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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012

    Barbe   Love it.

  • Kmtmom1
    Kmtmom1 Member Posts: 27
    edited July 2012

    That's hilarious about your male coworker Barbe! 

    I called my BS this morning and the person who answered said she was just talking about me!  She said she was on the phone with someone getting the MRI precertified.  My 14th cycle day is Wed so they are trying to get it in before then so I don't have to wait until next month.  She said the Dr took my reports home last night and that she was in surgery now.  She said she personally didn't know the results and as soon as the Dr got back to the office she would call me.  I guess it's a good thing that she didn't call me first thing this morning if she took my chart home with her!  They received my mammo from 2010 yesterday afternoon for the radiologist to compare.  Here's to hoping for a GOOD PHONE CALL this afternoon!!!  I'll keep you posted.  Thanks again ladies for all your advice and suppport.  Praying for all of you sweet ladies.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2012

    K--I like the sound of the office, they are working on stuff for you!  Stay calm, I think you may need a ...massage or a pedicure this afternoon, statistics show that it helps to calm stress~~

    ok, my statistics but it helps me~

  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012

    K I agree with Proud--sounds like they are really taking care of u. Good

    and proud my statistics are aromatherapy---and who can prove us wrong. LOL

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2012

    yeap, aroma therapy is good to me as well, all things to gentle the soul

  • Kmtmom1
    Kmtmom1 Member Posts: 27
    edited July 2012

    I like all these "statistics". May have to take Dr's orders! Haha!

    What's the best way, or just simply, how do I ask the BS when they call back what my BI-RADS level or category is from the mammo? How do you pronounce BI-RADS? Is it bi or bee? Just don't want to sound like an idiot! :)

  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012

    Kmt--u will have plenty of answers soon--and please u won't sound like an idiot--all this ime and I don't even know what Bi-rads are--Now I am the idiot. LOL Every village has one and I've claimed it.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2012

    it is Bi I think and you can ask doc all you want, I like to get them to send me a copy as my brain is foggy some days and I like to keep a paper trail

    your BS will explain it to you or she should, but I do have memory issues so that is why the paper trail

  • FernMF
    FernMF Member Posts: 349
    edited July 2012

    I am to begin Taxotere/Cytoxan on July 31 . . . any "helpful hints" or loving warnings . . . I'm scared . . .

  • wrsmith2x
    wrsmith2x Member Posts: 410
    edited July 2012

    FernMF, 

    I had T/C 4 rounds, one every 3 weeks.  Fatigue was my worst symptom with that chemo.  Fingernails did some weird things but never fell off.   Had to have Neupogen shots every time and they were pretty awful.  Made me have back spasms that were quite painful....until the onc sent me Darvocets...lol....then all was OK.  Not much nausea but had good meds for that too.  Skin was awesome....very clear and soft.

    I started losing my hair around day 13 and finally buzzed it until my head started hurting from the hair falling out and then I had hubby shave me down to the skin.  Actually very freeing!  Anyway, I blogged the whole time and you can read stuff I went through during chemo here  http://wrsmith.blogspot.com/ - go back to beginning (2007) for chemo stuff.

    I wish you luck.  T/C isn't as bad as the red devil and is very doable.  I pray it will be over soon and you will be on the other side celebrating putting the beast behind you!  Namaste'. 

  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012

    This is so strange for me--cuz I have no idea all the chemos I had--the only 2 I know Taxol and the red devil--I didn't like that name but I purposely peed at home for my dgtrs so they'd freak out. They are in their 40's and still freak out--I know I really sound sick but come on I had to have some fun. They did tell me every time they changed it--but I never paid attention as usual.

    And I probably said this before cuz I usually repeat myself these days---but my cat found my tumors--she would relentlessly push at them everynite--I thought she was etting perverted until I check and wow they were big so that's why I went for a mamm. and the rest is history. And it's funny cuz she always sleeps under my neck and this last month I've had problems and been in the hospital 2x almost a week each time. And she will not lau on me, next to me but not snuggle--Now do I tell the Drs. my cat isn't happy with whats going on when I'm treated LOL--They would put me in a whole different ward????

  • Kmtmom1
    Kmtmom1 Member Posts: 27
    edited July 2012

    Mammo and u/s came back negative! Praise GOD! I go for an MRI to be 100% next week. Thank u again for all who read my questions and had their comments and advice for me. Meant so much. You will all continue to be in my prayers. Good luck to you beautiful, strong ladies! Keep your faith... So glad this site exist.

