Recently diagnosed with IDC in right breast

I will double check, but I remember checking it out about a year ago when I considered cutting my hair.  My daughter-in-law at the time had sent hers in, and I thought it was a beautiful thing to do...I will let you know what I find out.

So if it's not used for wigs, what exactly are manufacturers doing with it? Kind of weird. This day and age they are coloring their hair younger and younger. If they don't take dyed/highlighted hair, they are going to be missing out on a huge group of donars.

I understand. Waiting is the hardest part. I am 35 and was diagnosed with Idc 6/29. My tumor was very large, I forget size, but to large to spare my breast. 7/18 I had surgery. I decided on a mastectomy, then ended up with a double since I am braca2 pos. I also have tissue expanders in. Sucks! My recent pet scan yesterday before chemo reveled affected lymph node, so here we

go for another surg. Hopefully I can get the chemo and be done with it all. Don't stress. You will be fine. I too am a mommy, that's where you will find your inner strength.

Hi Ladies,

Saw my BS today to recieve the path results. Turns out the tumour wasn't your average garden variety but has a rare componet to it. It is a Neuroendocrine Subtype. Apparantly very rare in the breast. These types of tumours usually live elsewhere in the body .....so , it has been sent away to a specialist in Pathology to figure out why I had it growing in my breast and hopefully get some clues as to what caused it. The path says that it could have been from my original tumour 11 years ago or a new tumour or it could be from the Chemo or Radiation. My surgeon has ordered ultrasounds of my abdomen to check there are no others as they like to settle on livers and stomachs. He also ordered ultra sounds of my lymph nodes and chest. He did say that there was no reason that this type of tumour should change my treatment plan......whatever the Oncologist decides is best. I am hoping to still get away with Tamoxifen only.

So, fingers crossed it all comes back good and that this tumour does not affect my outcome. 

So..yay for me! My husband was optimistic but I feel like crap. Wish it could have been nothing different. Has anyone else heard of Neuroendocrine Subtype tumours? Would feel better if I knew more about it.....knowledge is power!

 Onelife2012

Mindy703  

I think the reason why you two sisters have not had a response it because only a doctor's expert interpretation can give you any good answers.  We are too inexpert to say anything. 

Onelife, Neuroendocrine Subtype tumours are rarely found in the breast, if ever.  It is going to take some deep thinking for your doctors to figure it out.

Mindy, if you had this problem with the liver 4 years ago, don't you think it would have made itself obvious before now if it were cancer? 

Our not responding doesn't mean we don't care.  We just don't know. 

Mindy703

I wish I could sit with you and hold your hand. 

When do you see your doctor?  Come back here and let us know what happens. 

I know you are going through emotional torture right now.  You are seeing your doctor soon and will have some answers.  Then you can chart a course of action and your mind will settle down.

I also understand your fears of leaving your little ones behind.  That is not going to happen.  You will do what is necessary and see those sweet children grown up and on their own.  This is just a bump in the road.  Next year, it will all be history.

It is hard to get your husband to understand what you are going through.  If at all possible, he should accompany you to all appointments.  He will understand more and be a second pair of ears to remember details you might miss. 

It is hard to give you a hug over the Internet, but here is one anyway.  HUGS 

Saw the surgeon today. He made me feel a lot better. Was worried I had cancer all over my body. He said more tests have to be done but didn't see anything towards that direction. He thinks I should do chemo first then surgery. Depending on more test results but......Of course like everything with this it is waiting game. Did genetic test in the office, MRI is tues. I may actually get some sleep tonight! Oh yeah I need to update my dx but it is IDC, grade2, er+\pr+, her2-' not sure what stage yet.

I'm with you too,mindy and onelife. It is tough to be plunged into medical panic, I know I was shocked by it and it is freaky and surreal. Infobabe is right, once your docs are clearer about what the deal is it helps. It still stinks but you get to move into action.

Lisa,

I just saw your post. I am excited when I get one. I havent been on here in the last couple of days. We went to the lake to try to keep busy and for me be quote unquote "normal". I am doing an MRI today at 7:30 a.m.. It is 4:50 a.m. right now. I cannot sleep. I am leaning towards chemo first, then surgery. What was chemo like for you? I have long hair and am so sad to think of it falling out. Of course I can't stand being nauseated. Did you have all these symptoms? Did you work? Were you exhausted? so many questions. What made you decide to get the ovaries removed? I see alot of women here have elected to do this. How do you feel overall? You are essentially a year ahead of where I am. Thanks for any response.

 Mindy

Well MRI was a little freaky. But I got through it. I am just now anxious to hear any results. Kinda want to hear and kinda don't. I do not want any more bad news. However, ready to get the show on the road so.......



Thanks for asking. I feel like you are my friend. What is your name? If you don't mind me asking.



Thank you , thank you,

Mindy

Bearcub,



Thank you. I see your dx but not your treatments. Where are you in this process? Hope you are doing well.



Mindy

Sorry just getting back. I have been busy working, kids activities, and of course doctor appts..

Anyway, breast surgeon wants to do neoadjuvent therapy. Chemo first. You or anyone have some advice on this? He makes some very good points. Waiting on oncotype dx. He said more than likely this will come back as intermediate or high risk, therefore wants to do chemo first. BS is scheduling surgery and chemo. Then when tests come in we will

Proceed accordingly but he knows I DO NOT want to wait any longer than I have to. So, setting both up as not to loose time.

If I do chemo first you will be two weeks ahead of me on the treatments. You can help me through it. Since you will be experiencing it right before me. We definitely have to keep in touch. Doc said if we do chemo my port will be put in the 18th. Then treatment a few days after.

Keep me posted. How do you feel right now? I am thinking of you.

Mindy

Bearcub,



That is great. I am glad you are feeling well. What are you doing in the area of your hair? I have medium to long hair and always have. That is a big concern to me. Also, do you work? If so have you been able to keep up with work? Any kiddos? You may have mentioned these things earlier but......

Mindy