All about Xeloda

Good luck, Seamstress!  We'll be waiting together for the results!

I am no longer an x diva. Tumor marker is going up. crap

Good luck, best wishes with that scan; hope it's been doing its job.

Good luck, best wishes with that scan; hope it's been doing its job.

Good luck, Kimberly!

I'm no RO but I did look at the scan results on my computer.  My MO will give me the official word tomorrow.  I saw lots of SUV uptake, so I'm not expecting the best news.  Once I found the "known" node in the axilla (which still looked very hot), it was easy to find the rest of the mets...I think.  She'll probably use this as a baseline and keep me on X for three more cycles then scan again...or use tumor markers to see if it's working.  I had a few weeks from the time the mets were discovered in a PET until I started treatment, so I guess I can't expect miracles.  I can wish, though!

I have to say that I could wish to stay on X for a really long time.  I don't feel flu-ish at all, started biking 6+ miles with my DH, and other than the little bit of h/f syndrome and some mouth sores that are now gone, I look and feel fine.   Hoping for the best tomorrow...

I will be thinking of michellemand seamstress as they await their news of this weeks scans.

Thanks, seamstress - I'll change to Belgian beer.

Thinking of all of you and wishing everyone good scans. Due for my first scan since starting xeloda in two weeks. Already stressed.



Frappe, hope you feel better and enjoy the rest of your trip.

Finally, I got some good news - Xeloda is working!  My CEA dropped from 144 to 90.  Phew!  I was so nervous.  I told him about the bad HFS, but he's keeping me on my same dose.  I guess I'll just have to note on my calendar which days I won't be able to plan anything but get the kids to school and back (which I hope I can do).  So far, it's just 2 really bad foot days and 2 kind of bad foot days out of the 14 day cycle and the rest are just the "normal" hfs days.  My fingers are really tender at the tips, but I can still do most things.  My nurses mentioned Neurontin for the pain and burning of my feet, but I think that has a lot of side effects.  Has anyone else heard of using it for HFS?  What else is there for the pain and burning?  I ice them and it helps with the burning, but not the tenderness when walking.  I use slippers, cushy shoes, inserts, anti-friction powder, and B6 and all these things help, but not a lot.  The Bag Balm did take away the peeling which is nice.

Best wishes to everyone still waiting on scan results or having scans.  I hope you get good news!

Hoping a good plan is in the works for you Michelle.

So sorry to hear X has let you down. Hope the new plan is gentle and effective.

I was also hoping everyone would get good results.  Michelle, we will find you in another chemo thread celebrating very soon.

Congrats, Cynthia.  The H/F can be a real pain.  Over time the skin on my hands has gotten so tight that the tips of the fingers look contorted.  I can't straighten them completely out.  For a while it was getting difficult to tie my shoes because of numbness and I couldn't pick up a needle off the table.  That part has gotten a bit better with dose reduction.

Here's hoping for good scans for the rest of you ladies.

Hi girls!

Hope the scans come out great for you all.  Just had mine and everything was somewhat stable.  Now onc wants to put me on Fulvestrant which I had the shot last week and then Denosumab after some dental work is done.  Also staying on Xeloda.  Anyone else with this kind of torture?  Hugs and good luck to all.  HunkyDory

Congrats seamstress and Cynthia. May the Vit X work for a long time!!! Sorry Michelle. We are in the same baot now.

Banjobanjo - My onc also went by how well I was feeling last month when my tumor markers had gone up.  Then, this month they are down so he and I were right to think it was in fact working.  I hope your onc is right, too and you get good scan results!!