Starting a Support Group

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MB46
MB46 Member Posts: 1

I am a a breast cancer nurse navigator and I want to start a local support group in my community. If you were going to a support group, what topics would you like discussed?

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  • Moderators
    Moderators Member Posts: 25,912
    edited August 2012
    MB46, you may be interested to read what the main Breastcancer.org site has to say about Support Groups.
  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited August 2012

    I'd love a support group that lets you be real...topics might look like this:

    1. What got your goat this week?

    2. What are you learning along the way?

    3. What to do when you don't feel like doing anything.

    4. Ways to deal with rude/insensitive comments

    You know, I will never ever attend a "support group" that wants to talk about sex, being positive, fundraising etc again. I'm too fatigued, too realistic and I will only donate to BCO and ACS....

    Just my thoughts....fresh out of getting booted from a Breast Cancer Retreat....

  • gladshesaidyes
    gladshesaidyes Member Posts: 3
    edited August 2012

    Many support groups have also found it cathartic to write letters of support to other breast cancer patients.  There's a great charity called Girls Love Mail (www.girlslovemail.com) that collects and distributes letters of encouragement to newly diagnosed breast cancer patients around the country.  Anyone can write a letter, whether they have had breast cancer or not.  As the husband of a breast cancer survivor, I found writing these letters gave me the sense of being able to do something meaningful rather than feeling helpless.  Thank you for being a giver, MB46.  May your support group be successful in every way.

  • FilterLady
    FilterLady Member Posts: 407
    edited August 2012

    Hi MB,

    My DH and I attend our local bc support group and we love it.  

    We decide what topics we'd like to discuss and the bc surgeon and np are the facilitors and they want us to let them know who we would like to have come and address our different issues.

    We've had topics like, lymphedema (just last week), chemo brain, fitness, diet, etc.  We also have "social time" both before and after the speaker.  We usually bring some lite snacks and really enjoy each others company.  We have a church that does a program once a year, they make food, sing, give away door prizes and just generally honor all the survivors.

    Good luck with getting your support group started.

    LaDonna

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