CDN women...when did you start getting screened?

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rozem
rozem Member Posts: 1,375

hello fellow canucks

I am done treatment but the year leading up to my diagnosis is still haunting me.  Long story short my doctor followe current cdn screening guidlines which is mammos to start at 50.  I insisted on a baseline mammo at 39 which was clear.  What she failed to mention to me was that I have extremely dense breasts and the radiologist had recommended mammo plus ultrasound, well that didn't happen and lo and behold I found my lump 8 mos after my last physical.

The really ironic thing is that I ARGUED with my doctor many times that screening should follow the US at 40.  She argued that studies have shown that mammos under 50 do not save lives! yikes! I have since told ALL my friends to get screened AND IGNORE current guidelines.  What is interesting is that I have done an informal poll of all my lady friends and screening is all over the board - some doctors start at 40, some at 45 and others at 50 - there is no consistency

I was 42 when diagnosed, ZERO family history and the only known risk factor that I had is DENSE BREASTS.  Apparently less than 15% of all cases of BC are due to family history, so much for that excuse she gave me

so my question is...when did you start getting screened???? 

Comments

  • Kathy044
    Kathy044 Member Posts: 433
    edited June 2012

    rozem, this varies province by province, where are you living?

    I was part of the clinical trials in the mid 80's that compared using screening mammography (along with manual doctor's exam) to doctor's examination alone. I was 40 so was in the age 40 -49 group, and yes the finding, to great surprise btw, did show that though the mammogram did find cancers earlier, in this age group it didn't make any difference to survival. Despite this result the screening mammogram program as set up in British Columbia in 1988 did allow women between ages 40 to 49 could get mammograms, I think it was because it was considered cheaper to treat cancers found earlybut more likely it was a political decision.

     Anyway looking at today's requirements in British Columbia women between age 40 and 79 can still make an appointment without their doctor's say so to have a mammogram the only requirement is that they do need to have a doctor to receive the results.

    Women under age 40 or over age 79 can be screened to but need a doctor's referral.

    http://www.smpbc.ca/faq/Eligibility.htm

    My cancer was found during a routine screening mammogram at age 65.

    Kathy

  • bethen
    bethen Member Posts: 82
    edited June 2012

    I am in Ontario, and my Dr. provided mamograms at age 50.  When I was 48, I found the lump in my breast and went to the Dr. and he immediately had me booked for a mamogram the next day, which unfortunately turned out to be cancerous and had already spread to lymph nodes.  Since my initial treatment and diagnoses in 2005 I have had two more recurrences in the lymph nodes in my pectoral muscles.

    Betsy 

  • Luah
    Luah Member Posts: 1,541
    edited June 2012
    My GP suggested a baseline at age 39 which I ignored at the time. I did mammos at age 45, 47, 49, 50, 51 - 8 months after that one I noticed a lump. Follow-up mammo showed nothing definitive (even though there were 2 lumps, 2.5 and 1.5 cm)... so I don't put huge stock in mammos at any age. For every mammo that may have made a difference for you - or not made a difference for me - there are hundreds and thousands of other women whose results, collectively, make up the data on which our system relies to make evidence-based decisions. And right now, that data shows that mammos under age 50 don't do much good. They are particularly bad at seeing through dense breast tissue (which younger women have), hence the recent guidelines (in Ontario) for young women at signiifcant risk to have MRIs. 
  • cathy1968
    cathy1968 Member Posts: 50
    edited June 2012

    I believe a mammogram saved my life.  Last summer at 42, at my annual check up, my GP suggested I go for my first mammo, just to get a baseline.  The mammo showed no tumor or mass, just a radial scar and microcalcifications, which are always recommended for further investigation.  After more procedures cancer was found and eventually I had an rmx.  The tumor was small (1cm) and totally DCIS, i.e. completely non-invasive.  That was the great news.  The bad news about this tumor (which is ultimately why I chose mx) was that it was high grade (III), comedo and included necrosis.  All indicative of a possibly aggressive or rapidly changing tumor.

    If caught later, who knows what I may or may not have been dealing with?  I tell everyone my story, and have found that for the 40-something women in my area (I live in Mississauga) it's really random as to whether they've had a mammo yet or not.  I encourage everyone to have one with the message that mammograms can sometimes catch cancer very early, and while not every stage 0 (i.e.DCIS) tumor will become invasive, some certainly do, so catching them early makes sense to me.

  • kayfh
    kayfh Member Posts: 790
    edited June 2012

    Age 40, every year. Was to be seen in March 21, 2009 for my annual at our community's breast screening clinic. I found a lump in January 2009, mulled it over for a while, because in 2006 I had a cyst that felt the same. It was drained as I watched. Cool. I called my family doctor in late February and was seen the next day, sent for mammogram March 3, 2009. Biopsy under USS same appointment. I was 57. My mom and grandmother had breast cancer and I have dense breasts. I was Stage IV.

    Going every year made no difference.

  • beth1965
    beth1965 Member Posts: 455
    edited July 2012

    Hi- i have had mamograms for over 10 years i am 46 just DX this year (my mother had many lumps-never cancer i have no family history)

     My cancer went undetected for many many years anyways possibly 5- 8 years. I found cancer on my own. Then they looked harder.

    They say dense breasts and ILC cancer are what kept it hidden.

  • ThisTooShallPass
    ThisTooShallPass Member Posts: 101
    edited August 2012

    I'm in Ontario. I started at 24 with yearly MRI and ultrasound every 6 months. Genetic councellors working at the hospital are the ones who started me on that, stating that guidelines do not apply to women with high risk.

    I personally think to start at 50 is outrageous. Most of women in my family were diagnosed before 35. 

  • mamglam
    mamglam Member Posts: 178
    edited August 2012

    I am in Ontario as well and my screening began while I was in my 30's due to strong family history.  I am in my early 50's now.  Recently, I was genetically tested and do not have my results as yet.  I was not tested previously (before my own diagnosis) because the family history did not include my mother, father, sister or brother.

  • leggo
    leggo Member Posts: 3,293
    edited August 2012

    During physicals my doctor mentioned I would start being screened at 40 (no family history or anything). I never made it that far...was diagnosed when I was 30. He did do thorough breast exams at every physical but never felt anything out of the ordinary. ThisTooShal makes a very good point. 50 is ridiculous....I think in this day and time, a lot of women are going to be diagnosed at a much younger age. I know soooo many women who were diagnosed before 35. All cancers really....the waiting room seems to be packed with younger people. I can hardly believe my eyes sometimes. It's heartbreaking. The other thing that blows my mind, when I was diagnosed in 1996, there were 5 chairs and two beds in the chemo room and the pediatric chemo room was the size of a bedroom. Now there are 30 chairs, 10 beds, and the pediatric chemo room is huge. Very depressing.

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