Alternative Treatment

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  • NattyOnFrostyLake
    NattyOnFrostyLake Member Posts: 377
    edited August 2012

    To repeat what Ruby said: This is the alternative thread in the alternative forum. Although many of you conventional or complementary women mean well, please consider that alternative people are not interested in being told what to do or what procedures to get by those not of our mindset. We have alternative ways of thinking about diagnosis, treatment and yes, even estrogen. Please do not try to preach, save or convert us. To continue to do so is futile for you.

    We wish you the very best on your journeys. Please return the favor.

    Blessings to all.Smile

  • ananda8
    ananda8 Member Posts: 2,755
    edited August 2012

    NattyGroves,

    I was answering a question that was specifically asked by Abigail. 

    4 hours ago abigail48 wrote:

    okay, lets not get polarized though, that doesn't help anyone.

    can't they tell what kind of breast cancer by where it's located?  how do the biopsies tell?

    By the way, abigail48 has not had a diagnosis.  She has a very large red lump.  Best wishes, Abigail48.  I will not be posting again and will take this thread off my list.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2012

    Thank you not self. That was exactly what I was going to say.

    Natty, Abigail herself has asked that this not become a polarizing issue. I realize that this is the alt thread but does that mean no questioning or critical thinking about anything? I would love to learn more about alt but I still want to be able to question and doubt if needed. I am not questioning anyone's choice of alt tx, but self diagnosis just makes no sense. Caryn

  • Ang7
    Ang7 Member Posts: 1,261
    edited August 2012

    I thought that anyone could post in a forum if they thought their words would help another sister.

    It does not make sense to me to ask people to stay away from your forum.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited August 2012

    To the ladies who are questioning anybody responding to Abigail - did you actually get a diagnosis?? I'm sure you all did. Why would you encourage someone to not go and find out what it is they've got? Doesn't seem very supportive to me.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2012

    Susie,

    Abigail has unique and deeply personal reasons for not getting a diagnosis. I think that continuing to hound her about it won't change her perspective. Badgering rarely works with most people. That being said, I think self diagnosis of bc or any major illness is a bad idea. After all, you have to know what you're treating in order to treat it whether you choose alternative or conventional tx. Caryn

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited August 2012

    Caryn - I do know her history.

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    back to alternative stuff?

    I would hope that none of us leave!!

    sweet bean:  it is not a rash:  there are new still small veins feeding the red place on the hardened & moved up cyst.  if I was a scientist looking at it I would want to cut the veins & see what happens, It no doubt would form new ones.

    I'd like to see the cell slides to see the difference between the types.

    will be off to the studio for several days beginning this sunday & next

  • sweetbean
    sweetbean Member Posts: 1,931
    edited August 2012

    Caryn is right, as per usual.  I think a diagnosis would help a person design their treatment, regardless of what avenue they chose (conv or alt.) But I will be stepping away from this thread so that it can get back on the topic of Alternative Treament. 

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    that is the topic of this thread is it not?

    & what if the protocals for the diagnosis cause more trouble?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Abigail is clear that she is not using any phytoestrogens - when she does, she experiences pain and discomfort (which is very revealing).  Other than that, it really does not matter what dx she has or doesn't have as far as alternative treatments are concerned.  She can do herself no harm with natural therapies. I suggested to her topical iodine and she thinks she better not.  She knows what she wants and does not want which is more than what most of us can claim.

  • sweetbean
    sweetbean Member Posts: 1,931
    edited August 2012

    Eeeek....(sweetbean, stop posting...)OK, just one last point.  Ruby, since I work for a naturopath, I watch her diagnose people all day long.  People can come in with abdominal pain, however, the treatment is TOTALLY different depending on the diagnosis.  Abdominal pain can be caused by GERD, candida, or IBD.  She will prescribe totally different tinctures, supplements, and diet strategies based on what is causing the pain.  Natural treatments may not cause any harm, but they also might not be that helpful if you don't know what you are dealing with.

    However, I'll say it again - I am not pressuring anyone to see a doctor or have a treatment of any kind.  I'm just disagreeing with the idea that a diagnosis is unneccessary for quality treatment.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    As far as being supportive, you got me highly irritated by accusing us of not supporting her or not doing so in a good way that values her life.  Don't do that. 

    You were told to read the thread, read posts to her, go back for months.   You do not have time todo so?  But you use our time to come to her defense and explain and to defend ourselves from irresponsibility in the face of health issues. 

    You will see that by us defending her postion of right choose, this does not mean we have never spoken to her about others choices, such as dx.  But she has been hounded.  And now it happens again. 

    Very few alternative choice people come to alties threads not knowing what their dx is.  Very very few.    If that is their choice even after we have encouraged them to find out or face their demons of why they will not find out --- if they still choose their way, we support them the best we can and in a good and faithful way. 

