VERY discouraged
Comments
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Hi everyone, Yes, I do have an amazing sense of humor (if I do say so myself). If you don't have one with everything going on, you just can't make it. I have always been one who avoided the medical system. But I am also not one who has changed the way I eat, how I cook and I definitely do not spend a lot of time reading ingredients on packages. I do take supplements but not just your ordinary kind. As I have stated, BC has now been placed on the back burner for me. In fact, it's not even on the stove top. I'm just a middle-of-the-road gal not dwelling on negative stuff.
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I have to watch the way I eat for my stomach and pancereas. Was doing it long before the BC diagnosis. The fact that it helps with BC is just a bonus. :-) Right now I could stab a Krispy Kreme Donuts driver and hijack his delivery w/o a twinge of guilt, but I couldn't enjoy my bounty. :-) So it's fresh fruits and vegies and a little lean non-red meat for me. That's my new job - Making the world safe for Krispy Kreme drivers everywhere.
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Mini1, now that's what I call a great sense of humor. Laugh and the world laughs with you. Cry and your mascara runs.
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Lisa, can I ask how old you are?
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lisa96
I am so glad you are now at the point where BC is on the back burner for you now that you are 2 yrs out.
With all of my add'l, and serious health concerns, it remains in the forefront for me. Hopefully, that will change with time. We are all at different places, and for different reasons. We all have very different challenges.
I believe if someone had serious lung disease, cancer, thyroid issues, a goiter, circulatory problems and were on the verge of osteoporosis, they would have their head in the sand not to be concerned.
I too consider myself to have a wonderful sense of humor, and I enjoy laughing with people , but never at them.
There is a difference between having a great sense of humor and just being rude and insulting.
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Hi all,
I am often told that I am very irreverent attitude toward my bc. Sometimes others are shocked but I am careful to only express this if it is "readable" via body language, facial expression etc. That's sometimes the problem with the Internet. I am also careful about this style of humor with other cancer patients because I don't want to hurt or insult them (unless I know they share this irreverence with me). On this thread, you get folks at all different stages and places in their bc journey. I'm stage IV and doing well but bc will never be on my back burner. You can bet I have my worrywart moments and most people are very compassionate when these moments surface. Caryn -
Sweetbean, I am 63 physically and 23 mentally! Purple, I'm trying to be upbeat. Why is there a problem expressing that a person feels quite confident that their cancer is gone forever? Is it better worrying that it will return? Does the monster have to always be lurking in the shadows? I do feel for women who are Stage IV. I'm truly not heartless. At my age if it were me, I would just try to get the most quality of life. And yes, that means no intervention. I made up my mind many many years ago that I was against chemo. And indeed when I developed bc, I kept my word that I was not going to do it.
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Lisa,
Good for you! Many women who are stage IV and older get all kinds of tx and still have good QOL. I am 56, work full time (love my job), enjoy my children, new granddaughter, and life in general. My tx is what it is and I think it's quite possible to balance tx and QOL.
Caryn -
exbrnxgrl, it does sound that you are doing well. It's just that I'm not one to do ongoing hospital/doctor visits. Each time I have had to go over the last few years I have hated it. And I thought the dentist was bad! I never had a mammogram until I noticed the lump. I would not have had one ever. And I'm not doing them again. The whole process of bc has left me exhausted and I am now back to energizing myself like the Energy Bunny beating his drum.
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I do think that writing comments on line makes it hard to know when someone is joking or kidding - because you can't hear tone of voice or see facial expressions. Sometimes, even in person, well-intentioned jokes fall flat. When that happens, wisest course, accept that there was no intend to hurt and move on.
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I don't think Alternative Medicine is the forum for debating the pro's and con's of non-alternative treatment, especially it is so difficult to be sure any particular person's cancer is responsive to chemotherapy for reducing the breast cancer they have.
In considering both exbrnxgrl's and lisa's positions (which each have plusses and minuses) one aspect of chemo that is dicey is the failure by the statisticians to factor into the estimates any percentage of possibility that one's chemo could in fact be causing additional breast cancer. The difference in outcome between what would have happened without the chemo and what happens with the chemo has not been investigated or ascertained.
So, while it is not pleasant to bring this up to those who happen to be doing time on chemo with the hope that it is helping, it still is one factor that is not discussed and should be.
