Summer 2012 RADS HANG OUT

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  • chapter4
    chapter4 Member Posts: 155
    edited August 2012

    On the tomoxifan weight gain question....I also have concerns about that. Im supposed to be starting on it in about a week....the side effects look miserable! And they want us taking if for 5 years! It's hard enough to keep your weight in check in your late 40's.



    I understand it sounds like a petty concern when T is supposed to help prevent cancer....but we've had surgeries....chemo....radiation....enough already. Sometimes I wonder if all of it is necessary.



    I gained about 6 pounds on chemo...I've lost 3 since finishing chemo 3 weeks ago. Many of us have trouble dealing with all the physical changes as it is....now weight gain and mood swings. Oh joy!



  • kjiberty
    kjiberty Member Posts: 1,385
    edited August 2012

    chapter4:  I am on arimidex and was told to expect a 3-5 lb. weight gain.  I feel the same way.  Lots of S/E too.  However, so far (it's only been 2 weeks), so good--No weight gain, but then again, it's only been 2 weeks.  Fingers crossed.  I have to remember the good may outweigh the bad.  Don't know if you saw this on another thread, but this is an interesting website:

    www.lifemath.net/cancer/breast...  

  • Belinda977
    Belinda977 Member Posts: 381
    edited August 2012

    Just finished rad number 10 !!!  Having 30 treatments so I am 1/3 there!

  • mt4ever
    mt4ever Member Posts: 105
    edited August 2012

    Had my simulation and sentence yesterday... I have to have 39 treatments!  Boy that seems forever compared to some of you guys!  Anyway, start Monday bright and early after I drop the kids off at school.  The doc has told me not to put anything on my skin until he tells me too?  Hope I have minimal SE's!! 

  • mt4ever
    mt4ever Member Posts: 105
    edited August 2012

    Everyone that are into the rads are you still wearing your bra or going bra-less or what are you wearing? 

  • eric95us
    eric95us Member Posts: 2,845
    edited August 2012

    Sharon just got #3 today. Braless.



  • ali68
    ali68 Member Posts: 1,383
    edited August 2012

    Had 7 rads and physio,the woman hurt me by pushing my arm flat on the floor. My hand is swollen and arm hurts, I was doing good till I went to the bitch.



    I'm wearing a bra but it's very loose then freedom when I get home.

  • eric95us
    eric95us Member Posts: 2,845
    edited August 2012

    Next time..don't wear the bra, but bring it along to physio with you....so you have something to use to strangle the woman if she does it again. :-)



    Eric

  • ali68
    ali68 Member Posts: 1,383
    edited August 2012

    Omg, I'm not going back I can do it at home without her bloody help

  • Marcia1111
    Marcia1111 Member Posts: 368
    edited August 2012

    I was told that the hair starts growing back at 8 weeks and that it grows pretty quicly, so hang in there you 5 weeks PFC gals!  I still have 5 more weeks of chemo to get through.

  • Belinda977
    Belinda977 Member Posts: 381
    edited August 2012

    I can still wear a bra...treatment number 10 done.  No underwires bras though.

  • eric95us
    eric95us Member Posts: 2,845
    edited August 2012

    I should have said... if she TRIES to do it again.



    You are right about not giving her the chance to try it again.



    Eric

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    I am wearing a sports bra - they told me no underwire, though right now I think I could wear one, but guess I won't!  I take it off when I get home from work to let the girls breath!

  • Januaryice
    Januaryice Member Posts: 120
    edited August 2012

    Stacie and Onvacation- 5 weeks PFC and I also can just barely start to see the hair starting to grow. I'm getting real sick and tired I'd wearing my head scarf. The sad thing is that I'm still losing my eyebrows and lashes. Seems to be getting worse instead of better.



    5 of 33 done!!!! Starting to feel more comfortable with what's going on. The unknown is always the hardest to deal with.



    One girl at rads that has actually gone though it, said to try to avoid wearing a bra if it rubs under your breasts. Mine did so the last couple of days have been bra less. Now I'm trying to find tops to go over my cami and try to also match my scarf. Can't wait to be somewhat normal again.



