taxotere side effects

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  • liefie
    liefie Member Posts: 2,440
    edited July 2012

    Lisa and Tazzy, the stiffness, weakness and muscle pain will go away. I finished TC on May 7, and until about 4 weeks ago I could hardly get up the stairs in my house. It was very frustrating to feel like that, because the chemo was over and here I was still struggling to move weeks afterwards. It is all gone now, and I am back to joga to get those old muscles stretched and supple again. Just give it time, it will come soon!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2012

    It took 6-8 weeks for the aching thighs and legs to go away for me.  You are almost there!

  • PaEaglesFan
    PaEaglesFan Member Posts: 277
    edited July 2012
    Tazzy, You got a date?!  Congrats to you for your patience and persistience.  I think I would have been spitting nails at them a long time ago.
    BCBarbie, Congrats to you for getting over the 1st one.  I had #2 on Tuesday and felt SO MUCH better going in to it knowing what to expect.  My Onco nurse is an angel and I try not thinking about what's going in to my veins and treat it like some kind of odd "spa day" lol.  The best part is knowing that some of these weird feelings will only be around for a couple of days and I'll be back on the upswing.  I have the weepy eyes today and a little bit of strange numb/tingling in my cheeks.  That along with the dreaded Decadron flush of course.  I found that taking Claritin at night (MO recommended it to help prevent the Neulasta aches) also helped me get 2 good night's sleep in a row!
    ljhm... wheat juice grass eh?  Sounds green lol
  • lisa2012
    lisa2012 Member Posts: 652
    edited July 2012

    Does the Arimedex cause the same Kind of stiffness or different? I know some who have had it, others not. I've been on it 8 days ok so far, but as I am still coming off taxpayers I don't know! Thanks for the taxo time frames. Mild thrush that reappeared almost gone.

    Exhange surgery aug 7. Wish me luck. Hope healing post chemo is as smooth as healing pre chemo was.

  • bcbarbie10
    bcbarbie10 Member Posts: 319
    edited July 2012

    Thank you, PAEagles!

    I am still feeling my way around Taxotere. So far the past 4 days have been awful!!!! Dont mean to whine but i have been really weepy lately, so frustrated. Everything hurts from mouth to toe. Nothing tastes good, my parotids contract each time i chew.

    Reading from the thread, it seems the se's linger for weeks. I go in every 3 weeks, will the se's not go away till i get to the next?

  • lisa2012
    lisa2012 Member Posts: 652
    edited July 2012

    I think the first 7-10 days were hard and then things eased up for me. Still had weepy spells and emotional pressure drops, and food had little taste and/or I just wanted very bland stuff. I never felt great but I did feel somewhat better in the middle.

  • kltb04
    kltb04 Member Posts: 1,051
    edited July 2012

    Hi ladies. Sorry some of you are having such rotten times :(. Had #3 of 4 tax last Monday and Nuelasta Tuesday. As usual for me I had the SE from the shot Wed into Thurs. but the actual tax SE aren't that bad for me. Taste seems to be getting worse (burnt tongue feeling) and the fatigue seems to be worse but no major pain issues. Thankfully. Hope that those of you with bad SE feel better soon. Hang in there.

  • ljhm
    ljhm Member Posts: 60
    edited July 2012

    This is my third cycle chemo was last Wednesday.  The caphosol mouthrinse helped the mouth sores immensely and thrush did not seem to grow.  That said, I woke up with Thrush in my mouth this morning and it's annoying.  I have to have surgery on my trachea on Monday as a met is pushing on it, right in the middle of my side effects!  Doesn't sound like a good idea to me.  I have found side effects, especially aches & pains last 10 days.  Percocet takes away the pain and this new mouthwash is a godsend.  Hang in there ladies and wish me luck tomorrow.

