March 2012 chemo

Options
1119120122124125132

Comments

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Good evening ladies!  5 weeks PFC and I think most of those chemo drugs are out of my system.  Unless you count that my feet/toes are still numb!  Handling radiation so far.  Hope everyone is hanging in there!

    Enjoy the evening!

  • KCB
    KCB Member Posts: 365
    edited August 2012

    Lana: that story totally trumps mine!! Walmart Wackos!!! Nuts...

    Tc9876: cold caps really work?! Somehow I didn't have the ability to really think through that option at the time...in any case, you're right, being able to talk about any of this on our OWN terms is an important part of keeping some semblance of control over SOME damn part of it...

  • KCB
    KCB Member Posts: 365
    edited August 2012

    Lost: I'm due to start rads on the 20th as well! We'll be side by side, hope your MO agrees....

  • lostinmo
    lostinmo Member Posts: 922
    edited August 2012

    triplem-hopefully heading to Saratoga and the Pleasanton! DH will be running a pumpkin patch in one and a tree lot in another. While I sit in the booth and greet people.

    KCB- on my way again today to do the simulation and have tests ran so that everything is ready.

    onvacation-the numbness comes and goes in my feet still. But it doesn't bother me too bad. Unfortunatly some things still don't taste right.  

  • ladyfighter
    ladyfighter Member Posts: 184
    edited August 2012

    OY VEY!!! I am speechless! I don't have chemo anymore! Nurse left message on my answering machine last wednesday that thursday's appointment is canceled. It was misunderstanding on my part from my MO I saw last Thursday (Aug 2) that he said the taxol/herceptin treatment I was having last Thursday (Aug 2)was actually LAST one. It was supposed to be 12 weekly treatments, those two treatments I missed due to illness didn't need to be replaced as per my MO! I don't know whether I should be doing happy dance, or be puzzled as to why I didn't need two more to be completed 12 weeks!? I wont know real answer to this until I see MO again next Thursday. DH tells me I should "TRUST" my MO on his decision with my 10 treatments instead of 12. When I see him next week, he is going to discuss to get me appointment to have MUGA scan (Multiple Gated Acquisition scan) because I am having Herceptin every 3 weeks for 1 year. So my MO wanted to make sure my heart is fine before starting me Herceptin, and will have MUGA scan every 3 months throughout my Herceptin treatments.


    However, I am also getting Radiation as well! My MO will set me appointment to meet Radiology Oncologist to discuss my radiation treatment, I am guessing I am getting 6 weeks, every day Monday to Friday for 6 straight weeks doing radiation. I will learn more when meeting new RO.

    SOOOOOO That means I am already PFC since last Thursday (August 2)!!!???? I didnt get chance to ring the bell cause I didnt know! booooo.. What do you think about all this? 10 Taxol/herceptin instead of 12??

    I am going to buy air tickets to go to New York for few days during Sept 8th to see my son and his gf and somewhat family reunion/clam bake day in port washington that I couldnt miss! My MO said I can go before starting radiation so I can take a break from all this, but not sure when I am starting herceptin, knowing I need MUGA scan first before begin herceptin.

    Anyone of you who are on herceptin already had MUGA scan? or any other heart check ups?

    Looking forward to get my eyelashes and eyebrows back that I am PFC lince ast week, how soon am I expecting to see them growing again?

    Hope everyone is doing well in here and little or no SE..

    Hugs xoxoxo 

  • Sissydi
    Sissydi Member Posts: 516
    edited August 2012

    I get an echocardiogram every couple of months for the Herceptin.

    Yes, you are pfc!!!!! Yahoo! Now we are on the exact same schedule. Don't know when I will have my first rads appt, but the mapping is scheduled for Aug. 30.

  • Love74
    Love74 Member Posts: 175
    edited August 2012

    Ladyfighter...I have had 2 Muga's and have a 3rd scheduled for next week.  My second Muga was exactly the same as the baseline Muga...EF 68...so no damage so far!  Yay.  Congrats on being PFC...I'm sure your doc will explain his reasoning for 10 over 12.

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    lady - sorry you didn't get to ring that bell!  But woohoo that you are done!

  • shera
    shera Member Posts: 184
    edited August 2012

    oh no....  lanagraves. Your Walmart "angel" pushed my "bitch button" !! 

     

    What is it with some of the 'religious' folks?? My brother and sister-in-law are deeply involved in their non-denominational christian church... and my sister-in-law chooses to thank God for everything good that happens publicly and to such an extreme that she comes off like she bragging and considers herself "God's special girl". She has -- in the past -- told me what God thinks. I had the same reaction as you.... with "Really!!???"  My mother put 'her in her place' when she started hinting around that the BC I had was from my lack of having HER kind of faith. 

     

    People like this are not impressive -- though the Walmart 'angel' and my sister-in-law seem pretty impressed with themselves. Enough for all the rest of us I guess!

     

    To quote another women who dealt with BC this past year:

     

    Everything happens for a reason. Except shit that happens for no particular reason. 

  • shera
    shera Member Posts: 184
    edited August 2012

    Indigo --- I am copying your quote ""well, this wack job person isn't okay so that is why she is saying inappropriate and hurtful things"  in hopes of becoming more tolerant myself. Thanks :)

     

    ladyfighter --- I was given less taxotere than a friend of mine, I got TCx4 right after she finished TCx6 -- both were dosed at every 3 weeks. I read some studies that showed there was not much difference between getting 4 vs. 6 -- and that the side-effects far out-weigh the % of benefit.   Whether or not this is the case for you, with having 10 vs. 12 of the weekly doses -- only your MO can tell you --  but this is my uneducated guess!