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lisa96
you asked :
"Why is there a problem expressing that a person feels quite confident that their cancer is gone forever? "
No problem whatsoever AND more power to you. The "problem" I had was being called a worrywart. I found it to be insulting, rude and uncalled for - nothing upbeat about it. -
For the record I have not had chemo in the past nor am I getting it now. I am following standard tx for the current state of my bc, combined with diet , exercise and some dietary supplements. I guess I fall in the complementary camp but want to be open to all things as I have no idea what might be coming down the pike. I never say never! Caryn
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JMW- Hi I'm new here, but I saw your comment about the milk and your bones and wanted to comment. I hope you don't mind a word from a newbie. :-)
Since I was diagnosed with osteoporisis and am not a candidate for any osteo treatment, I have been looking up alternative treatments because I want to stay on the Aromasin (few side effects, better for my CA). In my studies I have learned that milk is very acidic and actually leeches calcium from your bones. I had thought that I was doing myself a favor by drinking and eating a lot of dairy. Turns out that that isn't the case. I still do greek yogurt and some soft cheeses. I use almond or coconut milk as an aternative for smoothies and such, but primarily I get the rest from food and supplements. Just thought I'd share that with you.
Have a good weekend.
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Purple, I only said worrywart because MarieKelly wrote, "the stress you're putting on yourself searching for something you can take in place of the things you can't is probably doing you more harm than good." That is kind of implying that word. But I do apologize, and send you good wishes.
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Thanks, lisa. I accept your apology. I guess I found it rather hurtful. I am not in the best state of mind at the moment. We all have our ups and downs with this thing. I am sure once I settle into what I decide to do things will not be so intense.
At the moment, I have a lot going on.
THX for your understanding.
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Wow this thread has spiraled down into a very low place.
Purple32 why do you think being a worrywart is an insult? I am excessive in worrying patterns. But, I needed to change my thoughts so as not to ruin the rest of my life. My husband tells me all the time I worry to much. People tell me I am a worry wart- then I get on with my day. Their comments are not to insult me but to support me in their own way.
Lisa96 good for you for stepping up and apologizing for your misunderstood comment. You are apologising to much for who you are and how you look at life. I am 65 and feel the way you do about getting on with life.
Marie Kellys remark was not ment to offend or suggest any insult. She, like my surgeon, simple implied that worry can make things worse. And, for me it did-then my surgeon chimed in and told me chances of my cancer coming back is 0 or 100 so live your life. Very good advice.
Hopefully, this thread can come together and support each other instead of verbally insulting one another which serves no purpose and makes no point??
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Purple32,
I completely understand why you are worrying about things. You were diagnosed in March and had surgery just a few months ago. You need time to sort things out. It may take a year or more before things settle down for you but as time goes by, things will get better.
Arimidex and Aromasin are not the same as aspirin. They are serious drugs with serious side effects. You will need discussions with your doctor on whether it makes sense for you to take them comparing the risk of side effects to the actual risk of recurrence for your specific type of cancer. Ask you doctor to go through things one at a time and thoroughly. In the long run it is a decision only you can make. Do remember, you can start the appropriate drug now and always quit at the first sign of problems. Some people have no problems with these drugs.
Best wishes.
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notself
Thx for your understanding!
Yes, I think everything is still new, and with the complexities or my other illnesses , it can get concerning. I appreciate all the support. I'll be fine, in time. -
Purple that is very true. I was better as time passed.
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Good to hear, AMP.
Thanks.
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I'm just not buying the whole vegetarian thing for cancer. My motto is WWGD? What Would Grok Do? I really think the "paleo diet nuts" are on the right track and Mr. and Mrs. Grok ate every bit of fresh (grass fed!) protein they could get their hands on, and filled in with lots of veggies and fruit when they couldn't. Not so much on the grains until much later in evolution.
As far as acidity, grass fed meat is lower in acidity and Omega 6. And it tastes awesome. Veganism is really bad for kids, and after looking at recent pictures of the Clintons, not so great for older folks either. Not trying to insult anyone, just my opinion.
Purple since you can't do a lot of supplements, improving your diet is an excellent option. I'm just saying, don't be afraid to include a little meat as long as it's the good stuff. Feed lot cattle is not the good stuff, and that's what all the studies are referring to.
Can you drink green tea? I drink Brassica iced tea with the SGS in it. I wonder if you could have some of that.
And I completely agree about worrying. Really wish I could give it up. I've always felt that my former drug addict brother was a contributing factor to my Mom dying of leukemia at age 57. Now I have a daughter that I cannot help worrying about. Not drugs, but mental issues and depression. Hard to let that one go.
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You can live on Mountain Dew and Ho Ho's and be a vegetarian; that doesn't make it a healthful diet. I know several overweight, unhealthy vegetarians. I think like everything in life moderation is key, although it has been proven that your body has to work harder to digest meat and red meat is particularly difficult. The difference between now and ages past is all the crap, literally and figuratively, that animals are being fed, shot full of, being genetically altered by (i.e. chickens to have bigger chest, thus more white meat) and how they are being caged. All that has changed since the cave man days. The key, as Diana states, is finding a good grass fed, homorne-free source of meat. I eat it in moderation and eat the good stuff when I do, although I am trying to incorporate more fruits and vegies to get the nutrients I need. Being gluten-free would make it particularly difficult for me to be a total vegetarian, and a vegan even more so.
