radiation, no radiation that is the question?
Comments
-
My name is Amber and my partner was diagnosed with triple negative invasive ductal carcinoma grade 3 stage IIa in March of 2012. She just turned 40 in May. On July 24th she had an oopharectomy as she was B1+. We are scheduled for her to have a bilateral mestectomy on Aug 8th. She will have spacers put in and we will not know about radiation until pathology report comes in. At this point we do know that her tumor is 5.2cm. However chemo did shrink tumor significantly. We can't even feel it anymore. SO EXCITING!! I am just here to maybe get some more information if anyone else out there has similar breast cancer. What are our options as far as radiation? Should she do radiation even if they say not too? Thanks for your time.
-
You may want to post this in the Triple Negative forum to get a better response. BCO has some guidelines on when radiation may be appropriate after mastectomy:
http://www.breastcancer.org/treatment/radiation/when_appropriate.jsp
-
Thank yu Deborah for your response. I did post in the Triple Negative forum, however I wanted to spread into other forums to hopefully get more responses and information for this particular situation. again thank you so much.
-
Hi Amber - The link Deborah posted is a great summary of what I was told regarding the need for radiation after a mastectomy. Thanks to better imaging and the ability to more precisely map and direct the radiation than they used to be able to, more doctors are recommending radiation after a mastectomy. My RO showed me studies that found that radiation can cut the rate of local recurrence by 50-70% after a mastectomy. It's great your partner has had such a good response to chemo - did she have any positive lymph nodes before she started chemo? I think now that most doctors recommend radiation for premenopausal women if they even have just one positive node. They may also want to do it because her original tumor was larger than 5 cm and/or because she's triple negative and won't take any antihormonals.
If possible, get an opinion from more than one radiation oncologist. Maybe try to make appointments now so you are sure to get in? I also had chemo, followed by surgery and then radiation, and I was told to start rads 4-6 weeks after surgery. MY RO had already seen me before surgery so as soon as he had the pathology report and my drains were out we set up the radiation simulation and I was able to start my treatment.
Hope the surgery goes well - take care.
-
Hi Mamabee, thanks for responding. She had a syntenial lymph node biopsy in the beginning of all this and all was negative. They did say that can change so I guess we will find out on the 8th of Aug if it has stayed that way. I am hoping and praying that it does. I think we will look into getting more than one oppionion. I do know that we have a great team of doctors we are with the Siteman Cancer center and so far they have been absolutely amazing. Was radiation hard for you? Is it worse than chemo?
-
Hi Mamabee, thanks for responding. She had a syntenial lymph node biopsy in the beginning of all this and all was negative. They did say that can change so I guess we will find out on the 8th of Aug if it has stayed that way. I am hoping and praying that it does. I think we will look into getting more than one oppionion. I do know that we have a great team of doctors we are with the Siteman Cancer center and so far they have been absolutely amazing. Was radiation hard for you? Is it worse than chemo?
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team