Fuzzy's Romp Room

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    No I cancelled it b/c I smoked. For an US your supposed to be NPO for 10 hrs. I was still on the puter(as Grannydukes calls it).MN-- I said no way. I was on serious stuff till 3 am---finally sleep today 11:30 am Back from MH (fruitloops )visit now. I was delusional to schedule it the same day as the beginning of a novena---lots of additions and changes. Mistake on my part.

    Fuzzy, I'm suggestting your favs that make you happy, in your header--OMG, Bonfires and anywhere else that you travel that is your happy threads then it's click and go. WE can use them to. It' Like a transporter in star trek. All here basically are on OMG too, all could use it. here;s how

    Go to OMG--contrl- c the url in top left corner

    Go to FRR hit edit on header  type OMG , then space bar

    Contrl-V   hyperlink will show up,  cursor will be at end of hyperlink , hit enter

    leave box and hit submit

    test hyperlink,  it should take you to OMG

    If you test before it 's submitted , it may/will break Link and you have to start again from line one.

    Once you do it you will see how easy it is 1. to do, and 2, how easy it is to get too OMG.

    We can use it too.

    Essa Thanks for the comment about organization. I have to work at it b/c Frutloops counselor correctly describes me as ADD/ADHD and OCD. WE had a coversation last night LInda and I. It's so true. I thrive in a confusing environment that you have to concentrate specifically on one thing ,do it well and move on, for example --Er or OR nursing. Sedate nursing never worked for me. , Course organization was amazing  for example--50 students/30+ evaluators , that students would have to go through a 15 station skill practical. Each skill had a skill form-750 pieces of paper, secretarial help of 1-3 people tabulating sheets to my master sheet. Having master sheet of where everyone is supposed to be at a specific time(all had the same sheet). but keeping the flow was the key , get off schedule and oh my. The funniest was for Advanced cardiac life support courses--ACLS2 1/2 day course, I allowed a little space time. I learned that the Physician Residents --docs-in-training, often had to throw up or diarrhea and had to use the bathroom before they went into a station. First year, I didn't know this, it really backuped the schedule. Had multiple bathroom sheduled for use--first year only one   lol . Now I could never do it. But there were fun  fun memories. Except when I had to tell someone they failed. There were ways to redo testing. But the emotional impact on truly dedicated people, that felt they were prepared was devastating to the ego. But can attest that out of 298/300 paramedic grads (9 month program). i wouldn't say "oh no" If Iwoke up in a trauma situation. The 2/300 should have never been certified, but I couldn't convince the medical doc signing for their certification that they were dangerous. Both were and she had to live with the result. Ah History.

    So DD out on her own for the first time, I have a single son????Tampa????? Lawyer....good ethics /morals/nice/good looking/speaks in full sentences--lol. 27.

    working at home --sound happy---no puter problems-----stellar.

    Been meaning to tell you I'm on EBAY --a junker/ antiquer from way back. I appreciate what you do it's not easy. Sellers work very hard. I have a 100% rating as a buyer, but I know buyers can be abusive an hard to work with.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    Dunes sweetie how;s the arm? Problems? Settling in. Sorry about the no neighbor support. Hard to find people to help, they offer but the follow through in a crunch is where the story is really told.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    PTd ooooooooThat's a bad fall to do that----concussion? Two things about hearing loss--1. the car always runs well     2. you miss out on all the good gossip. 3. you hear strange things when people talk example..First day riding with Medics. Rookie was required to stand at attention at mess(Lunch). 5 bells-explanation 4,3,2,1. with one bell-- I fell off my chair laughing--they all knew of h.loss. I said what did you really say --"Any fireman respond" What I heard was "We all stand up and fart". To this day , I don't know if it was a set-up lol

  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited August 2012

    i know i will adjust but to go from very acute hearing to this is a bummer. throw in my stupid arm and tomato size seroma and i am discouraged. i do think that i will try to adjust to my changed body and probably forgo further surgeries. my onc wisely said that you can't go back if there are further complications and pain from surgeries and if i can adapt i will.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited August 2012

    (((((((((((((((HugsPT)))))))))))))))

    I whacked my head pretty bad in late 2009...been ringing ever since....lost some hearing in the mid '80's from a trash burning incident (do not put hairspray cans in the burn pile....). I honestly believe my other ear picked up the slack....our bodies are pretty amazing...

