May 2010 Chemo

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  • packjen
    packjen Member Posts: 281
    edited July 2012

    Ladies,

    I have been checking in from time to time but have not posted in a few months.  Sorry for that but I am trying to concentrate on everything going on around me.  

    Kim, I am sending "angels on your body" (long story, don't ask, but it's a good thing) for your surgery tomorrow.  I will tell you that I had tumors in only one breast but opted for a bi-lat mx.  I got a little push-back from the surgeon, but I stood firm on my decision.  It was very important for me to be symmetrical.  I had always been small and never liked wearing a bra.  Now I will never have to wear one again! I got immediate reconstruction with tissue expanders (which suck -- very uncomfortable) and a year later got them replaced with silicone implants.  Later I got 3D nipple tattoos, so my mounds are smooth but appear to have nipples.  I'd say I am fairly happy with the results, but it will never be the same as having my sweet little titties back :(  You lose a lot of the feeling when you lose the breast.  The nerves don't ever really grow back.  And they are much firmer than I would like -- esp. my rads side.  I always say that if my butt jiggled a little less and my boobs jiggled a little more I'd be perfect!  Anyway, it was important for me to know that since I was having the trifecta (mx, chemo, rads) I was doing everything I could do to get rid of the beast.  I didn't want to be second-guessing myself a few years down the road if I got cancer in the 2nd breast -- and no waiting for the proverbial "other shoe" to drop.  Anyway, sweetie, my angels are with you tomorrow.

    My life is pretty "normal" -- if you can ever call life normal.  I am still going to school, deep into the Court Reporting program.  People ask me about it and I tell them it's the hardest thing I've ever done -- and I've raised twins and beat cancer!  Court Reporting has about a 90% dropout rate!  It has been compared to trying to learn to become a concert pianist and having to pass a test every day at 95% or better.  It's neuro-muscular training and takes practice every day.

    Besides that, my girls are turning 10 this weekend.  We are having a Movie Star Mystery sleep-over party.  It should be loads of fun.  I was able to borrow a bunch of Oscar Party decorations from a friend.  Each girl has a character she is playing and when they show up for the awards ceremony the golden statue will have been stolen!!!  Then they have their scripts to read and based on that they will have to figure out who the criminal is.  After that it will be pizza, popcorn, cake, movies, giggling and sleepover time.  I can't believe my kids are 10.  My hubby and I just look at each other and say "we're past the half-way mark".

    My girls will be flying back east by themselves this month to stay with their aunties for over 2 weeks!  Larry and I are going camping in Idaho -- just like the old days.  I just want quality time with my four-Hs (hubby, hammock, hotsprings, huckleberries).  Yay.

    After that we are planning to take a month in Dec/Jan and go to Guatemala and Honduras.  We will start the trip with a week in Guatemala staying with a local family while we attend Spanish immersion classes every day.  Then we have Mayan ruins, jungles and beaches on the itinerary.  This is to celebrate my 50th birthday and the fact that the girls will soon be at an age where they don't want to spend this much time with us.  This may be our last chance!

    Kim and Denise, you are at wonderful times with your upcoming milestones -- wedding and baby!!! -- I just wish you were both feeling better and able to enjoy this time more.  They are both stressful blessings.

    I hope all you other May-Warriors are doing well.  Both those who keep up with the postings and those of you who just lurk.  My love to you all.

    Jennifer

  • patricia48
    patricia48 Member Posts: 121
    edited July 2012

    Hey May Warriors,

    Happy 4th to all of you! I am just hanging out with Lilly today. She is so much company to me. I have been sick this past 10 days, with sinus infection, so I have been pretty reclusive. I sure do not want my granddaughter to get this!