     

    In any case.... CONGRATS! Happy healing and hair growing!  I'm 14 weeks PFC and Ringing that bell was anti-climatic compared to going outside without a headcover and feeling like yourself again!

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited August 2012

    Hey Shera! Lol, and I was going to borrow your "bitch" button! While I do definitely believe in tolerance, I applaud you and your mom for putting your holier-than-thou family members in their place. I'm not an expert in the Bible, but my I have learned we are all equally deserving of God's blessings, and God only wants the best for us no matter which church we go to.



    I am, also, becoming less and less tolerant of people who "mean well" but really don't try hard enough to consider other people's feelings. Usually I'll just find an escape from situations like that, but after this whole BC experience, I might end up deciding to push that button.

  • lostinmo
    lostinmo Member Posts: 922
    edited August 2012

    Indigo- I find myself getting less tolerant with a lot of people. Stupid is at the top with me.  LOL

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Good evening ladies!  Hope everyone is enjoying the weekend!  I'm so happy it is football season again!  Chilling out watching my Texans play Carolina (winning right now) I am now ready for that cool football weather to get here.  98 is getting old!

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Dang - just realized i am out of wine - need to plan better!

  • lanagraves
    lanagraves Member Posts: 596
    edited August 2012

    Onvacay: Out of wine is not good!!! I am sooo looking forward to some SEC college football. My office is right off the Ole Miss campus. Everybody around here looks forward to tailgating in the Grove before the home games. People start setting up the day before and it's like a huge all day party. People from all over are always shocked to see the women all decked out in evening wear at a football game, and champagne and caviar flowing at a tailgate party. It's like something you see on one of those movies about the Kentucky Derby or the English polo matches. Interesting to see for sure. Of course, my group is a bit more low key. We wear jeans and tshirts, and hot wings and Michelob flow at our tent.

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    lana - your tent sounds more fun!  I'm a UT Longhorn fan - HOOK'EM - and my rads will finish right after College Football starts!

  • lanagraves
    lanagraves Member Posts: 596
    edited August 2012

    Onvacay: You're welcome at our tent anytime if you're ever in Oxford!

  • kltb04
    kltb04 Member Posts: 1,051
    edited August 2012

    Ok, gals I have been off for a few days so I will have to catch up later.  We went on a mini vacation up to St Louis for a few days.  Did the Zoo and Grant's Farm and back to school clothes shopping.  The weather was AWESOME - low 80s.    Just got back about an hour ago.

    Last chemo tomorrow...

  • KCB
    KCB Member Posts: 365
    edited August 2012

    Kltb: yay for your last chemo tomorrow!!!! Congratulations!!! That's so great. Glad you had a nice holiday...

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Lana - thanks!

    kltb - are you practicing your dance and your bell ringing skills? 

  • lanagraves
    lanagraves Member Posts: 596
    edited August 2012

    kltb: Yay for last chemo! It's a great feeling, isn't it? Glad you had a good trip. I love St Louis. There are so many fun things to do there.

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited August 2012

    Klt



    Last TX! You must be thrilled! Ring that bell loud and clear!

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited August 2012

    Almost done with last taxol! Found out I'm getting a 2 week break so that's nice. Don't have surgery date yet but will let you guys know.

  • KCB
    KCB Member Posts: 365
    edited August 2012

    Yay Michelle! Congrats on almost being done!!

  • kltb04
    kltb04 Member Posts: 1,051
    edited August 2012

    I can't begin to catch up so I will just try to focus on today except to say to lana that the Walmart weirdo was an idiot.   I have yet to have anything say anything like that to me but if they did I am sure I would be flabbergasted in the moment and then think of all kinds of things to say later.

    Michelle - glad you are almost done!  and ladyfighter - glad you were done even though you didn't know it!

    Ok, my update for today.  There was no bell, no nothing.  It was just like any other chemo.  I think this could be for several reasons.  My center just doesn't make a big deal of it and/or they were just packed/busy.  OR the fact that I will be back as usual in three weeks for Herceptin only.  Oh well, it's done!

    Had middle school orientation tonight and have elementary tomorrow - thankfully I shouldn't have my Nuelasta SE til Wednesday and I can rest then!

  • shera
    shera Member Posts: 184
    edited August 2012

    sorry for the rant earlier. I'm realizing that I've lost patience in a lot of areas. I was just reading about PTSD... and "angry outbursts" is one of the symptoms. Between that and early chemo-induced menopause.... I better not go to Walmart.

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    kltb - well glad that part of your treatment is over - you can do a little dance at home!

  • lanagraves
    lanagraves Member Posts: 596
    edited August 2012

    Kltb: Yay for finishing chemo!

    Shera: you can go to Wal-Mart with me. I sooo wish now that I had had an angry outburst! I think I was just in shock.

  • Alicethecat
    Alicethecat Member Posts: 535
    edited August 2012

    Hi everyone

    A big congratulations to the March 2012 Chemo Marchers who finished chemo recently.

    Step forward  Indigo, KCB, Sissy, KLTB, Kam, TC. TripleM, Ladyfighter. Take a bow!

    And good luck to Lana, who will be finishing in September.

    I'll be finishing on Friday August 17 - cannot wait.

    Thank you to everyone who has posted on this board. It really helped during a challenging time. 

    Best wishes

    Alice

  • Alicethecat
    Alicethecat Member Posts: 535
    edited August 2012

    Shera

    Thank you so much for posting the before and after pictures of you re your hair and the chemo.

    You look fab and I am sure it has given hope to the many people who are waiting for their hair will grow back.

    Best wishes

    Alice the Fuzzy Cat

Categories