  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited August 2012

    SAS you are so right about hearing people say strange things!!!! Your example made me cry. In a good way!

    Thanks GInger 

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    PTd -

    Hearing loss is not fun or funny. I'll pass on some of the things that helped me. If you are working (sorry forget), active in any group, with friends and family this is a disability that you have to tell people about. Otherwise, it will affect communication. For us humans verbal communication is very important and there is safety to consider.

    1.Developing Signals , Educating the Masses, Safety, Dealing with the Untrainable.

        A. I touch my good ear---that signals for a repeat

        B. If you've caught the whole message, but dropped the last few words----say" last____words" or last

            sentence, say"last sentence". IN the USA many people end their sentemce by dropping the voice.

             In Canada I have noticed that their sentences end on an up note. it's when the voice goes down,

              is when I drop words.

        C. "Sorry missed the whole thing repeat please". or when you have everyone well trained say "repeat"

        D. Look to a person that understands your loss. With many, all I have to do is look, and they will repeat in  

            a louder voice.----may sound strange , but it works. Eventually, everyone will know the look.

        E. Have them talk to you on your good side, or look at you, over time you will be able to read lips. 

        F. Don't let someone walk ahead of you talking. Worst for me, was doc's giving orders walking 

            ahead. I'd always say, "You are talking to a deaf person,stop and look at me". In my life's experience,  

            doc's were the least trainable--with all medical staff-- remember this--least trainable.   

            You have enough on your plate without talking with a doc, that is not getting the message across.

        G. You have one good ear, use that for the phone.

        H. You may find it difficult to understand accents. Ask for a change to someone that speaks American. 

              I, specifically, said American. I find that all accents are difficult, but some are worse then others.  

              Asian,British, Irish (I'm full American Irish, but this is the worst).

         I.  Safety

              1. Have someone test the smoke detectors when you are sleeping to see if it awakens you. 

              2. Don't drive with radio on, until you test whether hearing horns or emergency sirens is ok.

                  If it's a problem  you will get used to a lower or no radio when driving.

              3. Crack the  window, it may help with hearing emergency vehicles

              4. Be more aware of looking both ways on the street when crossing--I look twice each way on

                  busy streets-can't hear oncoming traffic. 

               5.Leaving house do a walk through to make sure all water taps are off, i can't hear running water.

                   You likely do go a walk through the house to do an electricity check anyway, just add it in.  

         J. Alarm clock-There are clocks with louder alarms/lights. I don't use an alarm much, worry about

                hearing it when I do, end up staying up worrying about early morning appts.   Will not spare this 

                story. Shatzi has recently started barking and nugging my arm when the clock goes off. I only  

                put that together tonite for Mh appt. and realized it's been going on awhile.  God love her.     

                She, also, alerts to doorbell and yard gate entering.

         K. When you can't hear and you ask people to repeat, some people repeat and use an angry tone.  

             1. Stop them. 

             2.Explain that you don't need them to be angry. You have a hearing loss.  

             3. Speaking up without anger is all that need be done.

         L. It takes a differring amount of time to train people --do not get discouraged.

              1.Groups--announce at group meeting --establishes a point in time that everyone was notified. 

                  a. review with them what your needs are based on above list.

                  b. Record with HR your disability, may need if you have non-cooperative people.

                  c. Have written statement added to your file of what was said at group meeting

                  d. Get copy of attendance list, ask supervisor to be allowed  to talk with anyone missing.  The reason

                    you want the one-to-one is better cooperation and you can show them the visual cues you wil use 

                  e. A memo can be sent but the personal contact gets better cooperation,

                  f. Have them sign the copy of group meeting attendance list.have this entered into your file. 

                  g. background and extraneous noice can change your perception. Varies in individuals. 

              2. Family and friends---nice to do as a group saves time- immensely. Do same presentation as groups   

                   can skip attendance list lol --unless it helps you keep track off who you told what too.

