Fear of breast self exam

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TessaMe
TessaMe Member Posts: 26

Hello, I was wondering if anyone else has had to deal with this "phobia"....I don't know what else to call it.

It's embarrassing to admit it here, it seems like a small thing.  But after I get my DX and treatment I want to be able to keep up with my good breast.

But BSE is like fingernails on a chalk board X100. I break out in hives and I just can't get it done...let alone a doc or nurse, male or female, it does not matter. I'm not shy, at all, I could be a nudist. Pelvic exams and Pap smears go fine. But fingertips deep in my breast tissue seems to be too much.  I've left many medical personal frustrated. I'm confused.

What sort of therapy would work? Hypnosis? Talk?  

I know I should just "GET OVER IT" but I do try.

Thanks, Tessa 

Comments

  • RobinJoy
    RobinJoy Member Posts: 191
    edited June 2012

    Maybe if you tried to disassociate yourself from it.  Like if you pretended it wasn't a breast. Maybe nerf ball or something? Or if you looked at it clinically? Good luck with it.

  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited June 2012

    Tessa,

    Do you have a life partner that could do it? 

    Before I went all Stage 4, I used to hit it in the shower when the breast was all soapy. It made it go faster, and I had to clean the area anyway.

    And, I'll bet you your doctor could give you a short-acting tranquilizer (I'm a fan of Ativan) for the monthly BSE. It's not a crutch - it's a tool.

    I do understand your fear. A cognitive behavioral approach would be to just lightly stroke your flesh at first, and then work in stages to get to the level you feel appropriate. Reward yourself for each successful stage.

    Best of luck. And no beating up on yourself for not "getting over it". You've got a lot to deal with.

    Jennifer

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited June 2012

    I think of it like going to have a tooth filled or getting stuff together for taxes. Unpleasant, but has to be done.

    I do mine in the shower and try to push hard. I have had cancer twice and the second time it was really deep inside and had some other lumps next to it which did not feel as hard.

    So remember to push hard against the chest - if I hadn't done that I would have missed it. 

    PS All my annual mammograms missed both cancers so it is vital that we all check every month.

  • TessaMe
    TessaMe Member Posts: 26
    edited July 2012
    Thanks everyone, all great ideas! Smile
  • Janet456
    Janet456 Member Posts: 507
    edited July 2012

    This was interesting for me to read.  I just cannot do it - I give them a quick weigh in each hand, glance at them in a mirror and that's me job done!

    To lighten the mood it did give everybody a chuckle when I was called back, the nurse had to hold me down as the doctor assured me he could do it without touching me!

    My sister then had to sit on my legs for the core needle biopsy and somebody else held my hands as I was thrashing around and squealing like a toddler in full tantrum mode.

    Oh dear - how to embarrass yourself even more than normal Janet :) 

  • Sommer43
    Sommer43 Member Posts: 600
    edited July 2012

    Dogsandjogs

    I had to laugh at the "gettin stuff together for taxes"  I will always associate my girls with filing my tax return now! 

     Tessa

    I have a friend who is similar to you, she gets her husband to do it for her. 

  • TessaMe
    TessaMe Member Posts: 26
    edited July 2012

    @Sommer43

    I can't even let my boyfriend do it and we have tried.

    @Janet456

    I sound like you. With the mirror exam and also I almost broke a nurses hand.Embarassed I was so frustrated I said can you just tie down then! As i was leaving the doc said "sorry bout the torture".

    @blainejennifer

    I'm thinking for us who really have a hard time of it the tranquillizer could be the way to go. I know someone who gets to go to sleep for just a teeth cleaning.  Have any ideas about a reward to use?

    I'm someone who would "rather know" as soon as possible about things but not with my breasts for some weird reason.

    (((Hugs to all))) 

  • anamerty
    anamerty Member Posts: 195
    edited July 2012

    I am a 13 yr survior,but do have all my tests exams checkups etc at my cancer clinic, I am a high risk, had 2 other sisiters with bc one passed at 33 yrs old from it . Had gene testing and have brca1, family all tested positive for it too. I have cysts and lumps all over my breasts, constantly called back for ultrasounds every time I have my MRI and mammos so I pretty much live there, Thhis week had my routine mammos, and even cracked a joke that I don't do self exams, cuz thats how I found my original tumor.I was just there valentines day for followup ultrasound, and only saw a syst, but after my mammos had reg appt with oncol. an hour later, and she found a lump, @the 7 olock so it being pretty much on the lower about where the bra underwire is and so obvious.I almost threw up nothing found in Feb, 1.5 cm found in an obvious spot5 months later.I am so ashamed that I did not do self exam, I am positive that I would have felt it its almost outside the breast. BTW my original cancer was on the oppisite side @6 oclock same again. Really PLEASE do the exams, PS I go for needle biopsy this Wed.

