Anyone from Mississauga???

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  • rachel5738
    rachel5738 Member Posts: 920
    edited August 2012

    Jane--I had a couple of wigs--one I bought at that expensive store and another from ebay (I think after Sherri gave me the idea!). I didn't wear either for any period of time. I got the wigs as my youngest son was nervous seeing Mom with no hair. Gradually--they got used to it and I just wore headscarves. I bought some headscarves at BeauBeau online and they were great. I have a whole bunch that I could pass on--I also have my wig...not sure if it would be best style but am willing to pass it along!

    I had FEC-T x 6 so different chemo. I started to lose my hair after 2nd treatment. Drink lots of water to flush your system and take your anti-nausea meds even though you may not feel sick. It will help. I also had chemo start pretty soon after so I know how you may feel like you are in a whirlwind. It doesn't feel it right now but it does get better. Keep us posted on how you are doing. I had my chemo at Trillium and my rads at CVH. Both hospitals were great.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited August 2012

    The ones online are so cheap and lots of choice....I got mine at a wig place and never liked it!

    If I had to do it over again I would buy a Raquel Welch one too. Just google wigs and you will see many, all styles, colours and prices. Many are under $200.

    Glad you were pleased with the chemo team. Did you meet Roy yet? He is an award winning nurse and a real character.

  • jjl
    jjl Member Posts: 68
    edited August 2012

    Nope, I didn't meet Roy. My nurse was Carole. Very nice lady. When the side effect gonna start? Tomorrow I need go to get my neulasta done. Hopefully not painful lol

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited August 2012

    Carole is a doll too..they all are. Some are just more proficient at getting the needle in on the first try. Where do you go to get your Neulasta? I had a visiting nurse come to the house for mine. They don't hurt.

    Did you meet Maureen? She works for the Community Care agency. She usually arranges things like that but maybe things have changed since Feb.

    Have you met the chemo pharmacist Mova yet? If you have any questions about pain and meds, they are great at helping you. She is a real sweetie.

    I had Taxol so can't advise about Taxotere.

  • jjl
    jjl Member Posts: 68
    edited August 2012

    Can I use the online recipe to claim my insurance? I had prescription too. The wig shop in CVH can provide the recipe for the wig is medical use.

  • jjl
    jjl Member Posts: 68
    edited August 2012

    I know Mova is awesome, she explain everything to me very detail. I like her.
    Also gov stop led send nurse door to door service, only for someone has no ability to walk. So I need go to clinic.

  • rachel5738
    rachel5738 Member Posts: 920
    edited August 2012

    You can claim wig on insurance with note from doctor....I did.



    I had Taxotere and had the aches...Doc gave me Tylenol 3 to help. I didn't have Neulasta as my cell count was good throughout chemo. At Trillium they don't give Neulasta as much as smaller chemo clinic..larger chemo clinics use it to help keep people on schedule so chemo doesn't get delayed due to counts. My onco at PMH told me that it is used more to avoid probs/delays.



    Hope you feel good, get lots of rest!

  • jjl
    jjl Member Posts: 68
    edited August 2012

    Thanks Rachel. I feel so hungry tonight, is that normal? I will get neulasta injection tomorrow. Hopefully everything goes well.

  • jjl
    jjl Member Posts: 68
    edited August 2012

    Thanks sugar, sorry missed your reply.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited August 2012

    jjl...eat while you feel like it. You may lose your appetite for a few days but it comes back. Ask your MO for a prescription for a "cranial prosthesis"....that's what mine called it. Just send the prescription with the receipt for your wig to your insurance company. That is all that is needed.

    Probably just as well to go to the clinic for your neulasta shot...having the nurse come to the house was very disrupting...never knew when she was coming and always had to wait for dinner until she was gone. At least this way, you can make a schedule.

  • jjl
    jjl Member Posts: 68
    edited August 2012

    That's true. Thanks your advise.

    Second day, I still didn't feel anything major, only feel my hands bone a bit sore.

  • DesertMama
    DesertMama Member Posts: 47
    edited August 2012

    I am wondering if anyone here is from Clarkson Mississauga, specifically the Lorne Park community. I have not lived there for 3 years now, but I have had a friend who still lives there tell me she has had 6 neighbourhood friends diagnosed with BC in the past 3 years. Another friend in the same community tells me I am the 3rd woman she knows from the area with recent BC. Sounds like rather high numbers to me for such a small neighbourhood, and I am wondering if there is a connection.