               3. Some people aren't trainable---If you can't train them, tell them so, and that it's not acceptable.

                   This is, particularly, applied to those people that when asked to repeat, do it with an angry voice.

    2. Tinnitus---strange noises in the ear, generally a buzzing, roar, crickets, varies person to person. Occurs

         because the brain doesn't like the absense of sound and effectively produces a noise to fill in the gap. 

         There are more options today than ever. So, don't despair.

             A. Musical Ear Syndrome---Link to follow . Suggest running copy for file, old problem --new name

                  http://www.hearinglosshelp.com/articles/mes.htm

             B. Rebooting Ear--Research on Rats

                  http://www.medical.hear-it.org/Rebooting-the-brain-may-stop-tinnitus-1

                  I may not be a rat---But i've tried it numerous times since finding this article --works

                  I lay on my electric bed, tinnitus side down over the strongest motor sound for a while

                  may not work right away---but then there's a change. Could try vibrator, if no electric bed

            C.  Commercial Devices Available-- no research done

             common law copyright --08/16/12

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    PTDreamers - do we need to put you in a helmet?  We did me, I fell back in spring 2011, getting ready for a barn sale.  Memory shit.  Was getting books and records on tables and I saw the big old wagon with the rope to pull it, I thought, that is dangereous, could get ankle caught in it, I turned around and forgot and got my ankle caught in it and was a 300-pound woman hopping across the barn (concrete floor) with this massive wagon after me, I eventually fell and smashed my head on the floor, bruised the entire left side, crushed my knee and then the massive wagon ran over me.  First thing I thought, out there all alone, where is my cell phone, grabbed my boob in case I had stuffed it in there but had not (I know, no cells in the bra, I quit that! but it was always in left side and mass was on right).  Anyway, concusion. 

    Two years before that I fell backwards over an empty pallet at Home Depot, whiplash, injury to shoulder that was numb for months until Bowen therapy.  Could have got money but did not, and did not choose the surgery, but it was bad.

    The hearing aid, my DFIL got his first set and promptly dropped them out of ear somehow and walked on them, smashed.

    Sassy - daughter, : ) thanks for the set up with your great son, but DD, she already has the one, they have been friends and absolutely adored one another since elementary school.  When they were ten, he was taken away in the night by his family when someone they knew was released from prison and became a danger to their lives, just disappeared for 15+ years and my daughter did not know where he was until a month after her wedding six years ago.  The one and DD have been friends ever since then, and she just has to cut it lose (the marriage) she is not happy at all anyway.  So sad and complicated but I am happy for her, not many have the one since elementary school (though my in-laws are that way since first grade) and for him to find her again was wonderful though the timing was quite daunting for a newlywed.

    To be an instructor takes a lot of organization and recall of personal issues, esp in such a critical course.

    Ebay, I am so new to this, augh, insertion fees throw me, trying to avoid any and all fees for now.  Decided to try one item on fixed price w/ make offer for 10 days, have been doing auction/buy it now combination for 3 days.  When I get enough on we will open a shop bcz we love to go to auctions and flea markets, love them, esp when we can take the Newfie, not that I get much done with dog along, then it is a petting zoo cuz he is so unique and huge and furry which makes him think he is the alpha bcz everyone comes to him to pet him, no matter where we are, confuses him, I am boss. 

    Anyway, was over on my alt thread and it is sooooo darn it controversial I thought what am I doing w this stress trying to fix anything man oh man and came back here to see how everyone is.

    Suppose I could go back to bed, been up two hours reading, went to bed too early then cannot sleep.  But want to be up at dawn, so nite nite.  That's what we tell the dog and he goes off to bathroom to sleep.

  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited August 2012

    SAS your hearing loss link did not work. I tried copy paste too. 

    Thank you for the hearing loss tips. My husband is the worst at repeating in an angry impatient voice. I have tried and tired to get him to repeat in a normal voice. I hope using some of your signals will help. My DD often repeats automatically if I glance at her. 

