FEMARA

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  • bevg49
    bevg49 Member Posts: 739
    edited August 2012

    I wonder if they sell it in the USA?

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2012

    Oh bevg49 I hope so.....it' s amazing stuff.

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  • Isabelle2
    Isabelle2 Member Posts: 389
    edited August 2012
    Scottie, most pie recipes call for 1 to 2 cups of sugar,now you have to have a little bit...mine have 1/4 cup of sugar, that is all...okay for diabetics too.   if you do not love them you can shoot me.  lolSurprised
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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2012

    That's quite a difference Isabelle....good for you....Is this your own recipe?

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  • Isabelle2
    Isabelle2 Member Posts: 389
    edited August 2012
    yes....I am a slapdash cook & baker...love to do it...do not follow any rules and most of the time seems to turn out okay.  You will be the judge.  see you Sunday.  Smile
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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2012

    Looking forward to meeting you and everybody else.

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  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2013

    0

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2012

    Sorry Day, yes it will contain Iodine for sure.

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  • Ginger48
    Ginger48 Member Posts: 1,978
    edited August 2012

    Superfood- Yes I have the foot pain also after sitting for just a little while. I also was diagnosed with fibromyalgia which we think was triggered by the trauma of my 4 surgeries last year. I have definitely found that swimming and walking help it. Maybe if you cannot swim you can walk in the water?

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  • SuperFoob
    SuperFoob Member Posts: 505
    edited August 2012

    Thank you, Ginger. I may try that. I do worry a tiny bit about getting a cut and bacteria.

    Have a wonderful weekend!

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  • trudy-erl
    trudy-erl Member Posts: 38
    edited August 2012

    Hi:  As we all know, we are all totally different. Mine kicked in 4-5 weeks after starting it. If there is anything else I could give my opinion on, please, don't hesitate to ask.

    trudy

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  • nanna
    nanna Member Posts: 174
    edited August 2012

    Oh my, my thumbs and wrists are killing me. I have had this for about 2months. Went to dr had see np and thought i would get shot but she told me she couldnt give me the shot. The dr was behind and couldnot give it to me. Needless to say that was a wasted trip. Has anyone had problem and what did you do. I will get to see dr next week.

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  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2013

    0

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2012

    Curious if anyone has experienced a sore throat while taking Femara????

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  • ktmimi2
    ktmimi2 Member Posts: 46
    edited August 2012

    Hi Ladies,

    I have a question. I have been on Femara for almost three years. My major side effects are bone pain and severe stiffness. In the last six months, twice, I have gotten what I thought was a UTI, out of the clear blue. I was so dry inside and had intense burning high inside that I could scream. I know that Vaginal dryness is a major side effect but in the almost three years, I have not experience it at all. This last bout has taken me down in the pain category. I went my GYN yesterday and she gave me some Estrogen Cream. She said I was so dry that it created the UTI also. My ONC said it was O.K. to use the cream to get things in balance. I cannot believe the pain I was in as I could barely sit. It felt like I was on fire in my body. Has anyone experienced this????? Can you help me with suggestions as to why all of a sudden this is happending? It has been almost three years of a nasty quality of life. I am ready to call it quits only because there is not one day when I feel semi normal. Help is appreciated...advice?

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  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited August 2012

    ktmimi, several ladies have mentioned coconut oil as a natural lubricant.

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  • Ginger48
    Ginger48 Member Posts: 1,978
    edited August 2012

    Ktmimi- I did not have it as bad as you but my Gyn and onc also prescribed vagifem 2x a week. Definitely helped.

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited August 2012

    I kept having UTI's - I started taking cranberry supplements daily.  It has stopped the UTI's in their tracks!

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited August 2012

    OK - what is a UTI?

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  • HLB
    HLB Member Posts: 1,760
    edited August 2012

    Urinary tract infection

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited August 2012

    urinary tract infection

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  • Cher56
    Cher56 Member Posts: 187
    edited August 2012

    Hi everyone. sorry to meet you all here, but grateful your here!!!

    I usually am a motor mouth typer.. have a nightmare story, but heck.. now I know I'm not alone!! I haven't started the Femara yet, 'have the script' but need to get moved etc before the 'dreaded se's' start.

    Thanks to SuperFoob for leading me here.. now I'm overwhelmed AGAIN.. crap.. seems to be my MO of the last few months. I'm now nervous as hell at the SE's. I'm doing ok with my RA/OA/FM/CFS right now (that's the short list) as it's summer, Onc said it's going to be significant increase in pain & most def will get OsteoPor..been on prednisone for 5 yrs. HRT for 19 yrs staved off bone prbs, ...

