Neurontin

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akc820608
akc820608 Member Posts: 77

Doctor just prescribed this to me.  Anyone have any input on what to expect or side effects?

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  • Moderators
    Moderators Member Posts: 25,912
    edited August 2012

    Hi akc820608,

    There's some information on Neurontin and other anticonvulsants on the main Breastcancer.org site's page on Anticonvulsants for Pain.

    Hope this helps, to start!

    --The Mods

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited August 2012

    hi akc -- I have taken it in the past for a rash that won't go away (nothing to do with my breasts) - the only side effects I have had, and I consider this a good thing, is that I take at bedtime and sleep like a rock.  I have heard of it being used as a drug for people with insomnia ... so, the side-effect was a treatment for me ;-).  Other than that, I had no ill effects -- although it was sort of a pain to titrate up and then wean off ...

  • tammil1964
    tammil1964 Member Posts: 3
    edited August 2012

    I was on the generic Neurontin (gabapentin). I had horrible swelling in my ankles and legs from it. It didn't seem to improve my neuropathy too much either. That's just my experience.

    Tammy

  • Gabrielledr
    Gabrielledr Member Posts: 25
    edited August 2012

    Hello AKC....I was taking neurontin for my heat surges - hot flashes...Three times a day...did not help at all...after three weeks...stopped taking them...back to my doctor on the 20th. no side affects. Hope it can help you. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    friend of mine took it for hot flashes (after we both had total hysterectomies), but it made her very dizzy so she stopped. everybody reacts differently, you won't know how it will affect you until you try it, like with any medication. You can always stop if you don't tolerate it well.

    Anne 

  • OneRadBattle
    OneRadBattle Member Posts: 4
    edited August 2012

    Hi I myself just started neurontin four weeks ago for neuropathy. My doc told me not to expect quick results that this medication is slow acting so it could take up to two months for me to see a difference. I am finally getting relief in my hands but not my feet. Of course i do have it pretty bad.  I will be going to a neurologist on the 28 and i am hoping he has some other ideas. I do sleep well on this and i love that. It does make me clumsy though. I also take all of mine at night in one shot. I hope this helps you out.

  • Mooleen
    Mooleen Member Posts: 185
    edited August 2012

    I just started taking it for fibromylgia. You build up the dosage to 600 milligrams 3 times a day. When I reached the full dosage, I had major brain fog and sleepiness. I cut down the dosage to 300 mg in the am, 300 mg at 3, and 600 mg at bedtime. It is better, but still have a little fog and sleepiness, but I am going to hang in there and see if it gets better.

  • akc820608
    akc820608 Member Posts: 77
    edited August 2012

    Thanks for all the info!  I started it Friday and so far have had no SE's.  I know it is still early and I am no where near the dosage my GP wants me, but I do not notice any difference.

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