    I'm already set to get my 6 month MRI ... Please wish me luck. Needless to say always worried that something new will show. Wouldn't that be a bite in the ass!!!!!

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Right now I'm concerned about no lashes or eyebrows growing!  My hair is growing - though SLOW - but the eyelashes have been gone for more than a month and NOTHING.  Should I be concerned?  Everyone else seems to see new lashes come in fairly quickly.  

  • ali68
    ali68 Member Posts: 1,383
    edited August 2012

    I lost my eyebrows and lashes after 2/ 6 my hair came back three weeks after last chemo. Think it was six weeks before everything else came back and now 13 weeks and you would never know.

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    thanks ali - I'll just give it time!

  • kjiberty
    kjiberty Member Posts: 1,385
    edited August 2012

    Kim:  6 weeks PFC--my eyelashes are coming in pretty good, but the brows are going.  My hair is coming in pretty well too.  Are you taking biotin?  Everyone is commenting on how much my hair is growing.  I am so excited.  Hope I don't lose the lashes.

  • mary71145329
    mary71145329 Member Posts: 133
    edited August 2012

    I'm nearly 4 weeks PFC and I can see that my hair is trying to grow. Mostly on top though--not too much to speak of on the sides or back.

    My eyelashes and 3/4 of my brows are still in place. Fingers crossed!!

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Yes, I have been taking Bioten for a while now, not sure if it is helping but can't hurt!

  • chapter4
    chapter4 Member Posts: 155
    edited August 2012

    What is bioten and what is it for?

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    It is a supplement that is supposed to help with hair and nails

  • kjiberty
    kjiberty Member Posts: 1,385
    edited August 2012

    Thanks, Kim.  My daughter had to used it about 5 years ago due to stress-induced hairloss and it really did help her hair and her nails.  

  • Hortense
    Hortense Member Posts: 982
    edited August 2012

    I had my simulation and got my tatoos yesterday. I agree with whomever posted above that it is a humbling experience. I wonder why that is. Perhaps because we are not used to allowing people to handle us so intimately, to mark us with pens in areas usually covered up, put stickers on us, mark us some more, then use a needle to inject some ink to leave small permanent dots on us. It was a bit odd and unsettling even though the staff was very nice. I think my practice run will be easier as I understand what is going on now.

    I will not find out how many sessions I will have until after the physics department works it out based on whatever scans they took yesterday. That takes a bit of time, five days to a week and a half, so I do not start right away.

    The techincians also had me lie on a plastic bag for about 20 minutes that was filled with chemicals that expanded and eventually cooled until it was a mold of my back. It was very warm and rather comfortable. I almost fell asleep.

  • Nkb
    Nkb Member Posts: 1,436
    edited August 2012

    Hortense- that's for the info- been wondering what goes on- rads in ~4 weeks for me.

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    So interesting how different treatment for people!  I didn't have tatoo's or a mold.  Maybe it depends where the tumor is/was?  No idea!  Just hope it works for all of us!

  • kjiberty
    kjiberty Member Posts: 1,385
    edited August 2012

    Hortense--Mine was nothing like that.  No tatoos or molds.  They just had me flat on my back with my arms up for simulation and I went back and forth through the machine about 3 times.  I was in there for maybe--maybe 30 minutes max while I got marked up.

  • rn4babies
    rn4babies Member Posts: 409
    edited August 2012

    Ladies......I'm going to join this group. I will have my planning on Monday. I had radiation last year and am doing it again because I was diagnosed with a second primary in the other breast. I finished chemo on July 16th and feel that rads last time was a piece of cake compared to chemo. It was exhausting going every day after work, however. Also, despite meticulous skin care, I got burned pretty bad and they delayed it a week. The RO told me that it may happen again since apparently that's the way my skin reacts. I am olive skinned and tan easily so it was surprising. I didn''t experience fatigue the last time but the RO told me it is differant when following chemo. My counts are already down and they won't start it until they come up. I'm going on vacation to the beach so I'm hoping to start the first week of September.

  • Stacie
    Stacie Member Posts: 607
    edited August 2012

    I remember you rn. Welcome. I am on 7/34 RADS. Total and complete bummer that you have another primary...sorry.

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    RN - enjoy that beach vacation!

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