CT scan with liver and lung abnormalities
6 years out from stage 1 BC DX. ER-/PR-/HER2+, no node involvement and no vascular invasion. Lumpectomy, radiation, chemo, year of Herceptin.
Onset of left-sided rib pain a few months ago. Onc ordered bone scan and chest xray. Nothing found in area of discomfort on left side but abnormal findings in right lung/rib area on both studies. Followup MRI this week shows area of concern in both liver and lung. (See below). I always get my reports faxed to me so I read the report this afternoon without the benefit of my onc having seen it yet. Hindsight 20/20, maybe that wasn't such a great thing to do! Hyperventilating now and trying to find a way to get through the weekend until I can talk to him.
Lung: "Parenchymal lesion posteriorly in the right lower lobe abutting the pleura measuring 14mm x 11mm. Margins somewhat irregular and streaky densities extend from this density toward the pleura and anteriorly. Within it there is a tiny low density area, question necrosis. There is a suspicion for malignancy. Tissue dx is suggested. Alternative dx is pulmonary infarct."
Liver: "Low density lesions in the liver which are indeterminate. Further eval of the liver by MRI is recommended."
Blood work is normal re tumor markers, liver enzymes, etc. I feel fine with no symptoms whatsoever, other than the rib pain on the left which started this whole round of tests and which is still not further defined.
I want to find some positives somewhere. I don't want to think the worst, but I find it particularly unnerving that the radiologist used the words "suspicious for malignancy" re the lung versus "indeterminate" which she used re the liver. I had hemangiomas show up in my liver at my initial staging, so I'm hoping that's what the liver lesions turn out to be...but I've never had anything show up in my lungs before.
I know no one on the boards can tell me anything definitive...but has anyone had these types of CT results with a benign outcome? I really need something to hold onto this weekend.
Comments
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Hi sundance,
You are farther along I this journey than I am (3 + years for me) but I have had my share of false alarms. In my initial work up a CT scan turned up a spot in one lung. I have had four subsequent CT scans and one PET scan, all of which are inconclusive. I have decided I am at more risk from the radiation from the CT scan than from whatever the lung spot might beThe worst false alarm was when the radiologist, reading the lung CT scan, noted a "lytic" lesion on my shoulder blade. Everyone thought I had bone mets but turned out it was just not too old damage from an injury. But they had me really shook up for a brief spell. I am supposed to have another PET scan in august and I have no faith that it will rule in or out anything. Sometimes I just feel as if these scans are being ordered to increase revenue for the hospital. I don't meanto be cynical but it is obvious that my oncologist and my pulmonologist get "credit" for ordering tests. I'm sure I would be disgruntled if my doctors would not order scans but I guess my expectations of a definitive answer are not realistic.
Anyway, all that is to say... So far, in spite of several false alarms, it has all been just that... False alarms. I hope that is true for you too! Good luck and hugs. -
Hi Sundance:
While getting pre-op work done for lumpectomy, a "spot" was found on my left lung. My Momma died of lung cancer in 2006 and I am a former smoker that quit when I had the beginnings of emphysema on right lung in 2002.
Spot on right lung from 2002 was gone, this was something on my left lung! Next day was sent to CT....indeterminate but also suspicious since I'm a former smoker.
Doctor set up PET scan that was done 3 weeks after my surgery. PET did not show it "lit up" and diagnosis is granuloma.....basically granular tissue that can be caused by repeated infections, enviromental reasons, etc. My MO says probably 90% of people have it from time to time in their life but sometimes it never "goes away". I've had 3 other CT's since there so we could "watch" to see if there are any changes.
I'll have another in August and MO said at my last appt that if there were no changes this time "we'll leave it alone" for a longer period of time since I've been scanned enough. So I'm looking forward to putting this behind me.
I'll pray that your results are good....don't second guess what the radiologist says.....I know it's hard to not worry but try to do things that help pass the time AND stay away from Dr. Google, lol
God bless you,
LaDonna
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Thank you for your responses, pj12 and FilterLady. I've tried my best to stay away from the Internet today other than to research lung tissue biopsies since that's what the radiologist is recommending. I want to be somewhat informed about next steps when I speak with my doctor on Monday. I so hope this turns out to be a false alarm. If it does, I've had one heck of a wakeup call this week about what I've been doing with my life for the past several years. It's time to make some changes....that's for sure. I just hope I'm going to remain healthy so I can make those changes. And if it's not a false alarm, well, I guess I'm going to be making some lifestyle changes of a different type. I'm really trying not to let my mind go there...easier said than done, though. Since I read that report, it feels like I'm barely breathing at times. I get uncontrollable shaking out of nowhere. I have an overwhelming sense of dread and an incredible feeling of loss. I hate feeling this vulnerable. I'm so not ready to deal with any of this.
