Fuzzy's Romp Room
Comments
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Nancy...
Sending you big hugs! You've been on my mind.
Love,
Valerie
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Hugs Nancy..Prayers too.
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(((Nancy))) you and your family are in my prayers.....
Cindy -
On Nancy, I am so sorry this has happened, I know this must be so hard. Sending a big hug to you and your family.
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Sharon and Lauren, I'm with Wren and Gail. Depression should be evaluated. I know when both my DH and I were dx'd in 2009 me in Jan, DH in April, It hit my radar while reading the chapter on Happiness In a book called "For The Love Of A dog" By Mcconnell PHd. I sat up straight and said shit we're both depressed. I was lucky enough to have a name of a great counselor in my rolledex. . The counselor counseled us together and individually. I strongly believe in counseling under many circumstances. I believe all Cancer patients should have some counseling either at the beginning or close to the time of diagnosis---That establishes a relationship with a practioner, they can evaluate where you are at that point in time, And should you have an individual or couple change you aren't scrambling to find someone when you are in crisis. Truly helps the practioner to guide you towards a better place when they have a clue what you are like in the non-crisis state.
Veggy you need to move out from under the hopper.
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Nancy - this place is for bouncing our heads off the wall, whether happy or going through hell. Please do shaare as needed. Have been there with what is happening, my mother 15 years ago, unbelieveable. Guess that is what turned me more alt than ever.
Know I need to be in bed. Staying up until 1am my time is not the day shift. Thought I would list one more on eBay and save the draft for the one without pics and both did not take at all, wasted an hour. irked.
I read every word, don't say much sometimes, but am here.
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Nancy realized just now 2 am, that I hadn't read this page today. I had gotten your PM, but then started working on Novena. This just sucks. Errors in medical and nursing care break my heart. There are so many rules to protect the patient. The only way a patient can be hurt is when someone breaks a rule. Regretfully, all the stuff I said to watch for has happened. This hospital has to be the worst I've heard of in a long time. The numerous areas that breahed rules, all leads back to the leadership of the upper management. If uppermanagement does not make safety a priority, errors happen.
Nancy Make sure you get copies of records if not daily a copy of everything before you leave. This will make sure his records aren't altered or "lost". Reputable facilities have "guardrails"(rules) to protect alteration of records where errors occur. But this is not the case here.
If someone thinks I'm being to harsh, there are many many more errors that nancy told me about that she didn't post. That's why I posted for prayers for the staff for her dads safety in their care. This sucks.
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NOVENA NOTIFICATION
We will be starting a novena Tuesday Aug.14th . I have asked Frank to pick the novena. Please, keep him in your prayers daily as he is being chemo challenged at present. The herceptin has stopped working. We have many members that are having condition changes on the Catholic thread and throughout BCO right now. Please , join us on the 14th.
A Novena is prayers said daily for 9 days with stating the intention of your prayer. An intention can be for a person , group, or a thought. You don't need to be Catholic. Prayer is Prayer. If something in the prayer doesn't fit your belief system, substitute or omit that portion. We are an Ecumenical group which means inclusive of all.
Everyone on my Favorite member list gets this notification, as I have added those that have been involed in the past, UNLESS they are there for a different reason. Frankly, my memory is getting worse. So, if you have receive this and scratching your head as to why, please forgive me.
Send your intentions to me by Pm or post on Catholic thread on sunday (preferrably) or monday and I will combine them into a one list. It takes awhile to do the composite list, thats why I ask that intentions be sent on Sunday, Pax Sheila(sassy)
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Today is looking a little brighter for me. The breast is looking a little less angry (red). Hopefully the warm compresses and the antibiotic are doing its job even if its only been one day. DH has been marking where the redness stops to see progress.
Nancy - Sending you more hugs.
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Veggy - Excellent nursing care by DH. Glad ABT & warm compresses working!
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Oh, my sweetest NANCYnow, my heart aches for you and your family. When I read the news here, I went, "WHHAAAAAAT!!??" UNbelievable, such an awful thing to happen to your poor Dad, I cannot imagine how ruined you must be, with no end, misery with no end, toooo much sorrow for a person to bear. Can I hold your hand? I can feel your heart beat. I brush the tears from your face. All the heavenly angels, which you have many on account of how dear you are, you are so special, they are hovering over your father's bed, comforting him in these dangerous hours. The only good is that it happened to him whilst under anesthesia, he went to sleep and stayed that way. God bless his heart and soul, he was a good man, and he had much more to give, but the Heavenly Father wanted to take him home to be with him and his angels. Remember that wonderous song by Michael Jackson, "Gone too soon"? Such heartache. I love you entirely too much, Nancynow, but I give it all to you. Bless you and your family and your father's heart and soul. Always, Gail LINK to Jackson's song, sang two decades ago night before Clinton was sworn in as President: http://www.tudou.com/programs/view/wEQngiIrbsE/
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I am up to August 2, 6 pm.
