Ohio Chemo Sisters

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  • sewingnut
    sewingnut Member Posts: 1,129
    edited June 2012

    OK, I know its summertime but I'm totally over the heat. I feel like the wicked witch "I'm melting!!"

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  • GirlPowerDebbie
    GirlPowerDebbie Member Posts: 213
    edited July 2012

    Hey girls, I have been off the radar a while.  Glad to hear everyone is moving along with tx and SE not torturing you.

    Kelly, what is the name of your DH's band?  I know most of the locals ... PM me your and his full names if you want.

    I got switched from Arimidex to Tamoxifen.  I am tolerating it much better.  For me, the Arimidex was almost as bad as being on chemo. 

    I have begun walking, and it seems to be helping a lot with my leg, ankle and joint pain.  I find having good tennis shoes on, and walking on a surface like the track at Monument park or the track at Malone College is better for me. 

    Max is home from OSU and has decided he is changing to Kent Stark.  OSU does not offer a music technology degree (recording) and that is what he wants, so my empty nest only lasted 8 months, and I was sick the whole time, basically.  No more running naked with scissors in the house, LOL!

    Got a little swimming pool time this weekend, it was very relaxing.  Work has been stressful, so unstructured weekends are my favorite.  Too much on my schedule, I overdo it, and I pay for 3 days afterwards.  i wonder when, if ever, I will get my stamina back.

    Yesterday I had my 1 year follow up mammo.  They took 5 pictures, then set you outside to make sure they have good films before they let you leave.  Well. I sat out there for an hour and a half, and after a while I thought, "oh, this CAN'T be good ... and here the tech just forgot to come out and release me.  I was just a basket case.  Waiting on the results, wish me luck!

    Have a great 4th of July -- hot as balls here in Canton, stay cool!

    Debbie

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  • sewingnut
    sewingnut Member Posts: 1,129
    edited July 2012

    GirlPower,

    When I have my mammo's they do diagnostic ones. I know when I leave if there is a problem. The radiologist comes out and talks to me. I'm also a year out and still tire easily. It's 8AM here and my A/C kicked on. Not a good sign!!

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  • GirlPowerDebbie
    GirlPowerDebbie Member Posts: 213
    edited July 2012

    Sewingnut - thanks for the tip, I will be more assertive about asking for results right away.  I had the results sent to all my docs, I will call my MO Friday & see. 

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  • ohio4me
    ohio4me Member Posts: 491
    edited July 2012

    Looking for Ohio ladies that know of LE therapist in Canton/Akron area.

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  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    ohio4me - I am in Canton but haven't needed an LE therapist.  What oncology group do you go to?  I know Aultman has an LE specialist but cannot tell you good or bad. 

    On a lighter note....we must be neighbors!  There is another lady here, GirlPowerDebbie who is from Canton also.  I'd love to meet you both some time.  This site is great but I'd love to actually meet and talk with someone who has actually been through the same thing.  Any interest ladies?

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  • ohio4me
    ohio4me Member Posts: 491
    edited July 2012

    I go to Barberton for care. That's where my family doc referred and I really like the docs and the cancer center.

    I am in Hartville. Would love to meet. 

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  • GirlPowerDebbie
    GirlPowerDebbie Member Posts: 213
    edited July 2012

    I got my 1 year mammogram results - all clear!  WOOT!

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  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    YAY Debbie!  That's awesome news!  I go for my first mammo post dx on August 6th...I'm pretty nervous about it.

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  • roadwarrior28
    roadwarrior28 Member Posts: 301
    edited July 2012

    From Cleveland - starting chemo next week

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  • Eileenohio
    Eileenohio Member Posts: 460
    edited July 2012

    Roadwarrior..    Where are you having your treatments?  I live in Solon and have all my treatments at Seidman Cancer Center Chagrin Highlands Facility,my surgery was at Case Medical Center downtown.