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Hi Sundance, Can you call your Onco and get an antianxiety pill or something, take walks, go to a movie . get a massage; something to get your mind off that report.
Praying for you its nothing. I feel for you as I have a lung issue they are watching. I'm glad your doctors are taking the right steps and taking good care of you. Keep us posted.
Hugs
Bevin
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Thought I would post an update. I spoke with my onc, who was as reassuring as he could be under the circumstances but who obviously can't give me clear-cut answers at this point. Mets can't be ruled out based on the CT scan, but they aren't a definite at this point either. He scheduled me for a PET scan on Monday morning at 7:30. And he looked up the results of my initial staging 6 years ago and said that the liver esions that are showing up today appear to be in the same area from back then...and they were hemangiomas, so it's quite hopeful that that's what we're looking at again. Re the lung, he said when I had a severe cold in late May with horrible coughing fits, it could very well have been pneumonia or bronchitis and not just a cold and the lesion could be a slowly resolving area of infection. So at least there's a chance that both sets of abnormalities could be benign conditions. I'm holding onto that.
And I have to give my onc a shout out. He's such a dear, sweet man. He was in his car driving home for the day on Monday when he called me to discuss my test results. I had had two studies done...a cervical MRI and the chest CT. His office staff had only given him my MRI results, which were normal, so when he called me he thought he was calling with good news. When I reminded him that I had also had a CT and that those results were questionable, he actually turned his car around, went back to his office, located the CT and my prior studies and called to discuss everything in more detail. He chastised me (rightfully so) for getting the test results sent to me and scaring myself and then he gave me his cell phone number to call him if ever I get that upset again. He's well past retirement age but is working still because he believes in what he does. He has such empathy for his patients and is such a great person. I'm fortunate to have him on my side.
Now I just have to keep praying for good results next week. I fear it's going to be yet another long weekend. But I'm calm. I'm trying to just live my life as normally as possible between now and Monday.
I guess I should figure out how to put my stats after my signature and start functioning as a "real" member of this board. I've checked the boards off and on over the past 6 years but have very rarely posted. I think I need to be a more active member of the community. It feels good having someplace to "talk" to others who understand BC and what it does to a person.
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Hi Sundance:
What a wonderful doctor you have.....I also have been blessed with a lot of medical professional that give me a "warm fuzzy" whenever I see them.
I am praying for good results for you next week.
These boards have been a gold mine of info and support for me. Each one of us has something to contribute and I don't post a lot but feel that if I can help just one other woman, it's what I need to do.
I wrote an article for our military associations newsletter about my diagnosis and treatment and we are in Norfolk for our reunion and there have been 2 women that read my article and decided that they should get a mammogram since they had been putting it off for a few years. Thankfully, everything was okay and I'm so glad that I was encouraged to write it.
God bless you and please come back and let us know your results.
LaDonna
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Sundance, I'm so sorry that you are going through this - I will be praying for benign results for you! Your onc sounds awesome, though - I'm pretty jealous. I can't even get an e-mail back from mine. I'm going to switch. Glad you have someone who cares so much about you!
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My brother (a pathologist) tells me that we all have lumps and warts and bumps inside and due to my disease, I get to see them and that I should not take every little comment in scans to heart until proven otherwise. Course, this does not stop me from worrying but it helps. Hope everything turns out to be benign.
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Sundance - sorry you are having to go through this. Not sure if this will be any help, but my dad was diagnosed with some kind of mysterious nodules on his lungs - they were afraid they were cancer. They were not-they were from bronchitis and chest colds years ago. They did show up in a scan, I believe.
Whenever we have cancer, we are watched like hawks. I know how you feel as I'm waiting for a repeat of my bloodwork from last week - I had an elevated CEA level and my doctor wanted scans right away. I told her no - I wanted to repeat the bloodwork three weeks from the time it was and then we'll go from there. I'm not anxious to get in there and get scan after scan unless/'until it's warranted.
