will go and do the best job I can but at the same time there are a lot of things they wouldn't give that concern me.  The salary is low but I can justify that because I'm going to be doing a different type job and I'm not "plug and play" with the skills involved.  I am worried that I might not fit in to the tightly structured environment that is projected through their employee handbook.  I also only get 2 weeks vacation after 1 year service......I have had at least 3 weeks for over 20 years and twice have had 4 weeks.  This place only gives 3 weeks after 15 years service!  I will be retired by then!  They did give me an extra week to get my house in order (starting Sept 10 instead of Sept 4) and will allow me to take a week unpaid vacation Feb 2-9 for my Montana trip that has been scheduled for months. 

    I have to wait 90 days from date of hire for health insurance.  Is anyone knowledgeable of the path I should take between my current insurance that expires on Oct 9 and the start of the new insurance that will be December 10?  I saw that AARP has some.  I of course can pay for COBRA or transfer to my husbands insurance but both are expensive.  I'm worried about being without insurance for even a day.  I don't need to give any insurance company reasons to deny me!

    Sorry Cami!  Think of it not as an imperfection but as an indication or explanation!  It hasn't been proven yet!

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    If we are ever to enjoy life, now is the time, not tomorrow or next year.... Today should always be our most wonderful day. -Thomas Dreier

  • Madismommy719
    Madismommy719 Member Posts: 781
    edited August 2012

    Valerie....you cannot be without insurance for one day or the insurance company can and most likely WILL deny you....and I believe at that point they can continue to deny you until you are atleast 5 years NED.... But as long as you have insurance at all times they cannot legally deny you coverage and also must offer it at the same rates as all other employees.... As opposed to the private insurance companies charging cancer patients such HUGE rates they cannot afford it.

  • lago
    lago Member Posts: 17,186
    edited August 2012

    Valerie you shouldn't be without health insurance period. Anything can happen. Seriously did you think you'd ever be diagnosed with breast cancer? But here you are. I was diagnosed 5 months after I was laid off and my husband was already out of work. We paid for cobra (not to bad) then Illinois high risk pool insurance when that ran out ($$$) until my husband landed a job with insurance benefits.

    What Madmom says is true of getting your own insurance but if you go on a group insurance from work or your husband's work you can't have a lapse of more than 30-60 days (I think. You might want to check on that). If you do have a lapse that is longer then your cancer will fall in the "pre-condition" category and you will have a wait period that can be 1 year or longer depending on the state before they will cover anything related to that precondition.

    Good place to ask questions like this would be the American Cancer Society hotline: 1.800.227.2345. They have social workers that know all about this. Or you can call your local office.

  • zap
    zap Member Posts: 2,017
    edited August 2012

    Good words on health insurance.  Right now that is my biggest life concern...keeping it in order without any snags.  It is unfortunate that so many have to worry about insurance but we do.  The sheer worry  involving coverage is enough to make you sick.

  • virginiab
    virginiab Member Posts: 205
    edited August 2012

    Valerie--

    I suspect that the safest thing to do about insurance is to take the COBRA until your new insurance kicks in. The advice aboout consulting someone at ACS seemed good, too. Good luck with the job/boobs/location/insurance transitions! It's going to be quite a month for you.

  • tpot3
    tpot3 Member Posts: 4
    edited August 2012

    Hi, all.  I'm new here.  I am from southern IL and was diagnosed on June 21st.  I had a bi-lateral mastectomy on June 28th and started chemo on August 17th.  I just wanted to say hello! 

  • lago
    lago Member Posts: 17,186
    edited August 2012

    Hi tpot3 How you doing? Are your SE minimal? Question you put stage IIIA but say you have mets. Stage IIIA is early stage. When most folks here put mets typically means distant mets (not local mets like to the nodes). If you have distant mets you wouldn't be early stage.

    I know this is all new to you. You have just entered you Freshman year of Breast Cancer University. By the time you're done with treatment you'll have an MS if not a PhD Tongue out

  • HeidiK
    HeidiK Member Posts: 24
    edited August 2012

    Howdy ladies!

