March 2012 chemo

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  • KCB
    KCB Member Posts: 365
    edited August 2012

    Thanks Alicethecat: will think of you as you head toward your last day too...hope you're not leaving the board!

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  • sandrav
    sandrav Member Posts: 49
    edited August 2012

    Hi girls,

    I didn't realize that I put myself on the March list... Seems like I have been holding my breath since March. I made it through 4x Cytoxan 12x Taxol /Herception 52   and finshed the hard stuff 2 weeks ago Laughing I kept my online store open and kept myself busy, these last 2 Taxols have kicked my butte back a bit. The summer heat has bothered me alot. So sitting on the couch alot these days..no energy but getting there.

    I am going for the Micro Diep Flap surgery Sept 24... I have been living with these awful expanders since Jan 6th might as well get some breast out of it all..Wink 

    I am getting scared but I see the light at the end of the tunnel.

    I still have my port which will stay in for the 40 more Herceptin treaments..

    I am reading backwards to see how you all are doing. 

      

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  • kltb04
    kltb04 Member Posts: 1,051
    edited August 2012

    sandrav - good luck with your surgery!

    Alice - thinking of you as you go for that last chemo!

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  • Alicethecat
    Alicethecat Member Posts: 535
    edited August 2012

    KCB and KLTB

    I was just thinking about you two!

    It is nearly seven thirty in the morning here and I have been awake all night looking forward to my final chemo session but feeling nervous about the potential side-effects.

    For the final chemo caboodle, I'm having Taxotere and Herceptin. Not sure if it will be at the same time or one following the other but it is a bit scary as I got a high temperature on both of them when they were given separately.  Fingers crossed that all will go Ok on Friday.

    Thank you so much for thinking of me.

    Is either of you going to start an August/September 2012 rads group?

    I don't want to leave the board but I would like to post messages on a new group site to mark the end of one phase of the treatment ending and another beginning.

    Someone has already started a Summer Rads Hangout 2012 but some of us are not starting rads until September so....

    Here's hoping.

    Alice

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  • KCB
    KCB Member Posts: 365
    edited August 2012

    Alicethecat: very very best for today!

    Re Rads: I will start on Monday, and have introduced myself on the Summer rads 2012 thread, but haven't posted much...I know of one other there who starts in September.

    I know what you mean, it might be nice to stick together. Maybe there could be a march chemo rads thread?

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  • lostinmo
    lostinmo Member Posts: 922
    edited August 2012

    Alice and KCB-there is an August 2012 rads group going, You could both jump in there, some have started and some don't meet with the RO until the end od the month.

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  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited August 2012

    onvacation - you have numb feet?  How about your hands?  I'm with you on both.  I went to my last chemo a week ago and told her I wasn't going to do it.  I'm 8 weeks out from Taxol and 2 weeks out from last carboplatin and my neuropathy is killing me....seems like working (sitting at computer for 8 hours) makes it much worse.

    Sandrav and others - I'm so tired like Sandrav....is this normal 2 weeks out?  I feel more tired and achey (not the horrible post chemo/taxol type of ache, but general malaise) and have no good energy days....usually the day before chemo, was atleast good.  Do others feel this way?  Started Aromosin last Sunday, so achiness could be from that, but in general, my good days were better during chemo than now....

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  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Kam - I do still have numb toes - though it is SLOWLY getting better.  The fingers aren't as numb, just every now and then the tips are a bit numb.  Such a strange feeling.  My OC suggested glucamine and b complex so I've been taking those a few months, not really sure it is helping, but I guess it down't hurt.  Hope yours improves!  I hear it just takes time.

     I hope people stick around this board because I really like you ladies!  This was my main source during my chemo, and even though I post of other boards i like this one!  If you guys move off let me know where you go!

    Cheers!

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  • journey4life
    journey4life Member Posts: 517
    edited August 2012

    Hi Marchers,

    I took some time off from posting here - I guess it was just too much thinking about cancer all the time, trying to handle tx and maintain a full-time job. I'm working toward being in a better place and fondly recall the encouragement and support I got when I started chemo in March. Although I haven't posted, I have been lurking so I've been able to keep up with you all (well, what my chemo brain will allow me to remember!)

    I'm back...and looking forward to re-connecting with my fellow Marchers! Lisa

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  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited August 2012

    Onvaca & Baldeagle- I think a lot have moved on to a Rads thread?  I mostly connect with my December surgery group these days, but even there, some have disappeared or splintered off into other threads.  We keep a good core group, though.

    Looks like atleast you (onvacation) and I may have escaped that tx (Rads)! We graduated Wink  Sounds like my neuropathy is slightly worse than yours...I take supplements and B complex.   Supplements...carnitine, alpha-lipoic, glutamine.  Hard to tell if they help, but when I skipped 2 days, things did get worse.