  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012

    Good news KMT very good.

  • ridergirl
    ridergirl Member Posts: 443
    edited July 2012

    So happy for your good news:-)

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2012

    FABULOUS news!!!! We like to hear that!!

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2012

    not much better than a good test! celebrate!

    have you had your spa treatments yet?  be happy to send my pal Chuck to give you a facial!

  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012

    CHUCK  U mean like Magic Chuck.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2012

    huh, I remember hearing that martha stewart has a facial every month.

    have you seen her complexion?  mano she was in jail back a while back!  So dear Chuck is so nice to do my facial when ever I have a bad test coming up or when I can afford some pampering!  Now he asks me...why and what is with you this time?  Sweetie pie that he is! So year, magic chuck is anyone that can get me calm and BP down a bit!

  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012
    Oh proud I was only teasing--anyone for any reason who can relax u is Magic. I know I have some rituals and I feel better mentally, which means alot--I have never had a facial tho--that would be nice. Marilyn Miglin invited me to her salon for a day and I was to sick to o--I would have had my facial--Oh well I'll stick to what I do and try to destress too. Wink
  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2012

    camil, no offense and I understand the teasing but I like to use these things to keep me cool.

    it almost....almost makes me look forward to dumb testing. Do think you should try to take Marilyn up on her offer of a salon day!  I do this stuff at the spa at my gym, and the cost is very reasonable so it has become my little treat. 

  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012

    Proud I'm sorry I take no offense I have a sarcastic sense of hunir, not funny I know> I actually would do the facial thing but it's much to far for me to go. My girlfriend came in from CA to take me--she's nuttier than me, then I got sick again. LOL I would love to get an old fashion message sounds so relaxing, but they have to do a special one for cancer with a lot of node removal--and it's like nothing to feel. And some won't even work on u, so that counts me out of that one--which to me sounds great.

    Please proud don't take me seriously sometimes I would hat to think I hurt u'r feeling or anyone's for that matter. All of u mean alot to me and help me so much--u guys know so much and are amazing to me--so please forgive me if u thought I was insulting u--I wasn't at all.Embarassed

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2012

    Camille, we are cool~and you are not insulting, your stats indicate you have been through way more than me and you are still here

    actually I am trying to work a plan for me to retire next year and take on a less stressful job.  I have to keep working for the insurance now

    I started to do some research on the lymphadema massage (got it slightly) training as around my area, it is rather in demand and not many places with well trained LANA massage folks

    I need to try to keep working and

  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012

    Thanks proud I feel better--I know the massage is not easily found around here anyway.

    Oh and working--that's difficult to do I did retire finally, but insurance is the most important thing especially in our circumstances. I'm on medicare and since I worked for over 20 yrs. at my place they pick most of the rest up. So that part I'm lucky---But my salary has taken a plunge so it's a pain to me. Sometimes we have no choice, but I sure hope u succeed in u'r choices--sounds good.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2012

    Cam...yeah, I think about changing jobs but not easy to do and scary as can not afford to loose insurance so just hang on to a job that pays me less each year

    retirement for me is 18 months from now so hoping health and my company both survive that long.

  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012

    Proud 18 months is so close and seems like it's not, yea at this point it's scary I know. I didn't have much concern for my pension I worked for the State, but u can't be 100% sure of anything anymore. I'm living with my dgtr--which I had no plan of doing, and it's fine-but I lived alone for 25 yrs so we all have to adjust, but sometimes it's good especially when this last month I was rushed to the hospital 2x both around midnite--I felt safe and then I just tell her to leave once I'm there-so I was lucky that way, but I feel bad for them. So if I could stil work, I would have  (for the money) not for the love of the job LOL)

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited July 2012

    I found my painless, approximately 2cm lump myself, after receiving an "all-clear" mammogram about five months before.  I don't know why I decided to check that night (May 31, 2011 at 9:34 p.m. - like THAT isn't etched into my brain forever!), but I did and... there it was.  I sat bolt upright; felt again; and I knew.  I just knew. 

    My mother was just finishing up five years of Arimidex following her mastectomy and we share the same GP.  I'd read that you should wait a month and see if the lump changes with your cycle, but I made an appointment to see him as soon as I could.  I was, already, booked in for an annual physical in a week, but I asked his nurse to bump me into the first available cancellation.  My GP examined the lump; pronounced it "... soft and mobile...", but, also, said, "... let's not risk it ..."  I went from that appointment directly to the lab (I hadn't been able to eat, so was able to have bloodwork right away) for a complete blood panel, CEA and tumor marker tests.  Everything came back normal/negative.  The next day I had a diagnostic mammogram, which came back "inconclusive".  Five days later I had an ultrasound, which came back "highly suspicious solid, lobulated mass" in my left breast and "clinically negative" axillary lymph nodes.  A week after that, I had a core needle biopsy, which came back positive for IDC.