    So sorry that you have to begin this journey,however you will find a wealth of information and SUPPORT from the gals on this board.  They helped me so much.    If I can help in anyway please email me at eillesp@sbcglobal.net  Hugs  Eileen

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  • roadwarrior28
    roadwarrior28 Member Posts: 301
    edited July 2012

    Eileen I'll be going to the Clinic Tausig center on Euclid

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  • sewingnut
    sewingnut Member Posts: 1,129
    edited July 2012

    roadwarrior,

    Good luck as you start this trip. I'm in Parma but did my treatments in Warren. These girls are great. If you have any questions throw them out there, some one has already been where you are headed.

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  • roadwarrior28
    roadwarrior28 Member Posts: 301
    edited July 2012

    Did anyone drink smoothies during chemo? I heard somewhere it's good for preventing mouth sores but maybe that's a myth...

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  • sewingnut
    sewingnut Member Posts: 1,129
    edited July 2012

    I used Biotene mouth rinse and toothpaste.  I got really bad mouth sores after my first treatment. None after I started the Biotene. Used it everyday while on chemo.

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  • GirlPowerDebbie
    GirlPowerDebbie Member Posts: 213
    edited July 2012

    It just registered with me that today is 1 year plus 2 days since my surgery.  And June 10 was the 1 year anniversary of when I got the "it's cancer" phone call.

    I guess over the next year, there are going to be a whole lot of little anniversaries.  I feel blessed!

    Looking forward to a coffee date with 2 of the Ohio sisters this afternoon!

    Debbie

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  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    Looking forward to it Debbie and Ohio4me!

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  • ohio4me
    ohio4me Member Posts: 491
    edited July 2012

    What fun! Coffee with Kelly and Debbie, two Ohio sisters right here in Canton. It felt good to share stories and know the others fully understood - no explanations needed. Nice. I will be looking forward to the next coffee chat.

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  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    I had a great time with Debbie and Diane!  It was such a pleasure to meet 2 of my Ohio sisters.  We  immediately clicked like we've been old friends.  Anyone want to join us for the next get together?

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  • GirlPowerDebbie
    GirlPowerDebbie Member Posts: 213
    edited July 2012

    Ditto on the "two thumbs up" for our coffee date Tuesday!  Would love to see other sisters.  We met at the Starbucks at the Strip (off Portage in North Canton). 

    I get my port out today, yay!  I was supposed to get it flushed yesterday, and I called ahead of time to see if I could get it scheduled for removal soon.  They got it scheduled for today, so I did not have to get the flush.  I am heading over to Mercy in about an hour.  Another milestone, yay!

    Debbie

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  • ohio4me
    ohio4me Member Posts: 491
    edited July 2012

    Debbie - port removal is a definite milestone. Good luck.

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  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    YAY Debbie! Congratulations on being de-ported!!!

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  • ohio4me
    ohio4me Member Posts: 491
    edited July 2012

    'De-ported' - too funny. Monday I get de-boobed! Now I'm cracking up.

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  • sewingnut
    sewingnut Member Posts: 1,129
    edited July 2012

    You guys are too funny :)

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  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    Oh my ohio4me I almost forgot!  Good luck on your de-boobing Monday.  Here's to a speedy recovery!

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  • ohio4me
    ohio4me Member Posts: 491
    edited July 2012

    Thank you - we will both be taking a break from work.

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  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    Yes, but mine will be much more enjoyable!  I'll be thinking of you...

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  • roadwarrior28
    roadwarrior28 Member Posts: 301
    edited July 2012

    Had my first AC today, only took 4 needle stabs. The lab messed up and used a vein they shouldn't have...oh well. I feel ok just woozy from Ativan

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  • ihatemyboobs
    ihatemyboobs Member Posts: 83
    edited July 2012

    Hi Ohio ladies. Haven't been on this site in a long time!! Didn't really do much of anything while getting chemo but I'm all done! Had my last infusion on Monday and now I begin the wait for radiation.

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  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    roadwarrior - welcome!  I'm sorry to hear your first infusion sucked.  I have a port so I didn't have to worry about the needle sticks.....UGH!  I hope you have a good weekend with minimal SE's.

    ihatemyboobs - good to hear from you!  Congratulations on your last chemo!!! YAY!!!!  You are one step closer to being done...enjoy!

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