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  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited August 2012

    Hi all! Heading out to Stanford today to US my lymph nodes. Then go back Tuesday to set surgery date. They say I have to wait a month after surgery to start rads so I don't think I will start till October.



    Last 3 Taxols really wiped me out. I never did get neuropathy from it though. How are those on herceptin doing? I've only had 3 and can't really tell.



    Hope everyone has a blessed day!

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  • kltb04
    kltb04 Member Posts: 1,051
    edited August 2012

    Gals I am still here and I will keep posting here or wherever everyone wants to - I still don't know about rads and I still have surgery coming up so I have a ways to go.  Also, if anyone wants to friend me on FB, PM me - I am keeping up some with some people on there.  More private to a point as far as sharing pictures, etc...I don't talk about cancer on my wall but its another way to just keep up with day to day life.

    As for me, I am focusing mainly on back to school right now...the girls start Monday and I am grateful I won't be in the middle of chemo, etc...so I can take them and pick them up for this first month. 

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  • lanagraves
    lanagraves Member Posts: 596
    edited August 2012

    kltb: I do post about cancer on my wall, but I'm glad you told me that, so I will be careful not to post anything about it on your wall. If it is about cancer, I will PM you instead. I, too, will post wherever everyone wants, but I definitely want to keep in touch.

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  • kltb04
    kltb04 Member Posts: 1,051
    edited August 2012

    LOL, it wouldn't be a big deal - everyone knows - I just had a couple of people - a cousin, Dh's SIL - who were constantly posting cancerish things on there and I didn't want to be reminded of it all the time.  Plus my oldest is on my FB and I didn't want her to be constantly hit in the face with it everytime someone posted something.  It is by no means a secret though!

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  • lostinmo
    lostinmo Member Posts: 922
    edited August 2012

    I'm still here too! Just been busy trying to get the RV ready to go. Plus trying not freaking out about staying in ST Louis by myself during the week.

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  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    I am doing rads and over on that thread too.  It is nice to see familiar faces on other threads too!  

    HOT HOT HOT here, but I think we are supposed to get some rain so may cool things down to 90!  BRRRR!  LOL 

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  • lostinmo
    lostinmo Member Posts: 922
    edited August 2012

    Hi all, question about the fingernails. Mine are an ugly color and feel llike they could be easily pulled off. They have gotten worse since I finished. Chemo the gift that keeps giving. Any way to try and save them?

     Also about us all seem to be disappearing like I mentioned earlier I'm still here, but if any one wants I'm also on FB so feel free to catch me there. I like it because it's easier to have a conversation.

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  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    My nails are hanging in there - I keep them really short and I polish them so I don't have to see the yellowish nail.  Not sure if I will be able to save them, but none have fallen off yet, so finger (nails) crossed!  

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  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited August 2012

    My nails were brownish on the top half right after Taxol.  As they grew, I clipped that part off, now they seem to be redish near the half moon, but lighter and maybe a bit distorted, on the top half.  They seem very strong though. In fact, I've always had weak nails and these nails seem committed!

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  • Alicethecat
    Alicethecat Member Posts: 535
    edited August 2012

    KCB, KLT,Lost, On Vacation, Lana and welcome back Bald Eagel

    Please do lets keep in touch - whatever threads we move to!

    Can't believe that I've had my final round of Taxotere. Yippee!

    Thank you so much for all your support during the chemo part of the treatment.

    You really kept me going.

    Best wishes

    Alice

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  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited August 2012

    Hi all! Alice, thanks for the shout-out! Work and getting my youngest son off to college have kept me busy the last little bit, but I'm still around. Not quite to PFC yet - I have my 7th tx on 8 /23, and 8th and last on 9/13. It has definitely been a long 6 months. I will have rads a month after my last chemo tx, and have been lurking on tbe Summer hangout thread, but not posting much yet, since I haven't even had my consult yet. I have iced my nails and while I'm seeing some "stripes" in my fingernails, so far no lifting. I've been using Nailtiques strengthener and hope it's helping. (I saw after I bought it that there is formaldehyde resin in it, but I've never had any trouble with it). My toenails have dark purple polish on them, so I can't see if they are changing. Hopi g for the best! Now if these "Taxo"tears would just stop dripping... the Genteal drops aren't really helping.

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  • Alicethecat
    Alicethecat Member Posts: 535
    edited August 2012

    Indigo

    You're back! Excellent. Hadn't seen you posting for a bit.

    There's nothing quite like getting your final chemo! Roll on re 13 September. It has been a long six months but we're still all here!