    Packjen, your girls are growing up! Their party sounds like so much fun, as do your vacations! I hope you all have lots of fun! It is great the girls get to spend time with their aunties! My sister does not have grandchildren, so she loves to come spend time with mine, and of course my daughter loves being an aunt to them as well! This month we are going to fix me a sisters room at my house for sleepovers! They are only one and two and a half, but they love to come to Mimi's house Lol

    Denise and Jen, thanks for sharing about your decisions about double mastectcomies. I guess we all second guess some of the decisions we had to make at such a trying time.

    Kim, I like the aw you are thinking. I think it is always best to think positive, and only deal with what you know right now! I other wonder how anything, including us, would survive what we went through with chemo, rads, surgeries..... But we are strong women and we know how to fight! We are changed in ways that it is hard for others to understand. Sometimes I dislike all the "little" discomforts the most, like the lymphodemia, prostheses, aches and pains..... They all add up to aggravation!

    It is always great to hear from all of you.... I will always wonder about all of us, praying we are all okay. Kim, prayers continuing to go out for you. Keep us informed! Jen, good luck with the court reporting, that is what my siste did for many years, then went to law school at age fifty. Lol.



  • Shrek4
    Shrek4 Member Posts: 1,822
    edited July 2012

    Kim, keeping my fingers crossed for you today. Big hugs.

  • patricia48
    patricia48 Member Posts: 121
    edited July 2012

    Prayers and many good wishes for you Kim!

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited July 2012

    THANKS everyone!  I survived that surgery.  The pre-op needle placing a small metal wire into the breast so the surgeon could know where to operate was a ROUGH one!  Amazing how much we put our bodies through!  I closed my eyes and tried to picture what my grandchild would look like and how he/she would be running and laughing in the future -- kept my mind off what was going on there!  WHEW!  I'll know the outcome of the tissue sent to lab sometime this coming week.   The surgeon told my husband it was about the size of a quarter.   I got good drugs so I've been loopy yesterday and today. 

    Hoping PackJen will post some photos of all those trips -- sounds wonderful!  Thanks for the love from you all.  I "think" I have my mind wrapped around the image of just dealing with the news if it comes out that I will have to have the breast removed.  For now, I am just relaxing and letting it be.  No matter what I still feel blessed because even if the breast goes -- I still will have had less on my plate than many others!  Will let you all know!  Much love!  Kim

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited July 2012

    My grandbaby came 3 weeks early yesterday -- a little boy -- Dylan Walton Dryden -- weighed 6 lbs. 1 oz (19 inches long).  Mom / Dad and baby are doing fine.  :)  What a happy Sunday for us all.  Tomorrow I hope to learn about the tissue taken.  UGH!  Did check with work and my short term is available again -- not a problem should I need it.  Hoping it is scar tissue but somehow I can't quite figure out that can be.  Hope you all are doing well!

  • patricia48
    patricia48 Member Posts: 121
    edited July 2012

    Congratulations on your grandbaby Kim.  I know it must have been a very happy day for you.  What joy for your family!  I am praying for good results from your tissue analysis.   You are a strong woman with so much to offer your friends, family and everyone..

    When I have fears and uncertainities,  I visualize being in my granddaughters lifes, as they grown and become young women.  This keeps me going past my fears and uncertainities.

    Keep us updated on your grandbaby and send us a pic!  We want to celebrate with you!  

      

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited July 2012

    NO CANCER -- calcification -- no cancer cells!  Lord, I had a nervous breakdown this morning and didn't go into work because I knew I would hear something today about that tissue removal from last Thursday.  Anyway, I am at work now and trying to get focused.  Roller coaster ride -- exhausted.  so tired but relieved.  Thanks for the love! 

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited July 2012

    Yay! Big hugs to you, I am so relieved! Now you can enjoy little Dylan's arrival in this world, and you can enjoy life even more!