Veggy, I am so sorry about your uncle. The crap does keep coming. I was so looking forward to congratulating you on getting rid of the drain. Hate the drains. I hope you have been able to smile. I will read on after I get home to find out.
Lauren, I am glad you found your keys and wallet. Losing stuff bugs me incredibly. I keep looking for it over and over in the same places. It is hard to just let it go.
Granny K I hope your test went well and you get the answers you need.
It is good to catch up with you all. I am at the library now, but I plan on going home Sunday if my mother will drive me there. The Ortho doc put me in a splint. I have 3 fingers free, so I can do stuff. Also I can take off the splint to wash dishes and myself.
OK. Mom's here to pick me up. Gotta go. Be well.
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Dunes wonderful news. Check your PM about the Novena. Send intentions to my PM. I'm going to start work on the combined list before Sunday. Redwolf had great news---brain MRI clear and mmm5's breast lump disappeared. Remember to elevate as much as possible. L&H&P's
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dune, you lucky dog. my cast is a full arm and they put in two pins(nails)lol about three inches each into the bone. he doesn't like my bones, too brittle for him. ordered not to anything except wiggle my fingers until i see him in two weeks. i'll be nuts by then.
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ptdreamer, wonderful sx done and home. you described the reason I disliked orthopedics when I worked in OR, basically it's carpentry---- hammers, nails, screws,osteotomes, drills and bits, saws,plates. Hows your pain , can make recs on pain mgt. remember to elevate. What did he mean by do nothing? Arm or full body, Walking is your best friend To prevent blood clots. How did they manage IV and BP cuff?
Dunes frogot to ask about your pain?
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keeping it elevated. they used my foot for iv, my leg for bp. said not to do anything with that hand,not even using it for bracing which i did with the splint, just wiggle the fingers and be a good girl.lol. vicodin for pain. taking prunes and lots of fiber. can and do walk.
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ptdreamers---OMG...I feel so bad for you.
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Nancy - so sorry you and your family are going through this. Big hugs and prayers for you all
Granny - its called Imerman Angels. They're based our of Chicago where my friend is and got me involved. I'm eager to see how quickly I'm matched. They said they get a lot of younger women with kids and a full time job trying to figure the whole thing out... I wish I had someone
Dunes - I gave up on the keys and the wallet, and bam, they show up! Just when I had given up hope. Go figure.
So this morning im on the train and get a call from my nanny telling me she has bad news. My heart drops and I'm waiting to hear what happened to one of my kids... Them she tells me that her MIL was murdered by her BIL in St. Vincent where they're from. Ends up he's mentally I'll and chopped her up in her sleep. I'm still shocked and stunned. I'm asking for prayers for her and her family during this awful time... Ugh -
Oh the prayers needed for this group!
Nancy, vegy, ptdreamers, Lauren - anyone I missed - prayers for healing, peace, and comfort.
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Thanks MamaV.
Had a hard day yesterday. I talked to both of my counselors and today I am off to my support group. I took a pill last night to help me sleep.
Hugs for everyone.
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OMG Lauren..sending prayers..lots of them for everyone.I like the sound of that group.Are they all over the place?
Veggy-I am sending you a pm along with a huggggg.
My puter has its period again!!!!!
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PT dreamers you mentioned worry about constipation , here's a link to the constipation thread , I wrote sometime ago. Many good suggestions from members:)
http://community.breastcancer.org/forum/6/topic/781867?page=1
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Computers are untold stress.... computers belong in the woodpile but we don't have the strength to put us out of our misery because then we would lose too many contacts with friends made and that is not cool.
Thinking of all, checking back to read how it is going.
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Anyone wanting to join the novena on Aug. 14th not just for Frank, but all of BCO members PM me your intentions Thanks sassy
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Howdy ya all....I've been readin' and prayin' and in a pocket 24/7.
Nancy, Veggy, Lauren, GG...everyone...all of you all....I have to give hugs all around. Wren, Granny, Sassy SAS....and Special, Wren, the new comers....Everyone gets hugs tonight!!
I've been out and about...my niece needed some help after her surgery so I helped as much as I could. Didn't sleep for 2 days so I'm hoping tonight is the night.
Relationships can be torture....my heart is breaking at what my sisters (you are my family) go through and I feel like I can't help you....and I want to so badly.
