Triple Neg stage 2b Reccurence

And this study was begun several years ago..we don't even know if they had taxol....A co-worker of mine is tn..six years ago...she had 4 AC's and that was all..she is alive and kicking! I just wonder if any of those women had taxol? I remember my onc telling me one year ago...in five years there will be even more treatments coming.....while I would rather see a cure....bring on the new treatments!

Titan - thanks for providing the link. 

When I read stuff that says risk higher for those under 50, it kind of freaks me out because I was diagnosed at 45. That's when I wish I was older. However, as I've said before in other posts a friend of mine had TN at 29 years old and she's now 38 and doing very well.

And that is just it..a study is a study, is a study, is a study..can I keep repeating that.!!! You still are stage 1, small tumor,.....and you did everything you could....we need to push the recurrence thing to the back of our minds if we can....and listen to your onc and do what you can and just live and hang in there....I know it is going to pop up now and then...but I guess it is something we will all have to deal with..remember we have each other to scream, talk, whatever about this...I do this on here sometimes (often), get a calming answer back and just move on..that is what we have to do..for ourselves and the people who love us.



sorry for getting a little mushy here.!

Who would have thought that we would be excited to turn 50...or even being happy about getting close to 50??? I was freaking out about turning 50 last September and then realized..hey this is a GOOD thing!

I was diagnosed in January 2006 at age 38. I had one positive node found through a biopsy. I did neodajuvant, 4 dd AC + 4 dd T, then a lumpectomy, then 35 rounds of radiation. I finished the whole treatment plan in August 2006. Since then... nothing at all, all clear! And my life is back to normal. I do not even freak out any more when it is time for a follow-up. I was recently "upgraded" to yearly mammograms, just like "everyone" else!

Having said this, of course I never forget, not for an instant, that things can turn ugly from one second to the next. I just hope they don't.

Newalex, that is really an over reaching statement by your onc and not even close to being accurate.  It depends on the purpose of the scan, the protocol, and the tracer used. 

Think about it, if that was true then doctors and radiologists would not insist on spacing out our scans.  But there is no caveat which limits how many or how often people should fly to Asia.

Hi Cristiana, I'm not sure what you mean by "genes."  I think you must mean something different, but I'm not sure what it would be.  Maybe you can explain more about what it is and we can try to help understand.  

Yes cristiana...I'm also losing my eyelashes..at least some of them... I counted 3 this morning!  And my last chemo was August/09,

Cristiana,

The other day I lost 20 or so eyelashes and my last chemo was almost a year ago. 

Regarding periods:  I started spotting on and off in January.  In March, I had some type of bleeding 20 out of 28 days, now my periods are every 3 weeks, with 1-2 days of really heavy bleeding.  I am hoping things will settle down soon....(so is my hubby as I have never had PMS or really any issues before with moods/periods etc...)

If you have individual concerns, check with your oncologists...but the answer they gave me is that if your testing comes back normal (pelvic ultrasound, labs, etc...) it is just a "wait and see" adventure!

 Good luck!

I'm so sorry for your recurrence. So crappy after 3 years out! I can't advise on chemo, but I hope someone will be along shortly who's been through it. Hang in there - you beat it back once and will again. 

cristiana and wrsmith2x,

That just sucks.  Loudly.  I did lots of research and got a lot of information from my oncologist before I started treatment.  Then I went home and cried.  I was given a less than 30% chance of reaching 5 years alive and well.  I decided that just wasn't acceptable, so I did as much treatment as I could.  Then I was okay with being monitored as much as anyone wanted to monitor me.  So far I'm okay, as far as anyone can tell.  I'm 3 years and 9 months out from dx and my last trip through the PET/CT tube last month showed nothing of interest.  Not out of the woods, but everyone says the odds turn in your favor after 3 years, so I am hopeful.

The huge issue at a year and a half out was explained to me.  Being TN, we have a higher rate of recurrence.  TNBC is an aggressive beast.  And half of those of us who will recur do so quickly, within a year and a half of initial diagnosis.  Those of us who get over that hurdle have an easier time, and it gets easier over time.  After five years, most of us will be safe from what hit us.  We still have to watch for another beast, because if we can grow one, we can grow another.  We have to be vigilant throughout our lives.

But I also believe that if your beast shows its head again late in that five year window, it isn't as strong as one that would take us inside a year and a half.  I hope to God that feeling is right.  Go kick it's butt.  Then get out there and live!