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  • Momine
    Momine Member Posts: 7,859
    edited July 2012

    Purple, do consider adding some fish to your diet. I try to eat sardines or similar fish a few times a week. Good oils, good protein, and if you eat canned sardines with the bones in you get a dollop of calcium as well.



    I will also ditto the exercise advice. In all the reading I have done since my DX, the value of regular exercise jumps out. The beauty is that exercise will help with all your concerns, circulation, bones and cancer recurrence. Sometimes I think we get too focused on magic tricks, be they letrozole or some exotic pill from the health food store. I am more and more inclined to think that they key really is a healthy, decent moderate diet and lots and lots of exercise. Not that it can guarantee a cancer-free future, but in terms of helping ourselves it may be the most effective approach. It takes commitment though.

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    Good point Momine,

    I love salmon., I rarely buy it because I am the only one in the house who likes it - must just ask the butcher to cut 1/4 pound.

    Believe it or not, I have  had a  100% turnaround in diet since my DX , believe it or not !  At least now, all my carbs are good one.  I was a sugar junkie before with cookies and  the like being a daily treat.  I never passed by a candy dish in the office unless it was to fill it.  Now , I stay 100% away from all of that and nothing white ...nada .  Havent touched a drink since my DX either. Would have thought nothing of going to a restaurant on the weekends and having 2 or 3 mixed cocktails with dinner.

    I really am committted , and it has been a big turnaround. I just need to get more protein and veggies in and less fruit, I think.  Maybe some more eggs would help as well.  Recently bought some cage free ones , but never think of them in the mornings before work!

    Thx very much- esp. for reminding me of that delicious salmon!

  • Momine
    Momine Member Posts: 7,859
    edited July 2012

    What you can do is have the fish monger cut the salmon in portions. Then pop them in individual baggies and freeze. I keep salmon portions in the freezer and just chuck the frozen fish directly in the steamer with some veggies.



    For eggs, I make buckwheat pancakes. A cup pf buckwheat flour, two teaspoons baking powder, pinch salt. Stir. Separately beat a cup of kefir or buttermilk (I use a goat one) with two eggs. Fold wet into dry and you are good to go. I usually also add chopped or slivered nuts, some cinnamon and some berries (frozen). You can make the batter in the evening and cook in the morning, or make a double batch, cook all the pancakes, freeze individually and pop in toaster in AM before work. You can eat them plain or drizzle a tiny bit of honey or syrup on top.

  • Mini1
    Mini1 Member Posts: 1,836
    edited July 2012

    Purple - 15 years is a long time. They may not have been as aware back then about many of the things you mentioned. As the earlier poster said, what is in one year is out the next. And as I think we have all learned, we have to be our own advocates. Some Docs/mecia facilities buy into a certain philosophy and stick with it, facts to the contrary be damned. All we can do is try to stay informed and do the best we can with the info we find. :-)

  • autism_mom
    autism_mom Member Posts: 184
    edited July 2012

    Mimi1

    If you lived on Mountain Dew you would HAVE to live on Ho Hos cause you wouldnt have any teeth left to chew anything else.  LOL

    Sorry for butting in...that statement just cracked me up!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited July 2012

    I do just as momine does. I love salmon but it is often just myself or dd for dinner. When I find a good price on quality salmon, I buy a decent quantity and freeze it. Tastes just as good, IMHO. I also like it cold. It is delicious as part of a salad with either an Asian style or citrus based dressing. Happy eating! Caryn

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    Yes moni , 15 yrs is a long time, but I can assure you I have been to endo drs during that period- ones who were remiss in not explaining the connections.  Trust me, I AM my best advocate. You will note that I research thoroughly and get lots of opinions and then follow up on my own before anything else.

    Momine

    That sounds delish ... Thanks so much!

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited July 2012

    My sweetie and I catch salmon every summer here and I eat it year-round, although he is less fond of it now. I like it poached gently best and then eaten with olive oil- sauteed pepper slices, onion slices, mushroom slices, and some lemon juice....

    I also liked the salmon that Costco used to sell, which was wrapped in flaky pastry with an interesting artichoke and lemon paste inside the pastry, but I could only get that when I was traveling to where there is a Costco, and they seem to have stopped offering it. I'm still trying to replicate it on my own....

  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2012

    AA - have you tried artichoke tapenade on the salmon, then wrap in puff pastry and bake?  What you described sounds delish!