I get the panicked feeling too - I hate it. I hate going along and I'm fine and then suddenly it kind of overtakes me, like it's been following me all day and has sneaked up behind me. You feel like you can't breathe and you just want to go off by yourself and cry. I have taken Ativan twice this week. If it doesn't knock you out, I would certainly recommend it. Even .5mg is almost too much for me. I took some this morning and I'm wiped out. But at least I'm not panicking...
Hang in there - be thankful you have a good doctor. I too, have a really responsive doctor -I texted her and she called me back within 30 seconds the other night. It's good to have a doctor like that on your side- it does reduce the anxiety.
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My mother recently had a ct/pet scan. We had not heard anything back from her oncologist as of yet but I entering some information for her on "mychart" the online system that they use and we noticed that her results were listed. Now that we have read them we are concerned about one paragraph and were not really sure what it means. I am going to write what it says and if anyone can help me out with this I would really appreciate it.
"No discrete hepatic lesion is identified on this noncontrast CT Exam, however, there is a small focus of increased metabolic activity within the right hepatic lobe adjacent to the fundus of the gallbladder and has a SUV of 5.4.
Thanks in advance for anything you can tell me....
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4ever4mom: I don't have any information for you but I read your post and wanted to at least respond and let you know I'm thinking of you. I can understand how anxious you are for your mom and I hope you've had a chance to talk to the doctor by now to get some answers. I don't know much about PET scans...I just had my first one ever this morning.
I think you may not have received any responses because your post was mixed in with my thread and wasn't very visible to others on the boards who might have been able to help you. Sending good vibes to you and your family.
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I wanted to come back and post my results to close out this thread. My PET scan this morning came out 100% normal...no areas of concern at all!! I don't know what the radiologist saw on the CT last week, but at least it's not mets!! I feel like I can finally breathe again. I don't know if anyone is out there reading this who might also be waiting on test results for lung/liver concerns similar to my original post...but just in case, I wanted to share my positive results so it might give another person in similar circumstances reason to believe they'll be okay. Questionable findings can absolutely be benign!!
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Yayayayayayayayayayayayay! (Did I mention yay?)
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Sundance.....
I'm doing the happy dance for you!!!!!!!!!!!! Great news!!!!!!!!!!
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That is great news! definitely good to hear these things!
As far as my Mom we are still not sure and more tests are needed, but the results do not look so great. The onlcologist has still not sat down and explained the findings at all. Needless to say we are in the process of switching doctors and hope to have a more compassionate one that actually returns calls very soon. We let him know that we didn't feel it was appropriate to receive news the the cancer has metastasized to the liver via email and he wondered why?
This site is new to me and I guess i really don't know what i am doing as far as where or how to post.
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Great news!
I was wondering how many times do you have a PET scan and a CT scan? My oncologist wants one every year. Is this too much?
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Hi vickilf! I'm not sure what other docs do but I can speak for my doc. Ever since I completed my active treatment, he's seen me for routine exams, first every 3 months, then every 6 months, and now once a year. I'm 6 years out from my initial dx. At each visit, he does a basic physical exam, including a breast exam, and he obtains blood work. Unless I have symptoms, he typically doesn't do anything else. On my annual exam this year in April, I described a persistent pain in my left side and that prompted the round of tests described in my post above. If I hadn't mentioned the pain, I wouldn't have had the xrays or the CT or the PET scan. I believe most docs handle routine checkups in that manner once you're out of active treatment. With your stage 1 dx, I'm not sure why your doc would do routine PET or CT scans without symptoms...maybe others will chime in to give you additional input on that.
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Sundance:
So very happy to read your update post. God bless, sweet sister - what a wonderful relief for you and all those that love you. Know only too well what it feels like to have that 1,000 lb. weight lifted from your shoulders.
Linda
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@vickilf: Just realized I DID leave out annual tests...Can't believe I forgot to list them! I get a diagnostic digital mammo once a year in the spring and a breast MRI once a year in the fall, so I DO get two diagnostic tests each year at 6-month intervals. Not PET or CT, but certainly tests. Can't believe I left them out of my message...what was I thinking...Yikes!
@Linda, filterlady, sweetbean: Thank you each so much for your nice comments. I don't think I'll ever take a day of good health for granted again. This scare was truly a wakeup call for me. I let myself get too complacent over the years...I won't do that again!