    I have no history of breast cancer in my family, and breast fed both my babies for a scandalously long time (wasn't that supposed to be my get-out-of-breast-cancer-free card?), so was very shocked when I was diagnosed 2 months ago.

    I know BC can strike anyone without warning, but I am curious about the apparent high rate in this small community. 

  • rachel5738
    rachel5738 Member Posts: 920
    edited August 2012

    DesertMama--although, I live in Mississauga--I don't live in Clarkson area--more Streetsville area. I have a couple of friends who live in that area and haven't heard anything. Granted, everywhere I go now--there are people being diagnosed--not sure if people are more open about the diagnosis now, bc is getting caught early, women are super-vigilent about their breasts or there is some sort of environmental thing (or probably a combination of all!).

    I have no history in family of bc, breast-fed my kids--wasn't in any of the high-risk groups but ended up with stage 2 bc--go figure.

  • SoccerMama3
    SoccerMama3 Member Posts: 13
    edited August 2012

    So glad I found this thread.  I am 38 with 3 young kids and live in Msga as well.  My surgery was at CV on July 9, 2012.  Found the lump myself in a zumba class on June 12 (God Bless the instructor who decided we were going to do self breast exams that class).  Saw my dr. on June 13 and received a diagnosis from the radiologist at my mammogram/ultrasound appt. on June 19.  Had a biopsy on June 21 with Dr. Niaz (excellent surgeon) and surgery was scheduled for July 9, 2012 (radical mastectomy of the left breast (2 cancerous cists) with lymph nod removal (26 removed 5 cancerous).  Surgery went very well and recovery was great.  Met with oncology on Aug 3, 2012 and received treatment plan - 6 cycles of chemo (FEC-T) followed by 25 radiation treatments. I will also be receiving the Neulasta shot. Dr. Brian Higgins for chemo treatments and Dr. Senti Senthelal for radiation.  Chemo will start on Friday August 17, 2012.  Anxious and nervous and a little afraid of what lies ahead - fear of the unknown I guess.  All of your posts have helped in settling the nerves a bit.  Amazing how life changes so quickly in a matter of a few words. Hope you are all doing well.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited August 2012

    Hi Soccer...

    I used to live in Mississauga but for the last 10 years I have been in Oakville. I had all my treatments at CVH...lumpectomy (Dr. Woolfson) ...chemo (MO Dr. Jeffery Myers) and RO was Dr. Soliman who has since gone to Sunnybrook. Everything was well organized and for the most part was fine to deal with. I had a few SEs but I am older. I have been done all treatments for almost 5 months now and having fun watching my hair grow back.

    This forum is a godsend for information and just support. We laugh,we curse, we cry but most of all we are here when you need to vent or are scared. We have all been there so we know what you are going through. You will find the chemo nurses incredible so not to worry! I also had Neulasta. Sorry you have to be here tho'. Frown

  • rachel5738
    rachel5738 Member Posts: 920
    edited August 2012

    Soccer...Sorry to see you here but glad you found this site! I had exact same chemo and number of rads. I found the first part of chemo--FEC part for me--was not so bad. Had some nausea but they adjusted my meds and put me on Emend which worked wonders for me. The taxotere part was a little harder--to me--kind of like having the flu with aches/pains..i had tylenol 3 to help me through. Ultimately I made it through chemo and even did Run for Cure after my third chemo. It is almost two years since diagnosis for me. I remember the nerves for the first day-but once you are past that--things will fall into place and be a little easier. Let me know if you have any questions. I am in Msga also--had chemo at Trillium and rads at CVH. Docs and nurses were great at getting you through it all!

  • Nicole4
    Nicole4 Member Posts: 104
    edited February 2015

    soccer, I did the same treatment plan FEC-T x 6 and 25 radiation.  I found the same as Rachel, first three were a breeze and the last three not so good.  The most important part is drinking water water and more water.  thank god for zumba class, your body is meant to heal, take everything that comes to you one step at a time, all the information can be overwhelming at first. 

    I ate very small meals with chemo and spent a lot of time in my pj's at home.  This is a good time of year to start.  I also made sure my room had new sheets and decorated for comfort, that helped.

    message me with any questions

  • Nicole4
    Nicole4 Member Posts: 104
    edited February 2015

    soccer, I did the same treatment plan FEC-T x 6 and 25 radiation.  I found the same as Rachel, first three were a breeze and the last three not so good.  The most important part is drinking water water and more water.  thank god for zumba class, your body is meant to heal, take everything that comes to you one step at a time, all the information can be overwhelming at first. 

