The word "JOURNEY"

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  • gumshoe
    gumshoe Member Posts: 248
    edited August 2012

    ruthbru -- Yes, I could start a whole new thread on that subject :)

  • ohio4me
    ohio4me Member Posts: 491
    edited August 2012

    ruthbru - I agree. While I know and understand God won't give me more than I can handle sometimes I am sure he got me confused with someone else.

    Journey - maybe if we hear/use it enough we will become desensitized to it - doubtful. I use it and I cringe but cannot think of another word to replace it. Process? In my work that means a defined way to accomplish a task - and this 'journey' feels more like a roller coaster ride than a process. I suppose the docs have a process in mind but I'm just a pawn in the game.

    Here's another one - 'just give it time'. Honestly? That one is really open ended/

  • Stormynyte
    Stormynyte Member Posts: 650
    edited August 2012

    The "just give it time" Or "it will get better" or "It'll work out" types drive me nuts. I'm stage IV tho, so yeah..if I give it time, it will kill me. People just don't think. I still wonder how many times I said something so utterly stupid to someone and had no idea that I had just made a complete idiot out of myself.

  • purple32
    purple32 Member Posts: 3,188
    edited August 2012
    Oh ...I'm not the only one ?
    I just HATE the word journey ~!  HELLRIDE, abduction ( this is not a willing trip), unwanted path, nightmare, expedition ... I dunno', but journey ?!!!

    This is NOT my journey. 
  • kyliet
    kyliet Member Posts: 687
    edited August 2012

    Does anyone remember the book and movie 'The Never ending story'?

  • gumshoe
    gumshoe Member Posts: 248
    edited August 2012

    I remember the movie! My daughter used to watch it all the time.

  • kyliet
    kyliet Member Posts: 687
    edited August 2012

    That's what I feel we are on - not a journey, but a never ending story.

  • gumshoe
    gumshoe Member Posts: 248
    edited August 2012

    Yes! Very good comparison!



    Someone said to me last night, "Oh, you just wait: things will be back to normal soon enough!" Ha!

  • Trisha-Anne
    Trisha-Anne Member Posts: 2,112
    edited August 2012

    Well if this is a journey, I want the travel agent who booked it to cancel it and give me my money back ... I've had enough!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    I'm new to all of this as of July 27 when I got the call no one wants to get. Since then I've been guilty of calling it a journey.

    I actually said to my church family, that I have no choice in whether or not I take this journey, but I do have a choice in my attitude. But, like I said, I'm new to all this, so I may end up hating that word too.

    What I hate is everyone looking at me closely and asking how are you feeling? I keep telling them, I feel fine. This was found on a mammo, not because of symptoms.

  • gumshoe
    gumshoe Member Posts: 248
    edited August 2012

    Soteria - I think most of us have used the word at one time or another, and not everyone dislikes it, so you should use whatever you feel applies to you!



    I agree about the "How are you feeling?" I also felt just fine until I had my mammogram!

  • ohio4me
    ohio4me Member Posts: 491
    edited August 2012

    Gumshoe - "Oh, you just wait: things will be back to normal soon enough!". My response would be define 'normal'. My boobs are gone, my hair is an inch long, my joints hurt from meds, and my evenings are consumed with arm care for LE.  But - again - people care and it is more than difficult to know what to say in tough situations. Or you could say 'this is my new normal'!

    Trisha - love the part about asking for you money back. Yep - this is not a fun, entertaining, relaxing road. I will think twice when I plan my next vacation - the word journey will not be part of it. I'll save the good words for the fun times. Adventure. Quest. Escapade. Voyage. Road trip. Weekend Getaway.

    Solteria - welcome aboard. If you have to travel this jouney this is a good place to ask questions and find others who can relate to what you are going through. You may want to join the Ohio chemo sisters group. Don't think any of us are going through chemo right now but, if you are near Canton we did get together for coffee. Of - you may connect with other Ohioans in your area - just a thought.

    Journey - I kind of like rugged road instead but I'm not sure that would translate to anyone but those enduring an extended or chronic illness. I guess for now I will stick to 'journey' but it will never truly define the real day-to-day endurances of this cancer treatment.

    No matter what word we/they use no one can relate unless they have been there or are going through it now. People just flounder for words of comfort and journey is an easy word. I'm not sure I'll ever hear the word again without a smile and restraining from laughter - it's a private joke we share.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2012

    This is a good place to 'rant' with other people who really get it; but actually, I don't get too crazy over anything people say because:

    * lots of people are too freaked out to say anything, and that is more hurtful

    * If someone does say something, they mean well, are trying to be supportive and are floundering too

    * I am pretty sure that I said some stupid things to people who were diagnosed before I started this.....um......process

  • ohio4me
    ohio4me Member Posts: 491
    edited August 2012

    JO-5 - - The statement "God will not give you more than you can bear" is not in the Bible! No - this statement is not in the Bible, it is paraphrased. Simple means (to me) that God gives me strength for whatever comes my way.

    Didn't mean to confuse.

  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited August 2012

    How about 'shlep' or 'odyssey'? Both related words for 'journey' that seem to describe the trip I'm still on a lot more accurately. Tongue out

  • SimplyAudrey
    SimplyAudrey Member Posts: 242
    edited August 2012

    "journey" ranks up there with "well, bless your heart" with me.

    I used journey to describe my mother's time from diagnosis to her passing....and it WAS a journey I walked with her on.  It actually brought us closer, and spiritually closer to each other.  There were ups and downs, a celebration cruise to the islands when she finished treatment, and even a tearful/laughterfilled conversation about whether to leave her dentures in when her remains would be cremated (that talk would have happened regardless!).