  • bcbarbie10
    bcbarbie10 Member Posts: 319
    edited July 2012

    Good luck, ljhm! God bless 🙏

  • PaEaglesFan
    PaEaglesFan Member Posts: 277
    edited July 2012

    Thinking of you today ljhm.  

    bcBarbie... You never have to apologize for whining. That is what we are here for.  Your friends and family can give you all of the emotional support possible but it isn't the same as having 'sisters' who are going thru the exact same thing you are.  I tried the claritin suggestion from my MO and I can't really tell if it is helping or not. I didn't have a lot of aches and pains after the first treatment and I know it isn't any worse this time but I HAVE noticed that I am getting some pretty nasty headaches!  (I am prone to and on daily meds for migraines.)  I wonder if the anti-nausea meds has something to do with them.  Another thing that makes me go hmmmm lol

    After having a weird and weepy Friday and Saturday, I'm happy to report that the evil side-effects have slithered back into their hole to await round 3.  How many out there get a strange 'floaty/numb' feeling a few days after treatment?  Is this what they call chemo-fog?  I feel like I've been to the dentist and he's given me a whole body shot of novacaine and it's either not enough to completely numb me, or it's wearing off.  Also feel like I'm listing to one side when I walk and my distance vision gets fairly blurry. Apparently this is going to be par for the course on Friday's after treatment.  

    On a brighter note, my 25 yo daughter moved in with her boyfriend this weekend (HAHA, I blamed my teariness on the chemo!!)  and yesterday I was able to make a nice dinner for our family to sit down and celebrate together.  Of course I couldn't taste it, but it was just nice being with everyone and doing something special.

    That leads me to my next question... what to you ladies miss more, your hair or your taste buds?  
    For me it is HANDS DOWN my tastebuds because I LOVE food.  My hair and I have always had a love/hate relationship so that was not as much of a big deal.  

    Oh, here is a little funny story...  I am 45 years old and pre-menopause (VERY regular yet).  So I thought one of the 'bright points' of chemo would be the chemo-pause?  OH HAIL NO!!  Would you ladies believe that I STILL had 'it' this month!!!???  I whined to my DH that I would be a 100 year old woman sitting in a home and STILL be having my monthly visitor!  He came back with "You have an indestructible uterus."  grrrrrr  Yell

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    PAEages.. had I not got the date soon, I for sure would've been spitting something at them. Now trying to keep a calm mind about Thursdays surgery. I'm with you... tastebuds every time. You know what food should taste like and instead all you get is the taste of a mud puddle.

    Lisa2012: Good luck for August 7.

    Bcbarbie - hang in there. Taxotere SE's lasted for me about 10 days. For me the weepiness is still here, think its because of the whole bc journey and not so much the chemo. Although saying that, chemo does such a number on us just makes us weepy. Cry if you want - its OK.

    Ljhm - wishing you positive healing vibes for your surgery today.


    Wishing you all a very minimal SE day.

  • lisa2012
    lisa2012 Member Posts: 652
    edited July 2012

    Huh, thought i posted but it disappeared. Tazzy, thanks for the surgery thoughts. I can't wait for it to be done, I'm ready.

    And this weekend taxotears really stopped. 5.5 weeks it took!! Soo glad not to have rivulets dripping down my face!!

  • lisa2012
    lisa2012 Member Posts: 652
    edited July 2012

    PS tazzy good luck on thurs!!!

  • kltb04
    kltb04 Member Posts: 1,051
    edited July 2012

    Hi ladies - one week post TX and feeling ok - I had a little bit of nausea this weekend which was unusual for me after Taxotere.  Seems to have abated.

    Nail question - I have had 3 rounds with no nail issues.  My fingernails are still fine - although bitten and ragged as usual (horrible habit) but I just noticed an issue with a big toe the last few days.  It feels sore as if I am getting an ingrown nail.  I took off my nail polish last night and there is a bit of a brown spot where it is hurting - could this be taxotere issues?  Just wondering what I could expect with this.

    PA - I didn't stop my period until probably after round 3 of A/C.  No sign of its return, thankfully!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2012

    kltb - have you been icing?  Your big toenail may be lifting, but it may just be sore (yes, a Taxotere SE) and this may come and go during treatment.

  • Ellendou
    Ellendou Member Posts: 139
    edited July 2012

    kltb - when I have my Taxotere they put these wonderful looking frozen mitts and booties on me - going for my 3rd treatment on Friday, so far no nail issues....hope it stays this way.  Can only wear clear nailpolish -- had just had a wonderful pedicure before I started and had to take the lovely color off.