    I lost some hearing as a teenager when a fire cracker blew up right next to my right ear. Now at 67 I am losing more hearing and understanding of various tones and background noises. I can't hear if water is running or paper being crinkled. My ears ring, my right ear especially. Thank you again for the info you shared.

    Ginger 

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    PTd so understand my bmx scars are just like it was yesterday. The only thing that faded was the nipples DUH. Yes I can have tattoing, but the other shoe keeps dropping. Plus my fear of infection would have to be overcome. I have a abd scar that goes from upper abdomen to almost pubis. I told furitloops counselor tonite all I need is a coronary bypass graft scar and i'll have a full cross on the front of the torso. This was on the hearing loss post. It was in response to something you said --no longer have a clue what????????

    Above is a list of stuff I've learned along the way regarding hearing loss. Took awhile to do and the typing's not the greatest. But do suggest you somehow print it off. Some /much of the stuff I didn't do. Now at the opposite end of the age spectrum, would have made life a whole lot easier. Especially, the group meeting stuff. I basically did it person to person. Takes a long time to do it that way to train folks. I have stayed in jobs longer than I wanted too b/c everyone was trained.  So, group training of fellow worker/groups F&F's will uncomplicate your life.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    ESSA--avoid controversy at all cost- right try to do something Ecumenical my oh my the things that occured --but wouldn't exchange that for anything for all that are invoved.

    Seriously though Essa, why go where they make you unhappy.--click that remove button . 

    Story  re:DD and life friendlove so very sweet. I was joking about Ds. He's dating a new woman and I know stuff , he 's not done that b4, so, possibilities are different. Your in laws--rare rare rare wow --how many years married?

    Ebay keeps changing the rules all the time. My interest has been Glass for the last few years. We used to be one of the biggest manufactures of glass, now down to 1-2 would have to reverify that number. The things that we were leaders in design/production is gone and will never happen again. The glass molds for pressed glass have been sold off , mostly to China(watch for fakes). Old glass --each has a story. The story I love most was (now no prep so memory may play with things).  i won't attempt name and get it wrong, but they are still producing. 1906 He comes into a town that was down and out since closure of the primary mftg. facility in town. He has a mustard recipe he wants to have bottled. So, he buys the closed mftg. building. Renovates it. Puts towns people back to work, 3years later he leaves. No traceable history before he came and no traceable history after he left. I'll leap and say L.E. Edwards Co. And unless something has happened recently --they are one of the only producers of glass in this country. It's as if an angel came to save them, got them going again and left.  Isn't that a great story, he saved a town.

    Junking can be oh so much fun, DH hated it, so..... But when you take Danny-boy, Newfie's are so known for their gentleness. Huge fluff balls with great wagging tails. No wonder he is the center of attention. Hope the ebay bz works for you---I would have trouble parting with a "find". For nonjunkers a "find" is something of either beauty, dollar value, just makes you happy, or fits that blank spot in a corner or a room, or in my case the likes of it will never be seen again and it must be saved for posterity. L&H&P's ESSA --sheila

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    Gingerbrew---yousent me a PM meant to look at it afterthe others made the mistake of looking and closing so the color changed. I just tried the ear links . bothworked with a double click, if you try again and they don't work appreciate knowing. Try the links on old posts Pg 64 and 65. that's where I transferred them from.

     I empathize re: the impatience and acting irritated. SOOOO many people do that. That why I told PTd. That can be a shock with her new impairment. But lifelong gets old. AND you have to make it stop. Have your husband spend a weekend with ear plugs in not quite tight, let a little bit of sound in (see below). Suggest you do a roundtable discussion, but cheat. You and daughter talk every thing through first.  Have her tell her Dad how it hurts her, to here him treating you that way, all the time. It's true. I guarantee when you ask her, it has affected her. The glance, tells me she is sensitive, observant,caring, protective. What age did you notice that she responded to the glance?