    Me, meh.  This is a bad trip on the Zipper at a carnival midway.  And I'm just dealing with the "grey zone" of LCIS and heading for a PBMX!

    I DO like "all is well, and all will be well" as an internal mantra. I use it for meditation to get Marvin the chain-smoking anxiety monkey off my back and into his cage for a little while.  No matter what, I will be OK.  Even for a moment, a milli-second...I will be OK.

     "Normal is nothing but a setting on the washer".  I live by that one too.

    Happy Monday! (oxymoron)

  • _Ann_
    _Ann_ Member Posts: 769
    edited August 2012

    Journey indeed!  SimplyAudrey, I like the bad Zipper ride analogy.

    I almost feel left out, nobody has said "journey" to me yet.  I've been simultaneosly irritated and secretly proud to be called brave and courageous though.  Really?  Those folks haven't seen the litter of kleenex in every room of the house from my multiple daily crying jags.  Every day I walk through and collect handfuls.  

    I have to admit I liked some of "the gifts of cancer" rhetoric early on.  I found it really comforting.  I thought I'd had some magic life transformation, savoring the joy of the moment and all.   That was when I still had energy, and hair.  Now I look back and think those short-lived highs were my body's reaction to shock, trying to protect me from offing myself.

  • SimplyAudrey
    SimplyAudrey Member Posts: 242
    edited August 2012

    JO-5, I did my residency in Augusta Ga.  That's where I learned the REAL meaning of "Well Bless Your Heart!"  LOL!

    Being originally from Baltimore (I call myself a "Baltimoron") I didn't fit the "cotillion clique"....... dunno.  I just like simply being me.  Trudging the road of a happy destiny.....by MY CHOICE.Cool

  • Nel138281
    Nel138281 Member Posts: 2,124
    edited August 2012

    Forget who said what - but here I go

    Battling, really I am just doing what I am told and if I die,the implication is that it is my fault?  Not

    Banned pink from day 1. Had the infusion nurses to the point where they would check their scrubs to make sure there was no  pink on Fridays when I wen tfor chemo.   Bring a pink anything into my house at your own peril.  My awarenss is heightened!    I have a hat, t-shirt and bracelt that say "Cancer s****"  Love to wear those. 

    "you are so brave, I couldn't handle things as well as you"  I am not brave etc.  I am doing what I need to do as a mother, employee, friend etc.  You would as well, everything doesn't come to a stop.

    Genlte weekend

    Nel

  • ohio4me
    ohio4me Member Posts: 491
    edited August 2012

    Okay - I went to breast support group this past week - never again. The social worker that facilitates is a sweet young girl full of cliche's.

    There was a gal that was newly diagnosed and the LSW kept throwing out phrases - I wanted to get up and tape her mouth shut. She acted like everything was beautiful - 'there are so many advances in cancer treatment' 'you will find the strength to get through this' 'this is a great place to come for support'.

    Not sure if the new gal found any comfort in any of those phrases - they wouldn't have helped me.

    I just wanted her to be quiet and let the other BC patients talk.

    Longest 90 minutes of the week.

    I went to the group cuz I was feeling really down - came away perturbed - guess it worked.

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2012

    Hi Ohio4me.....I refused to go to groups but I am seeing a wonderful paychologist on a one to one basis. This works better for me. I know it sounds selfish but right now I am going through many issues so I need it to be about me and not listening to everyone else. She is at my local cancer hospital and it is all free. However, I am in Canada so not sure about the states in terms of getting free psychotherapy. It's worth looking into.

  • ohio4me
    ohio4me Member Posts: 491
    edited August 2012

    I don't really need a psychologist - I do well talking with my sisters. I think it is the meds that are making me moody - not the cancer stuff. We joke that we have saved much money on therapy. The trip to the doctor is 45 minutes one way and that is our therapy - the time to get it all out.

    I went to the group last week cuz I had been once before and met a nice lady I hoped to see again.

    Of course - I don't have as many appointments now which means less travel time which means less sister time which means less therapy time.

    Maybe I need to schedule a sisters nite out - maybe I am in need of some sister therapy.

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2012

    You are lucky to have sisters....I am from Scotland originally....no family here except

    Hubby and two sons ...I only have one brother who lives in California.....I have some friends but don' t want to involve them too much as they worry about me and it is just boring to always be dumping on them, so the therapist works for me plus my GP has me on anti-anxiety meds plus my old anti-depressant I was on the FIRST time I went through

    menopause. Keep up the sister therapy, you are very lucky.

  • ohio4me
    ohio4me Member Posts: 491
    edited August 2012

    Even with sister therapy I was on anti-anxiety meds every chemo week. My sisters are both nurses and they kept in stocked in all the right drugs.

    Anti-depressants. I think the meds I'm on are causing some depression. Talking about it doesn't help much - I'm thinking I need a heart-to-heart with me doctor to see if he can prescribe something to help me out.

    Don't know - gotta talk to me sister. Don't want to add another med - but don't want be not-happy.

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2012

    Ohio4me....When I went through menopause the first time I fought with my GP ...told him I was not depressed so he said lets do some blood work and check your hormones.

    He said from the blood work, my hormones were all over the place and no surprise I was

    Depressed. I finally succumbed and within a month, I was a new person. So I did not fight him this time and I'm hoping for the same results soon. For me, it was like night and day. I've been told I am very "hormone sensitive" ....there's a laugh....my tumour being estrogen and progesterone +

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited August 2012

    Jo5.....I have to agree .....I was in denial also, but now I have started on my anti-anxiety

    Meds and my anti-depressant and can't believe the difference already. My appetite is back, nausea and vomiting gone, wish I had done it earlier myself.

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