    No one should and hopefully no one ever encourages others to put their head in the sand and pretend the cancer is not there, or to choose treatments that are dismissive of this terminally potenital health issue that is called cancer.  Alternative choices are serious choices. 

    I bank my life on what my choices are. 

    And I am banking it on being around for my family.

    This is serious to me.  Abigail's life if just as serious.  I am here to share and learn, she has thrown out some incredible wisdom that only a woman who lived it can throw, herbs and food choices included.

    Polarizing, unfortunately, yes.  If it is not this, it is always something.

    I was going to ignore this situation and just comment, but to be judged and pointed out as not supporting one another, irked me.

    Back to the topic.

    How about we discuss what alternative choices we can make for various cancer dx.  ILC, IDC, IBC, DCIS, tumors vs masses vs in situ vs multifocal, ER+ or ER-, PR+ or PR-, HeR2+ or HeR2- or any combination thereof, in nodes and not, mets and not......  

    That was a worthy comment, in stating that there are different choices while using alternatives for breast cancer.  

    I will start that one on a different comment.

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    gary just said a study that the more stress you have the faster the cancer grows.

    he also mentioned a study stating clove oil is the best antioxidative spice, gary said cinnemon is even more so..talking about fish now, said sardines the best, but possible to get fresh ones???

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Sweetbean, at this point, nobody knows Abigail better than she knows herself.  Can anyone not understand that ?  

    How many women on this forum have said that they cashed out to a naturopath only to find themselves having to educate them ?  Because sessions with naturopaths are SOOO expansive, I'm gonna shop until I drop before I see one who does not meet my standards.  I'm guessing that there are only a few and far between, as I become more and more educated about this damned disease.

    Essa, the floor is yours Wink your grand daughter is sooo cute !!

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    I have no idea what the naturopath I write knows, but I've mentioned this thread & the dlocked forum & I write her once a month.

    & in this very small place what is the liklihood that any gp at the hospital here has ever seen ibc or knows what it is

  • sweetbean
    sweetbean Member Posts: 1,931
    edited August 2012

    Ruby, I wasn't talking about Abigail's situation any more.  I really wasn't.  I was really just referencing the idea that "a diagnosis won't change treatment" idea, which I disagree with. However, to each her own.  Live and let live.  Everyone needs to do what is right for them.

    The naturopath that I work for is awesome and does sliding scale fees to help make stuff affordable, plus she takes many forms of insurance.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012
    Good for you Sweetbean, I bet she can learn a thing or two from you about BC Wink
  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    the naturopath I write is a professor at a naturopathic? college

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    How about we discuss what alternative choices we can make for various cancer dx.

    • ILC, IDC, IBC, DCIS,
    • tumors vs masses vs in situ vs multifocal,
    • ER+ or ER-,
    • PR+ or PR-,
    • HeR2+ or HeR2-
    • or any combination thereof, 
    • aggressive vs not so much....
    • small vs large,
    • B-cell vs T-cell, (do not even know if this is a factor, here to learn)
    • in nodes and not,
    • mets and not......

    That was a worthy comment, in stating that there are different choices while using alternatives for breast cancer.

    My integrative MD / pathologist, holistic chiropractor and Chinese medicine person, and the endocrinologist I am heading for next week, all asking hundreds of questions to dx and taking every inch of reports I have thus far.  They want to know what they are dealing with.  

    But a healer of whatever degree, they often can tell what it is by knowing all about the person.  The homeopath for one, spends hours on a patient's information to find the clues of the body, spiritual, emotional, physical, illness and wellness of a person.  Very often they do not even treat for cancer, it goes deeper to them, cancer is a catch-all like Lupus, when they know the real reason is so far underneath and they must get to it becasue the life of the patient is at stake.

    In my opinion, from the first beginning of a mass, cancer is systemic.  And can be terminal if left unchecked.  It cannot just be cut out and viola, no more cancer, NED.  The host is off-kilter healthwise, for whatever reason, and while natural phleomorphic changes are made in the bacteria to virus to bacteria, now the cells are affected.  Simple as I can put it.  The host, meaning us, must come back into balance and the unnautral cell issues dealt with - both must happen or it is futile to think any changes of NED can be long-lasting no matter what the testing reveals.  If becomes a life thing, not a few months and NED.

    Does not matter whether aggressive or not, en mass or in situ, throughout the body or localized.  Everything must be addressed that can be for the host to bring balance and for the cells to be given every chance to BOTH heal or die.  I say both because who can take the chance on choosing one over the other, such a gamble could be mistaken.  I use multiple therapies for both causations each and everyday, changing choices often, hammering this and sometimes more relaxed, listening closely.