  • TessaMe
    TessaMe Member Posts: 26
    edited July 2012

    @anamerty

    I hope your biopsy goes well and all is good Wed.

    You are right, I should not make it sound like there are ANY excuses for not doing them. They have to be done and they have to be deep and thorough. I know this also, I just had a mastectomy the 26th and I think that if I had kept on top of things I might have gotten away with a lumpectomy. I'm just trying to find a way to keep on top of my right breast. 

  • amanda1116
    amanda1116 Member Posts: 127
    edited August 2012

    Remember that EVERYONE is scared of something.  Seriously.  You don't even want to know how afraid I am of mammograms, sonograms and MRIs.  My now former radiologist told me next time I had one, either do it in Johannesburg or Sydney or tell him and he would move there before my scheduled appointment because I was crying so hard before the test other patients were getting up and walking out.  Okay so I am better now (and have a different radiology practice who are much cooler with freaked out patients) But people who are pretty normal in general are scared of pretty mundane stuff too. Some of it sounds of the walls to others but is completely real to them and that is what matters.  I myself am petrified of cats, too.  And the dish that is a whole fish with eyes and tail in Chinese restaurants (worse, my daughter is adopted from China and we have been back six times in 15 years -- there the eye/tail fish isn't even quite dead when served).  What I do is step back and just try and keep calm and carry on as the Brits said during WW 2.  A mammogram isn't a diagnosis, I have never heard of a domesticated cat killing anyone and well the fish thing: so okay I order the lo mein and recognize that the fish in question is in worse shape than me.  Here's the old adage: feel the fear and do it anyway.  Or as my new radiologist says: "Suck it up" (I swear she says that and she is smiling cause she is right).

    Thing is this, if you really had a true phobia I doubt that you could even speak about it especially on a website like this.  Fears run deep, but they don't run you over.  On a plane have you ever met someone who has a true phobia of flying?  I can guarantee not because those people wouldn't be caught dead on a flight.  

    Do the exams.  Start with an inch or two of boob one day and move on to three inches the next, then four, whatever.  Perhaps that will desensitize you over a few days.  Do them: just think of someone you care about and you are doing this for (ie: so you will be healthy and great for them and your future together whatever that may be).

    Amanda

    PS: I'm sorry if I offended anyone with the cat thing.  Or the fish thing. Oh but man those fish eyes and tail....ugh  

  • anamerty
    anamerty Member Posts: 195
    edited August 2012

    so just to let you know, that doing your own breast exams is vital..I didn't and now 13 and a half years later I was dxed with breast cancer again, Just found out yesterday,I didn't do any exams because I was always afraid I'd find a lump, well my doctor did and sent me for a biopsy, and it was possitive. We are having our civic holiday Monday ,so hopefullly by Tuesday the path reports will be ready, and I can find out just what kind of cancer it is

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited August 2012

    I agree - mammograms are not enough - you have to do the self-exams.  BOTH of my cancers were missed by mammograms. I have had them annually since I turned 40.  (I am now 76) I found both lumps myself.  The Breast Center told me mammograms are only 85 percent accurate.

  • TessaMe
    TessaMe Member Posts: 26
    edited August 2012

    @Amanda

    Thanks so much for the wonderful reply, I will think it through and keep it in my mind, I think i'm just a huge chicken.

    @Anamerty

    So sorry for the news, wishing you the best possible outcome and thanks so much for the encouragment, it means a lot.

    @dogsandjogs

    I'm afrid you are right, you have to get to know every inch of your own breast. I was trying to come up with a plan, like that I could be put in sedation/twilight and have a medical person really feel around and then give me their findings but every breast feels different, right? I wish I was brave like you.  

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited August 2012

    Tessa: Here's what I was told years ago: It is important to check your breasts monthly so that you learn what they feel like. Then if there is a change you will notice it right away.

    That's what happened to me (twice) I felt the usual bumps and dents or whatever and then one time I felt a lump that was completely different. It was hard, had irregular edges, could not be moved around, etc. I knew something was wrong.

    Second time: Hard and could not be moved around. But this time it felt smooth---so wasn't quite sure, but knew I had to get it checked. Sure enough it was another cancer.

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