    When deciding how tight to put in the ear plugs. Use your TV remote. Put it to the volume you can hear. The lines are very useful. For husband the plugs go in, to the tightness at which the line is on the tv, that you can hear. Can't take them out for any thing. Nada.  Make sure to go out  to dinner, grocery, have a family dinner at home with some very talkitive friends. Lots of people talking at once creates strange things for different losses. For me it hurts.  Have them do all the things, I said to train people not to do. Have everyone read the list including DH.  Reminds me of something I have to edit. Here in the USA we end our sentences by dropping our voices down. For me it means the last few words of a sentence are lost. Canadians end their sentences by going up( My Mom was canadian). The back ground noise can affect hearing , you've say you've lost yours, for me it makes hearing worse.(another edit). The biggest issue to deal with right now is---getting him to sense what you sense---plug him up. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    I hate the word protocol. My oncologist said that a couple times yesterday at my appointment. She wants me to have AC (red devil) chemo again because its PROTOCOL. I had it once before. It damaged my heart. Its PROTOCOL. I already went for a second opinion. They don't give red devil a second time. She raised her voice at me. She tried  scare tactics and I sat there looking at her as if she was an idiot. Screaming and scare tactics don't work on me. I turned to her and said that I didn't want chemo after all and I am willing to take my chances. She stopped and said that I had an 80% chance to cure it. Then I looked at her like...okay then, lets do what I want. She then later apologized for yelling. I guess she felt bad and gave me a hug. I can do scare tactics too. I don't want more damage to my heart. It have to go for a MRI for the brain and I start chemo in 2 weeks.

    I am calling my surgeons and let them know what is going on here. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Sassy - since we will be traveling somewhat when and if we have to leave this place on Whip-poor-will Hill, like if owner sells or hates us or it is blown away from being on tornado - derecho - straight line winds alley like one coming at us now  (all reasons to have to move hopefully unlikely) anyway we will go from cottage to cabin to resort for months at a time and lease vacation-type homes in lovely places.  So I consider this my posterity, I have to prepare to travel light an to be bale to pack it in a few totes and go w clothes, my antique basket w my antique bird collection in it (huge 1700s basket used to pack china for ships) and some books an meds and go.  Simple live gypsy life for awhile.  We may settle again, but paring down now, 3 sets of china, antq bottles and glass pieces,  magazine covers and ads in groups, it is fun, I like doing this. 

    Sassy, they are going to make us pm instead?  hahaha, but to answer....  for alties, all our threads are controversial from those against our choices or whatever their reason, it is hard, I would miss out on some great friendships and learning and sharing of essential altie 'finds' so cannot hit delete, just sigh and wait.  Sorry to bring it to this group last night, but so tires me for being hounded and I remember to not engage I hope and run to where I can be me and appreciate e veryone around me, like here.    

    Does anyone else know of couples together for life who met in elementary school or were raised in neighboring buggies?  My in-laws, she first noticed him when in line in first grade, the others called him Fuzzy ??? we still don't know why he got that nickname but it stuck for life bcz that is the first name she heard for him and when they 'met' in sixth grade after being in a rather small school together all those years, she called him Fuzzy and still does.  They are in mid-nineties now.   Not a perfect life but it's been a life and they have been pretty happy really.  My Hubby is as loyal to me as his dad is to his mother, he learned well.  I know of a couple who played together in the same neighborhood, recall her calling him whenever she needed anything,  "Doug... " and he was two or so yrs older, and he would turn rapt attention to this sweet little thing, they were freinds throughout high school engaged in 11th grade, married at 19 and still seem deleriously happy at early 50s.  I married Hubby after 'dating' him for 23 days, then the wedding day but everytime I went by him in town - all 3 times - there was something about him, like I remembered him? a connection?  Been 32 years, not perfect but he is my Hubby and me his Sweetie (yeah, right, I am not that sweet).  

    Going to write today whether I have internet connection after this STORM coming upon me or not.  Can write 4 hrs on the battery in Word, then move to wherever.  But like to stop in to see one of my fav groups in morn before I start.  Good days to all, take time for hugging yourself today, I know I have to.

  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited August 2012

    thanks SAS and everyone, i will adjusy. it  is just the suddeness of it. we are all "survivors".

  • Wren44
    Wren44 Member Posts: 8,585
    edited August 2012

    I had a friend who was almost totally deaf. He put a light in a tall can and hung it over his side of the bed. It had a timer he could set for whatever time he wanted to get up. It's the kind of thing people rig up so their houses look occupied when they're on vacation.

