Recurrence after 6 years and I'm so scared...

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  • rorikorei
    rorikorei Member Posts: 25
    edited July 2012

    Hello Toyoungforthis,

    I'm so sorry to hear about your lymph node. I know it's very scary, but I will be here for you if you need me.

    I met my radiologist today. I have decided to have a radiation therapy from next month. When my doctor told me about the side effect, I was almost faint :-)

    Hanging in there, Toyoungforthis. I will pray for you, too.

    Lots of hugs,

    rorikorei

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  • lovetosail
    lovetosail Member Posts: 544
    edited July 2012

    Hi Rorikorei,

    I had a localized recurrence after my mx and then had radiation therapy.  It wasn't so bad, you can do it!  Lots of lotion helps.

    I lived in Japan as a teenager, in Iwakuni.  Our family loved it there.  I am sure you miss your family very much.  I'll keep you in my thoughts.

    sue

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  • rorikorei
    rorikorei Member Posts: 25
    edited July 2012

    Thank you for your message, lovetosail. How long did you live in Iwakuni? I was planning to go back to Osaka in September, but it looks like I need to cancel that trip since I decided to have radiation therapy.

    Do you know what kind of lotions you used during the treatment? Can I have my daily routine druing the treatment?

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  • sweetbean
    sweetbean Member Posts: 1,931
    edited July 2012

    Rorikorei,  Can you get emu oil in Japan?  I used that during radiation and it was amazing!

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  • rorikorei
    rorikorei Member Posts: 25
    edited July 2012

    Thank you, sweetbean! Now I live in the States, so I will get some emu oil this weekend.

    Thank you again. I will see my doctor for a marking next week. I'm very nervous...

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  • sweetbean
    sweetbean Member Posts: 1,931
    edited July 2012

    Cool,  I get my emu oil from Rancho San Diego - I have tried a couple of brands and I like this one the best.  I actually still use it and I am a year out from radiation.  After my radiation, my PT and RO were converts - at the end of my treatments, my RO said that I looked like I was finishing up my 2nd week of radiation, not my sixth.  

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  • rorikorei
    rorikorei Member Posts: 25
    edited July 2012

    Wow, now I really would like to get this oil. Thank you for this information. It really helps me.

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  • lovetosail
    lovetosail Member Posts: 544
    edited July 2012

    Rorikorei, I lived in Iwakuni for 3.5 years.  It was wonderful!

     At my radiation oncologist's suggestion, I used first aloe on my skin, and then followed it with a layer of Aveeno.  I didn't wear a bra during radiation, unless it was over a soft thin tank top, so I had less friction from my clothing.

     I did keep up with my regular routine during radiation.  I worked full time, exercised etc.  It was over before I knew it.

    I hope you get back to Osaka soon!

    Sue

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  • rorikorei
    rorikorei Member Posts: 25
    edited July 2012

    Thank you for all the useful information. I really appreciate it. It's always nice to hear a good story about radiation treamtment. I will try to keep my daily routine during my treatment.

    BTW my sister loves sailing, too. She has a sailing boat and participates a race from time to time.

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  • cp418
    cp418 Member Posts: 7,079
    edited July 2012

    I always a applied pure aloe vera to my skin twice daily.  I actually carried small bottle in my purse and applied in dressing room after each  radation treatment.  I am very fair skin and it helped me get through several weeks rad treatments until the very last days when I had mild burn.  I had no other issues during radiation treatments and was able to do normal routine too.  Wishing you as easy time getting your zoomies!!!

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  • kylin8
    kylin8 Member Posts: 9
    edited July 2012

    rorikorei

    I am newly diagnosed so I can't help you with info like all of these other women, but I can tell you that you are in my thoughts and prayers. 

    I'm sending you a virtual hug.

    Smile

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  • rorikorei
    rorikorei Member Posts: 25
    edited July 2012

    Thank you, cp418. I have already ordered emu oil on line. Now I would like aloe vera, too :-)

    I'm Asian, so my skin is not fair, but I'm very nervous... I have one question to all: Do I need a wig? I forgot to ask my RO last week.

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  • rorikorei
    rorikorei Member Posts: 25
    edited July 2012

    Hello, kylin8. Thank you for your message. I don't know if you are on your treatment now, but I hope it will go as easy as possible.

    I really felt your virtual hugSmile!

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  • lovetosail
    lovetosail Member Posts: 544
    edited July 2012

    Hi Rorikorei,

    You won't need a wig for radiation.  The only hair you might lose is armpit hair, and that is a plus, right? :)

    I race sailboats too!  Where does your sister live and what kind of boat does she have?  I live in the Los Angeles area and race in a variety of boats, from ~5 to 10 meters long.

    Sue

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  • rorikorei
    rorikorei Member Posts: 25
    edited July 2012

    Thank you for your message, lovetosail. I won't need a wig, that's good to know. Thank you.

    My sister lives in Osaka, but she has a summer house in Wakayama. Her boat is yamaha26s2, 26 footer, which is made in Japan.

    I went to see my RO today for a marking, but it has been extended to next week because my scar has not closed yet. I don't want to wait, but I have to relax and deal with it.

    I will pray for everyone who have been going through their treatments.

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  • kylin8
    kylin8 Member Posts: 9
    edited August 2012

    Hi rorikorei,

    No, I'm not on treatment yet. We won't know until I have surgery... Undecided Thanks for your good wishes.

    You are so welcome!

    Your original post made my heart go out to you and it was heartwarming to me to see all the responses that you got from all of these wonderful women! This board has been such a fantastic source of information for me!

    Hope you're doing well. Smile

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  • rorikorei
    rorikorei Member Posts: 25
    edited August 2012

    kylin8, I'm doing fine, thank you. Hope your surgery will be over ASAP.  I will see my RO for a marking tomorrow but it seems like it will extend again since my scar has still opend up. My oncologist said it is not healing quickly because of mastectomy... I hope I can start radiation soon.

    The messages from everybody gave me a lot of power. I'm glad I found this boardSmile

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  • kylin8
    kylin8 Member Posts: 9
    edited August 2012

    Thank you rorikorei. Smile

    I hope that your appt with your RO went well. I am so sorry that you are having these problems! I am keeping you in my thoughts and prayers. Yes, we are both feeling very fortunate to have found this board!

    Laughing

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  • rorikorei
    rorikorei Member Posts: 25
    edited August 2012

    I went to see my RO this Friday for the second time for a marking. He said the scar is still opened up, and actually it is getting worse. He also said I am not ready for radiation at all. I will go back to my plastic surgeon this week to see what is going on.

    Thank you for thinking about me, kylin8Smile

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  • kylin8
    kylin8 Member Posts: 9
    edited August 2012

    Oh no....Frown I am so sorry.  Sending prayers your way .....

     Hugs Kiss

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