  • kltb04
    kltb04 Member Posts: 1,051
    edited July 2012

    No I haven't iced- I don't know if the MO/nurses don't recommend it at my center or what but no one there does and I never asked. 

    Oops I guess I am bad for keeping the toenails polished - I do recall one of the nurses mentioning polish but I have kept my toenails done and no one has mentioned it (I wear flipflops every time so I know they see it).  Is that so you can keep an eye on the condition of your nails?  The reasoning for not wearing polish?

  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2012

    kltb - Nobody iced at my center either - except me. Some centers have the mitts and help you, others don't want to have to deal with it themselves and cause more work for the nurses.  My onc gave me permission to ice but I brought my own frozen peas and cooler and we handled everything ourselves.  There are some thoughts that it is the harsh chemicals in nail polish remover damaging the nails, and this is why some say only use clear, but I had also read that painting with clear nail hardener 7 days in a row, then removing it and starting over would strengthen the nails so I did this along with icing.  I also painted mine navy blue or dark gray on the day of chemo (night before) because I had read that blocking light from the nail bed would also protect the nails during tx. 

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    Thanks for the good wishes ladies.

    Yes Lisa it is wonderful not to have rivulets running from eyes and nose.

    OK Toenails and fingernails.   I did ice - I iced for all 4 treatments.  Toes and fingers.  I didn't ice my toes on the last one... dont ask me why as I have no idea but seemed a good idea at the time.   Fingernails are very soft so I cut them short.   I  lost my big toenail on Friday.  It didn't hurt and wasn't until I looked down I thought, hey were did go ?   So was it because I didn't ice on the last one... who knows but I will be happy when my toenail grows back (so far others seem OK) and I have long nails again.

  • Hikergal
    Hikergal Member Posts: 74
    edited July 2012

    PAeagles Fan, LOL about the indestructible uterus!  I too got my period along with a face full of zits after 1st tx.  Am due again but wonder if my  body will prevent it with tx 3 tomorrow.  Having hot flashes every night Frown  What are you ladies doing for those?  It is my understanding that I can't use any hormonal products so what is a woman to do?

    In regards to Claritan, I had better luck with taking Advil after the Neulasta shot. The Advil seemed to help both muscle aches and bone pain.

    I hear you ladies about the emotions and wonder is it the bc, chemo, or both?  I am grateful for this db, I think friends and family get overloaded with what is going on with us. My boyfriend has told me about how stressful the whole bc thing has been for him. I am grateful that he goes to my appointments an now have offered that he drop me off tomorrow and p up when done but he says he wants to be there.  Anyone have suggestions on how to destress our significant others?

    I highly advocate icing!  I did so with both treatments and so far no tingling, pain, or nail issues.  I use a bag of fozen peas on top and bottom of my hands.  As they begin to thaw a bit, I dig my fingers and nails into them.  I also use ice packs for my feet and no issues there.  Don't expect your MO to recommend icing.  I think the nurses think I am a kook but hey it works!!!  I wish the MO offered mitts and socks like I've heard they do in Canada and other countries!

    I keep ice in my mouth the whole tx and so far no mouth sores.  I do get the metallic taste  and sore throat for about a week  Before chemo I was enjoyed a diet Pepsi each day but now both diet Coke and Pepsi taste horrible.  I guess there is a silver lining-I may never have a taste for it again!

    Tazzy, I love your sense of humor  Smile

    Hope surgery went well for you lisa2012. 

  • bcbarbie10
    bcbarbie10 Member Posts: 319
    edited August 2012

    Thank you, sisters for your support and concern. I couldnt unload all of these on my DH. Your words and comments help me get through.

    My periods stopped coming just this month. After 4 AC and 1 T. I feel I wont be having them for a while now. They used to come on the dot, day 27-29, not a day more or less, for years! The hot flashes started around 2 weeks ago, too. I get more than 20 per day! Sometimes my peach fuzz is all wet. No big deal for me, though. Cope-able! Though now i wouldnt able to rely on the rythm method for contraception.

    The "shot" did me in! OMG! I never knew any form of physical pain could make me cry! So much low back pain!!!!! It came in waves, i had to catch my breath each time just to ride it out.