    I think I'm going to join a September 2012 Rads thread as I haven't been measured up yet.

    Onwards and upwards!

    Alice

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  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited August 2012
    Thanks, again, Alice!  Nice to be missed.  Smile  And it seems like the closer I get to the end of chemo, the more burned-out (emotionally) I feel.  All the encouragement continues to mean a lot! 
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  • Bev_22
    Bev_22 Member Posts: 33
    edited August 2012

    Hello Marchers

    I have not posted very often but i do drop in and catch up when I can.  I love to see everyone either finished or getting close to end of chemo.  Friday 24th will be my last chemo.  My onc mentioned He may put me on a chemo pill for a while.  I do not understand this.  I see him that day also so I will get my next battle plan on this #$!cancer.

    I have had finger and toe nail problems.  All of my fingers have had loose nails pulling away and infection.  The smell kept me busy constantly washing or using toweletts on my hands.  I could not stand for them to be close to my face because of the odor.

    My finger nails are about half grown back now and much better.  My toe nails (the big ones) are barely hanging on.  I talked to my Onc about having them removed.  They do not seem to have any new growth.  Onc wanted me to wait until after chemo.  This last one is messing with my blood.

    I will be having surgery and then rads.  I have been on Herceptin since dec 2011 and chemo since March 2012.  I feel like we have all run a marathon racing for the NED line. 

    My heart and thoughts are with all my sister Marchers as the continue on.

    Bev 

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  • journey4life
    journey4life Member Posts: 517
    edited August 2012

    Hi Indigo, Alice and Bev - so good to "see" familiar faces. Yesterday, I finished RADS!! I had 33 total and the end was a little anti-climactic. I rang the bell though.

    My nails continue to separate from my fingertips but I haven't lost any yet. I agree with Bev when she said chemo is the gift that keeps on giving. I finished chemo on June 20 and didn't really lose my eyebrows and eyelashes until probably a month after the tx. But now a month later, I have a fuzzy Q-tip head along with baby eyelashes and the beginnings of eyebrows! So, at least for me, everything's coming back!

    My rads were to my entire right chest wall as well as my arm pit which suffered the most skin reddening. My RO's office kept on top of it and gave me gels to minimize the damage. I'm now peeling but I'm finished! I have a follow-up in 6 weeks and then I'll probably be turned loose.

    Wow, no chemo...no rads...how am I going to keep fighting? Or did we fight enough to kick cancer's ass?

    If you all decide to move to another thread, please let me know! I hope we can keep this one open as we've all been through so much...together.

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  • journey4life
    journey4life Member Posts: 517
    edited August 2012

    I guess its time to change my avatar...to a q-tip? I think not! :)

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  • KCB
    KCB Member Posts: 365
    edited August 2012

    HI All who are still here! I had my second rads today, so I feel like I'm sort of on the home stretch...well, except Tamoxifen, that is...which I haven't started yet, though I could have started 2 weeks ago. Not sure why I'm putting it off exactly, I guess I just want to see what rads will do to me without the interference of a new drug. I so like being drug free...

    Hair is coming back, though a little patchy on top. My eyebrows are thin, my lashes non-existant! When I actually take the time to put some makeup on, it makes a hell of a difference, but usually I can't be bothered. Can't wait to go without a head covering....

    Baldeagle: my nails are sketchy too. Separating from the nail bed on 8 of 10 fingernails, and 1 toenail. Lovely. 6 weeks PFC.

    Alice: congrats on finishing Taxotere!! you did it!!

    Indigo: hang in there, you're almost done...

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  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Hey Lisa - congrats on being finished!  Will be different not having all the doctor appointments!  I just had my 20th rad today so not quiet finished, but looking forward to wondering what to do next!  I have a plan as far as eating and exercise, but not much beyond that!

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  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited August 2012
    Thanks KCB!  Smile  I'll probably post on the SUMMER RADS HANGOUT thread because a lot of people from the April/May chemo thread are there - but I'll still peek in on the chemo threads, even when I *am* PFC. 
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  • lostinmo
    lostinmo Member Posts: 922
    edited August 2012

    Good Morning!

    bev-it looks like you get your last chemo the same day I get to start rads. great for you, blah for me. I wonder if the chemo pill is really a hormone pill. I see your er+ so maybe that's it.

    baldeagle-yippie on being done with rads!

    Alice- yay for last one!

    I could be a fuzzy q tip myself but it's hair so I won't complain. Almost enough to go without anything in public but not quite. Fingernails are still lifting and I can't use them for squat! Oh and they are the ugliest I've ever seen. 

    Still have plans to take off the end of rads and enjoy life again. MO better not mess it up! 

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