    ER+ PR+ HeR2+, or not, to me with very extremely e x t r e m e l y limited knowledge of cancer on the scientific level.... this is especially where the choices in alternatives must be considered very seriously, this is where the diagnosis can make the difference.  One can be partaking and using various estrogen-laden foods (not talking about phytoestrogens bcz that is another conversation and deserves a lot of attention) lotions, dishsoap, breathing toxic air, etc., and fueling the ER+ cancer.   But, why do those things to begin with?  The bioidentical progesterone is another conversation, do a bco search and find threads with info, there are multitudes of studies from worldwide scientists, doctors proving this being beneficial for PR+ cancer.  So worthy of considering what to do with alternative choices but I am not recommending anyone do so, must be medically supervised by a knowledgeable source or could do harm.  Just like homeopathy can do harm, how can something so powerful not do harm if not used properly and with true skill and knowing how to anecdote if issues arise for the patient, so not saying to play with that either.  Just watching my back here.

    We find out by a biopsy or excisional biopsy of the mass.  We risk spread of cancer in doing so, live link to studies and admissions from medical professions on seedingwhich does happen and is a fearful thing to me personally, and I am dealing with it now.

    1. http://community.breastcancer.org/forum/5/topic/672467?page=1#
    2. http://community.breastcancer.org/forum/62/topic/748686?page=1#
    3. last paragraph in sciencemag    http://news.sciencemag.org/sciencenow/2012/03/cancers-many-faces-of-resistance.html
    4. and if anyone wants to kick around some Karl Loren info, see his frank links on biopsies and cancer. 

    If one is not going to do conventional radiation or chemo, then what is a biopsy worth?  Wecan glean soem onfo hat could be useful, but for the most part, as I am face-to-face with, the danger of seeding and creating more cancer for my tx and immune system to deal with is what has happened, causing me great alarm. And just having the lumpectomy with 25% of my breast removed in 2011 still left me in harms way.  Because it is systemic.

    To biopsy is a choice that is highly personal and involves personal belief systems AND whatwe wil do next.  When we know more about the cancer then we can fine tune choices for alternative tx.  To me, it all comes back to the same thing.

    Aggressively and for life dealing with the fact that one's system took a course with cancer and to not do so again.

    LOL - I know sweetbean, I feel the same way, dianeessa stop posting, let it go.  No love lost, okay.  See you in the threads, as always.  And I have to say working for a naturopath would be an ideal job for me.

    Been a storm through here twice in morn and another just went over, so took a long time to get back to computer, not that I have been sitting here for hours. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    sweetbean, oh to find one like her, i have been through the wringer with costs.

  • sweetbean
    sweetbean Member Posts: 1,931
    edited August 2012

    I know, the first naturopath that I went to wasn't so hot.  

    I would recommend anyone with access to NYC go see George Wong - he specializes in herbs and TCM. He has basically studied breast cancer his whole life and his knowledge is impressive.  Even my BS likes him!  He could definitely come up with an herbal protocol designed to address specific types of BC. 

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    during the aids epidemic I watched a video of a gay pair using chinese herbs, looked extremely dry to me, though they were ground up, very indigestable, & who knows what animal products were contained therein.  both of the men, boys really, died, though I think their diet other than the herbs was not good

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    joy lies within, the aussie nurse here has studied eastern herbs

  • graced
    graced Member Posts: 104
    edited August 2012

    Sweetbean, thanks for the recommendation!  I am just a few miles from NYC, so I will definitely check him out.  He doesn't have any pricing info on his website but I'll send him an email and find out.

  • sweetbean
    sweetbean Member Posts: 1,931
    edited August 2012

    I think he was about $200/month for the herbs. 

    The AIDS virus was/is pretty vicious, especially back in the 80's.    I would have been surprised if you had told me that they had beated AIDS with herbs.  The difference here, though, is that Wong actually knows a ton about the science of breast cancer. 

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited August 2012

    Ok guys. I need some advice. I quit Aromasin months ago and am not taking anything now; other than Calc with D and B12 (as I'm a vegan) I don't want to take another AI or Tamoxafin.

    My onc is not happy I quit the Aromasin and wants to see me to "discuss" other options and also he wants to "follow" me. I really don't think I need him. My internist and/or cardiologist can order blood tests.

    So, do I need another type of doctor to discuss what else I should be doing.? And if so, what kind? I really don't have any idea so would appreciate your help.

    Thanks in advance!

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2012

    gary just now on the health segment of his broadcast:  exsercize helps with cancer .  2, olives & olive oil, general health, gojiberries aka wolf berries strengthen immune system

  • graced
    graced Member Posts: 104
    edited August 2012

    dogsandjogs, I think it depends on what else you want to do.  If you want to look into supplements, you can see a naturopath that specializes in oncology.  You can see someone who practices traditional chinese medicine that specializes in cancer.  The Mederi clinic in Oregon does phone consults and uses botanicals and specializes in cancer.  There are definitely options outside of conventional doctors.

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited August 2012

    Thanks Graced - I will look into these options. I don't really feel I need to do anything else, but after reading all these posts I'm wondering

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