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited July 2012

    No I haven't, and I'm looking it up now online....  THANKS!!!  I'm planning a celebration tonight with salmon, as it is the 10th anniversary of my 6th (final) chemo treatment 10 years ago! 

  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2012

    Let me know what you find, and happy celebration!

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    CONGRATS, AA.

    Happy Celebration!!!!!! Laughing

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited July 2012

    That is a great reason to celebrate!

    Caryn

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited July 2012

    Thanks! It seems like yesterday, and yet so long ago....

    BTW, another ingredient in the Costco version was a bit of sliced jalapeno, which gave it pep!

  • AMP47
    AMP47 Member Posts: 200
    edited July 2012

    Purple - be cautious about interpreting the study.  The key words come into play at the bottom recommending further study needs to be done on the assumptions.  

    It is a 1996 study - there should have been some newer studies or assumptions made.  Your Dr. might be aware of this study and waiting for the recommended further studies that discuss the original assumptions of the 1996 study.  

    As far as being your best investigative research analyser for your condition , it is important to stay on top of the new research being done on any condition you might have.   As much research as I have done, when mentioned to my doctors, he was already aware.  Doctors receive many faxes, email, and updates on the newest research, everyday. 

    Hope this helps. 

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    It's not really even about interpreting the study, AMP.

    Sometimes ancedotal evidence should be looked at.  When I come on a  forum of this many women with BC and see so very many with thryoid issues, it is worth noting.

    I'd like to think that my DRS know  a lot more about this correlation than I do and should be SHARING it with pts for possible prevention as well as TX.

    For instance, I as just about ready to start taking DIM after asking lots of people here about it, researching etc ... Then I read that to take a large amt of cruiferous vegs., could be goiterous , it stopped me in my tracks.  My BC DRs and/or endo DR  (IMHO) all knowing I have thyroid issues and a goter should have told me there may be a correlation and therefore, consult them or be cautious when it comes to .... whatever.  Not well written as I am rushing off to work, but I hope you get my drift.

    In any case, I have since emailed my endo dr ( app 2 weeks ago) but no reply,  NOT at all surprising since I was emailing abiut a supplement which I guess it not her area, but it would have been nice to just get a reply saying " Rather not comment- not my area."  But no reply at all.

    With all of my 'conditions', I have seen a few good drs. through the years, but by and large, for the most part, the drs I have seen were not very caring OR very smart. 

    I have to wonder how many illnesses could be prevented  or treated sooner if DRS were more forthright in sharing medical news- even if  by distributing informative  pamphlets if they didnt want to waste a lot of time talking.

    In nearly all cases of things I have been DX for, I myself have had to INSIST upon testing as DRS said there was no need.  (DOH!  You DO have osteopenia .  OOOooops ...you DO have copd etc etc etc ..)
    I guess I am a little weary of being my own DR without the RX pad.

    Thank God for my BS- a skill I do not have .

  • AMP47
    AMP47 Member Posts: 200
    edited July 2012

    Purple, In the beginning, I felt like you, a surgeon let my lump go for over a year, even though I told him, after removing a cyst, there is still something there-no worries it is just a scare from removing the cyst. Consequently, my DCIS turned to invasive.  

    I was told by a top rated RN administrator, to always stay on top of my health and do not leave it to a doctor.  She was right.  

    After my diagnosis, having a strong background in research and statistics, I brought up different studies to my surgeon trying to nail down stats that pertained to me. 

    He said to me one day: your chances of living a long time are good to excellent, recurrence risk is either 0 or 100, the studies you are reading are not about you, studies are based on large groups of women who are all different in some way, the stats used to determine survival are very old stats, get on with your life and enjoy living.  Took me back alittle.  But, was very good advice. 

    AMP 

  • Momine
    Momine Member Posts: 7,859
    edited July 2012

    AMP, my docs have basically told me the same thing. Although my cancer was far more advanced than yours, they said that I still have a really good chance of living a long time, and to go forth and enjoy. They are right and I do my best to follow the advice.

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    recurrence risk is either 0 or 100,"

    AMP>...My PCP pointed that out .  I get it.

    The thing is, I'm *guessing* that you had  some kind of TX for your BC. I have not. I feel like I need to DO SOMETHING in order to at least feel as though I have tried to prevent recurrence. No rads, no endocrine therapy + new dx = still on the front burner.

  • DianaNM
    DianaNM Member Posts: 281
    edited July 2012

    Purple, my aunt had breast cancer when she was 45. She is now 90. She had a mastectomy and did wind up with lymphedema. But she had no rads, no chemo, no HT and she is still kicking. I take solace in that.

