taxotere side effects
Comments
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Thank you!! This is SUPER helpful!!! Thanks for sharing!!
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On 7/20 was my 4th T/C..my oncologist told me min 4th and max 6 treatment..But in the study doing 6 make not much different then doing 4th..only 5%..with my red blood cell down to 9.5 i really considering whether i want to do another 2 more chemo if that not much different in the study..My oncologist told me if my red blood cell is up (he put me on iron pills) then he want to see me do 2 more..It a confussing issues to me right now ..stop at 4th which he told me is good enough or go for the max..Anyone have some answer to this..Thank
Sharon
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Ladies-- hope everyone had a good night.
This Taxotere has been hard on me--still taking oxycodone at night so I can sleep. Bone pain, especially knees & shins, is really bad. Don't know it my osteoarthritis made the pain strike there, or not. But, felt like I had to force my brain to tell the legs how to walk for a couple of days. Weird! Sounds like I can expect the peach-fuzz hairs coming in after FEC, may disappear from Taxotere. I still have stubbies that never came out.
Trying to force the looming thyroid issue to back of mind--focusing on getting rid of SE's for a weekend trip to Chicago next weekend. Going with grand kids (& their Mom & Dad!) for a pre-kindergarten BIG CITY adventure. Squeezing in fun times between chemo is a needed goal, don't you agree?
Enjoy the rest of your weekend, everyone. -
luvBngGma
from everything I have heard Claritin helps the bone pain immensely, had a friend with it and she swears by it. The side effects from this drug are terrible but hopefully it will be worth it. You are right, enjoy your good week as I am doing now. Next treatment Wednesday but I'm prepared for it. Have a great trip to Chicago.
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@Sharon648: This my personal opinion and keep in mind I had a terrible time with chemo, if there isn't much difference between doing 4 vs. 6, I would stop at 4. You're doing more harm to your body than good. I'm also one of those people who doesn't believe in throwing the kitchen sink at this stuff. But you have to do what you feel comfortable with and no second guessing your decision.
And regarding the low RBC, my onc told me taking iron pills does nothing to bring up the red counts unless you have an iron defienciency. The only thing that brought mine up was a blood transfusion of which I received two. My counts are still low 5 weeks PFC and I'm still anemic.
Best wishes with whatever you decide.
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ohio4me - I am 4 weeks and 2 days PFC and isnt' it wonderful that we can come on this board and share our experiences of how we handled chemo.... like you said, at the time you never can see the end, but here we are able to share out stories.
For me chemo worked..... my tumour went from 8+cm solid mass to granular lumps. I still require a mx and rads but chemo is behind me.
A/C wasn't too hard of me. About 6 hours are it being administered I felt as though a truck hit me. My body felt so heavy and my mouth tasted as though I had been sucking on a mud pool. I took tylenol for the aches and the only thing that tasted like it should was red apples?! So I ate plenty. Aches lasted about 4 days. Hair went about 14 days in... got that buzzed off before it actually fell out. With A/C I got about 2 good weeks out of 3.
Taxotere... now that was a different story. The dexamethasone made me like the energizer bunny... then the taxotere brought me down. Well actually it was the Neupogen shots that caused the main problems. The bone pain was held at bay by T3's.
Each 3 weeks though my MO assured me the tumour was shrinking and it did. For me chemo was bloody hard, but it was worth it. My haemoglobin is still low so I am suffering fatigue but that will also pass.
Remember ladies... each person will have different SE' with varying levels of intensity. It is a very personal choice on whether you finish chemo or even start. Do only what is right for you.
Remember, hydrate, hydrate and hydrate more.
I wish you all peace and comfort with whatever decision you decide.
More than anything remember what Ohio4me said :
"There is light at the end of the tunnel - just one day at a time"
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One of the strange things noted here has been the different ways this BC is treated. Of course we have lots of variations on our diagnoses. Since I had the BMX before chemo, I have no way of knowing if my little tumor responded to the chemo or not. Different than those of you (like my sister, too) who had chemo first and then surgery. I don't really know why my MO did it in the order he did. Anyway, it troubles me a bit to hear that the only way we know if it worked is if I don't get cancer again.