@4ever4mom: I'm glad you're considering seeing another doctor. My doctor is so empathetic and so responsive...it makes all the difference in the world. I truly hope you find someone that will meet your mom's needs. I know these must be very scary times for you, but things should get better when you have a plan in place. You are a wonderful daughter to be so concerned about your mom to take the time to post on these boards. I'm sure she appreciates what you're doing for her. Hang in there....and let us know how you make out in the coming days.
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Vicki, I agree with Sundance. Annual scanning other than of breasts seems to be in excess of standard of care for stage 1. All that exposure to radiation might not be good for you and it's unlikely even that your insurance would pay for such frequent scanning.
You may want to clarify this with the doctor. You can also post a separate question on the stage 1 and 2 forum here for other opinions. -
Hi ladies ..i am waiting for a CT scan..to be done next week..back in April a 10mm and 5mm node was found in each lung..i then went on to have 2 doses of EC of which i was hospitalised both times..so it was stopped! I then went on to have a full mx with full lymph node clearance ..on the 4th July..since then i have had ..this week 2 lots of 400ml and 450ml drained and now taking antibiotics...I am Metaplastic..Triple Neg..Spindle cell...wrongly diagnosed in November last year!
If i am told that it is lung cancer..i have been offered 12 weekly doses of Taxol..has anyone had this chemo please? If so ..what was it like? It will mean hair loss again..and a PICC line putting in..yuk!!!
Are there any other treatments ..or chemo taken orally?
Dulcie xxxx
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Today we went in for my Mom's first Chemo. My Dad took her and I was planning on coming just a bit later when i could get a sitter for the kids. However, Dad called and told me to come right up because the Doc wanted to talk to us. I guess the CT scan came back and although we were mostly worried about the liver, it actually showed several spots on the spine, hip, lung and the liver. Of course we were all shocked and then had to sit in that little room for 3 hours and try to act calm. Really i wanted to scream. Anytime we have been told that it was just a precaution, we have ended up with worst case scenario!! Here is my Mom sitting there looking so healthy and so beautiful. I just can't believe she is this sick?? how did this happen?
So the plan...... I tried to call Sloan Kettering as soon as i got home for a second opinion. I have been begging my Mom to do this since we first found out it was in the lymph nodes. She now agrees that this is the route we should go. We have also switched Oncologists and my mom is so happy with this change. Waiting for more tests on the liver and then waiting to see what effect the chemo has. I hate all this uncertainty. Does it ever end, do you ever have real answers?? -
Sundance, thank you for sharing this experience. It did help me to read your happy ending. I had a spot show up on one pre op x ray last week (BMX on 9th). So...I have CT scheduled bright and early Mon am. Hate this feeling so much. Told myself in the beginning I am not going to let waiting freak me out and I did well going through all of the diagnostics, path, onco, BRCA testing. Now this. it feels different. Gotta get used to this stuff, it's just hard.
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Beckers....it is hard and it sucks!
I'm praying for good results for you.
God bless you,
LaDonna
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Thank you Filterlady.
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My daughter sent me this link to help relieve my anxiety. I am almost 5 years out of chemo for triple negative breast cancer. A routine xray showed a dense area on my lung. a CT scan could not determine the cause of the area. Will be seeing a pulmonologist but have to wait 3 weeks for an appointment. Reading these posts will help me have a more positive outlook. Thanks
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@freecellfan: Sounds like you have a wonderful daughter in your corner! The waiting and the fear of the unknown are always so hard. There are lots of different reasons for things to look out of sorts on scans...more of them benign than not. But with a history of BC, we tend to get anxious when something doesn't look quite right, which is an honest reaction. Try to focus on just living your life between now and the appointment...and come back and let us know how you make out. I hope the three weeks goes by quickly for you.
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Freecellfan:
So sorry that you have to go through this - it's absolutely a terrifying thing to have to go through, but please know, you are not waiting alone. While we can't take away the trepidation you are going through while you wait, just know that we are waiting with you. Lots of hands holding on to yours!
Linda
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I will pray for you this weekend and I'm sorry you have to go through this all again. I am the same diagnosis as you were/are and this scares me to death that I know deep down, I will too go through this again someday..it's just a matter of time. Just something about being Her2+++, it seems like I see so many recurrences. Stay strong and try to keep yourself occupied this weekend (I know, easier said than done). GOOD LUCK and please, please keep us posted.
Sandra
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