    I ate very small meals with chemo and spent a lot of time in my pj's at home.  This is a good time of year to start.  I also made sure my room had new sheets and decorated for comfort, that helped.

    message me with any questions

  • Nicole4
    Nicole4 Member Posts: 104
    edited February 2015

    soccer, I did the same treatment plan FEC-T x 6 and 25 radiation.  I found the same as Rachel, first three were a breeze and the last three not so good.  The most important part is drinking water water and more water.  thank god for zumba class, your body is meant to heal, take everything that comes to you one step at a time, all the information can be overwhelming at first. 

    I ate very small meals with chemo and spent a lot of time in my pj's at home.  This is a good time of year to start.  I also made sure my room had new sheets and decorated for comfort, that helped.

    message me with any questions

  • SoccerMama3
    SoccerMama3 Member Posts: 13
    edited August 2012

    thanks schatzi and Nicole, I have ordered a few wigs and some head scarves so hopefully the impact of the hair loss won't be so bad.  My reaction to the mastectomy was great - I actually surprised myself. When diagnosed I had decided that I was not going to let the cancer control me - I may not be able to control many of the things that will happen during this journey BUT I am able to control my reactions.  I am anxiously waiting for the chemo to begin this Friday so we can get moving on it - the faster we begin the faster it's all over!

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited August 2012
    Soccer..You have the right attitude for sure....looking back it wasn't as bad as I had expected. I felt the same way...LET'S JUST GET ON WITH IT!!  Didn't seem to take that long looking back. Laughing
  • SoccerMama3
    SoccerMama3 Member Posts: 13
    edited August 2012

    had my first chemo treatment this morning and all went well, Nurse Amanda at CV was great and made the 3 hours we were there very comfortable and painless...she answered whatever questions I had and was very patient administering the drugs...so far so good, it's about 4 hrs after treatment and I'm still feeling good (I'll update as and if that changes).  I will receive Neulasta tomorrow afternoon...the journey has begun...Blessings to all:)

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited August 2012

    SoccerMama3 - glad to hear all went well today. Please be sure to drink lots and lots of water.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited August 2012

    SoccerMama...glad it went well...most of those nurses at CVH are incredible. Keep us posted!

  • SoccerMama3
    SoccerMama3 Member Posts: 13
    edited August 2012

    Into day 5 of chemo cycle 1 - first day was not bad until the evening then the side effects hit me - nausea, headache, vomiting - lasted about an hour.  Took more meds and the rest of the weekend was tolerable.  No effects from Neulasta.  Lack of sleep seems to be the worst side effect so far, will see how long I can last before I need to turn to more drugs, unfortunately a necessary evil in this process.  Queasy stomach seems to have settled, eating a bit more than the last few days.  Staying hydrated and trying to rest when I can.  I'm actually very surprised how bang on the side effects are, everything they said I would feel and when is just about right.  All the tips help too to get through the effects.  Hopefully the worst has passed:)

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited August 2012

    Glad things are tolerable for you...I took the anti-nausea drugs for months after. It was kinda strange but about 3 to 4 pm every day I would start to feel nauseous. It's OK now.

    Are you taking Claritin with the Neulasta?

  • SoccerMama3
    SoccerMama3 Member Posts: 13
    edited August 2012

    No I didn't take anything with the Neulasta and I don't seem to have any side effects from it - no joint or muscle pain at all.  I find that the worst part of the day for me is about 3 pm as well.  That's when I try and have a nap or at least lie down for a bit.  My sense of smell is crazy too, that's probably why I feel nauseous a lot of the time.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited August 2012

    I understand...and things don't taste right either. Sometimes it was a metallic taste. I am 6 months PFC now so things are almost back to normal except the hair is still growing in!

  • rachel5738
    rachel5738 Member Posts: 920
    edited August 2012

    Soccermama---I had similar experience to my first chemo--nausea etc--then I changed anti-nausea meds to Emend which worked wonders for me. Drink lots of water and rinse your mouth with club soda because it will help keep mouth sores away. Get lots of rest. You will be through this before you know it. Hugs.

  • Erinmillsgirl123
    Erinmillsgirl123 Member Posts: 2
    edited September 2013

    Hi. Just found this page. I live in Mississauga and would love to meet some other Breast Cancer survivors. I recently finished my radiation treatments and am eager to get out and about and enjoy life. I love the outdoors but my energy levels are up and down. One of my closest girl friends passed away in March from Pancreatic Cancer and the man in my life gave up on me when I was diagnosed. He pretended to still care but really didn't. I can walk to CVH so it was good to have all my treatment there. Met some wonderful Doctors, nurses and therapists there.

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