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I like that we can all talk/give our opinions here! Here is my take on the subjects discussed.
My iron counts have ranged from the mid to high 9's and my MO dialed my initial dose of Taxatore back very slightly. She says at every appt "you are still a little anemic" but thus far hasn't addressed it any further.
Regarding dietary sources and iron supplements, I have heard/read the same time, that the anemia/red blood cell issues induced by chemo can't really be bumped up by those methods.
On the Claritin, I have taken it for the pain associated with the Neulasta but haven't heard the same results for pain from the Taxotere itself.
I had 4 A/C and am having 4 Taxotere (with Herceptin). I am a "let's do everything we possibly can at the onset" type though.
Again, just my thoughts/opinions.
Tax #3 of 4 tomorrow.
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There are at least 15 kinds of breast, three grades and 4+ stages (including the a-b-c). Add that to age, tumor size....... etc. it is no wonder everyone is different. The challenge is sifting through all the stories/remedies/treatment and finding what works for each person.
Like Tazzy said, you need to make the decisions you can live with - no regrets. Like kltb I choose to throw the book at the cancer and be as aggressive as possible. Did it work? No sign of cancer today. Will it come back? Don't know. I can't predict the future but I can tell you today has been fabulous and I make the same decisions if needed.
There really a few guarantees in life but I know I did everything I could to fight the battle. That I can live with.
I think the key is being informed and making the decision for your situation.
Best wishes to all.
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Hi KTLB
Looks like you've over taken me now! I was supposed to have infusion three of Taxotere on Friday but could not have it.
My red blood cells count was 8.2 and neutrophils 1.2 so I am having a blood transfusion this week. Chemo should be on Friday. Cannot wait.
Just think, we only have one more round of Taxotere after this!
Good luck for tomorrow.
Alice
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My red blood counts have been okay to have my chemo but yet a little anemic. So I''m trying to eat what I can eat to help those counts at least not drop any further. One of the easiest ways to get iron in is with a iron fortified cereal-- Total, Quaker Oats Oatmeal Squares, Mini wheats, cream of wheat. I know I can always eat a bowl of cereal/milk for snack to at least get a minimum daily requirement in.
Good luck everyone in the chair this week!!! Wishing for minimal side effects for all and good numbers!!!!
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Malt-O-Meal was my chemo mainstay
. It tasted good the entire time and had good iron, etc. I worked at getting 90 grams of protein daily and lots of water > 8 glasses. I was fortunate my blood levels did good and I never missed a chemo or had a blood transfusion. Don't know if it was the protein and water.... or just the luck of the draw.
Let the countdown begin! Actually, after the 4th treatment I marked the days on my calendar - like we did as kids counting down to Christmas. When I had a tough day I would look at the calendar and say 'only 40 more days'. Worked for me.
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Like Ohio said.... there are so many variations for chemo and so many different types of cancer no wonder we all vary a little. For me, I wasn't given much choice in my treatment... well I was, but my MO said OK we will do chemo first then address whether surgery or rads first, if not, we have no way of controlling the cancer and it will spread. I had a very aggressive cancer which grew to 8+cm in 6 months (clear mammo in July - dx'd in January). In a way I am glad the choices were taken out of my hands - chicken maybe - but what a choice to have to make. My recurrence rate if I refused chemo first was 85-95% - bit of a no brainer really.
And I agree with Ohio again
that if I had to do it all again and did have to make that choice, I'd throw everything at the bitch.
Oh! and do a countdown instead of a countup.... I did that too and it really does feel like it goes quicker.
Again, I wish every one of you with that choice to make, peace in your decision.
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Wow, Tazzy, your tumor sure grew fast!! Shocking ! Good thing you did do chemo first. Same with my sister, but her tumor was about 3 cm. glad you are throwing the big guns at that piece of crap!!!
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Lisa... yeah it did... scarily so. I am just happy that chemo did what it was meant to do. Like my MO told me and DH... had I not found the lump when I did mine may have been a very different story! I wish you and your sister well.
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Tazzy: I too am triple negative, my cancer was so agressive the operated right a way to keep it from spreading any further, I started out on taxotere and cytoxan, now they want to add adrimycin to the treatment going in for an echocardiogram tuesday. Was explained to me that it can cause heart problems in some people but i think the risk is worth it in the long haul. This was my week to loose my hair I already miss my hair. I can be so vain at times, but the wig looks good I must say.