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Purple - I have not read this whole thread, so what I'm going to say may have already been covered. First, keep your chin up. Having cancer plus additional health problems is not an easy path. I wish every good thing for you.
You may want to consider letrozole as opposed to arimadex, though bone loss is a definite side-effect for all AI's so far as I know, and with your propensity for blood clots, you certainly cannot take tamoxifen (I don't have a propensity for them and still got blood clots when on it...). I am most assuredly NOT any kind of health care expert as are some of the ladies on BCO, but I'm always happy to throw out ideas - please feel just as happy to reject them!!!
As for supplements - I do not have the same health issues you have, so please be very careful and check things out, but for the cancer (in addition to letrozole) I take curcumin phytosole (this is processed with soy, so some people won't take it in this form, but my cancer specialty ND recommended this form, so I'm going with it), indole-3-carbinol and quercetin. None of these specifically address the estrogen/progesteron issues, but again according to my ND, there are none that will.
The other supplements I take have nothing to do with cancer, just getting older.... D-3 drops, cod liver oil, glucosamin sulfate, chondroitin sulfate, biotin, boswellia and a multi-vitamin.
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YouDiana NM
Yes, I drink plain ole green tea. Will look into the Brassica. Thank you. I am also looking at turmeric.
I have a phone consult <to start> with an ND on the 26th
Mini1
You make an excellent point. I eat very very little meat - some hormone free chicken now and then, but I know my diet is lacking in a good protein source . Lots of salads and fruits ...probably too many carbs actually, considering all the fruit. I eat a Greek yogurt ea. day too and a 100 cal pkg of almond. Not a heckuva lot more than that for protein on a regular basis so not really the healthiest diet.
garden
I'm being careful about DIM or I3C because of a goiter. I emailed my endo dr . about it last week, but no reply. I'm just not willing to take an Al at this stage with my bones. I have already broken 3.
Where do you get D3 DROPS? Are they by RX or ?
I'd like to take this opportunity to thank all of you for your support - which means so much!
Best Wishes. -
D3 drops are pretty easy to find, your local health place, Amazon etc. The drops under the tongue are supposed to be absorbed better than the pills. Worked for me, my last test my D3 level was an 84. I have cut down, my blood calcium was up a bit too and that can be from over supplementation of D3. I was taking 3-4-5 drops a day of 2000iu.
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Thanks.
I will definitely get some of those drops !
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Purple...with grade 1 stage 1, you should be fine. Honestly. Supplements, no supplements, like someone else said, moderation is the key.
I don't blame you for worrying, but as long as you're not smoking 2 packs a day, hanging out 12 hours a day in the sun without sunscreen, and copnsuming all of your calories from candy, ice cream, sugared soda and potato chips, you should be as fine as if you took every supplement in the world.
It's a crapshoot. You read about vegans that get cancer, while obese women don't. There's no rhyme or reason to it.
Eat mostly healthy, exercise moderately, and enjoy your life. There are no guarantees, there are no magic formulas. All you can do is what you can do - your best. No one can be perfect at this, because "perfect" is a moving target. One week water causes cancer, the next week it doesn't. What's popular this month is out-dated next month.
Deal with your health problems as best as you and your doctors can, and the rest of it will take care of itself. There's no guarantee in any of this stuff, so make the best choices for yourself, control anything that's acute, and it'll all work out for you.
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Purple32,
Hope you are feeling better. I read that these things may help: Vitamin D3, turmeric/curcumin (as notself already wrote), green tea (that Barbiecorn wrote about) and white button mushrooms (if you can tolerate all of these). A lot of women seem to mention thyroid problems in connection with bc.
White button mushroom phytochemicals inhibit aromatase activity and breast cancer cell proliferation.
http://www.ncbi.nlm.nih.gov/pubmed/11739882
Thyroid disorders and breast cancer.
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Thank you, maize
Yes! I can eat all of those foods- and will.
I am a little upset about the thyroid abstract. It just seems to me that is there is truly such a distinct correlation between goiter and BC, all endo DRS should at least mention this as a caution . I was DX 15 yrs ago with a multi-nodular goiter, initially at Lahey - a good place in Boston. You would think the Drs would warn you to be as careful as possible to reduce your risk of BC- maybe advise Evista or even exercise and good nutrition and/or some of the supplements suggested here. Would I have taken it seriously ? You bet I would have . I never for a minute thought I was at high risk for BC. I went through very early menopause (41) and nobody in my family had any hx. Had I known there was any connection, my research would have started 15 yrs ago. and ...who knows ?
I know we should be our own advocates, but why do I sometimes feel I am my own DR ?!
It's sickening! (Literally)
THX for the info, doc : )
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