  • MamaV
    MamaV Member Posts: 907
    edited August 2012

    veggy - you fight girl!  From what I've read and been told - that red devil is a one time deal!  Don't let anyone scare you into ANYTHING!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    The red devil is protocol according to my doc.

    I scared her when I said that I wouldn't have chemo. She stopped yelling.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited August 2012

    YEAH VEGGY!!!! There Are other ways....you put her in check and I'm proud of ya girl!! Its not easy but we gotta take care of ourselves for sure!!

    PT....I'm singing the song for ya. Disco moves and all....

    Just filed another workman's comp claim. I was better prepared this time. The intake gal said it was one of the most prepared shed ever seen. Of course, that doesn't mean a whole lot....wish me luck.

    Am I flaking out or are we missing posts&updates from a whole lotta Romerettes?

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    Essa--Gypsy life with few belongings at resorts and beautiful places. Nice for awhile espesially, to get away 

    from t-alley.With a devoted husband that enjoys what you do, starting to sound even more attrative.

    Veggy, I'm clueless, but I know you will stand up for yourself .Good luck.

    Fuzzy odd you should ask about missing, To find hearing links I went back to Pg 30. Their were a few one time posters, I jotted down some names of regular posters, Dogeyed, Sheila888,Madpeacock, TeresainTucson

    ,Makratz,,EmilyinOntari, May have missed some.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited August 2012

    Thanks SAS...I could use your organizing skills!

    So.....I discussed this with my new head shrinker and he said its a step in the right direction.....but, I got angry with the asshole who works on my bike....I gave him a tongue beating that Would have impressed Al Pacino. I was honest and to the point. His apologies mean NOTHING to me....he isn't even worth a nickel in my book. And now....I'm sad about it. WTF????? He Totally deserved it from threatening me, treating me like a jerk, giving me the run around, etc and he knows it! He tried to apologize (which is all bullshit keep in mind... he's not sorry, but he knows what he's done). I dunno. I'm just a wreck.

    I better sleep tonight or I'll have to bitch myself out! LOL

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited August 2012

    Fuzzy, I always feel bad after I bitch someone out, even if they desperately needed it. My current shrink says I'm co-dependent, so maybe I see bitching people out/standing up for myself as not being "nice." I dunno. Just I'm damned if I do and I'm damned if I don't. Foot in mouth

    Someone, I think it was Sassy, asked how I was doing with my broken finger. I'm doing very well. The brace allows me a lot of freedom. I frequently have it off during the day. I take it off to cook, to wash dishes, to bathe, and to type. Sometimes I take it off to exercise. I always wear it at night. So, things are much improved. Thanks for asking.

    I feel so badly for ptdreamers. I admire the way you are accepting what has happened and moving forward from there. Acceptance can be so very hard. It's hard for me, anyway.

    Veggy, I hope you stay away from the red devil. Dang. That's nuts. What the heck is that anyway? Why does it have such an awful nickname? I'd be terrified to take that.

    Sas, I have been selling stuff on amazon. I sold about $180 worth of stuff today, and so far I have about $50 worth of orders to ship tomorrow. My DVD collection is slimming a lot. I was starting to feel some financial security, then my car insurance bill came. Ugh. Well, at least it isn't due until October. I guess I really ought to cancel my internet. That would help a lot, but I would miss it. Still thinking about that.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    Fuzzy---they come out of the OCD.  So there are positive;s and negative lol

    Dunes g/l w the sales.

    PTd don't print off  hearing thing for  say a week so see if any other ideas pop up. I know you are terribly frustrated. But that list will really help you adjust, My hearing loss was picked up @ around ten. Everything on that list I had to learn by myself. No help. what can you say it wass 1960.  No identified origin. Nerve conduction loss. Questionable as to aides working. I'm cheap. Won't spend the money. It's worked for me just to train everyone. This gives you a plan with much being able to be put into action right away.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Dunesleeper -

    Adriamycin is also known as Red Devil. It is very strong chemo drug. It can cause heart problems as well as other problems. I had it before. It weakened my heart and I don't want it a second time.