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Hi dgcote. I did the A/C first then the taxotere... whatever it took IMHO. Hey none of us realise how vain we are until we are bald with no brows or lashes. Glad that the wig looks good.
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OK, this is crazy but... I have had sore quads, right above my knees, and shin splint type feeling for at least 8 weeks. Every time I go to doctors (MO and PS) I've mentioned and asked about it. They look bemused and never seem to think it's related to treatment. Yet I have NOT been exercising in any kind of way during this time that would cause this soreness.I am almost 5 weeks PFC and it has not diminished.
I saw someone mentioned something similar on this thread. Could it be a Taxotere SE???
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Count me in, ladies! Taxotere #1 of 4 tomorrow, then Herceptin #1 (im not beginning the countdown on this one yet) wednesday!!!!
Good luck to all of us going in this week! -
lisa2012 - yes, bone/joint pain and aching is definitely a Taxotere SE. You may start to see some improvement about 6-8 weeks PFC, that seems to be the magic time for the lifting of leftover SE.
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4 weeks and 3 days PFC and I still have joint aches... mainly in the hips, but also shins. When I asked my MO she said was all very normal (huh.. normal... what is that thesedays ?) and as SpecialK said should start to diminish approx 8 weeks after last tx, but not to be surprised if it could still be felt months after. She told me to make sure I made notes of dates and pain/ache intensity.
One piece of good news... taxo-tears seem to have stopped
Good luck for tomorrow bcbarbie.
Take care everyone xx
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Ugh on the legs and shins. Why didn't hey just tell me, then I wouldn't have kept wondering if it was my shoes or how I read with my knees up in bed. Grrr .Wonder how the Arimedex I just started will affect my poor muscles and joints ...
Tazzy, taxi tears almost stopped too! And nails pretty much recovered. trying o get myself to in positive. Trying. -
You know you've got chemo-brain when a friend is complaining about her A/C causing night sweats and it takes a few minutes to realize she's referring to AIR CONDITIONING!! lol
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Taxotere #1 of 4 done! Now if i can just convince my body to take a rest for tomorrow's herceptin # 1. Took xanax a few minutes ago, maybe that will help! And, oh, the hot flushes im just getting these past few days. AC didnt get me chemopause. Maybe now.
Glad to know tho. We're definitely moving along.😏 -
My menopause came back for round 2 with Taxotere
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Had my pre chemo blood yesterday and all my counts are well in the normal range. This is my third treatment and have had no blood problems. The nurse asked me if I was taking nuprena. The old supplement I am using is wheat grass juice, 1 oz a day. It is supposed to cleanse your liver and keep your counts up and I have no other explanation for my counts than that. I am not a big believer in holistic stuff so this is a stretch for me. Chemo today so hopefully SE's are not as bad but I am prepared. I have caphosol for the mouth sores and percocet for the pain so here goes.. Hope everyone has a good day.
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Thank you, Tazzy. Infusions went well. Just the body aches for now, and everything tastes like paper! No nausea 😃
Good luck, ljhm! -
ljhm... thats very interesting about the wheat grass juice - maybe worth drinking anyway - thanks for sharing. I have my surgery August 2 and may just go and get some from our health food store today.
bcbarbie: just remember, there is now light at the end of the tunnel.
Hope you are all having good days with minimal SE's.
Take care xx
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Why do I still have aching shins, aching quads, and a generally stiff way of moving 5 weeks PFC? Does Cytoxin do this too? Also a week of Arimedex may be affecting me, though this feeling has been consistent for several months. Anyone else have info?
Eyes much improved though still watering, nails 95% ok, thrush (which mildly reappeared 5 days ago) reducing with Nystatin. Eyebrows still there, eyelashes too though thinner.
My NP said it can take up to 6 mos for chemo to really leave your body. -
Lisa: my MO told me the same thing - almost. She said 6-9 months for our bodies to be rid of
I still have days where I am so stiff I hobble along like I am 152.. and others where I am 'stiffness' free and have the energy like the energizer bunny.
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