Does the looming dread of recurrence ever go away?

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  • lago
    lago Member Posts: 17,186
    edited August 2012
    Give it time momof2inME. It took a long time to get over the boyfriend (or girlfriend) that broke up with you years ago too. Now I bet you hardly ever give him/her a 2nd thought. I also bet at the time you thought you'd never get over him/her.
  • NeedtobeSTRONG
    NeedtobeSTRONG Member Posts: 101
    edited August 2012

    Momof2inme, I think it is the conclusion of each treatment that effects us. I know when I finished rads I was so excited then...the nerves set in. I think we will always have the fear and the intensity of it will come a go. I am about to start a new job next week and I am so happy but I keep thinking.....what if! But I have come to realize this is the new me. Never thought of the what ifs before....and now that I do, I am thinking about the What I have and what I am doing now! It is all I can do to keep me smiling because when I think of where I was a few months ago and where I am now! Oh boy what a difference. Hugs to you and it will get easier!

  • wpolischuk
    wpolischuk Member Posts: 7
    edited August 2012

    Hi there:

      I saw your post and wanted to give you some hope.

    I was diagnosed with stage 3 breast cancer, 7.5 cm tumor, positive nodes, ER+/Pr+  grade 3. I had a mastectomy, axillary dissection, AC/T chemo, radiation, 2 years tamoxifen, 3 years aromasin. 

    I was 41 when I was diagnosed, premenopausal. Before I went on aromasin, I had a hysterectomy and oophorectomy which put me immediately into menopause.

    I am now 49 years old and cancer free. So it has been over 8 years now. 

    I  had scares of recurrance during my first 5 years post-dx .. I had several bone scans, a head CT, chest x-rays, abdominal ultrasounds. Everytime I was terrified.

    But now, I can say, for the last 2 years or so, the fear of recurrance has subsided. I am almost complacent. I rarely think about it.  

    I feel great. I lost over 40 lbs, people say I look great, the fatigue and chemobrain has subsided and am I living a full life.

    So, does the dread ever go away? For me, I never thought it would, be it did. It started to fade once I was only going for follow-up every year and I stopped taking aromasin. It was like it was over I thought.

    I still go for mammograms on my one boob, and I look after myself. But, the elephant in the room has shrunk to take just a small spot on the mantle, and not fill the enter room.

    It will happen for you.

    Just breathe

    Wendy  

  • Momof2inME
    Momof2inME Member Posts: 683
    edited August 2012

    Thank you so much ladies for your posts. In my brain I know it just takes time but sometimes my emotions get the best of me.

    You all are GREAT!!!!

  • dlm217
    dlm217 Member Posts: 81
    edited August 2012

    I finished rads on 7/19.  I feel so lost.  I just can't get over this feeling that it will come back. I am 40 was 39 at diagnosis and have 3 sons (15, 8, and 3)  I can't stop thinking that I won't get to see them grow up.  I put on a brave face every day and go to work, do things with family and friends.  I haven't said anything to anyone about how I feel.

     Thanks for the postive words. I hope I can stop dreading this soon.  I can't sleep some nights because I can't get it out of my mind.

  • lago
    lago Member Posts: 17,186
    edited August 2012
  • faithfulheart
    faithfulheart Member Posts: 544
    edited August 2012

    I have learned to co-exsits with my fear...I know it sounds wierd. I will be going on three years of my dx....a pretty bad dx.......I really struggled, and don't get me wrong still have my days.However,  I did learn to give my fear a little time and then I let go of it!!  Yes will there  always be a chance this beast can return, yes.......So if we spend our precious life worring and  it never comes back and we die of old age............what a waste of life, right girls... ?? .Heres the thing,  I pray alot,  I ask God to carry the fear, because there are times I can't do it...most of the time, I take my worst fear and hand it over to Him....I am free I don't have to bear the fear. I just have to stay in this very day , moment and time. One day turns into a week a month a year, 3 years and so on........trust that our medicne did it's job, do what you can, and try to not let fear deprive you from enjoying the things in life that have always brought you joy!!! Do not let the big C win, You have already won the battle.........Now Live, really live!!!!!!!!!!!!!

    God bless all my beautiful sisters!!!!

    Steph 

  • orlandpark1965
    orlandpark1965 Member Posts: 21
    edited August 2012

    Steph:   Beautiful and you are right on.  I think Im going to print this and re -read it when I need it.

    There is a song I listen to at least 3 times a day.  "Living in the moment" by Jason Mraz.   Such a good song and it's my therapy.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Wendy:  Wonder did you have surgery first before any rads & chemo?  Sometimes with bigger tumors they opt for neo-adjuvent therapy.  How may pos nodes did you have?  If you want to PM me, plz feel free.  It is great that you've kept well for 8 years ~!  Every test for me is stressful let alone every check-up.  Tks

  • fondak
    fondak Member Posts: 376
    edited August 2012

    Well, I am so glad to say that my first year ended well.  As I mentioned above it didn't end without a scare.  Following my gyn's request to see my surgeon sooner than expected, I ended up with a mri and mammogram which they found a 5cm lump that wasn't there before.  The biopsy proved to be a benign fibroademona.  I'm so thankful!

    Momof2inME I hope things are going well for you and youare doing well on the Tamoxifen.

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