    I meet with the oncologist this afternoon to make the plan for chemo.  But, I get to go back to work on Thursday!!!

    My ring finger is longer and I'm 5'8", so basically I was screwed.

    Hello to the new ladies, really wish you had no reason to be here, but you've found a very good group of ladies to hang with.  They will help keep your sanity intact during this shitty time in your life.

    Heidi 

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    Just here right niw to welcome newbies--u'r in the right place for ur's support, questions, concerns and just general ickyness days--we share alot here and it feels better. Sorry u have to be here tho

    Tpot u just started chemo-tell us how it's going for u.

    And Heide I hope u can work for a while---it will probably depend on u planned treatment Let us know what the onc. said for u..

  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited August 2012

    Hi ladies, I read the posts but don't post too much.  Having my 8th surgery tomorrow for recon. Due to complications from failed NSM.  Very nervous.  Having at Northwestern.  Skin grafts from both hips to create new areolas and nipple.  Any positive thoughts would be welcome.

    For those new to this journey I hope you will be gentle with yourself.  It requires a lot of patience and determination. And never be afraid to ask questions of your help care providers and let them know what you need from them.

  • lago
    lago Member Posts: 17,186
    edited August 2012

    Hopeful it this out patient?

  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited August 2012

    Yes it is which is always nice :)

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    Hopeful geeze 8 surgeries-blah I'm sorry u have this to go thru now---but out patient is kind of nice cuz u'r home at nite. Good Luck

  • Adey
    Adey Member Posts: 3,610
    edited August 2012

    Welcome new gals.  Hello old gals.  Stage 2b surgery on Monday, wish me luck!

    Hugs.

  • lago
    lago Member Posts: 17,186
    edited August 2012
  • lago
    lago Member Posts: 17,186
    edited August 2012

    Rant

    I phone hate solicitors. My auto "you are bothering me" button turns on immediately when I pick up the phone and the person on the other end starts talking a mile a minute.

    This was for a good cause (some breast cancer cause that I'm not familiar with) but this gals starts talking a mile a minute saying "Did you know a women gets diagnosed breast cancer every…). Finally I cut her off and say "In 3 hours I will be attending an event for the American Cancer Society, Strides Against Breast Cancer to recruit more volunteers." Also did you know that 1 out of 8 women will be diagnosed with Breast Cancer…" cuts me off and says "I'm aware of that" then I continue "… and I'm one of them that was diagnosed 2 years ago?"

    I explained to her that if they are having her make these calls they should train them to understand that 1 out of every 8 women will have been diagnosed and many of the others will have a family member diagnosed. I feel bad that I came down so hard but I really do hate these unsolicited calls.

    I am on the no call list but that doesn't stop charities. I think what ticks me off is the number read out says "local call". Maybe if they were honest about who was calling in the first place I wouldn't have been so put of of being interrupted.

    Rant end

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    Lago I hate those too, but I usually don't even understand one word or who they are calling for-so I politely stop them and then I don't want to say what I do---I don't swear at them---LOL but it's sarcastic, that's me.

  • lago
    lago Member Posts: 17,186
    edited August 2012

    Usually they ask for Mrs. K and I'm Ms. G. I didn't take my husband's last name. I think next time I'll say "No I'm the mistress… can I help you?" Tongue out

    I used to tell them my husband does not live with his mother when she was alive. That confused them and they usually hung up on me.

    I also had a friend who would say sure but first can I talk to you about your personal relationship with god. He got lots of hang ups too.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited August 2012

    Wecome Kitty and Tpot.

    Hopefulhealing:  Good luck tomorrow.  I will be thinking of you!  

    Adey:  Will be thinking of you on Monday as well.. 

    Lago:  Too funny!  I usually cut them off, and say "Would you do me a favor and take me off your calling list?".  They usually hang up or politely say they will. 

  • kjiberty
    kjiberty Member Posts: 1,385
    edited August 2012

    Valerie:  Congrats on the job.  Sigh.....  Keep the insurance.  Don't miss a day of coverage!

Categories