    Chemo was pushed out as a choice. Surgeon screwed up with mis-dx & other things, 2 others messed up with me. this Onc ran his hand through his hair, rolled his eyes in a OMG fashion.. so .. yes I'm after another Onc. one thing he did say when asked: what if I take NO treatment, what happens if BC comes back (now I figure BC also means anywhere in the body??) he stated: it'll be incurable, but we'd be able to slow it down & would probably be a stage IV. what ?? huh?? omg!! haha... thought I was TN for months as 'weakly positive ER' this is what Ms.Surgeon said.

    ok, now I actually DID motor-mouth-type... sorry, so many questions! so many thoughts! so when thinking of getting off AI or not taking it.. the outcome is ummmm pretty lousy.. need another opinion for sure.. have you had any answers like that?

     Bless you all .. and your families.

    Cher 

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  • Cher56
    Cher56 Member Posts: 187
    edited August 2012

    PS...I couldn't sleep....& now feel apprehension /anxiety for what is to come...man I need to get my positive attitude back! Worrying about pain etc that hasn't happened yet...Geesh!!

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited August 2012

    Hi Cher I've been on Femara almost two years with little to no SE's. Not everyone gets bad SEs and sometimes if you do changing the brand of Femara you take can improve how you feel.



    Good luck! (oh by the way I am stage IV and Femara has kept the cancer in check)



    Love n hugs. Chrissy

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  • Cher56
    Cher56 Member Posts: 187
    edited August 2012

    Hey thanks Chrissy!! Wow great to hear...think I'll go with you...lol

    Didn't think it fair the Onc already determined I'd have so much pain.have a great day! '

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited August 2012

    Cher56 - I've been on letrozole for 10 months.  These are the SE's I've experienced:

    hair loss and nair breaking - started taking 8000 mcg of biotin daily and that has stopped

    tiredness - take daily vitamins, drink lots of water and other liquids and exercise all of which help a lot

    overall achiness - same as above, but the achiness isn't terrible.

    diminished sex drive - this bothers my husband much more than me, but we still have sex at least once a week, usually more, so he's satisfied, though possibly not as happy as he could be.

    I was scared of the side effects, as the side effects of tamoxifen were brutal for me.  This has been a walk in the park in comparison.  If the letrozole does get you down, there are some other AI's you can try as well.  Some people do take pain medication, I've heard, but I haven't needed anything like that.  I did have fairly severe pain in my hip and left leg, but finally found that was not related to the letrozole, but rather a herniated disk in my back!  You'll be fine, and the SE's of taking it are much less than the SE's of NOT taking it.

    Edited to add:  I've noticed that when I am exposed to any allergens, my achiness intensifies.  As a result, I've become much more cautious about my exposures.  I stay away from wheat entirely, and have cut WAAAYYYY back on dairy (I'm allergic to both).  I avoid cats and dogs like they carry the plague (for me they do... Frown) and try to diminish any other allergens as much as possible - obviously highly allergic people (like me) have a harder time doing that than does someone who has few if any allergies.

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  • Cher56
    Cher56 Member Posts: 187
    edited August 2012

    Hey thanks Gardengumby! I'm going to start it about mid Sept. The Fall cold & dampness has started & the pain switch is on...now achy, pain,stifness is back..uggg...but AI is only hope for me. Cdve had Rads but surgeon screwed that up with wrong dx & due to having open wounds wait for chemo puts me past window for it & Onc said 'risk to my life' outweighs the advantage of it. ...COPD + RA mainly he said. Am glad its not severe for you! I've heard of the Biotin + other supplements..will head to health store next week..am on lots,but I see I'll need much higher dose of supplements!

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2012

    Hi guys....just jumping in here to say that I have had LOTS of hair loss since starting

    Letrozole. Went to see a Dermatologist who said I was taking too much Biotin (600)

    and that the body could not absorb all of that . She has me taking just 100 three times a day. Seems so little, but I am willing to give it a try. Take care everybody.

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2012

    Oh, one question....has anyone been experiencing shoulder and collar bone pain with

    Letrozole....of course, I am thinking the worst.

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  • Cher56
    Cher56 Member Posts: 187
    edited August 2012

    oooh, yuk Scottie! man.. this hair loss business with BC is crazy! I'm gathering a 'list' of what to get at health store. I guess i should start taking Femara now, but leaning to the pessimistic side of things.. thinking I don't wanna be sick or in more pain when I go up to Penticton to have a wee R&R & be with my bff up there. Am hoping to do a road trip with my Dad down to Redding Calif.. but, will see (october) I'm in south-west BC

    heres hoping no more hair loss for ya.. and no or low SE's.

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