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012
    DianaNM

    Guess I would too if I had a  mastectomy!  ( no sarcasm in this tone btw)
  • AMP47
    AMP47 Member Posts: 200
    edited July 2012

    Momine - good to hear your doc's have a long forecast for you.  I was to afraid to believe them in the beginning, but now that I am approaching my 4th year, I have adjusted to living with this disease.  

    I tried AI's but had to stop at 3 years in.  Side effects were pretty horrific.  Started swimming and training again and it has made all the difference in the world in my perspective.  Since I am unable to take the AI, I hope the exercise keeps everything in order.  

  • AMP47
    AMP47 Member Posts: 200
    edited July 2012

    Purple - you have a very good diagnois.  I know several people with dx's more advanced than your's who refused all treatment and they are doing very well lumpectomy only.   

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    HI Purple 32,

    Have you checked your pH or body's level of acidity.  Osteoporosis is a side effect of being too acidic.  Also a BIG NO NO for anyone with cancer of any kind is drinking soda, bottled water, reverse osmosis water & distilled water also cause osteoporosis, and city water.  I have read many City Water Quality Reports and they all warn anyone with cancer, along with other conditions, NOT TO DRINK CITY WATER.

    Back to the soda and bottled waters - don't drink them.  They are highly acidic.  Soda has the same acidity level as battery acid.  So very bad for any and everyone.  There is more to this than I can explain here.  I have explained it all in detail on Cancer.DrNoreenPicken.com if your interested. 

    If you go to the city website you might get your water from, they probably have a page called their Water Quality Report.  Check it and see if they warn cancer sufferers about drinking their water.  As you probably already know, chlorine and fluoride are very unhealthy and actually dangerous for healthy folk and even worse for those who's systems are compromised.

    There are a lot of other non-drug approaches you can look at but first check you urine or saliva pH and let me know what you get for results.  My email address is talktonoreen@gmail.com if you want it. You can usually get  pH test strips at a drug store. I will have to check Walmart and price check them.  

    That is a good start and jumping off place, if this is a direction you would like to investigate.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    Just wanted to add a note to the Mountain Dew drinker - DON"T - Sodas are extremely hazardous.  They are extremely acidic at 2.5 pH which is the same as battery acid.  That high level of acidity causes untold diseases.  There have been studies decades old that show a direct link between an acidic body and heart disease, osteoporosis and cancer.  The problem with soda is not as much the sugar as it is the acid.  Some folks think that soda gives them energy from the caffine or sugar. Reality is the rush of energy is adrenaline which comes from the adrenal glands getting assaulted by the acid in the soda.  If anyone needs more verification of this, I'd be glad to provide it.

     Just as an FYI - normal health human pH should be 7.35 to 7.45 or slightly alkaline

  • ananda8
    ananda8 Member Posts: 2,755
    edited July 2012

    DrNoreen

    I would greatly appreciate if you would supply links to sources for your comments.  For example, you state that sodas have the same pH as battery acid.  This statement is absolutely false. Pure water has a pH of 7.  Orange juice and soda have a pH of 3. Battery acid has a pH of 0. Spilling soda on a person causes a wet mess.  Pouring battery acid on a person will cause 3rd degree burns.

    Since pH is a logarithmic scale, each number represents a 10-fold increase in acidity. Using numbers to illustrate this point.  The higher the number the more acidic the liquid.  http://www.sciencebuddies.org/science-fair-projects/project_ideas/Chem_AcidsBasespHScale.shtml

    Water  =                         1

    Soda    =                10,000

    Battery Acid =  10,000,000

    Wrong information can have very serious consequences.  Please take care to see that your information is correct before posting. 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2012

    "Dr" Noreen PHD? No real medical training?

  • Mini1
    Mini1 Member Posts: 1,836
    edited July 2012

    If you can't drink city water, bottled water, reverse osmosis water or distilled water, exacty what is left? I agree with the sodas. If I could go back and change anything, it would be to never have lifted a soda to my lips!

  • ananda8
    ananda8 Member Posts: 2,755
    edited July 2012

    Here is a link to information about water filters.  http://www.ewg.org/tap-water/getawaterfilter

    To find out what contaminants one may have in the city water, Google "water quality report city state".  DrNoreen was correct about that advice. 

    My city water is excellent but I have lived in cities where the water was very bad.  Here is a link to the 10 worst cities for contaminants in drinking water.  I was shocked to find San Diego was on the list.

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