I'm a raging bitch right now...well, sorta. I should start keeping track of how many times in one day I feel like the other shoe is going to drop. I'm getting shoes dropping all over the damn place!!!!! I'm so tired of everything that has to do with shit right now....the feel of it....the smell of it....the piles of it everywhere I step....(the exception is my home and family and I am thankful for this...otherwise, I wouldn't have much). SAS...can I tell you my intention now? Can I do that here in my safe place for all and the All Mighty? I intend to battle the wicked, use all my strength to flip WRONGS.....and these actions literally need acts from God. I would like my sisters to have holy arms around them and holy hands to heal them. Keep my family in light and love and protect them from -
Nancy, prayers that your Dad's remaining time be pain free and for comfort and peace for you and your family.
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Nancy...you got it. I'm so sorry. If children are a reflection of their parents, your father is a great and beautiful person...he will be with you always.
Gentle hugs...as many as you need. -
Fuzzy, HuGs Yup . I'll use harm for the last word, My feeling is You were thinking much more than that at the time. We start AUG 14TH , AND PRETTY SURE IT WILL BE sT pERIGRINE , pATRON ST OF cANCER, BUT WAITING ON Franks response. Baby you need to get sleep. ALL your MH stuff and physical stuff can get worse. Lots worse than it should be b/c of sleep deprivation. Been there coming out of it- mostly--Just woke up and it's 3 am. lol, but had about 5hrs b/c new patch is on. I guess we need a new thread on Sleep, but it will have to wait until the novena's done or at least started. I'll make some suggestions now.
Talk with doc about a sleep aid. ChrissyB told me about Melatonin It's great. Range 2.5 mg to 10 mg. Can use with Ativan/lorazepam, or valium/diazepam, probably restoril/temazepam, Melatonin allows to either not use something else or a smaller dose of the pam drugs(benzodiazipines).
Severely limit alcohol, shouldn't mix with above can cause respiratory depression which means to slow breathing or stop it. We don't particularly like to stop breathing.
Control pain (yeah sounds easy on paper).
Set a standard sleep time and stick to it no matter what( also sounds easy on paper). It's nice to think 10-11 pm, but if for you/ anyone if it's realistically 12 pm that's better than no plan.
Exercise daily, but not before bedtime
Limit caffiene-- total daily use or reduce or stop.
Limit stress(oh yeah that's real easy).
Sweetie send me your drug list by PM, Just drugs not doses, and otc drugs. Drugs an drug interactions can cause insomnia. All AI's and Tamox can cause insomnia. Even our MH drugs can cause insomnia.
I started the insomnia thread during the worst period. It was dormant for awhile, but is active again. At least it's easier to find someone to talk to in the middle of the night. I'll put the link.
http://community.breastcancer.org/forum/102/topic/767259?page=156#idx_4665
The biggest change for me was melatonin. first night I got 6-7 hours connected sleep .hadn't been able to remember when that occurred. You need to make this your priority. Worst case scenario of deprivation is psychosis. Get vita-d level, folate and hepatic function levels, iron panel and ferritin levels, stress hormone levels. No point trying to fix something if it's a metabolic thingy that's not been diagnosed.
Love you babe
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Nancy--so sorry, I already put an intention in for you and family not knowing when you'd be back. The working list is on the archives page. I'll try to remember to bring back the link when I post Fuzzy's intention
http://community.breastcancer.org/forum/38/topic/760274?page=4#post_3152695
TO ALL--have had bad reaction to shingle vacicine, worried about allot of body parts, but liver is the scariest--prayers please. I''l repost what I put on BONFIRES--decided not to we have to much shit happening. Just know I think I'm up to my nose in poop.L&H&P's
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Novena notification update:I unintentionally made it sound as if the novena was just for Frank. Franks change of condition triggered us to want to do a novena. The novena is for all of us on BCO and others that are added by members. The link below goes to the working copy of the combined list of intentions,If those unfamilar with a novena would like to take a look and see how it's being put together. The next paragraph is the first intention.
Dear God---May all, of many Faiths, come together in prayer and support of each other. Jesus Christ,Mother Mary , and the Holy Court of Heaven, hear our prayers for all the sisters and brothers of BCO in this there time of need. Strengthen them and their families and let them not despair. Heal them if you will, or guide them to understanding and acceptance of your plan.
community.breastcancer.org/for...
So, if you want an intention added for you , or someonelse please PM me any time now. Probably should put this link in your favorites to refer to on Aug 14th. At this point we are leaning towards ST Peregrine Patron saint of Cancer as two members are willing to take the intentions to ST Peregrines shrine near Pheonix Az.
Sorry for muddling up the first communication. It all seemed logical at the time. It was only after multiple messages received that I realized the problem Thanks for your involvement. SAS
The prayer that will be added is said once a day and the intentions are said once a day
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