  • njbhwgirl
    njbhwgirl Member Posts: 295
    edited July 2012

    KIM:  Oh so so happy for you!  Such great news! And even better news about your new grandson!  Wow double happiness

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited July 2012

    You aren't going to believe this but grandson Dylan had to go to Egleston Children's hospital the next day after he went home.  They worried that he had meningtis.  So he got to go home today -- cultures showed nothing.  He had run a high fever the first night home and had gotten lethargic.  So the last three days have been rough but turns out he was dehydrated.  My daughter-in-law was trying to nurse him -- couldn't get him to take the breast and according to those who had worked with her at the first hospital -- don't give him a bottle or pacifier.  Anyway, THANK GOD Egleston got things under control to where he is getting bottles of breast milk and formula.  Obviously he was on an iv with fluids/antibotics to fight off possible infection.  WHEW!  My nerves have been SHOT -- all week.  When to my regular doctor and got prescription for anti-anxiety mediction.  My daughter-in-law is not one to listen to others (other than her own friends).  She is a nurse -- but not a baby nurse.  Anyway -- they came home today and prayerfully Dylan is going to be just fine.  I am relieved on both counts but just worn to a fazzle as you can imagine.  Dylan is as cute as he can be -- looks alot like his mom -- has blonde hair and is just precious!  :)

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited July 2012

    Oh my goodness, Kim, this is unbelievable! You poor thing, you need to take those anti-anxiety meds and schedule a few days of just relaxing - get yourself some nice chocolate ice-cream and some nice fuzzy-and-glitter movies and do nothing but eat ice-cream and watch movies.

    Glad to know Dylan is ok, poor little one. When are you going to show us photos?

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited July 2012

    I thought of showing you ladies how my garden looks now... this garden has done so much for my recovery, and has kept my spirits up for so long.

    And it started producing about a month ago, so I am enjoying fresh tomatoes, cucumbers, bell peppers and mesclun greens daily.

  • patricia48
    patricia48 Member Posts: 121
    edited July 2012

    Thanks for showing us your pics  Day.! .... I am loving what you are doing with your garden this year.   I got some more french radishes out of my garden this morning and some of my small yellow tomatoes are producing...

    OMG for your grandbaby Kim.  I am so glad he is okay.  I think you might need some extra strength Xanax.

    My sister called me this morning to say that they are concerned about her 2nd mammo and she needs a needle biopsy.  Her name is Olga, and she is one of my biggest supporters!   Please keep her in your thoughts and prayers.   My fears are triggered by this of course, but I also feel that I certainly know how to support her.... 

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited July 2012
    Thanks DAY!  I'll have to figure out how to do that.  He is a cutie.  Your garden is lovely and it gives me a peaceful feeling just looking at the photos.  Patricia:  I pray that your sister's biopsy came back with nothing to be concerned about.  The pain of having to have a biopsy is plenty enough I am sure.  HUGS to your sister and you!  Much love to everyone!  I am on anti-anxiety medication for now -- Paxol.  It makes me very sleepy at times -- cut it down to 10 instead of 20 mg.  Hugs to everyone!  (P.S.  That Saturday after my grandson came home -- was well -- we had to put down one of my dogs -- UGH!)
  • patricia48
    patricia48 Member Posts: 121
    edited July 2012

    Hi everyone. Kim. My sister has her biopsy on wednesday. The doctors have told her they are pretty sure it is cancer. We sure will celebrate if it is not, but dr.s do not usually say that unless they ar pretty sure.... Thanks for your hugs and support. I am so v sorry about your dog. You surhave had your ups and downs lately. My sister came to visit and we went to our family reunion this week, and converted one of my bedrooms in to a room for my granddaughters to spent the night and play when they visit. Kim want to see a pic of your little ones. My latest project, since I finished the play, is applying to work with deaf French bulldogs. I am excited to foster and train some dogs, and it will be good for my dog Lilly. Take care everyone. Day, your garden pics are awesome and I look forward to hearing more about your festival.....

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited July 2012

    Pat, let's hope there will be a reason for celebration! I am excited for your new work too, sounds like it's right on your alley!