    My surgeon was astounded that I had found the lump - he said that it was "... very subtle..." - and he assured me that, given what he was seeing of my results, that this was early-stage and very treatable.  He was unsure of my exact staging, saying that I seemed to be on the borderline between late Stage 1 and early Stage 2, but that he would know more after my surgery.  He said that a mastectomy was unnecessary, given that the lump was dominant and there was no evidence of multi-focal disease, widespread DCIS or contralateral disease, but - if I really wanted one for peace-of-mind going forward - then he would do one.  (He, also, said that if he "... got in there..." and didn't like what he saw, he would do a mastectomy anyway.)  I opted for the less invasive surgery, fully confident that - if I needed a mastectomy - he would do what was necessary.

    After surgery, my pathology indicated that I had a positive sentinal node (which had been "infected" through tissue spread because of its proximity to the lump), but that my Level 1 axillary nodes were "clear".  The lump was removed with a wide, clear margin and I, also, had no evidence of DCIS or lymphovascular invasion.   My pathology bumped me to a Stage 2.  All further staging tests - bone scan, abdominal ultrasound, chest x-ray, etc. - were "clear".  But that one positive lymph node was problematic. My surgeon said that I may have been recommended for chemotherapy even if I had been node-negative given my age (his reasoning was, I was only 50 years old and the average North American woman lives to be 80 years, so if I was get through the next 30 years disease-free, chemotherapy would provide an added "edge".), I would, probably, be recommended for chemotherapy. He was right; my oncology team agreed that it was the size of my tumor - a little over 2cm - that was the deciding factor not my lymph node status. Apparently, research has shown that - once that tumour goes over 2cm in size - it begins "shedding" cancer cells. Just because those cells don't appear in your lymph nodes or in your blood, doesn't mean that they are not, possibly, "out there" somewhere. So... chemotherapy it was. Didn't want it, but didn't feel that I should risk turning it down.

    My diagnosis was July 8, 2011, so I'm one year out now. Treatment is behind me; my hair has grown back; I'm not having any significant problems with tamoxifen; I'm cycling 20+ miles a week; and I'm back-to-work.  Every so often the cancer-demon torments my dreams or whispers evil things in my ear, but it's getting weaker. I refuse to listen to it. My "residual risk" of relapse is, as my MO says, "minimal" (about 12-14%) and I have to trust that I will fall into the majority of women with my diagnosis/treatment who will do just fine.  Obsessing about that number won't change what has happened, nor will it influence what will happen in the future.  Although I was always disgustingly healthy - didn't smoke, didn't drink (much), kept my weight down, kept active, and ate a healthy, predominantly plant-food diet - I was still able to "tweek" a few things in my life to remain as healthy as possible going forward.  But I think of that less as a means to avoid recurrence and more of a means to live a longer, healthier life period.

    I refuse to be a cancer "victim".  I would, even, reject the term "cancer survivor", at least where I am concerned.  I am still me.  I just happen to have had the misfortune to have cancer.  Nobody thinks of someone who has had a heart attack as a "heart attack survivor" or someone with diabetes as a "diabetes survivor".  I refuse to think of myself as something "apart", "different", or "special" because of my cancer.  It just was!   And then, thankfully, it wasn't. 

     And I'm still here.

  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012

    Selena it's something how some just seem to know and are not shocked at all with hearing it and just want to know what do we do about it. I really feel bad when I read someone is shocked it's much more scary (I think) and the waiting horrendous.

  • beth1965
    beth1965 Member Posts: 455
    edited July 2012

    Hi- everyone thought it was cancer right away.  I was put through testing lightening fast all in one day they put me in front of everyone even though i had no appointments. I was told it was cancer that day.

  • camillegal
    camillegal Member Posts: 16,882
    edited July 2012

    Beth u sound like u have had a super team to take care of u.

  • firestorm531
    firestorm531 Member Posts: 176
    edited July 2012

    My GYN said it could be a caffeine cyst (my mom gets them) but said only tests could determine what was found on my scans...

    Radiologist said she was 'very concerned'.  Between the look on her face and the image I saw on the US screen...I knew what was coming.

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