    Today I am off to see my family doctor for a check up. 

    Veggy

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited August 2012

    Dunes....the Red Devil is actually "red" and is injected very very slowly. The nurses watch you very closely incase you have a reaction (very dangerous) and they are in their yellow suits to protect themselves incase of a leak. This treatment, as I understand, is only allowed one time in your life....and it is a killer. I was told, "Its designed to kill the C, before it kills you." Now, many women sail through it just fine.....I didn't....it almost got me. I would have 7-9 days of hell following each treatment with the last one extending to almost 2 weeks.

  • MamaV
    MamaV Member Posts: 907
    edited August 2012

    Yup - red devil almost killed me too - horrible stuff!  I understood a once in a lifetime rule too.  Veggy your doc saying differently?

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited August 2012

    Mama....her doc is telling her its PROTOCOL to do it again!!! And, she has heart damage from the first time....I'm not an Oncologist or anything but I believe that is wrong wrong wrong. Veggy put her foot down (or...up....their hinneys).

  • SimplyAudrey
    SimplyAudrey Member Posts: 242
    edited August 2012

    Protocol-schmotocol.........

    If you look at the "protocols", there are most always "-OR-"s.  Sheesh!

    Good for you Veggy!  Your choice, your life, your stuff.  I applaud you!!!!!

  • Wren44
    Wren44 Member Posts: 8,585
    edited August 2012

    It's probably a NIH protocol which you could look up, print off, and take in. Unless a new onc seems like a better idea.

  • dogeyed
    dogeyed Member Posts: 884
    edited August 2012

    LADIES AND LADIES, I'm baaaaaaack.  Phone and internet (the two are connected) stopped working last weekend, went out Sunday late afternoon.  Took them until just an hour ago, Friday noon, to hook us back up.  Husband and I went thru withrawals from not being online...hahaha.  I have read all since my last post, and I don't have as many brains as I used to, so of all the reading, I only remember the highlights.  But before I say a few words about those, I just want to say, ya'll just keep soldiering on, it all reaches resolution for perhaps a day or two per week or month!  And right now (almost right now) is my FINALLY break in a madhouse week of my complete inability to take a car into the shop, call my mother from a phone booth (have NO IDEA how to use those) in the hot sun until a SUV pulled up with a dog the size of Manhattan in the front with the WINDOW DOWN, so I took my sweaty self home, and this is not even including how our dog threw up on husband's feet, nor everything else I cannot remember.

    FUZZY, ohhhhh Missy Fuzzy, I have MISSED YOU so much, my owne tru sister.  I had NO IDEA you were having all these difficulties, and I would have called but our phone was out.  You know how we share a wavelength, and I surely felt the complete tsunami of your life in my own life this past week.  I am SO tired from it.  Dear one, just wanted to tip you off, the hormone-blocker you must take as a treatment, that may be how come you might feel sad from time to time.  I HAD to stop taking mine, as you know.  It drove me mad.  I'm already pretty mentally challenged, tho, so it's no wonder for me.  They say a person gets used to it, however, so hang in.  May I throw my arms around thee and hug you with all my love?  I love you, Fuzzy, with all my heart, and that's for real.

    DUNES, you are so cool, you tell 'em girl, and glad you're making some cash to stash.  VEGGY, I really hate it that chemo is coming your way again, most uncivilized, to be sure.  And I think it was your cartoon of the coffee thing, I just guffawed!  LOVESSA, your travel plans remind me of a TV show on the Documentary channel, "The Bus Movie," where they spent an hour and a half talking about the old VW buses, my gosh it was soooo fun.  One guy said he hasn't paid rent in years, he just camps in his bus and lives free.  ALL, I have enjoyed reading all the activities, was happy to read visitor posts, felt sad about various disasters, too.

    But alas, I must go now, they are supposed to bring my car to me (it had to be repaired) within the hour (I HOPE), so for about the 57th time I have to drag my carcass outside and try to make sense to strange people and write a check.  I'll return tomorrow, however, with whatever strength I have remaining, to at least read, and eventually post again.  LOVE ALWAYS, GG

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