    Kim, I'm crying with you. Losing a pet can sometimes be harder than losing a human. They become such an important part of our life, and on such an intimate emotional level. The last dog I lost I had to put to sleep in August of 2006, due to osteosarcoma, and I am still grieving. They'll be there, though, all of them, waiting for us at the Rainbow Bridge. *hugs*

  • patricia48
    patricia48 Member Posts: 121
    edited July 2012
    Lilly plays piant
    file://localhost/Users/patriciawatkins/Desktop/IMG_0041.jpg      
     
    trying to get a pic on here.
  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited July 2012

    Patricia:  I know what you mean about them "already knowing" -- that happened with mine.  Still praying hers is not but at least she has you to help her with the walk.  Hugs for her and keep us posted and get her to join on a site here if she has this bad journey.  As you know, the support is wonderful.  My dog was a little red 10 lb. dachshund named Miss Scarlett.  She had been having a few health issues the last two years and had some over the years -- bad breeding -- not so sure she didn't come from a puppy mill.  We loved her lots and gave her great care.  She was a mess and very bossy and feisty.  But yes, she is at rainbow bridge trying to be the "boss" again -- I am sure.  I will have to figure out how to post photos of Dylan.  He is a cutie!  He has gained from 6 lbs. 1 oz to 6 lbs. 11 ozs. -- so happy.  Hugs to everyone -- we are having a HOT summer time in Georgia!

  • sacphotomom
    sacphotomom Member Posts: 366
    edited July 2012

    Patricia so sorry about your sister.  Praying everything is good.. On thing that a friend told me, was because of my experience, when I told her how the chemo would be and when she would have anxiety What she would be feeling, it helped her cope!  

    Kim! YEA so happy for you! For both baby and no cancer! Anyone else feel like they were holding their breath waiting to hear?  I felt that way! did realize it til I read your July 10 post!  Give that baby a big giant kiss for me!

    Jen that party sounds so fun! Have fun on your trips!

    Brian and are celebrating our 30 anniversary this year Aug 28th,  broke because of daughters wedding but will do something don't know what yet.  Couldn't make plans til after Daughters wedding just in case something happened and it cost more then predicted .

    OK so wedding is done!   Everything went to my daughters plans no problems at all! Everything was just beautiful and plain like she wanted. Why cant I get pics on this page   driving me crazy will try to post later 

    Every one have a great day!

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited July 2012

    Sacophotomom:  Congratulations on your anniversary!  That is great!  Hopefully you can get in a wonderful special time for the two of you!  Glad the wedding went great -- and you all enjoyed yourselves!  Still have Patricia's sister in my thoughts/ prayers -- hopefully we will hear something back soon from her!  Sending love to you all -- am enjoying watching the Olympics!  :)

  • patricia48
    patricia48 Member Posts: 121
    edited July 2012

    Hi guys... Heard from my sister yesterday.  She does have IDC, grade 2, They do not suspect lympth node involvement at this point, but of course they will take some out during the surgery.  Same breast as me, left, and same story, her mamo was fine a year ago.  We were expecting this, but still the reality is hard.  She is seeing the surgeon today, so I will keep you posted.  DENISE, I am so glad the wedding went well... I hope you can get away for your anniversary.   KIM  Thanks for your support and prayers.  I believe she will be okay, and there are worse things, as we are all here to witness.  I dread the chemo for her, at age 73... It was so hard for me at ten years younger.  Still I am very happy to be able to be here for her.  She does not use the internet, so she will probably not have a group like this one. Day  I have not heard officially, but unofficially I have been approved as a foster for french bulldogs, deaf and otherwise.  Take care.  I will keep you posted about my sister!