    Just a word on the icing of toes and fingernails: be careful if you're diabetic. It can cause more than just missing nails.

  • TheLadyGrey
    TheLadyGrey Member Posts: 231
    edited August 2012

    I read somewhere to count on 1-2 months/treatment.  I didn't start feeling like myself for at least four months -- but I'm doing Herceptin every 3 weeks and that stuff wipes me out.  

    I had the weakness and swelling in my thighs for about 6 weeks -- unfortunately did not know this is a side effect and thought I was packing on the pounds/out of shape.  

    I'm figuring that I'll be back to full strength six months after my last Herceptin -- i.e. next summer.  Hard to believe.  Of course, it is ALL hard to believe! 

  • mpetago
    mpetago Member Posts: 92
    edited August 2012

    Hi ladies : )



    Hope you don't mind me dropping in as a newbie on your thread, but I'm an 'old' taxotere vet from 2004. I actually had 12 of them, three weeks on and one off for four months, and no neupogen or nuelasta because Medicaid wouldn't cover either according to my onc. How bad did that suck? But, one thing I do remember is La Creme Peach yogurt was the BEST thing during taxotere. Soothed the mouth sores, and never tasted funny. Literally lived on the stuff some days. Not sure if this product is still sold, but thought I'd throw it out there just in case. Oh, stage IIIa, grade 3, 8 years out and counting, hang in there : )

  • lisa2012
    lisa2012 Member Posts: 652
    edited August 2012

    6 weeks post-last infusion. Most physical side effects are mostly gone: watery eyes, painful nails, sore legs.Head hair is starting to do the peach-fuzz thing. Still feel emotionally unstable. Accidentally embarassed my son at a dinner with other people, just wasn't thinking well. My son who has been SO there for me!!I feel so bad about this.  What have the last six months done to me?

    I wonder if I will ever function well again on a regular basis.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited August 2012
    lisa2012- Please be easy on yourself as you continue to recover.  You know that you've been one busy gal doing her best to handle each part of your treatment plan since diagnosis.  It's time to rest and let your mind and body catch up with each other and get in sync.  Everyone around you, including your son know what you have been through and also know that you didn't mean to embarrass him.  Give yourself a break and just ease up.  You are doing better than you realize since you recognize how you are feeling.  You may want to talk to a counselor about how you are feeling these days so he/she can help you guide you through.  I know I can't give you lots of reassuring hugs right now since I live so far away but I'm sending you lots of HUGS anyway and hope you will find a little peace and calm. 
  • lisa2012
    lisa2012 Member Posts: 652
    edited August 2012

    Thanks for the gentle support, melrose. I do have a counselor but haven't been for a few weeks. Might help as I get through this next surgery and head right back into extremely hectic beginning of school year. Hope I can manage being in my high profile lead-the-school role....having been home and seen people less for over 3 mos, it will be a shock.



  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited August 2012
    lisa2012- No matter what, you just hold your head high and keep moving forward.  Transformations and change are never easy no matter how strong one is.  Getting that little umph help is a sign that you know yourself well enough and smart enough to get what you need.  I hope you and I will continue to keep up with each other as our journeys progress.  Physically, there is less of me but emotionally and mentally, there is so much more.  HUGS to you and have a wonderful weekend!!!!
  • Alicethecat
    Alicethecat Member Posts: 535
    edited August 2012

    Mpetago

    Thank you so much for posting!

    Great to hear from an eight-year survivor and counting.

    Your post gives us hope.

    Alice the Cat

  • Alicethecat
    Alicethecat Member Posts: 535
    edited August 2012

    To anyone out there suffering side-effects from Taxotere

    I had bad backache, low blood pressure and a fast heartbeat after my first dose of Taxotere as well as a high temperature and got carted into Accident and Emergency.

    It only took a reduction of twenty per cent in the next dose and I had hardly any side-effects.

    Worth asking your onc about whether this could work for you?

    Best wishes

    Alice

  • bcbarbie10
    bcbarbie10 Member Posts: 319
    edited August 2012

    Thank you, alicethecat, for the tip. I am at present having that really bad backache 12 days after my first taxotere. So bad i can hardly move. Will ask my dr if he can reduce the dose.

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