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited August 2012
    Pat:  Oh my goodness -- sorry to hear about your sister and yes that is hard at an older age but prayerfully she is spunky and will have good local support when she does her surgery and chemo.  I will keep her in my prayers.  If you feel comfortable posting her mailing address, perhaps some of us can drop her some uplifting cards -- if you think she'd be okay with that!  Hugs to her and you! 
  • Shrek4
    Shrek4 Member Posts: 1,822
    edited August 2012

    If it's not one, it's the other.... I got a Baker's cyst (popliteal cyst, behind the knee). Apparently due tot he rheumatoid arthritis that the aromatase inhibitors have caused me. Went through a little bit of scare and an ultrasound to make sure it's not a blood clot. there is no real treatment for Baker's cyst. You can go an dhave it drained (not pretty) but it will keep coming back. Unless they go in and "shave" the joint it will keep coming back.

    Anyway,Tuesday I am going to get a cortisone shot in my rhomboid major muscle. The pain management dr. hopes that it might help with the pain I have between the shoulder blade and the spine. 

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited August 2012
    Day:  Geez, you are right -- always something.  Praying that today went okay with the cortisone shot.  I am not a drinking person but generally I think we all should just become big time drinkers with these kinds of scares!  WHEW!
  • Shrek4
    Shrek4 Member Posts: 1,822
    edited August 2012

    The cortisone shot worked for about 8 hours. I decided to stop Femara. If the life extension that it brings comes with so much pain, then I don't need it. I just hope some of the effects will reverse.

    Taking opiates all the time is not an option for me. I want to DO things, and if I would go the opiate way, instead of not being able to do things because of the pain, I wouldnt' be able to do them because of the opiate high. For as much as I have to live, I want to live, not doze through life.

  • patricia48
    patricia48 Member Posts: 121
    edited August 2012

    Hey everyone.  Just thought I would update you on my sister,(her name is Olga).  She had the double mastectomy a week ago today.  She is doing great.  Her pathology did show involvement in the sentiel node, and also an additional site in her breast that had not shown up in the mri, etc.   We are waiting for her treatment team to do a work up for her treatment.  It is still unclear if she will be doing chemo.... I suspect she will, but hope they do not think it is needed.

    I am handling it well, and it felt good go be with her and help her through the surgery and many of the feelings she is having.  Thank you all for your continued support.

    Day, I know what you mean about the meds.  Some days I am so very stiff that I think I will be so glad to finish with these drugs, but most of the time I am not in terrible pain.   I am sorry you are dealing with this.   On an up note your garden looks fantastic.  I am so glad we are all getting more rain.

    Take care. 

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited August 2012

    Pat, here's for an as easy as possible journey for your sister, with as little as possible side effects.

    I have gotten my bone density results back. 9.6% bone loss in the lumbar spine - fortunately the hip and femur head are unchanged. Darn AIs.

    Today my rheumatologist gave me a steroid shot in the knee to help with the inflammation and maybe help with that popliteal cyst resorbing. It was not a pleasant experience, I can tell you. He said that my patella was very close to the femur head, he suspects it's from my past athletic career. But - I started feeling much better, after stopping Femara. It's such a fast recovery, every day there is less and less pain. I am not expecting to be completely free of pain very fast, but at least to have a decent QOL.

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited August 2012

    I started painting again.

    I guess I'm getting into fall and winter mood, when I won't be able to be outside in the garden anymore. I have a revision surgery on the 19th of September.Just the nipples and some fat graft (and the bulges under my arms removed).

    I have been off Femara for about 12 days and I already feel better. Even Ibuprofen works now where Percocet wasn't doing anything anymore.

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited August 2012

    Day:  Your art is beautiful!  Will keep positive prayers for your upcoming surgery -- any surgery is always a little unsettling!  Patricia:  Sending hugs for your sister -- rough journey -- let her know we ask about her and have positive healing for her in our prayers.  I get to go spend some time with my almost 2-month grandson today -- :)  Sending much love out to the sisters on this board.  We've all come a long way.  Praying we all will continue to do well and be able to grab so much love and happiness in the years ahead.  We never know where our journeys will take us -- but each step is precious!  Much love everyone!

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